Re: mindsoothe?

[Guest guest]

Hi, Laurie w/13yr dd dx feb2006 here.

Is your daughter on any meds?

mindsoothe?

Hi, I haven't been here for a long while. My 10yr dd was so much better and I

went on 'no mail'. She's had a bit of a backslide, however, and I'm now on the

hunt for a better therapist. Her last therapist said that cbt/erp can't be done

for ocd thoughts -- which is mainly what my dd has. I have since learned that

this isn't true; it's just a little more difficult to do with thoughts. Now I

need to find a therapist who is experienced with doing that and working with

children. I'm in the general area of Toronto, Ontario, if anyone has any leads

at all. Am willing to travel.

I've come across this herbal remedy called " Mindsoothe " . Here is a link:

http://www.nativeremedies.com/ocd-alternative-treatment.shtml

Does anyone have any experience with this or heard any stories? It's a

combination of 2 herbs: St. 's Wort and Passiflora. Does anyone know of

any side effects of either of those herbs?

As always, thanks for any and all help!

Mo

[Guest guest]

Hi Laurie. No, she's not on meds, and she's not a candidate for any, I don't

think. She was diagnosed Jan/05. I've tried other 'natural' things with her,

such as Rhodiola Rhodax (sp?) and 5HTP. Neither seems to have made any

difference. I had heard that ocd was an adrenal issue, so even tho dr says she

doesn't have an adrenal issue, I tried the rhodiola.

She doesn't have a severe case of ocd in that she isn't debilitated in any way,

and her ocd is such that no one outside the family knows she has ocd or even

notices anything unusual or different. Well, except for the fact that she's

fairly obsessive about saying 'thank you'. They just think she has fabulous

manners. She never had many physical compulsions. The few she had when we

first discovered the ocd, she was able to quickly get rid of. But we've never

been able to help with the thoughts that disturb her. Now she seems to be

complaining of the thoughts more often and she's gotten into some routines

involving her (many, many, many!) stuffed animals. She's unable to stop these

routines even tho I've asked her to and she has tried. This has never happened

before. I'm worried that she's at the edge of a slippery slope which will lead

to more complicated routines.

I also wonder if the 5HTP could have had the reverse effect on her -- is it

possible it could have made the ocd worse??

Mo

Re: mindsoothe?

Hi, Laurie w/13yr dd dx feb2006 here.

Is your daughter on any meds?

[Guest guest]

Thats funny how you described your da as very well mannered. my r is that way

too and has always been very considerate of the other person. in 3grd she had a

friend who turned out to be a boss and didn't want to share r with anyone and

would bully r by saying you can't be friends with anyone else or I wont be you

friend. this upset her and we tried to talk to her and eventually I just had

the school put them in separate class the next year. What a Great Year! even

thou they still played rec.basket ball together. same team, but you could see

the competiveness in both of them, but my R would give in first on the game

floor. We kept telling her she had to be more aggressive and she would at times

but this year she started school ball and at the end of the season is when we

realized she had OCD> she was telling the school psychologist she felt her

thinking was hurting her game. the contact of others seemed to bother. her.

before we realized what was going on, she has said her girlfriends would come up

and hug her and she would back off, she didn't like that at all.

I just took it as part of her.. she is not lovey-dovey like my ten yrold, and

never really has been.

we are not vitamin doers and I tired to give her vitamins when she first started

showing signs this year

thinking all this was about hormones... but didn't continue with it. so I don't

really now how other things work against anything.

Re: mindsoothe?

Hi Laurie. No, she's not on meds, and she's not a candidate for any, I don't

think. She was diagnosed Jan/05. I've tried other 'natural' things with her,

such as Rhodiola Rhodax (sp?) and 5HTP. Neither seems to have made any

difference. I had heard that ocd was an adrenal issue, so even tho dr says she

doesn't have an adrenal issue, I tried the rhodiola.

She doesn't have a severe case of ocd in that she isn't debilitated in any way,

and her ocd is such that no one outside the family knows she has ocd or even

notices anything unusual or different. Well, except for the fact that she's

fairly obsessive about saying 'thank you'. They just think she has fabulous

manners. She never had many physical compulsions. The few she had when we

first discovered the ocd, she was able to quickly get rid of. But we've never

been able to help with the thoughts that disturb her. Now she seems to be

complaining of the thoughts more often and she's gotten into some routines

involving her (many, many, many!) stuffed animals. She's unable to stop these

routines even tho I've asked her to and she has tried. This has never happened

before. I'm worried that she's at the edge of a slippery slope which will lead

to more complicated routines.

I also wonder if the 5HTP could have had the reverse effect on her -- is it

possible it could have made the ocd worse??

Mo

Re: mindsoothe?

Hi, Laurie w/13yr dd dx feb2006 here.

Is your daughter on any meds?

[Guest guest]

Mo,

It's funny we both answered the same questions cuz our

kids sound alot alike.

The routines you talk about are physical

rituals/compulsions if I understand OCD. Have you

tried doing exposure/response prevention on them?

Lynn

--- nne s <juliannepeters@...> wrote:

---------------------------------

Hi Laurie. No, she's not on meds, and she's not a

candidate for any, I don't think. She was diagnosed

Jan/05. I've tried other 'natural' things with her,

such as Rhodiola Rhodax (sp?) and 5HTP. Neither seems

to have made any difference. I had heard that ocd was

an adrenal issue, so even tho dr says she doesn't have

an adrenal issue, I tried the rhodiola.

She doesn't have a severe case of ocd in that she

isn't debilitated in any way, and her ocd is such that

no one outside the family knows she has ocd or even

notices anything unusual or different. Well, except

for the fact that she's fairly obsessive about saying

'thank you'. They just think she has fabulous

manners. She never had many physical compulsions.

The few she had when we first discovered the ocd, she

was able to quickly get rid of. But we've never been

able to help with the thoughts that disturb her. Now

she seems to be complaining of the thoughts more often

and she's gotten into some routines involving her

(many, many, many!) stuffed animals. She's unable to

stop these routines even tho I've asked her to and she

has tried. This has never happened before. I'm

worried that she's at the edge of a slippery slope

which will lead to more complicated routines.

I also wonder if the 5HTP could have had the reverse

effect on her -- is it possible it could have made the

ocd worse??

Mo

Re: mindsoothe?

Hi, Laurie w/13yr dd dx feb2006 here.

Is your daughter on any meds?

[Guest guest]

Hi Maureen,

My 10 year old daughter was diagnosed last Spring. At the time her OCD was

severely debilitating. She had terrible intrusive thoughts - no real

compulsions - just the need to tell me about her thoughts or obsessions. We

have been seeing a therapist in Michigan since it was closer to home (we live in

Windsor) on and off for the last year. Things have dramaticaly improved with

the ERP. She isn't on any medication. It hasn't been easy...but yes ERP can be

done with thoughts. You just have to be a little more creative. In the last

few weeks, she has experienced setbacks too.

When my daughter first got sick, I spoke to Dr. Farvolden in Toronto.

He specializes in OCD/Anxiety. His number is 416-535-8501 X6181. I also talked

to Dr. Purdon at the University of Waterloo. Her number is

519-888-4567 X3912. Dr. Purdon specializes in " thought OCD " . She doesn't

work with children but she has can refer you to psychologists who trained with

her. She recently wrote a book called " Overcoming Obsessive Thoughts " that

deals solely with intrusive thoughts. I also know that there is an Anxiety

Disorders Clinic in Hamilton - I think it's at McMaster. I hope some of this

helps. Take care. nne

Maureen s <maureenpeters@...> wrote:

Hi, I haven't been here for a long while. My 10yr dd was so much better and I

went on 'no mail'. She's had a bit of a backslide, however, and I'm now on the

hunt for a better therapist. Her last therapist said that cbt/erp can't be done

for ocd thoughts -- which is mainly what my dd has. I have since learned that

this isn't true; it's just a little more difficult to do with thoughts. Now I

need to find a therapist who is experienced with doing that and working with

children. I'm in the general area of Toronto, Ontario, if anyone has any leads

at all. Am willing to travel.

I've come across this herbal remedy called " Mindsoothe " . Here is a link:

http://www.nativeremedies.com/ocd-alternative-treatment.shtml

Does anyone have any experience with this or heard any stories? It's a

combination of 2 herbs: St. 's Wort and Passiflora. Does anyone know of

any side effects of either of those herbs?

As always, thanks for any and all help!

Mo

[Guest guest]

Oh yes, giving in on the game floor -- that sounds very familiar. My dd played

soccer just one summer. We used to laugh on the sidelines because we could

actually imagine her saying to the opposing player, " Oh did you want this ball?

Here you go then. " She doesn't have a hint of aggression in her. But then,

neither does my non-ocd daughter. They both eventually found their way into

sports that don't require aggressiveness against other players: competitive

swimming and figure skating.

Mo

Re: mindsoothe?

but you could see the competiveness in both of them, but my R would give in

first on the game floor. We kept telling her she had to be more aggressive and

she would at times but this

[Guest guest]

Well, I haven't tried very hard. For a couple of reasons. First, she seems

more upset this time around. Secondly, I'm not 100% sure they're ocd, mainly

because she doesn't think they are. OK, I'm not 100% sure, but I'm 98% sure

that it's the ocd. Another reason is that these routines with the animals are

at bedtime. Not a good time to be getting her all worked up. I know this has

to be worked on and quickly. I don't feel as confident working on it myself as

I did with her earlier compulsions. It just feels different. I'd really like

to find a good therapist!

Mo

Re: mindsoothe?

Mo,

It's funny we both answered the same questions cuz our

kids sound alot alike.

The routines you talk about are physical

rituals/compulsions if I understand OCD. Have you

tried doing exposure/response prevention on them?

Lynn

[Guest guest]

Thank you so much! I also got Dr. Farvolden's name from the OC Foundation.

I've got a message into him, but he hasn't called me yet. I will call Dr.

Purdon immediately. Thanks again!

Mo

Re: mindsoothe?

Hi Maureen,

My 10 year old daughter was diagnosed last Spring. At the time her OCD was

severely debilitating. She had terrible intrusive thoughts - no real

compulsions - just the need to tell me about her thoughts or obsessions. We

have been seeing a therapist in Michigan since it was closer to home (we live in

Windsor) on and off for the last year. Things have dramaticaly improved with

the ERP. She isn't on any medication. It hasn't been easy...but yes ERP can be

done with thoughts. You just have to be a little more creative. In the last

few weeks, she has experienced setbacks too.

When my daughter first got sick, I spoke to Dr. Farvolden in Toronto.

He specializes in OCD/Anxiety. His number is 416-535-8501 X6181. I also talked

to Dr. Purdon at the University of Waterloo. Her number is

519-888-4567 X3912. Dr. Purdon specializes in " thought OCD " . She doesn't

work with children but she has can refer you to psychologists who trained with

her. She recently wrote a book called " Overcoming Obsessive Thoughts " that

deals solely with intrusive thoughts. I also know that there is an Anxiety

Disorders Clinic in Hamilton - I think it's at McMaster. I hope some of this

helps. Take care. nne

[Guest guest]

Maureen

You could also try Dr. Taub in Richmond Hill. (905) 508-3422. I can't remember

how we got her name but she seemed knowlegable and was prepared to try the CBT -

but my son has aspergers and it just didn't work out.

kimz

Re: mindsoothe?

Hi Maureen,

My 10 year old daughter was diagnosed last Spring. At the time her OCD

was severely debilitating. She had terrible intrusive thoughts - no real

compulsions - just the need to tell me about her thoughts or obsessions. We

have been seeing a therapist in Michigan since it was closer to home (we live in

Windsor) on and off for the last year. Things have dramaticaly improved with

the ERP. She isn't on any medication. It hasn't been easy...but yes ERP can be

done with thoughts. You just have to be a little more creative. In the last

few weeks, she has experienced setbacks too.

When my daughter first got sick, I spoke to Dr. Farvolden in

Toronto. He specializes in OCD/Anxiety. His number is 416-535-8501 X6181. I

also talked to Dr. Purdon at the University of Waterloo. Her number

is

519-888-4567 X3912. Dr. Purdon specializes in " thought OCD " . She doesn't

work with children but she has can refer you to psychologists who trained with

her. She recently wrote a book called " Overcoming Obsessive Thoughts " that

deals solely with intrusive thoughts. I also know that there is an Anxiety

Disorders Clinic in Hamilton - I think it's at McMaster. I hope some of this

helps. Take care. nne

[Guest guest]

A word of warning : if your child is on any prescription meds, be very careful

about adding anything, whether it is " herbal " or not. St. 's Wort is a

relatively powerful source of seratonin, and if added to an SSRI ( the most

common kind of med used for OCD) can lead to Seratonin Syndrome, which can be

fatal. Also, someone asked whether 5HTP could make OCD worse - it certainly

could. Any chemical introduced into the body has the ability to interact with

the body's own chemicals in all kinds of ways. The " natural " remedies that are

sold to help with problems such as depression, OCD, ADHD, etc. often act on the

same neurotransmitters that the prescription medications do. And we are all

painfully aware of the fact that those prescription meds cause very different

reactions in different kids!

I've come across this herbal remedy called " Mindsoothe " . Here is a link:

http://www.nativeremedies.com/ocd-alternative-treatment.shtml

Does anyone have any experience with this or heard any stories? It's a

combination of 2 herbs: St. 's Wort and Passiflora. Does anyone know of

any side effects of either of those herbs?

[Guest guest]

In a message dated 4/6/2006 1:06:25 PM Eastern Standard Time,

juliannepeters@... writes:

This has never happened before. I'm worried that she's at the edge of a

slippery slope which will lead to more complicated routines.

I also wonder if the 5HTP could have had the reverse effect on her -- is it

possible it could have made the ocd worse??

Mo -

I don't know about the 5HTP (I have read about these on the Internet, but

don't really know anything about their effects), however what you're describing

sounds like what I was just posting on the board - when you refer to your

daughter saying " thank you " so much & others just think she's very polite. We

always thought my daughter was just " a really good student who was an

over-acheiver " and that's why she worked so hard on her homework. That wasn't

the

case - it WAS the OCD doing this to her. We could have done something about

this so long ago & never did because we didn't see it. Then it only took that

one traumatic incident (our friend dying) to push her over the " OCD edge "

and that was that.

I'm not sure if I missed something in a previous post from you -- why is

your daughter not a candidate for meds??

LT