Re: No mercury or tightly bound?

[Guest guest]

In a message dated 10/14/00 2:14:56 PM Pacific Daylight Time, HMH95@...

writes:

> my son was basically

> recovered when we started chelation and we saw many autistic

> behaviors, as well as severe hyperactivity when we started

>

, How long did it take before you saw good results?

[Guest guest]

,

I don't know but my instinct would be that he might need a higher dose and

the ALA as old as he is. I would do that before I would give up.

Carol G

[Guest guest]

I do every eight hours with my little boy. Dr. Cave said you can use the 4

or 8 hour method. We did four hour without ALA. Now we give slow release

every 8 hours. Do you have a copy of Dr. Amy's protocol? I have never seen

this.

Thanks

LACitrus1@...

[Guest guest]

, No I have not seen any changes in my little boy who is now 5. We have

seen only good things since we started the DMSA. He was developmental

delayed. He does understand just about everything that we ask of him now.

His fine motor skills have improved. He is nonverbal. He does say ma, ma,

DA, DA, etc., now that we have started. We are on our 2nd round of

DMSAw/ALA. He gets 60 DMSA and 30 ALA. Do you know if they increase this as

the body gets use to it.

Thanks,

[Guest guest]

,

I'm wondering why the treatment schedule for this little boy is every 8

hours even with the ALA. Shouldn't it be every 3 or 4 hours? Why isn't Dr.

Cave using the every-4-hours protocol that she and Dr. Holmes have

recommended to everyone else? And why are they dosing at a great ratio (mg

per body weight) than they have recommended in the protocol that they have

sent out to other doctors? The DMSA/ALA ratio on their protocol says " 0.5mg

DMSA/0.5mg ALA per pound of body weight every 4 hours " . I don't see this

reflected in this boy's treatment. Would he do better on a more frequent

dosage, I wonder? SO many questions?

[ ] No mercury or tightly bound?

> I need to ask the advice/experience of the list.

>

> I have a very close friend whose little boy is turning eight this

> month. They did about 6 rounds of DMSA(sr) with no mercury showing

> up in either of two urine tests (DDL). They have since moved to step

> two using ALA with the DMSA. They are finishing their first round of

> step 2 and will do a stool test next week while on the second round

> with the ALA. Their doctor is Dr. Cave.

>

> Does any one out there have any experience like this where it takes

> this long to pull out any mercury? None of his other metals were

> high either. He weighs around 75 pounds and is on 110mg of DMSA(slow

> release) and 55mg of ALA every eight hours. Any ideas on continuing

> chelation with no mercury showing up and do you keep on if the stool

> test shows none also. By the way, she sees no changes in her son

> while doing all of this also.

>

> Her son is verbal and high functioning. But, my son was basically

> recovered when we started chelation and we saw many autistic

> behaviors, as well as severe hyperactivity when we started

> chelating. The pharmacist in Baton Rouge says that they have only

> seen about three children not have mercury and this child is one of

> them. I just wonder if it takes a higher dosage for some children or

> is it because he is older? Any ideas or advice? This mom is really

> discouraged and confused.

>

> Thanks!

>

>

>

>

>

[Guest guest]

I went over the protocol with our doctor which is where I got my

information. The only time it said to treat every 8 hours was with the

DMSA-SR or DMSA/ALA-SR. But I thought I'd heard she was leaning more

towards giving the dosages every 4 hours as of recently. oh well. Have

you seen any difficulties since you switched to the 8-hour?

Re: [ ] No mercury or tightly bound?

> I do every eight hours with my little boy. Dr. Cave said you can use the

4

> or 8 hour method. We did four hour without ALA. Now we give slow release

> every 8 hours. Do you have a copy of Dr. Amy's protocol? I have never

seen

> this.

> Thanks

>

> LACitrus1@...

>

>

>

[Guest guest]

We have used DMSA every 8 hour with great success, I recently read

that kids clear out the DMSA at a substantially slower rate than

adults. Adults clear about 1/2 of the drug in 2 hours and it takes

over 2 hours to clear 1/2 in kids. It takes a couple of days for the

metals to redeposit in tissue as well. That is why every 8 hours has

worked well for many and why so many people see regressions after a

couple of days into the off cycle. That is why we use a single low

dose daily DMSA on off cycles at bed time to keep the free mercury

from redepositing. Clinically it works on my kids and there is no

plateau or regression on off days. WE also give the minerals on off

days in the morning. We now give Chemet every 6 hours

on on days and DMPS twice daily, once orally and a suppository at bed

time. Presumably the DMPS will help push the mercury out as DmSA

clearance in kids is relatively impared. We do not use ala and had a

bad experience with it in terms of a flare up in symptoms that took a

couple of weeks to recover from. It gave me severe headaches as

well. Beverly

--- In egroups, " lisa edmond " <sjcsydney@h...>

wrote:

> ,

> I'm wondering why the treatment schedule for this little boy is

every 8

> hours even with the ALA. Shouldn't it be every 3 or 4 hours? Why

isn't Dr.

> Cave using the every-4-hours protocol that she and Dr. Holmes have

> recommended to everyone else? And why are they dosing at a great

ratio (mg

> per body weight) than they have recommended in the protocol that

they have

> sent out to other doctors? The DMSA/ALA ratio on their protocol

says " 0.5mg

> DMSA/0.5mg ALA per pound of body weight every 4 hours " . I don't

see this

> reflected in this boy's treatment. Would he do better on a more

frequent

> dosage, I wonder? SO many questions?

>

>

>

> [ ] No mercury or tightly bound?

>

>

> > I need to ask the advice/experience of the list.

> >

> > I have a very close friend whose little boy is turning eight this

> > month. They did about 6 rounds of DMSA(sr) with no mercury

showing

> > up in either of two urine tests (DDL). They have since moved to

step

> > two using ALA with the DMSA. They are finishing their first

round of

> > step 2 and will do a stool test next week while on the second

round

> > with the ALA. Their doctor is Dr. Cave.

> >

> > Does any one out there have any experience like this where it

takes

> > this long to pull out any mercury? None of his other metals were

> > high either. He weighs around 75 pounds and is on 110mg of DMSA

(slow

> > release) and 55mg of ALA every eight hours. Any ideas on

continuing

> > chelation with no mercury showing up and do you keep on if the

stool

> > test shows none also. By the way, she sees no changes in her son

> > while doing all of this also.

> >

> > Her son is verbal and high functioning. But, my son was basically

> > recovered when we started chelation and we saw many autistic

> > behaviors, as well as severe hyperactivity when we started

> > chelating. The pharmacist in Baton Rouge says that they have only

> > seen about three children not have mercury and this child is one

of

> > them. I just wonder if it takes a higher dosage for some children

or

> > is it because he is older? Any ideas or advice? This mom is

really

> > discouraged and confused.

> >

> > Thanks!

> >

> >

> >

> >

> >

[Guest guest]

,

We are in the same boat, so to speak. Except that we are seeing changes.

Our son is 20, so we expect the changes to be slow. We did three rounds in

Phase 1 and found no mercury, as expected. Now we are starting our seventh

round of DMSA/LA and will be testing urine and stool on Tuesday. We did

find high arsenic and aluminum, also trace metals (including small amounts

of mercury) in the hair. But we are still waiting for the big find of

mercury. I think for some kids it is more of a search, and the mercury may

be more tightly bound. OR maybe her son's detox systems don't work well. OR

maybe DMSA doesn't work as well for him and they might have to try another

chelator. Tell her to hang in there!!! We are! It's frustrating, but I

keep telling myself that I know the mercury was injected into him--we just

have to figure out how to get it out effectively.

Barb

[ ] No mercury or tightly bound?

>I need to ask the advice/experience of the list.

>

>I have a very close friend whose little boy is turning eight this

>month. They did about 6 rounds of DMSA(sr) with no mercury showing

>up in either of two urine tests (DDL). They have since moved to step

>two using ALA with the DMSA. They are finishing their first round of

>step 2 and will do a stool test next week while on the second round

>with the ALA. Their doctor is Dr. Cave.

>

>Does any one out there have any experience like this where it takes

>this long to pull out any mercury? None of his other metals were

>high either. He weighs around 75 pounds and is on 110mg of DMSA(slow

>release) and 55mg of ALA every eight hours. Any ideas on continuing

>chelation with no mercury showing up and do you keep on if the stool

>test shows none also. By the way, she sees no changes in her son

>while doing all of this also.

>

>Her son is verbal and high functioning. But, my son was basically

>recovered when we started chelation and we saw many autistic

>behaviors, as well as severe hyperactivity when we started

>chelating. The pharmacist in Baton Rouge says that they have only

>seen about three children not have mercury and this child is one of

>them. I just wonder if it takes a higher dosage for some children or

>is it because he is older? Any ideas or advice? This mom is really

>discouraged and confused.

>

>Thanks!

>

>

>

>

>