Re: I'm SO FRUSTRATED!!!!!

[Guest guest]

-

You need to contact you state child's welfare agency or whatever they are

called in your area - Private insurance will not pay for residential treatment

because private insurance does not cover room and board for this - MediCAL is

the equivalent of what I'm assuming is Medicaid in other states. While the

general requirements are low income, etc, there are certain waivers

provisions for residential treatment that can get. Basically, while

is

not living in the home she has ZERO income and would qualify for this

coverage. This is why I mentioned in a prior e-mail about state insurance.

The

majority (if not all) kids in residential are covered by their state insurance,

not private). I don't know what they call it in your state - here it's DYFS

- Division of Youth and Famiily Services. They would assign a worker who

would handle the process. Maybe the hospital's social services can provide the

information. Your school district should be paying the SCHOOL portion of the

bill while the MediCAL would cover the room/board/medication/medical care

portion of the bill. You're probably in a better situation having her in the

hospital at present while completing the paperwork. Also, the admissions

office of these facilities should be sending you in the right direction or

providing the information about this.

When my daughter went to residential - I had to call DYFS and tell them I

was unable to care for her in the home anymore becuase of the psychiatric

issues -From their it was their responsibility to secure the insurance

(Medicaid)

arrangements. I went a step further because we were already involved in the

court system to ask a judge to order residential treatment for her, but it's

DYFS case opening that qualified her for the state insurance (without income

consideration/limitations).

In a message dated 2/23/2006 7:07:56 AM Central Standard Time,

@... writes:

, I only have a minute but ((hugs))! Also - isn't the school

system supposed to pay, that AB3632???

[Guest guest]

, I only have a minute but ((hugs))! Also - isn't the school

system supposed to pay, that AB3632???

>

> Well, here it is...a week later and is still in the

hospital with no

> where to send her yet. I've been on the phone non-stop and I'm

still at square

> one. I feel like just giving up and taking her home. All the

residential

> facilities that the school placement lady referred me to and the

places the

> hospital has referred me to.....none of them can take her!! They

either are not

> taking anymore AB3632 students and/or can only take her if she was

on MediCAL

> (state insurance). Since we have private insurance....they can't

[Guest guest]

Aside from all the other things - have you considered putting her in

an ocd inpatient for a few weeks - by the time she'd be done with

that she may be well enough to have more options available to her.

>

> Well, here it is...a week later and is still in the hospital

with no

> where to send her yet. I've been on the phone non-stop and I'm

still at square

> one. I feel like just giving up and taking her home. All the

residential

> facilities that the school placement lady referred me to and the

places the

> hospital has referred me to.....none of them can take her!! They

either are not

> taking anymore AB3632 students and/or can only take her if she was

on MediCAL

> (state insurance). Since we have private insurance....they can't

take

> her!!!! What the hell???!!! We have our own private....REAL

insurance....and they

> refuse her because of that?? It just makes no sense!! I guess if

we drop

> our insurance...then they'd take her....how stupid is this??? You

can only get

> MediCAL if you make under a certain amount of money....or if I was

single

> with no insurance. Geeze....what do I have to do...get divorced?

> Ohhhhhhh....this is SO ridiculous!! There is one place that would

have been a perfect fit

> too because they are the only place that actually has a program

for helping

> cutter's too....along with everything else she would have needed.

It's just so

> upsetting to find the perfect place and because of red tape

crap.....you

> can't get your child the help there. So the school district keeps

bringing me

> back to " there's always Utah " . I just don't want to go that

route. I just

> don't. How can such a huge state like CA....which has millions of

residential

> facilities....yet there is nothing that I can get her into for one

reason or

> another. I was even told today by one place that because

has been in the

> hospital for an entire week.....longer than the typical 72 hour

hold, also

> sends them a red flag. She said that tells them that there is some

real serious

> stuff going on for them to hold her that long cause insurance

companies just

> don't want to pay after 72 hours. I told her the doctor is doing

everything

> possible to stall her discharge so that we can find somewhere to

send

> right from the hospital and we're having no luck!! She could have

been

> discharged within 24 hours had we had a place to send her. So

great!! The longer

> she stays in the hospital....the more difficult is will be to find

placement.

> I'm just so frustrated with everything. Of course, is

begging to go

> home now cause she's so bored there. She had accepted that she was

not coming

> home and going right into residential.....now she's going back &

forth cause

> she's bored out of her mind there.

> This all sucks so much. I can't even sleep at night cause my mind

is just

> racing. I'm not even the slightest bit of fun at home right now.

It's all just

> draining my every bit of emotion and energy.

>

>

>

>

>

[Guest guest]

Something that I've heard for people who have private insurance to get their

kids into residential is to place their child in the facility as " a family of

1. " After thirty days, public funding is supposed to take over. I really don't

know the specifics of how this works. No one ever seems to be able to or want

to explain it. But we were told that by using this the parents are not giving

the child up to the state. But how this works could vary from state to state.

Can you contact your local or state chapter of NAMI (stands for something like

National Alliance on Mental Illness) to see if someone there can help you with

this or at least refer you to someone else who can help? The national NAMI

website is www.nami.org. You can go to that website to find your local and

state chapters.

Good luck. I know that this is very, very frustrating and overwhelming at a

very difficult time.

Janie

Kidztalent@... wrote:

Well, here it is...a week later and is still in the hospital with no

where to send her yet. I've been on the phone non-stop and I'm still at square

one. I feel like just giving up and taking her home. All the residential

facilities that the school placement lady referred me to and the places the

hospital has referred me to.....none of them can take her!! They either are not

taking anymore AB3632 students and/or can only take her if she was on MediCAL

(state insurance). Since we have private insurance....they can't take

her!!!! What the hell???!!! We have our own private....REAL insurance....and

they

refuse her because of that?? It just makes no sense!! I guess if we drop

our insurance...then they'd take her....how stupid is this??? You can only get

MediCAL if you make under a certain amount of money....or if I was single

with no insurance. Geeze....what do I have to do...get divorced?

Ohhhhhhh....this is SO ridiculous!! There is one place that would have been a

perfect fit

too because they are the only place that actually has a program for helping

cutter's too....along with everything else she would have needed. It's just so

upsetting to find the perfect place and because of red tape crap.....you

can't get your child the help there. So the school district keeps bringing me

back to " there's always Utah " . I just don't want to go that route. I just

don't. How can such a huge state like CA....which has millions of residential

facilities....yet there is nothing that I can get her into for one reason or

another. I was even told today by one place that because has been in the

hospital for an entire week.....longer than the typical 72 hour hold, also

sends them a red flag. She said that tells them that there is some real serious

stuff going on for them to hold her that long cause insurance companies just

don't want to pay after 72 hours. I told her the doctor is doing everything

possible to stall her discharge so that we can find somewhere to send

right from the hospital and we're having no luck!! She could have been

discharged within 24 hours had we had a place to send her. So great!! The

longer

she stays in the hospital....the more difficult is will be to find placement.

I'm just so frustrated with everything. Of course, is begging to go

home now cause she's so bored there. She had accepted that she was not coming

home and going right into residential.....now she's going back & forth cause

she's bored out of her mind there.

This all sucks so much. I can't even sleep at night cause my mind is just

racing. I'm not even the slightest bit of fun at home right now. It's all just

draining my every bit of emotion and energy.

[Guest guest]

Hi-I don`t know about the insurance laws in Ca.-but

here in New York,even if you have private

insurance(which we do)if you get a disabled dx for

your daughter-you can get backup state Medicaid

insurance.They pay your co-insurance costs.Last summer

my daughter was in a mental health facility for ten

days.Our private insur.paid 70% and medicaid paid the

balance.We had no out of pocket expense(and the bill

was like ten grand)!!! Good luck-sue12771

--- Janie <gjgrif@...> wrote:

> Something that I've heard for people who have

> private insurance to get their kids into residential

> is to place their child in the facility as " a family

> of 1. " After thirty days, public funding is

> supposed to take over. I really don't know the

> specifics of how this works. No one ever seems to

> be able to or want to explain it. But we were told

> that by using this the parents are not giving the

> child up to the state. But how this works could

> vary from state to state.

>

> Can you contact your local or state chapter of

> NAMI (stands for something like National Alliance on

> Mental Illness) to see if someone there can help you

> with this or at least refer you to someone else who

> can help? The national NAMI website is

> www.nami.org. You can go to that website to find

> your local and state chapters.

>

> Good luck. I know that this is very, very

> frustrating and overwhelming at a very difficult

> time.

>

> Janie

>

> Kidztalent@... wrote:

> Well, here it is...a week later and is

> still in the hospital with no

> where to send her yet. I've been on the phone

> non-stop and I'm still at square

> one. I feel like just giving up and taking her home.

> All the residential

> facilities that the school placement lady referred

> me to and the places the

> hospital has referred me to.....none of them can

> take her!! They either are not

> taking anymore AB3632 students and/or can only take

> her if she was on MediCAL

> (state insurance). Since we have private

> insurance....they can't take

> her!!!! What the hell???!!! We have our own

> private....REAL insurance....and they

> refuse her because of that?? It just makes no

> sense!! I guess if we drop

> our insurance...then they'd take her....how stupid

> is this??? You can only get

> MediCAL if you make under a certain amount of

> money....or if I was single

> with no insurance. Geeze....what do I have to

> do...get divorced?

> Ohhhhhhh....this is SO ridiculous!! There is one

> place that would have been a perfect fit

> too because they are the only place that actually

> has a program for helping

> cutter's too....along with everything else she

> would have needed. It's just so

> upsetting to find the perfect place and because of

> red tape crap.....you

> can't get your child the help there. So the school

> district keeps bringing me

> back to " there's always Utah " . I just don't want

> to go that route. I just

> don't. How can such a huge state like CA....which

> has millions of residential

> facilities....yet there is nothing that I can get

> her into for one reason or

> another. I was even told today by one place that

> because has been in the

> hospital for an entire week.....longer than the

> typical 72 hour hold, also

> sends them a red flag. She said that tells them

> that there is some real serious

> stuff going on for them to hold her that long cause

> insurance companies just

> don't want to pay after 72 hours. I told her the

> doctor is doing everything

> possible to stall her discharge so that we can find

> somewhere to send

> right from the hospital and we're having no luck!!

> She could have been

> discharged within 24 hours had we had a place to

> send her. So great!! The longer

> she stays in the hospital....the more difficult is

> will be to find placement.

> I'm just so frustrated with everything. Of course,

> is begging to go

> home now cause she's so bored there. She had

> accepted that she was not coming

> home and going right into residential.....now she's

> going back & forth cause

> she's bored out of her mind there.

> This all sucks so much. I can't even sleep at night

> cause my mind is just

> racing. I'm not even the slightest bit of fun at

> home right now. It's all just

> draining my every bit of emotion and energy.

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

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[Guest guest]

Yes they are supposed to pay for residential with AB3632......but never in

the IEP meeting was it mentioned that either my private ins. or MediCal was

supposed to pay the medical part of it. I only found this out when I started

making calls to these residential facilities. Had they mentioned in the IEP

meeting that almost ALL of these facilities only accept MediCal.....I would

have at least had the time to see if she's even eligible for MediCal. Now,

it's

going to take at least 4-6 weeks to get an answer. I went to the MediCal

office yesterday to fill out the paperwork but I certainly can't have

stay in the hospital until we get an answer. The answer may even be no the lady

said. She said if she is eligible though that there would be a shared expense

on my part because has a savings account with money that she made in

acting from the age of 4-12...and they may also take into account my husbands

income even though he is not 's father. So it's not looking good.

In a message dated 2/23/2006 5:07:56 A.M. Pacific Standard Time,

@... writes:

, I only have a minute but ((hugs))! Also - isn't the school

system supposed to pay, that AB3632???

in NC

[Guest guest]

Yes, I think MediCal is the same as Medicaid. I went to the MediCal office

yesterday and they determined that actually does have income which may

be one reason that she wouldn't qualify. They consider the $300 a month child

support I get for her as well as the social security check I get for her

every month through a disability that I have. (This check has nothing to do with

any kind of disability that she may have....only the disability that I have.)

But because it is intended as income on her behalf, it also counts toward

her income. And along with that, has a savings account (that she can't

touch until she's 18)...money she made from acting.....they also count that

though. And like I told in her email....they said they may still count my

husbands income....even though he's not 's father....as well. And this

will all take time she said....at least 4-6 weeks, maybe longer.

As far as being in the hospital as all this is processed....you would

think this would be a good thing. But as I'm finding out from several

places....it's actually hindering placement. Two places now have denied her

because

she has been in the hospital for this long. Even when I try to explain to

them that it is MY decision to hold her in the hospital....and it's NOT because

she's a threat to herself in any way....they still don't care. They just

call it " a red flag " . Unbelievable huh?

In a message dated 2/23/2006 5:31:26 A.M. Pacific Standard Time,

Nchaotic@... writes:

-

You need to contact you state child's welfare agency or whatever they are

called in your area - Private insurance will not pay for residential

treatment

because private insurance does not cover room and board for this - MediCAL

is

the equivalent of what I'm assuming is Medicaid in other states. While the

general requirements are low income, etc, there are certain waivers

provisions for residential treatment that can get. Basically, while

is

not living in the home she has ZERO income and would qualify for this

coverage. This is why I mentioned in a prior e-mail about state insurance.

The

majority (if not all) kids in residential are covered by their state

insurance,

not private). I don't know what they call it in your state - here it's

DYFS

- Division of Youth and Famiily Services. They would assign a worker who

would handle the process. Maybe the hospital's social services can provide

the

information. Your school district should be paying the SCHOOL portion of

the

bill while the MediCAL would cover the room/board/medication/medical care

portion of the bill. You're probably in a better situation having her in

the

hospital at present while completing the paperwork. Also, the admissions

office of these facilities should be sending you in the right direction or

providing the information about this.

When my daughter went to residential - I had to call DYFS and tell them I

was unable to care for her in the home anymore because of the psychiatric

issues -From their it was their responsibility to secure the insurance

(Medicaid)

arrangements. I went a step further because we were already involved in

the

court system to ask a judge to order residential treatment for her, but

it's

DYFS case opening that qualified her for the state insurance (without

income

consideration/limitations).

[Guest guest]

Hmmmm....no I never thought about this. I will ask the hospital today if

this could maybe be done.

[Guest guest]

I don't think the schools are aware of this. In our case, I decided I

wanted my daughter in residential and made all the arrangements and then took it

back to the school. They then picked up the tab (by law) for her education

expenses.

Medicaid as some changes that they didn't have years ago in place. The

states have their own " supplememental " criteria for qualifying and in a lot of

states the income limits are more relaxed than before. The fact that she has a

diagnosis also will hopefully help. Medicaid can be granted under many

different circumstances - disability, low income, etc etc... Actually 4-6 weeks

isn't all too long - here there are people who wait up to 6 months AFTER the

initial review (90 days) of eligibility.

How is doing? Anything new going on with the medication? Any new

changes?

In a message dated 2/24/2006 8:08:21 PM Central Standard Time,

Kidztalent@... writes:

but never in

the IEP meeting was it mentioned that either my private ins. or MediCal was

supposed to pay the medical part of it.