Guest guest Posted January 12, 2011 Report Share Posted January 12, 2011 Hello all, im new to the group because i need some advice and encouragement on what i should do! My son, Trey, is 16 months old. When he was a week old he had open heart surgery. All is good with that. But when he was 10 months old i found out he had infantile scoliosis which they say is caused by his heart defect in his case. Well i took him to the back dr in July 2010 his dr said that he had a curve of 32 degrees but he didnt want to put him in a brace yet bacause he wasnt walking we took him back to the dr in october 2010 and he was walking so they put him in a TLSO brace his spine was 42 degrees. He absolutly hated the brace at first still isnt to fond of it but he can move alot better and is gettn used to it. i just took him back to the dr last week and his spine is now 49 degrees. Im torn on what to do because he did just get the brace and started wearing it like hes supposed to not to long ago so im not sure if i should just give it more time to work or what! i have seen alot of your kids are in casts, which is another thing his dr said would happen if the brace didnt work but the cast thought scares me because i think of it limiting his mobility so much! and im also really scared of what happens if his spine gets any worse! thanks for listening, Quote Link to comment Share on other sites More sharing options...
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