Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Amy, Your post is so familiar to me. A couple of months ago, my daughter was in that situation too. Repeating things, weird noises, sounds bothering her SOOO much. It was so sad to watch. I felt like I was " losing " her. I feel for you. My daughter switched to prozac and is much better on it. She had been on zoloft and that was terrible. I think it made everything worse. We added seroquel (a little) as well. She is much better. Still very OCD, still does lots of strange things, but it is better. I don't have that scared feeling anymore. I do hope the medication change is helpful for her. Have you tried any other meds besides the SSRI's? How old is your daughter? I have heard that Topamax can be really good for OCD too. I wish you the best and I can really understand what you are going through. I am glad you are still able to know that it will get better. It always does..thinking of you, Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 I am sorry to hear that things are so tough. I know that feeling you are describing as a parent -it's awful to feel helpless and desparate at the same time. I hope that it ends soon and that the medication helps. Hugs Bonnie > > Hello all, > > We are hanging in there... My dd did not go to school today, she is barely > functioning. She slept most of the day and upon waking she was very out of > sorts. She was repeating things when talking (worries, fears, reassurance), > was disorientated, has been making these weird growling noises and is very > agitated with noises and people around her. Her sensory issues are > heightened, she just wants to wear a very big baggy T-shirt and her > underwear. She has only eaten chicken noodle soup and a few crackers. Has > only used the bathroom once today. > > Her doctor thinks the obsessions are increasing with no compulsions. He > suggested and wrote an RX to increase the Prozac. We are all a bit nervous > as she is medication sensitive and has had severe reactions (suicide > attempts) with other increases. He is also going to fill out the paperwork > for the hospital/homebound program, that will give her a tutor in the home > if she needs one. He also thinks that the fainting sensations could be due > to, to much stress/higher heart rate on her heart for extended periods of > time and wants to have an EKG done if our insurance will cover it. A full > physical and blood work as well. > > As far as the school, I have spoken to them today and when she returns we > are going to have a meeting with all her teachers and the staff that would > be involved with her through out each day to decide what everyone should be > doing. > > As a mom, I am very concerned, scared and very sad. I appreciate everyone > here and the support you bring to us during these hard times. I am still > doing alright and understand that things do get better. > > Thanks again to all of you! > > Amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Hi Ellen and others, My dd is 12 and she did try Zoloft and that was very bad for all of us. She has never had the medications you described. The doctor wants to try the increase first so we do not have a long wait time since she is going down hill. I find such comfort from everyone, as it lets me know that we are not the only family dealing with such issues. When she was first diagnosed we felt very alone and isolated, and no one really understood. This has been a great resource and has helped in so many ways. She did get back to school today, and seems to be interacting with us here at home. She does show a very low tolerance for coping with noise and changes that happen to quickly. We are seeing slight improvements with the other issues after her two day crash. I appreciate all the support and kind thoughts, Thanks. Amy _____ From: [mailto: ] On Behalf Of musicgirl9395 Sent: Wednesday, February 22, 2006 9:57 PM Subject: Barely functioning Amy, Your post is so familiar to me. A couple of months ago, my daughter was in that situation too. Repeating things, weird noises, sounds bothering her SOOO much. It was so sad to watch. I felt like I was " losing " her. I feel for you. My daughter switched to prozac and is much better on it. She had been on zoloft and that was terrible. I think it made everything worse. We added seroquel (a little) as well. She is much better. Still very OCD, still does lots of strange things, but it is better. I don't have that scared feeling anymore. I do hope the medication change is helpful for her. Have you tried any other meds besides the SSRI's? How old is your daughter? I have heard that Topamax can be really good for OCD too. I wish you the best and I can really understand what you are going through. I am glad you are still able to know that it will get better. It always does..thinking of you, Ellen Our list archives, bookmarks, files, and chat feature may be accessed at: / . Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... .. Quote Link to comment Share on other sites More sharing options...
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