Re: special-need beds

[Guest guest]

Lyn,

Nice to hear from you again. I've tried for 2 years to get a Vail bed.

Medicaid will not pay for them any more. They say they are unsafe. UCP told

me they now go with making the bedroom safe for the child. That's what we're

doing now for Seth. It's been a lot of work to coordinate all the service

providers, but we are finally making headway. We got his outlet moved and

the Dutch door is being cut and installed this week. We still have to have

the windows replaced with Plexiglas and have the walls covered with an

inedible covering. I hope things are better for you now. You sound more *at

peace*.

Gail :-)

<< Hi all, sorry I haven't posted in a while. Been extremely busy

tending to my two little ones. Still going it 'alone'.

I have a question I was wondering if any of you have a suggestion for

me: What type of bed do you move a child to from a crib when he is

too big for the crib and a toddler bed is virtually the same size.

Plus he is not mature enough motor and cognitively to be out of a

crib. Just too big to be in it. I have researched the net and found

the hospital metal type of large cribs, which would totally freak

Josiah out. and then I found a bed called a VAIL which is basically

a regular bed enclosed in a netting. This looks like it would be

most appropriate for his needs but in my research I found that it is

very difficult if not impossible to get Medicaid to pay for such a

bed. Any experience out there on this type of bed?

Also to put a mattress on the floor would not be a good thing

considering all his respiratory problems. So beyond that any more

suggestions???

Thanks everyone.

Lyn >>

[Guest guest]

Hi Lyn,

When Matt moved from his toddler bed to a big bed, we got a little tykes

race car bed in the twin size.

We use a bunkie board instead of box springs, and put it on the lowest

level.

The mattress is down from the sides, by about 4-6 inches, which is enough

to keep Matt from rolling out, but he can get out. If you need something

to contain your son, this will not work. But if you just need to keep him

from falling out of a bed, this has worked VERY well for our family.

S

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[Guest guest]

Lyn,

We got a captains bed and put a bedrail on the side so he doesn't fall

out. At my mom's we use a daybed and a bedrail on the open side.

thrashes around when he sleeps so I wanted to get something that keeps him

in bed. The captains beds are usually up high so maybe the day bed would

help if your little one is too small. The daybeds have 3 sides railed off.

Tollefson

special-need beds

> Hi all, sorry I haven't posted in a while. Been extremely busy

> tending to my two little ones. Still going it 'alone'.

>

> I have a question I was wondering if any of you have a suggestion for

> me: What type of bed do you move a child to from a crib when he is

> too big for the crib and a toddler bed is virtually the same size.

> Plus he is not mature enough motor and cognitively to be out of a

> crib. Just too big to be in it. I have researched the net and found

> the hospital metal type of large cribs, which would totally freak

> Josiah out. and then I found a bed called a VAIL which is basically

> a regular bed enclosed in a netting. This looks like it would be

> most appropriate for his needs but in my research I found that it is

> very difficult if not impossible to get Medicaid to pay for such a

> bed. Any experience out there on this type of bed?

>

> Also to put a mattress on the floor would not be a good thing

> considering all his respiratory problems. So beyond that any more

> suggestions???

>

> Thanks everyone.

> Lyn

>

>

>

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[Guest guest]

In a message dated 7/10/02 4:19:53 PM Eastern Daylight Time,

stolzfamily@... writes:

> If you need something

> to contain your son, this will not work. But if you just need to keep him

> from falling out of a bed, this has worked VERY well for our family.

>

We have something called a sleigh bed for Maddie. I bought it at Pottery

Barn and it works beautifully; even looks beautiful. AND she'll sleep in it

well into adulthood!!

Donna

[Guest guest]

we have a vial bed, we used it about 5-6years,down

stairs in storage now, and last summer nathan stopped

pretty much falling out of bed and the fall before

that he stopped wandering around. As of last fall we

invested in a bunk type of bed(he shares room with

brother) and brother(Nick) uses the twin top bun,

while nathan uses the full size bottom bunk. I

occasionally have to put a couple pillows beside him

has been falling out off and on this summer--huh? abut

he loves his big boy bed and we love just folding his

comforters up and tossing them up on top so he doesnt

throw them all round as he does when on his bed. As

for getting it, it took about a year of back and forth

arguing and virtually no sleep, but after UIHC(our

hospital) wrote our insurance a real nasty letter they

finally payed for it. 's really needs a new vail

now too soo im pretty glad he is able to use his big

boy bed. ID have to say the vail bed was one of our

best medical equipment to fight for. We keep it nicely

stored in rubbermaid containers except frame and dry

area too for just in case when he is older, and when

we hopefully buy a house this winter or next summer we

sill still use the bed frame, but he is in dire need

of a new mattress, and we about to get one but halted

for a bigger bed for now. shawna.

--- eljmom2trio <eljmom2trio@...> wrote:

> Hi all, sorry I haven't posted in a while. Been

> extremely busy

> tending to my two little ones. Still going it

> 'alone'.

>

> I have a question I was wondering if any of you have

> a suggestion for

> me: What type of bed do you move a child to from a

> crib when he is

> too big for the crib and a toddler bed is virtually

> the same size.

> Plus he is not mature enough motor and cognitively

> to be out of a

> crib. Just too big to be in it. I have researched

> the net and found

> the hospital metal type of large cribs, which would

> totally freak

> Josiah out. and then I found a bed called a VAIL

> which is basically

> a regular bed enclosed in a netting. This looks

> like it would be

> most appropriate for his needs but in my research I

> found that it is

> very difficult if not impossible to get Medicaid to

> pay for such a

> bed. Any experience out there on this type of bed?

>

> Also to put a mattress on the floor would not be a

> good thing

> considering all his respiratory problems. So beyond

> that any more

> suggestions???

>

> Thanks everyone.

> Lyn

>

>

>

[Guest guest]

yes, also before nathan started wandering at nocs we

use to use a low filled water bed as some carecenters

use , he wouldnt fall out cause the padded sides up to

high and being soo soft it was harder to try and get

out of, plus the heat was nice cause he never stays

covered well. shawna.

--- J Stolz <stolzfamily@...> wrote:

> Hi Lyn,

> When Matt moved from his toddler bed to a big bed,

> we got a little tykes

> race car bed in the twin size.

> We use a bunkie board instead of box springs, and

> put it on the lowest

> level.

> The mattress is down from the sides, by about 4-6

> inches, which is enough

> to keep Matt from rolling out, but he can get out.

> If you need something

> to contain your son, this will not work. But if you

> just need to keep him

> from falling out of a bed, this has worked VERY well

> for our family.

>

> S

>

>

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> Juno offers FREE or PREMIUM Internet access for

> less!

> Join Juno today! For your FREE software, visit:

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>

>

[Guest guest]

It was intersting by reading y'all posts on

specia-needs beds. I haven't even heard about it or

seen a special need beds. I'm guessing that their

hard to find or to buy one.

--- duffey48@... wrote:

> In a message dated 7/10/02 4:19:53 PM Eastern

> Daylight Time,

> stolzfamily@... writes:

>

>

> > If you need something

> > to contain your son, this will not work. But if

> you just need to keep him

> > from falling out of a bed, this has worked VERY

> well for our family.

> >

>

> We have something called a sleigh bed for Maddie.

> I bought it at Pottery

> Barn and it works beautifully; even looks beautiful.

> AND she'll sleep in it

> well into adulthood!!

> Donna

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hello everyone. Thanks for the input on the bed dilema. You all

have been very helpful with your suggestions.

I have done a slight bit of research on trying to get a Vail bed here

inFL; and what I have realized is it would be next to impossible to

get it covered and if by chance we did it would be a major full-scale

battle to do so. Also I have been giving the whole subject a LOT of

thought and prayer as I want to make the best investment for Josiah's

long-term benefit. And What I feel is that if at all possible I

would like to see him be able to function in a 'normal'

capacity...climb in and out on his own. Which for now would be a

bit difficult as he can't walk and doesn't really crawl. But

hopefully with a lot of training and directing he will eventually get

there. And with that directive in mind I think that the Little Tike

Car Bed might just be the best solution for us. It would be plastic

so that would be easier on his head should he bang it. And it is

realitively low to the ground.. so I thought for a while I would put

pads around it just in case plus it would be on a wooden floor which

is also easier on the head. And then just use the mattress alone on

the lowest rung to keep him from rolling out in his sleep. I really

hope that it will work for him. And I thank you all for your

suggestions and feedback; I hadn't even thought of the car for a bed

for him. Thanks everybody and I'll let you know how it works out.

Sincerely,

Lyn

[Guest guest]

--I have a patient in a bed with a vinyl top and the top comes down to the

raillings. IT is VERY HOT in the summer.

But we didn't do that. We installed a screen door with rat screen - very

strong- on the door and latched it on the outside. Then Elie could get in

and out of bed, but he couldn't get out of his room. For less motor kids, a

half door might do. We had that first until Elie learned to climb over it.

He now sleeps in a regular bed. We do have a large, 4 ft. high gate at the

top of the stairs with a bell but it is closed only with velcro in case of

fire. It is just to let me know if he decides to wander the house at night

- he doesn't do it very often now.

Sara

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[Guest guest]

Hmm, I remember this too, wondering which bed after the crib as

at that age he would fall off all the time, when we had tried

placing him on a regular twin bed. We purchase some bunk beds and the

top bunk had built in rails on the side. Well, we decided to separate

the beds and not use them as bunks as loved to climb. To this

day he still uses this bed and has not fallen off we're always having

to replace the mattress, as a matter of fact I think we should look

into another bed as whenever he feels like sleeping on my bed and its

high he does well. So maybe he has graduated from his old bed. Luck

with your decision when you find one. Hugs.

Irma,13,DS/ASD

> Hi all, sorry I haven't posted in a while. Been extremely busy

> tending to my two little ones. Still going it 'alone'.

>

> I have a question I was wondering if any of you have a suggestion

for

> me: What type of bed do you move a child to from a crib when he is

> too big for the crib and a toddler bed is virtually the same size.

> Plus he is not mature enough motor and cognitively to be out of a

> crib. Just too big to be in it. I have researched the net and

found

> the hospital metal type of large cribs, which would totally freak

> Josiah out. and then I found a bed called a VAIL which is

basically

> a regular bed enclosed in a netting. This looks like it would be

> most appropriate for his needs but in my research I found that it

is

> very difficult if not impossible to get Medicaid to pay for such a

> bed. Any experience out there on this type of bed?

>

> Also to put a mattress on the floor would not be a good thing

> considering all his respiratory problems. So beyond that any more

> suggestions???

>

> Thanks everyone.

> Lyn