Re: Re: Severe Autistic Problem

[Guest guest]

Hi, Yes, if you could share with us any tips.  Yes, we need a break, we haven't found the time yet as we're very consumed dealing with her daily life.Thanks a lot for the information.

On Wed, Mar 24, 2010 at 10:32 AM, Exceptional <exceptionalmom@...> wrote:

 

To a very special parent...

Take a deep breath and learn to live one day at a time. I know this is easier said than done. I would speak to your doc about the abilify. My daughter was on this and it's almost as if our kids can't metabolize this drug in the way it was meant for. Our regular doc gave us an Rx for Xanax and it seemed to make a world of difference. It can be an " as needed " drug but it only lasts for about 4 hours. This seemed to take the rage away with my daughter. My daughter had a lot of problems with severe anxiety and this is what usually caused the rages. They process things so differently than us " so called normal people " . We also noticed a difference in behavior during the change over from Winter to Spring every year. Especially when the day light savings time changes.

I know you probably feel like you are so stuffed " in the box " that you can't even peek out. But you have to give yourself a break, somehow somewhere so you can at least think outside the box. We had to modify our home (every room) in a way that we felt would provide safety for our daughter and ourselves. If you are looking for tips on such things, I have a lot to share so feel free to ask. I have 18 years of experience with this as do a lot of other members of this group. You'll learn that you can get more from this group than any doctor, therapist, specialist, etc...

This is a great group and the best part about it is you can do it when you have time and don't have to try to fit it in to any routine.

Sending you wishes for a break, even if it's just for 5 min.

Kristi

>

> Our daughter, 10 yrs, has been diagnosed with ASD a few months ago. Her

> behavior has severed in the last couple of months and very difficult to

> handle.

> She is very aggressive and violent during tantrums. Another issue is that

> she is very demanding and easily goes to tantrum if her demand is not

> fulfilled. We had to call 911 twice because her violence and behavior. She

> is on Guanfacine and Abilify but seems they give no progress. She doesn't

> have a friend & has low social skills. Her developmental pediatrician

> prediagnoses her with ASD along with possibility of BD (her psychiatrist

> said it might be mood instability), but in IEP meetings her school disagrees

> with the BD/mood disorder diagnosis (although agrees with the ASD diagnose).

>

> We now feel unsafe leaving with her in the house as when she goes in rage,

> it becomes so violent and might hurt us in the future.

>

> Anybody in this mailing list has an ASD kids with this problem? We want to

> know how to deal with the issue.

>

> ---

> Ludwig

>

[Guest guest]

I had the same experience with Abilify and Xanax. Pat K

Re: Re: Severe Autistic Problem

Hi, Yes, if you could share with us any tips. Yes, we need a break, we haven't found the time yet as we're very consumed dealing with her daily life.

Thanks a lot for the information.

On Wed, Mar 24, 2010 at 10:32 AM, Exceptional <exceptionalmom > wrote:

To a very special parent...

Take a deep breath and learn to live one day at a time. I know this is easier said than done. I would speak to your doc about the abilify. My daughter was on this and it's almost as if our kids can't metabolize this drug in the way it was meant for. Our regular doc gave us an Rx for Xanax and it seemed to make a world of difference. It can be an "as needed" drug but it only lasts for about 4 hours. This seemed to take the rage away with my daughter. My daughter had a lot of problems with severe anxiety and this is what usually caused the rages. They process things so differently than us "so called normal people". We also noticed a difference in behavior during the change over from Winter to Spring every year. Especially when the day light savings time changes.

I know you probably feel like you are so stuffed "in the box" that you can't even peek out. But you have to give yourself a break, somehow somewhere so you can at least think outside the box. We had to modify our home (every room) in a way that we felt would provide safety for our daughter and ourselves. If you are looking for tips on such things, I have a lot to share so feel free to ask. I have 18 years of experience with this as do a lot of other members of this group. You'll learn that you can get more from this group than any doctor, therapist, specialist, etc...

This is a great group and the best part about it is you can do it when you have time and don't have to try to fit it in to any routine.

Sending you wishes for a break, even if it's just for 5 min.

Kristi

>

> Our daughter, 10 yrs, has been diagnosed with ASD a few months ago. Her

> behavior has severed in the last couple of months and very difficult to

> handle.

> She is very aggressive and violent during tantrums. Another issue is that

> she is very demanding and easily goes to tantrum if her demand is not

> fulfilled. We had to call 911 twice because her violence and behavior. She

> is on Guanfacine and Abilify but seems they give no progress. She doesn't

> have a friend & has low social skills. Her developmental pediatrician

> prediagnoses her with ASD along with possibility of BD (her psychiatrist

> said it might be mood instability), but in IEP meetings her school disagrees

> with the BD/mood disorder diagnosis (although agrees with the ASD diagnose).

>

> We now feel unsafe leaving with her in the house as when she goes in rage,

> it becomes so violent and might hurt us in the future.

>

> Anybody in this mailing list has an ASD kids with this problem? We want to

> know how to deal with the issue.

>

> ---

> Ludwig

>

[Guest guest]

Where do you get a tagger? Pat K

Re: Severe Autistic Problem

I post this quote with permission from another list I am on:

"I continue to be amazed by the power of the TAG. Just this evening at the pool my 10-year old son (with severe autism), was upset about

something and acting up; he had been standing around on the pool deck and was NOT going back into the water, as I had been urging him to do. I made my way over to our bag, pulled out the tagger and a

fruit-by-the-foot (his favorite and always-reliable treat) and waited to tag any potential "good" movement. Within a second or two he had his hands down,(tagged) then was quiet,(tagged) then looked at me, (tagged) and so forth. After about 8 tags in a space of 3 or 4 minutes, he walked quietly over to the pool, jumped in, and swam around happily for the rest of the hour.

Apparently he just needed some good positive reinforcement! I was

amazed at how quickly he calmed down, and how quickly things turned

around. There is so much potential with the TAG, and so much more for all of us to learn!"

Here's a link showing some specific ideas one parent used to successfully overcome other difficult behaviors:

http://www.tagteach.com/autism/martha_gabler_story.pdf

Good luck!

Donna

Nanaimo, BC

>

> Our daughter, 10 yrs, has been diagnosed with ASD a few months ago. Her

> behavior has severed in the last couple of months and very difficult to

> handle.

> She is very aggressive and violent during tantrums. Another issue is that

> she is very demanding and easily goes to tantrum if her demand is not

> fulfilled. We had to call 911 twice because her violence and behavior. She

> is on Guanfacine and Abilify but seems they give no progress. She doesn't

> have a friend & has low social skills. Her developmental pediatrician

> prediagnoses her with ASD along with possibility of BD (her psychiatrist

> said it might be mood instability), but in IEP meetings her school disagrees

> with the BD/mood disorder diagnosis (although agrees with the ASD diagnose).

>

> We now feel unsafe leaving with her in the house as when she goes in rage,

> it becomes so violent and might hurt us in the future.

>

> Anybody in this mailing list has an ASD kids with this problem? We want to

> know how to deal with the issue.

>

> ---

> Ludwig

>

[Guest guest]

Hey pat

I looked it up you can get it from the site.. That was posted... I want to get devin one also..

From: "pkuenstler@..." <pkuenstler@...>autism Sent: Thu, 25 March, 2010 1:44:18 PMSubject: Re: Re: Severe Autistic Problem

Where do you get a tagger? Pat K

Re: Severe Autistic Problem

I post this quote with permission from another list I am on:"I continue to be amazed by the power of the TAG. Just this evening at the pool my 10-year old son (with severe autism), was upset about something and acting up; he had been standing around on the pool deck and was NOT going back into the water, as I had been urging him to do. I made my way over to our bag, pulled out the tagger and a fruit-by-the- foot (his favorite and always-reliable treat) and waited to tag any potential "good" movement. Within a second or two he had his hands down,(tagged) then was quiet,(tagged) then looked at me, (tagged) and so forth. After about 8 tags in a space of 3 or 4 minutes, he walked quietly over to the pool, jumped in, and swam around happily for the rest of the hour.Apparently he just needed some good positive reinforcement! I was amazed at how quickly he calmed down, and how quickly things turned around. There is so much

potential with the TAG, and so much more for all of us to learn!"Here's a link showing some specific ideas one parent used to successfully overcome other difficult behaviors:http://www.tagteach .com/autism/ martha_gabler_ story.pdfGood luck!DonnaNanaimo, BC>> Our daughter, 10 yrs, has been diagnosed with ASD a few months ago. Her> behavior has severed in the last couple of months and very difficult to> handle.> She is very aggressive and violent during tantrums. Another issue is that> she is very demanding and easily goes to tantrum if her demand is

not> fulfilled. We had to call 911 twice because her violence and behavior. She> is on Guanfacine and Abilify but seems they give no progress. She doesn't> have a friend & has low social skills. Her developmental pediatrician> prediagnoses her with ASD along with possibility of BD (her psychiatrist> said it might be mood instability) , but in IEP meetings her school disagrees> with the BD/mood disorder diagnosis (although agrees with the ASD diagnose).> > We now feel unsafe leaving with her in the house as when she goes in rage,> it becomes so violent and might hurt us in the future.> > Anybody in this mailing list has an ASD kids with this problem? We want to> know how to deal with the issue.> > ---> Ludwig>

[Guest guest]

It sounds workable doesn't it. I have shaped Karac's behavior in a similar fashion without the tagger, but that sounds helpful. I erased the site. Do you still have it? Pat K

Re: Severe Autistic Problem

I post this quote with permission from another list I am on:

"I continue to be amazed by the power of the TAG. Just this evening at the pool my 10-year old son (with severe autism), was upset about

something and acting up; he had been standing around on the pool deck and was NOT going back into the water, as I had been urging him to do. I made my way over to our bag, pulled out the tagger and a

fruit-by-the- foot (his favorite and always-reliable treat) and waited to tag any potential "good" movement. Within a second or two he had his hands down,(tagged) then was quiet,(tagged) then looked at me, (tagged) and so forth. After about 8 tags in a space of 3 or 4 minutes, he walked quietly over to the pool, jumped in, and swam around happily for the rest of the hour.

Apparently he just needed some good positive reinforcement! I was

amazed at how quickly he calmed down, and how quickly things turned

around. There is so much potential with the TAG, and so much more for all of us to learn!"

Here's a link showing some specific ideas one parent used to successfully overcome other difficult behaviors:

http://www.tagteach .com/autism/ martha_gabler_ story.pdf

Good luck!

Donna

Nanaimo, BC

>

> Our daughter, 10 yrs, has been diagnosed with ASD a few months ago. Her

> behavior has severed in the last couple of months and very difficult to

> handle.

> She is very aggressive and violent during tantrums. Another issue is that

> she is very demanding and easily goes to tantrum if her demand is not

> fulfilled. We had to call 911 twice because her violence and behavior. She

> is on Guanfacine and Abilify but seems they give no progress. She doesn't

> have a friend & has low social skills. Her developmental pediatrician

> prediagnoses her with ASD along with possibility of BD (her psychiatrist

> said it might be mood instability) , but in IEP meetings her school disagrees

> with the BD/mood disorder diagnosis (although agrees with the ASD diagnose).

>

> We now feel unsafe leaving with her in the house as when she goes in rage,

> it becomes so violent and might hurt us in the future.

>

> Anybody in this mailing list has an ASD kids with this problem? We want to

> know how to deal with the issue.

>

> ---

> Ludwig

>

[Guest guest]

pet smart sells the clicker for 1.49 ..

thank you for the info i would have never thought of the dog clicker or the other ideas you gave.. This is why I love our group...

lesley..

From: Donna & Jessie <dhill@...>autism Sent: Thu, 25 March, 2010 3:18:15 PMSubject: Re: Severe Autistic Problem

You can actually use any sound, including a verbal "yes!", but the taggers can also be obtained from pet stores. They call them 'clickers' (because of the sound) there but are exactly the same thing. The soft click of a bic pen also works as does a snapple lid with a hole put in it. If you have a 'Trouble' board game, the dice pop up things also work. You can buy specialty taggers with different electronic sounds too, if that's what your child might think is more fun. And there are the ones called 'cricket boxes' that we used to use in the 'olden' days.I made my own tagulator (makes it easier to keep track of how many have been tagged in the beginning) by watching this video. Just need some big-holed beads, a shoe lace or string and go to town! I got my beads from the jewelry section of second hand store-way cheaper than bead shop or kids play stores!Wider (3/4 inch or so) smooth colorful beads work the best. I like the feel of

wood beads.http://www.youtube. com/watch? v=F6Gwl7xRCLEDonna> >> > Our daughter, 10 yrs, has been diagnosed with ASD a few months ago. Her> > behavior has severed in the last couple of months and very difficult to> > handle.> > She is very aggressive and violent during tantrums. Another issue is

that> > she is very demanding and easily goes to tantrum if her demand is not> > fulfilled. We had to call 911 twice because her violence and behavior. She> > is on Guanfacine and Abilify but seems they give no progress. She doesn't> > have a friend & has low social skills. Her developmental pediatrician> > prediagnoses her with ASD along with possibility of BD (her psychiatrist> > said it might be mood instability) , but in IEP meetings her school disagrees> > with the BD/mood disorder diagnosis (although agrees with the ASD diagnose).> > > > We now feel unsafe leaving with her in the house as when she goes in rage,> > it becomes so violent and might hurt us in the future.> > > > Anybody in this mailing list has an ASD kids with this problem? We want to> > know how to deal with the issue.> > > >

---> > Ludwig> >>

[Guest guest]

Great; I'll just go to the pet store. Thanks, Pat K

Re: Severe Autistic Problem

You can actually use any sound, including a verbal "yes!", but the taggers can also be obtained from pet stores. They call them 'clickers' (because of the sound) there but are exactly the same thing. The soft click of a bic pen also works as does a snapple lid with a hole put in it. If you have a 'Trouble' board game, the dice pop up things also work.

You can buy specialty taggers with different electronic sounds too, if that's what your child might think is more fun. And there are the ones called 'cricket boxes' that we used to use in the 'olden' days.

I made my own tagulator (makes it easier to keep track of how many have been tagged in the beginning) by watching this video. Just need some big-holed beads, a shoe lace or string and go to town! I got my beads from the jewelry section of second hand store-way cheaper than bead shop or kids play stores!

Wider (3/4 inch or so) smooth colorful beads work the best. I like the feel of wood beads.

http://www.youtube. com/watch? v=F6Gwl7xRCLE

Donna

> >

> > Our daughter, 10 yrs, has been diagnosed with ASD a few months ago. Her

> > behavior has severed in the last couple of months and very difficult to

> > handle.

> > She is very aggressive and violent during tantrums. Another issue is that

> > she is very demanding and easily goes to tantrum if her demand is not

> > fulfilled. We had to call 911 twice because her violence and behavior. She

> > is on Guanfacine and Abilify but seems they give no progress. She doesn't

> > have a friend & has low social skills. Her developmental pediatrician

> > prediagnoses her with ASD along with possibility of BD (her psychiatrist

> > said it might be mood instability) , but in IEP meetings her school disagrees

> > with the BD/mood disorder diagnosis (although agrees with the ASD diagnose).

> >

> > We now feel unsafe leaving with her in the house as when she goes in rage,

> > it becomes so violent and might hurt us in the future.

> >

> > Anybody in this mailing list has an ASD kids with this problem? We want to

> > know how to deal with the issue.

> >

> > ---

> > Ludwig

> >

>

[Guest guest]

Im going tomorrow Pat..

Lesley

From: "pkuenstler@..." <pkuenstler@...>autism Sent: Thu, 25 March, 2010 4:22:04 PMSubject: Re: Re: Severe Autistic Problem

Great; I'll just go to the pet store. Thanks, Pat K

Re: Severe Autistic Problem

You can actually use any sound, including a verbal "yes!", but the taggers can also be obtained from pet stores. They call them 'clickers' (because of the sound) there but are exactly the same thing. The soft click of a bic pen also works as does a snapple lid with a hole put in it. If you have a 'Trouble' board game, the dice pop up things also work. You can buy specialty taggers with different electronic sounds too, if that's what your child might think is more fun. And there are the ones called 'cricket boxes' that we used to use in the 'olden' days.I made my own tagulator (makes it easier to keep track of how many have been tagged in the beginning) by watching this video. Just need some big-holed beads, a shoe lace or string and go to town! I got my beads from the jewelry section of second hand store-way cheaper than bead shop or kids play stores!Wider (3/4 inch or so) smooth colorful beads work the best. I like the feel of

wood beads.http://www.youtube. com/watch? v=F6Gwl7xRCLEDonna> >> > Our daughter, 10 yrs, has been diagnosed with ASD a few months ago. Her> > behavior has severed in the last couple of months and very difficult to> > handle.> > She is very aggressive and violent during tantrums. Another issue is

that> > she is very demanding and easily goes to tantrum if her demand is not> > fulfilled. We had to call 911 twice because her violence and behavior. She> > is on Guanfacine and Abilify but seems they give no progress. She doesn't> > have a friend & has low social skills. Her developmental pediatrician> > prediagnoses her with ASD along with possibility of BD (her psychiatrist> > said it might be mood instability) , but in IEP meetings her school disagrees> > with the BD/mood disorder diagnosis (although agrees with the ASD diagnose).> > > > We now feel unsafe leaving with her in the house as when she goes in rage,> > it becomes so violent and might hurt us in the future.> > > > Anybody in this mailing list has an ASD kids with this problem? We want to> > know how to deal with the issue.> > > >

---> > Ludwig> >>