] Re: Questions related with seizure

[Guest guest]

Kate,

The hospital should do a full diagnostic workup and not just start on meds

without investigation.

Apart from AEDs, some people respond well to the ketogenic diet, which is

difficult to do but I have read that some people have found a modified Atkins

diet helps (ie low carbs). I have no experience of either diet.

My son has had 3 nocturnal seizures now and we have just started him off on

B6/P5P again as this is what worked last time.I dare say we will be going back

to the Paediatric Neurologist at Addenbrooke's again - haven't seen him for

about 5 years!

Margaret

> > > >

> > > > Hello again

> > > >

> > > > I am sorry to bring my son's condition frequently here but I

> > feel not very clear in my mind.My son had the second seizure last

> > Sunday and I received the appointment from the Neurology dept at

> > Royal Free on the 12th of February,we've got more than 10 days ahead.

> > > > The secretary is telling me if he has the third one obviously

> > you can bring him here, emergency dept. she said...For me it is such

> > a big frustration, waiting without knowing the reasons why he had

> > the first and the second seizure..he has hyperventilation,perhaps

> > other metabolic issues..One friend pointed glutamate and seizures

> > link.last year his test from metametrix showed some problems with

> > glutamate..

> > > > At present I don't know should I wait for the appointment or

> > find a neurologist privately and get the answer.Could it be combined

> > both?I mean without leaving the NHS system, can I take him to a

> > neurologist, do you know any good one ?

> > > > At present my priority to prevent future seizures,I don't know

> > what is the cause?

> > > > I am timid to give anything but still keep the general vitamins

> > suppl.

> > > > I am not sending him to the school,because I don't know what

> > measures the school should take.

> > > > Shortly,has anyone know a good neurologist?

> > > > Thanks

> > > > Nevin

> > > >

> > >

> >

> >

> >

>