Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Let me know what the doctor says. Pat K Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 He has tardive diskinesia (sp) I love my Kids, Special needs and all! Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Yes, Karac got TD from Risperdal and Geodon. It took almost two years of no meds for him to overcome it. It was the worst time of my life. hugs, Pat K Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 I'm so not looking forward to this, the school keeps calling on it as it is! Does it get worse I love my Kids, Special needs and all! Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Pat,What does TD mean/ present/ or show? New to this? Thanks for explaining. Sent on the Sprint® Now Network from my BlackBerry®From: Pat <pkuenstler@...>Sender: autism Date: Wed, 19 Jan 2011 22:12:16 -0500 (EST)<autism >Reply autism Subject: Re: Prayers plz Yes, Karac got TD from Risperdal and Geodon. It took almost two years of no meds for him to overcome it. It was the worst time of my life. hugs, Pat K Prayers plzI HATE snow! That being said I have to get out in this crap to takeAndy to the dr. To see why he has been having seizure like tonguethrusting movements.I love my Kids, Special needs and all!------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Oh, I am so sorry for your children. Can you tell me what TD looks like? started doing this strange licking his lips motion with the abilify. When he takes the Klonopin for anxiety it goes away. Sometimes he reminds you of a turtle. Then they tried putting him on prozac and he was having tremors, shaking all over, whole body weakness, gagging, vomiting, having horrible night sweats, and collaped twice in the grocery store. A friend said it sounded a little like serotonin syndrome, so I decreased it down to 1/2ml. a day. Right now the neurologist will barely return my calls, so I am looking for someone new. Drissia From: Pat <pkuenstler@...>Subject: Re: Prayers plzautism Date: Wednesday, January 19, 2011, 10:12 PM Yes, Karac got TD from Risperdal and Geodon. It took almost two years of no meds for him to overcome it. It was the worst time of my life. hugs, Pat K Prayers plzI HATE snow! That being said I have to get out in this crap to takeAndy to the dr. To see why he has been having seizure like tonguethrusting movements.I love my Kids, Special needs and all!------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 My son was tongue thrusting (like a baby just starting to eat cereal) licking/smacking lips and he doesn't know he does itI love my Kids, Special needs and all!From: drissia wright <ritzywright@...>Sender: autism Date: Wed, 19 Jan 2011 19:26:42 -0800 (PST)<autism >Reply autism Subject: Re: Prayers plzOh, I am so sorry for your children. Can you tell me what TD looks like? started doing this strange licking his lips motion with the abilify. When he takes the Klonopin for anxiety it goes away. Sometimes he reminds you of a turtle. Then they tried putting him on prozac and he was having tremors, shaking all over, whole body weakness, gagging, vomiting, having horrible night sweats, and collaped twice in the grocery store. A friend said it sounded a little like serotonin syndrome, so I decreased it down to 1/2ml. a day. Right now the neurologist will barely return my calls, so I am looking for someone new. DrissiaFrom: Pat <pkuenstler@...>Subject: Re: Prayers plzautism Date: Wednesday, January 19, 2011, 10:12 PM Yes, Karac got TD from Risperdal and Geodon. It took almost two years of no meds for him to overcome it. It was the worst time of my life. hugs, Pat K Prayers plzI HATE snow! That being said I have to get out in this crap to takeAndy to the dr. To see why he has been having seizure like tonguethrusting movements.I love my Kids, Special needs and all!------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 That sounds very much like what does and I have told the neurologist, but he doesn't seem to care. Calls it a tic. The Klonopin is for anxiety and I understand that slows down his brain. From: Pat <pkuenstler@...>Subject: Re: Prayers plzautism Date: Wednesday, January 19, 2011, 10:12 PM Yes, Karac got TD from Risperdal and Geodon. It took almost two years of no meds for him to overcome it. It was the worst time of my life. hugs, Pat K Prayers plzI HATE snow! That being said I have to get out in this crap to takeAndy to the dr. To see why he has been having seizure like tonguethrusting movements.I love my Kids, Special needs and all!------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 My sons peds dr. Is the one that found this. Omg I love his dr we were 45 minutes late tonight because of weather and he met us as he was leaving he came back to see Andy! That's a great dr!I love my Kids, Special needs and all!From: drissia wright <ritzywright@...>Sender: autism Date: Wed, 19 Jan 2011 19:44:05 -0800 (PST)<autism >Reply autism Subject: Re: Prayers plzThat sounds very much like what does and I have told the neurologist, but he doesn't seem to care. Calls it a tic. The Klonopin is for anxiety and I understand that slows down his brain.From: Pat <pkuenstler@...>Subject: Re: Prayers plzautism Date: Wednesday, January 19, 2011, 10:12 PM Yes, Karac got TD from Risperdal and Geodon. It took almost two years of no meds for him to overcome it. It was the worst time of my life. hugs, Pat K Prayers plzI HATE snow! That being said I have to get out in this crap to takeAndy to the dr. To see why he has been having seizure like tonguethrusting movements.I love my Kids, Special needs and all!------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Karac's didn't get worse; the hardest part was the withdrawal from the drugs, and his frustration at being able to stop it. I took him to doctors and they couldn't help. I prayed and asked everybody I knew who prayed to pray for him. It gradually stopped. Pat K Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 With Karac the TD caused uncontrollable muscle movements on toes, hands, and mouth; it was very sad because he didn't understand it, I thank God that it finally stopped. I had told the ped. psy. that I was afraid the dosage was too high and that I was afraid of TD; he scoffed at me, and I am not totally ignorant; I do read and as a Ph.D. I had a class in pharmacology. Pat K Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Tardive dyskinesia is involuntary facial movements, including tongue, eyes, and lips. Pat K Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Konopin is one of the safer antianxiety agents. Pat K Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 He sounds like one of a kind. Good for you. hugs, Pat K Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Ok thanks. That makes me feel better. I understand there is a problem building a tolerance. When he was having his wisdom teeth removed, he was taking pain meds with valium. That also worked to stop the anxiety and the combative behaviors. DrissiaFrom: Pat <pkuenstler@...>Subject: Re: Prayers plzautism Date: Wednesday, January 19, 2011, 10:12 PM Yes, Karac got TD from Risperdal and Geodon. It took almost two yearsof no meds for him to overcome it. It was the worst time of my life.hugs, Pat K Prayers plzI HATE snow! That being said I have to get out in this crap to takeAndy to the dr. To see why he has been having seizure like tonguethrusting movements.I love my Kids, Special needs and all!------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Pat, How did you ever get through to them or did you have to change doctors? There is a neuropsychiatrist that has been highly recommended by a couple of people, but he is a typical doctor, and the one he goes to now gets "mixed reviews" in the dd community. I don't want to change unless I know he is going to be a better fit for . I am terrified of what these drugs do to the liver and brain over the long haul. Did they find something better for Karac than what he was on? Do you do biomed? We have considered a Dan doctor but the closest one is 4 hours away(in Raleigh) and I am a country girl who doesn't have a good sense of direction or drive well in big cities. DrissiaFrom: Pat <pkuenstler@...>Subject: Re: Prayers plzautism Date: Wednesday, January 19, 2011, 10:12 PM Yes, Karac got TD from Risperdal and Geodon. It took almost two yearsof no meds for him to overcome it. It was the worst time of my life.hugs, Pat K Prayers plzI HATE snow! That being said I have to get out in this crap to takeAndy to the dr. To see why he has been having seizure like tonguethrusting movements.I love my Kids, Special needs and all!------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011  is he taking resperdal? that causes it. lois Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 We quit the doctor; took Karac off all drugs. He just goes to a family doctor if he is sick which he rarely is. He went to a Dan doctor at one time who gave him the secretin. the first secretin seemed helpful but the second did nothing, and the third caused aggression. We quit that and the Dan doctor. The only thing that ever helped Karac was the ABA. Pat K Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 That's a releif. It frustrates andy when the kids and teachers point it out. Its not in a nice way that the kids do it either. Benadryl seems to help them somewhat at least it makes them less noticeable I love my Kids, Special needs and all! Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Andys dr said that respedone or respidal causes it as well. Now we get to take him off all meds one at a time to see what's causing it I love my Kids, Special needs and all! Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 I'm going to hate it when he turns 18 lol he is so good with the kids too. He knows what they like to do and talks to them about it and talk andy does when he brings up the subject of the day. Lol I love my Kids, Special needs and all! Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Yes he was taking it. Dr. Kelley told me to take him off that and his rozerm I love my Kids, Special needs and all!From: " lois noland" <jlois@...>Sender: autism Date: Thu, 20 Jan 2011 11:10:07 -0500<autism >Reply autism Subject: Re: Prayers plzis he taking resperdal? that causes it. lois Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Where is Dr. Kelley? From: crazymisskitty@... <crazymisskitty@...>Subject: Re: Prayers plzautism Date: Thursday, January 20, 2011, 12:18 PM  Yes he was taking it. Dr. Kelley told me to take him off that and his rozerm I love my Kids, Special needs and all! From: " lois noland" <jlois@...> Sender: autism Date: Thu, 20 Jan 2011 11:10:07 -0500 <autism > Replyautism Subject: Re: Prayers plz is he taking resperdal? that causes it. lois Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements. I love my Kids, Special needs and all! ------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 In lawrence ksI love my Kids, Special needs and all!From: drissia wright <ritzywright@...>Sender: autism Date: Thu, 20 Jan 2011 10:12:10 -0800 (PST)<autism >Reply autism Subject: Re: Prayers plzWhere is Dr. Kelley?From: crazymisskitty@... <crazymisskitty@...>Subject: Re: Prayers plzautism Date: Thursday, January 20, 2011, 12:18 PM  Yes he was taking it. Dr. Kelley told me to take him off that and his rozerm I love my Kids, Special needs and all!From: " lois noland" <jlois@...> Sender: autism Date: Thu, 20 Jan 2011 11:10:07 -0500<autism >Replyautism Subject: Re: Prayers plzis he taking resperdal? that causes it. lois Prayers plz I HATE snow! That being said I have to get out in this crap to take Andy to the dr. To see why he has been having seizure like tongue thrusting movements.I love my Kids, Special needs and all! ------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Some places will make aba available in the schools and I heard recently that 8 states were requiring insurance companies to pay for it. Have you heard anything about that where you live?From: Pat <pkuenstler@...>Subject: Re: Prayers plzautism Date: Wednesday, January 19, 2011, 10:12 PM Yes, Karac got TD from Risperdal and Geodon. It took almost two yearsof no meds for him to overcome it. It was the worst time of my life.hugs, Pat K Prayers plzI HATE snow! That being said I have to get out in this crap to takeAndy to the dr. To see why he has been having seizure like tonguethrusting movements.I love my Kids, Special needs and all!------------------------------------ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.