Guest guest Posted January 5, 2010 Report Share Posted January 5, 2010 ,Thanks for the thought but we live in Sweden and no one is going to travel out to us.Cheers, From: <mark.grabiec@...>Subject: Re: EEG, bit longAutism Treatment Date: Tuesday, January 5, 2010, 4:20 AM We had people come to the house and do one with no sedation (unless it's that one where you fall asleep whilst wearing the hood, which ours wasn't). Tom wasn't thrilled but he certainly didnt kick up. And believe me, he does sometimes. This was on the NHS,they're based in Kidderminster and they travel to you. No idea if I still have the letter but ask your Paed - we did this because they've failed to get an EEG done 4 times. And of course it showed nothing because it only shows what's happening during the actual procedure. Taurine interferes with it (i.e. Taurine raises the seizure threshold). We dont regret doing it - seizures can manifest themselves in all sorts of ways. It's one of those things where it's h ard to prove they're NOT happening. Steph x > > Hi, > Dear son is scheduled for an EEG later this month and now I am not so sure we should put him through it. Our DAN recommended it as his test results from France revealed high homocysteine levels. We are doing more blood work but has started on B12 and will start on DMG later this month. She suggested the EEG which is available to us without a problem on short notice and she told us which sedation is safe to use (apparently they use something that sounds like.. stecolide?). Anyway I'm starting to wonder if it's worth putting our son through the procedure. If he was having seizures wouldn't I see them? I sleep with him often when he's upset and he does twitch in his sleep but surely that is not a seizure, everyone twitches don't they? > I know that high homocysteine levels are related to seizures and neurological problems but I can't help wondering if this is really necessary. We have been on B12 for two weeks now and changed to spectrum complete and we are seeing some fantastic changes in our son. He's so much more aware and is playing with toys as intended. He's learning and he's remembering things and I've rarely seen any head banging which was such a big concern that I was in tears about it. So he's improvements are so marked that I don't want to upset his progress with a procedure that may upset him or put any drugs what so ever in him. > So as you can tell I'm a bit torn and obviously need to talk with our DAN again when we see her at the end of this month but was wondering for those of you that are familiar with seizures what you thought? Any advice? > Thanks for listening, > > Quote Link to comment Share on other sites More sharing options...
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