Jump to content
RemedySpot.com

Morning and Everyone :)

Rate this topic


Guest guest

Recommended Posts

Guest guest

, Honey you are not alone and we have each other for support.

The clock is ticking again but this time at a much faster speed. I found for me the euphoria and the natural high wears off after transplant for people in our present situations. It All hits hard, all of a sudden, like running into a brick wall because before we realize it, again time is running very short.

Make the best of it My Friend. :)

I hope and pray there are answers and treatment for You and All in our present situation and stage post transplant.

Please keep us updated about you and any new info you discover along the way.

We also have the damn time factor again to deal with.

Will new and improved meds for HCV chronic post transplant status be out in time to help us ?????

For me I seriously doubt that at this point but we must always have hope but except reality.

We heard the drill and all the info given to us prior to being listed - If you are in chronic stage again shortly after transplant and being a failed responder prior to TP the chances for some may be only 3 to 5 good years before loss of graft sites or severe complications from a fast progression with possibly chronic or acute rejection - Pray for enough extra time for new safe and more successful treatment meds to hit the market for post transplant pt's.

Sorry people but that's the truth straight from my Transplant Team of Dr's for the last 5 years. It hasn't changed in 5 years. Pegasys/Copegus was going to be our saving grace and it has also failed at treating chronic HCV post transplant. It does work for some but it hasn't lived up to the pharmaceutical and medical hype falling far short of the predicted high percentage of success rates for post transplant pt's.

Yep people I do live a good life now, have fun and great times, do a lot of things just for me and raise as much hell as I can because I have no choice. My clock is winding down very quickly.

Try living and walking in our shoes. I feel truly Blessed and are very Thankful for every new day that I open my eyes but I also know that is one day less in my very short time frame.

All 4 of us who are post transplant here - Me, , Jon and Boo have all said we never want pity. We were Blessed with A Gift Of Life just need friendship, understanding and support all along the way.

There lies the "Catch 22."

No one can possible understand unless they themselves are post transplant and again in chronic late stages.

That's life and life goes on.

Better to live it well or not than not at all.

See Ya I'm off while it's still a beautiful day with the sun shinning about 65 degrees and breezy.

A perfect top down morning and if it gets cloudy I'll still enjoy the hell out of that too.

Go Enjoy Life.

Love and Hugs.

Deb

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...