Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 Margaret,It is the state system that would do the EEG no problem. They are aware of the DAN in Norway and are to some extent willing to co-operate. I just don't know if it's actually necessary after reading all the replies. I don't want my son sedated and have to obviously sit down again and discuss with the DAN and the neurologist why exactly we are looking doing this and what possible gains could come from it. Until then I'm going to put the EEG on hold.Thanks for the advice, From: Margaret <m.collins9@...>Subject: Re: EEG, bit long Autism Treatment Date: Wednesday, January 6, 2010, 8:03 PM , I understand it is a DAN who wants the EEG. Have you thought of getting referred to a neurologist within the State health system? By the way, my son's former neurologist says that you treat the child and not the EEG. If there is seizure activity of some kind it might take more than a basic 20 minute EEG to spot it and extensive investigation would I think be easier to get within the national state health system. I guess it would also be cheaper (free?). Margaret > > > > > > Hi, > > > Dear son is scheduled for an EEG later this month and now I am not so sure we should put him through it. Our DAN recommended it as his test results from France revealed high homocysteine levels. We are doing more blood work but has started on B12 and will start on DMG later this month. She suggested the EEG which is available to us without a problem on short notice and she told us which sedation is safe to use (apparently they use something that sounds like.. stecolide?). Anyway I'm starting to wonder if it's worth putting our son through the procedure. If he was having seizures wouldn't I see them? I sleep with him often when he's upset and he does twitch in his sleep but surely that is not a seizure, everyone twitches don't they? > > > I know that high homocysteine levels are related to seizures and neurological problems but I can't help wondering if this is really necessary. We have been on B12 for two weeks now and changed to spectrum complete and we are seeing some fantastic changes in our son. He's so much more aware and is playing with toys as intended. He's learning and he's remembering things and I've rarely seen any head banging which was such a big concern that I was in tears about it. So he's improvements are so marked that I don't want to upset his progress with a procedure that may upset him or put any drugs what so ever in him. > > > So as you can tell I'm a bit torn and obviously need to talk with our DAN again when we see her at the end of this month but was wondering for those of you that are familiar with seizures what you thought? Any advice? > > > Thanks for listening, > > > > > > > Quote Link to comment Share on other sites More sharing options...
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