Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 Hi, all. I was wondering if any of you have this problem. I just recently got the report back from my son's GI doc for his last clinic visit and on it he makes this statement: " Josiah is a little fellow who has Down Syndrome. He is mainly fed by gastrostomy tube feeding. He has a feeding disorder. Mom considers him autistic. ... " Why is it he acknowledges the Down Syndrome but basically discounts the Autism with 'Mom CONSIDERS him autistic'?!? His geneticist has written on several occassions diagnosing him AUTISTIC. If any of you ever saw him, there is absolutely NO DOUBT he has AUTISM! Even an ignorant novice can see there is SOMETHING wrong besides JUST Down SYNDROME! Why is it so hard for some doctors to acknowledge this aspect of my son, do you think? I get so frustrated when I tell them and then it is stated as " Mom CONSIDERS... " !!! As if I just decided thats what I wanted to label him. How should I handle this? I don't know what else to say to them. I have also told and shown them the Rx and clinic reports from his geneticist diagnosing the Autism and STILL it makes no impact but that I " THINK " or " CONSIDER " him autistic. P.S. At the very first visit (in person) with his geneticist years ago, he questioned me was 'I' aware Josiah had Autistic Spectrum Disorder? He saw it right off, without me even describing all the problems and deficits. Why can't any of these other doctors see it? Or at least respect me when I tell them that IS the case? Same goes for the therapists we see... Lyn mom to JM-17, Josiah-5 DS/ASD, Tabitha-22mo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 In a message dated 6/2/2002 4:42:57 PM Eastern Daylight Time, eljmom2trio@... writes: > I have also told and shown them the Rx and > clinic reports from his geneticist diagnosing the Autism and STILL it > makes no impact but that I " THINK " or " CONSIDER " him autistic. Hi Lyn, If I can't get any respect from a dr. I find another. I know easier said than done. Have you discussed this problem with them. I certainly would.I would tell them exactly how you feel. Charlyne Mom to Zeb 9 DS/OCD ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Boy, did I go through this for 12 years as we confronted many docs in every town we lived at throughout TX., even during traveling you would think somebody would of said something. Ok, I was not aware of the word autism, but just observing and comparing him to other Downs it was not normal or typical, I did not need a degree for that. Then as I've always mentioned, Thanks to my prayers being answered when I came across a precious Guardian Angel who wrote about her son and shared it with friends, which by the way still being distributed throughout the internet, The Disability Solution Newsletter. Y'all can imagine the rest, INTERNET just ruled! Research, research. I was glued and when I had gathered all my info and still do, I finally had the educational/medical professionals listening and finally learned along with me. Last Thursday was 's last day of school went to his social end of the year gathering event and just about every school staff, including the principal would just give me a hug and thanked hubby and I for what we've done in finding some answers to help our son and results have shown tremendously. It felt good as will be 14 this coming July. So ya'll hang in there and you keep listening to your heart and expressing what you believe. I did have to start out slowly by the using the words autistic spectrum disorder then it finally became the single word autism. Just to add to my novel here. Yesterday my dh and I finally took to watch the new release movie Star Wars Episode II, which is his favorite. Its work taking him to the theatre. Just driving out to park he starts to say his famous words " NO, no " . Then figuring out ot get him off the car with all his favorite toy and his good old beat up headless elephant he uses for stimming. Then dad ends up giving a piggy-back ride to the entrance. Dad decides to wait with before entering as there's a line to purchase tickets, I ended up waiting as dad dealt with . Then as I had gotten near to purchase our ticket. I noticed this young adult waiting for his turn all alone to purchase his ticket and had ask what he wanted to see & what time, knew how much to give, waited for his change and thanked the ticket teller and off he went, yes, he was Down's. You can imagine what went through my mind, I know will not be able to do that. Oops, got to get to work. Oh, My dh stayed behind with in the lobby once entered, I went to save us some seats until the movie would start and then finally it had started and heard the Star War music and sat next to me and loved the movie. The End. : ) Later, y'all take care. Irma,13,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 In a message dated 6/2/02 4:43:06 PM Eastern Daylight Time, eljmom2trio@... writes: > I " THINK " or " CONSIDER " him autistic. > We had the same problem. It seemed that as soon as one doctor had the balls to call it autism, they all called it autism. It took years for someone to finally tell it like it is. All of the doctors we were seeing just seemed like they didn't want to be the first to diagnose the autism. Now they all see it. Go figure! Judy Quote Link to comment Share on other sites More sharing options...
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