Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Yes this is true NO CYCLES. Beverly Flick has changed what I did to something different. I like her idea better, ONLY WITHOUT the DMPS. I think that she has hit the nail on the head for all of us. THANK YOU BEV!!!!! I have changed what she did to a 5 day on, and then 2 days of vitamins. With no days totally off Chemet. To see what Bev has done go to messages/govinfo/429 click on message #429, also message #430. Also at the search function type in suggestion this will give you key words for searching the govinfo site, as well as the other government search engines. Hope it OK to post your note. On Tue, 24 Oct 2000 12:43:27 -0500 " The Kramer Family " <nmkramer@...> writes: > , > > I saw your note on your return to work and am really happy for you. > Congrats! > > I haven't been able to keep up with the autism treatment group, but I > do seem > to recall that you chelated continuously. Is that correct - no > on/off days? > That would make the most sense to me. > > Thanks and best wishes for health, Kramer > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2009 Report Share Posted September 9, 2009 > > I've been reading a lot about Asperger's recently, and a LOT of the characteristics fit my daughter to a " T " , others do not, but there is one thing that has always gone on, and persisted to this day (and she's 15), and it is this: She has a huge aversion to calling people by name. She will not say their name, even though she knows it. Has anyone seen this in their child? My understanding from my child's autism testing is that this is a standard symptom evaluators look for. So, your daughter is definitely not alone. My understanding about it is that it has to do with social skills--they don't realize they need to say someone's name for them to know they are talking to them or just to be polite. I like the one person's response though--maybe they are uncomfortable about it for some reason. You might try very explicitly explaining to her that sometimes people need to hear their name to understand they are being spoken to, or that sometimes people just like to hear their names. To be honest, this is one of those things that, when I try to explain it to my son, he doesn't believe me. I've come to conclude it is one of those things he's going to have to figure out on his own, hear it from more people, or something. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2009 Report Share Posted September 9, 2009 My son too has had a lot of trouble putting faces to names. After reading up on some research, I discovered that people with autism tend to look at the features outside the face- the hair, shape of the head, height of the face. They don't look at the face itself. It's related to avoiding eye contact. So they don't recognize people by their faces, instead by the hair, shape of the head, etc. So it's much easier to get names wrong because people are more likely to have these features in common. Reggi Levinreggi@... From: baneline1 <baneline1@...> Sent: Wednesday, September 9, 2009 10:36:08 AMSubject: ( ) Re: quick question... My son is 11. He has an aunt that he sees several times a month that he has known all his life. Until about 6 months ago he called her "Kaitlyns Mom" we would remind him her name was but it just never took. I don't know if it is a processing thing or an assoication or what but he has always had a very difficult time with names. Mostly I just think that it is unimportant to him. Names go to identity and he doesn't really focus on individual identities it is more about what he assoicates that person with. Vickie B>> I've been reading a lot about Asperger's recently, and a LOT of the characteristics fit my daughter to a "T", others do not, but there is one thing that has always gone on, and persisted to this day (and she's 15), and it is this: She has a huge aversion to calling people by name. She will not say their name, even though she knows it. Has anyone seen this in their child? She will (now) call her one friend by name, but if you ask her who she had lunch with, or ask her to say the name of some of my friends, she will not do it. When she was younger, it literally took 3 years before she would either say, or call my (then) SO and our other friend by name. > > I'm just really curious about it, as when I ask her, I get the standard response "I don't know". And, I've come to accept that she may not know. > > Any ideas?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2009 Report Share Posted September 9, 2009 In Elder Robison's memoir " Look me in the Eye " he mentions that he never called anyone by their given name but would instead name them himself and that is what they were called from that point forward. For instance, his first wife is Unit 1 and his second wife is affectionately called Unit 2. I'm sure your daughter recognizes these people and has internally labeled them in her mind. You might pose the question, " Who is that? " or " What do you call that person? " and see if you get an interesting answer. http://www.johnrobison.com/about_john.asp > > I've been reading a lot about Asperger's recently, and a LOT of the characteristics fit my daughter to a " T " , others do not, but there is one thing that has always gone on, and persisted to this day (and she's 15), and it is this: She has a huge aversion to calling people by name. She will not say their name, even though she knows it. Has anyone seen this in their child? She will (now) call her one friend by name, but if you ask her who she had lunch with, or ask her to say the name of some of my friends, she will not do it. When she was younger, it literally took 3 years before she would either say, or call my (then) SO and our other friend by name. > > I'm just really curious about it, as when I ask her, I get the standard response " I don't know " . And, I've come to accept that she may not know. > > Any ideas? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2009 Report Share Posted September 9, 2009 My son age 5, calls us (his parents) and Patty. Other people get a real kick out of it or some say that it sounds disrespectful. I will tell him sometimes you can call me Mommy and he will but then the next time it is Patty again. It's not a battle that I want to fight so I don't make an issue out of it, just think it is kind of funny... Patty , Blaise's mom From: baneline1 <baneline1@...>Subject: ( ) Re: quick question... Date: Wednesday, September 9, 2009, 7:36 AM My son is 11. He has an aunt that he sees several times a month that he has known all his life. Until about 6 months ago he called her "Kaitlyns Mom" we would remind him her name was but it just never took. Recent Activity 15 New MembersVisit Your Group Give Back for Good Get inspired by a good cause. Y! Toolbar Get it Free! easy 1-click access to your groups. Start a group in 3 easy steps. Connect with others. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2009 Report Share Posted September 10, 2009 My son does a mixture of all these things, when he speaks to his friends mum he says, excuse me Elies Mum, I get a mixture of Lorraine, Mum, Mummy, Momma. When we go bowling he enjoys picking a different name for himself, frequently introduces himself to people as Lancaster, its a good name, but his real name is Gregor Brown. He is very precise with school mates names, if you don't say full name correctly he picks up on it it. I don't have a problem with any of it. From: baneline1 <baneline1msn (DOT) com>Subject: ( ) Re: quick question... Date: Wednesday, September 9, 2009, 7:36 AM My son is 11. He has an aunt that he sees several times a month that he has known all his life. Until about 6 months ago he called her "Kaitlyns Mom" we would remind him her name was but it just never took. Recent Activity 15 New MembersVisit Your Group Give Back for Good Get inspired by a good cause. Y! Toolbar Get it Free! easy 1-click access to your groups. Start a group in 3 easy steps. Connect with others. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2009 Report Share Posted September 10, 2009 When Beth was small we painted the outside of our house a striking deep red (to cover the very depressing mud brown of the previous owners) and so we lived at the Red House. We had friends who had painted their windows and front door blue – so they became the Blue House. However although she referred to it as the Blue House, we could never saying that was where we were going… so we would say we were going to see “Aunty Stel” or “ and JJ” (their kids). For Beth this was never enough – we were going to see “Aunty Stel, Uncle Andy, , JJ and Isabel” and she would never permit it to be abbreviated to just one of the family or just “the Blue House” by anyone other than herself!!!!! She also frequently refers to herself as “the Gran-daughter of a minister” and all friends are referred to by their first and middle names a lot of the time. All toys and pets have middle names as well as the surnamel!!! But what makes me laugh the most – for all her convoluted names and insistence on the usage, she tries periodically to talk in abbreviated speech using only the first letters of the words. For example “s,I,f,t,b?” means “shall I feed the bunny?”. I have refused to play along with this and make her say the full words but she hates the “waste of breath” in saying it in a way we can all understand. And she despises anything verbal being repeated as it is “such a waste”!!! I normally point out that if she was already doing the requested instruction, I wouldn’t need to repeat the request… I think you have to retain a sense of humour or you really would go mad. a -----Original Message----- From: [mailto: ] On Behalf Of Lorraine son Sent: 10 September 2009 10:48 To: Subject: Re: ( ) Re: quick question... My son does a mixture of all these things, when he speaks to his friends mum he says, excuse me Elies Mum, I get a mixture of Lorraine, Mum, Mummy, Momma. When we go bowling he enjoys picking a different name for himself, frequently introduces himself to people as Lancaster, its a good name, but his real name is Gregor Brown. He is very precise with school mates names, if you don't say full name correctly he picks up on it it. I don't have a problem with any of it. From: baneline1 <baneline1msn (DOT) com> Subject: ( ) Re: quick question... Date: Wednesday, September 9, 2009, 7:36 AM My son is 11. He has an aunt that he sees several times a month that he has known all his life. Until about 6 months ago he called her " Kaitlyns Mom " we would remind him her name was but it just never took. Recent Activity 15 New Members Visit Your Group Give Back for Good Get inspired by a good cause. Y! Toolbar Get it Free! easy 1-click access to your groups. Groups Start a group in 3 easy steps. Connect with others. .. No virus found in this outgoing message. Checked by AVG - www.avg.com Version: 8.5.409 / Virus Database: 270.13.89/2359 - Release Date: 09/10/09 05:50:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2009 Report Share Posted September 12, 2009 On May 9, 6:16am, " oneplaceforspecialneeds " wrote: } In Elder Robison's memoir " Look me in the Eye " he mentions that he nev= } er called anyone by their given name but would instead name them himself an= } d that is what they were called from that point forward. For instance, his= } first wife is Unit 1 and his second wife is affectionately called Unit 2. I have an adult Aspie friend. I told her that after my son had had a cookie she baked, he said " I'm going to call her Miss Good Cookie. " She was very amused and said it was just the sort of thing she did herself. } I'm sure your daughter recognizes these people and has internally labeled t= } hem in her mind. You might pose the question, " Who is that? " or " What do y= } ou call that person? " and see if you get an interesting answer. That may or may not be true. My son definitely has trouble recognizing people, especially out of usual context. Both my husband and I have the same problem, actually. Willa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2009 Report Share Posted September 12, 2009 On May 9, 8:20pm, " a " wrote: } " Aunty Stel " or " and JJ " (their kids). For Beth this was } never enough - we were going to see " Aunty Stel, Uncle Andy, , } JJ and Isabel " and she would never permit it to be abbreviated to just } one of the family or just " the Blue House " by anyone other than } herself!!!!! Bam is very precise about the names of things. He doesn't have a glass of soda, he has a glass of caffiene-free diet Coke! The other day, I offered his babysitter a glass of Sprite and he quickly pointed out that it was *not* Sprite, it was Sunny Select Lemon-Lime! Willa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2009 Report Share Posted September 12, 2009 me too...it was SOOO embarrassing when my neighbour spoke to me at the garbage cans and first i did´nt recognize her....she lives above me..............I met her today too in a shop and NOW I recognized her...happens to me very often,indeed! in Sweden--- Den lör 2009-09-12 skrev Willa Hunt <willaful@...>: Från: Willa Hunt <willaful@...>Ämne: Re: ( ) Re: quick question...Till: Datum: lördag 12 september 2009 08.01 On May 9, 6:16am, "oneplaceforspecial needs" wrote:} In Elder Robison's memoir "Look me in the Eye" he mentions that he nev=} er called anyone by their given name but would instead name them himself an=} d that is what they were called from that point forward. For instance, his=} first wife is Unit 1 and his second wife is affectionately called Unit 2.I have an adult Aspie friend. I told her that after my son had hada cookie she baked, he said "I'm going to call her Miss Good Cookie."She was very amused and said it was just the sort of thing she didherself.} I'm sure your daughter recognizes these people and has internally labeled t=} hem in her mind. You might pose the question, "Who is that?" or "What do y=} ou call that person?" and see if you get an interesting answer.That may or may not be true. My son definitely has trouble recognizingpeople, especially out of usual context. Both my husband and I havethe same problem, actually.Willa Går det långsamt? Skaffa dig en snabbare bredbandsuppkoppling. Sök och jämför priser hos Kelkoo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2009 Report Share Posted September 14, 2009 We had this problem as well and still do to some extent. Part of it seems to me to be a difficulty with whole/part concepts. My ds had a lot of trouble generalizing. Some people said that their child would name people by characteristics like house color vs. names. Again, that would be a social skill - to note people by their given names vs. a characteristic. It can be really cute when they are little but keep an eye on getting them to move towards more socially acceptable names so that they can fit in eventually and have friends. I would not be that friendly to someone who called me, " unit 1 " really. I suppose it would have to grow on a person. But mostly I would find it annoying. You can say, " Yes, the red house is where lives! " to add the name to the characteristic. Â Roxanna " The only thing necessary for the triumph of evil is for good men to do nothing. " E. Burke RE: ( ) Re: quick question... On May 9, 8:20pm, " a " wrote: } " Aunty Stel " or " and JJ " (their kids). For Beth this was } never enough - we were going to see " Aunty Stel, Uncle Andy, , } JJ and Isabel " and she would never permit it to be abbreviated to just } one20of the family or just " the Blue House " by anyone other than } herself!!!!! Bam is very precise about the names of things. He doesn't have a glass of soda, he has a glass of caffiene-free diet Coke! The other day, I offered his babysitter a glass of Sprite and he quickly pointed out that it was *not* Sprite, it was Sunny Select Lemon-Lime! Willa Quote Link to comment Share on other sites More sharing options...
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