Re: colonoscopy next wk advice please

January 31, 2010

Nina,

Only a couple of things I can tell you:

take loads of food for after the procedure;

tell them in advance that he has autism as they told me they would have

reduced Tom's waiting time and who knows what else they could do;

(general tip for any visit anywhere, we made an A4 sheet for Tom in hosp

once entitled 'all about me' with they key to his disability and what

the staff could do to help (in Tom's case, not ask lots of questions and

not make him wait too long)

So glad you're getting some attention. Hope it goes fantastically and

brings all the answers xxx

malcolm4237 wrote:

>

> Hi everyone,

> Looking for any advice ( esp from those with older children) to get us

> through please !

> We have to go in 2 days before the procedure !! Apart from taking in a

> suitcase full of activity books, dvds and cds and maybe a laptop,could

> you give any tips on what i should be prepared for, also food ? are

> they allowed much? kids on sp diets ?did you take your own

> soups,drinks etc etc etc.Do the children stay in the room,ie if we get

> one, all day ?I will probably ask to go home at nightime....

> Jack , nearly 14 , won't have the needle either so will have to have

> the dreaded mask etc.

> ( last time he was put under , 6 yrs ago, all he said was " let me go "

> whan he was being held ........ v sad), so any advice on supplements

> too would be v much appreciated.

> TIA Nina

>

January 31, 2010

Hi NinaCant help you on the older kid front but we under went a colonoscopy and endo in December at the Chelsea and Westminster hospital for our 6yr old ds. Dr Fell and the registrar allowed us to go home at night so long as we watched dehydration which is their main concern with kids undergoing this procedure. We only had to go in the day before and have the preparation meds and stayed for 4hrs. The head nurse and reg were the ones who helped us minimise the time in hospital. We took in all our own chicken stock and allowable foods under our diet and that fitted this procedure. Dr Fell is looking to make what we did as the norm, so two day visits rather than kids having to be in over night. I just asked loads of questions and then got them to help me minimise the time, it has to be from the top or close to ..... the nurses were of no use on letting us be released.Going under was still horrible and i have no answers with that. There are some books and dvds around but none of these helped us as our ds would not understand.All the best.KateOn 31 Jan 2010, at 21:37, malcolm4237 wrote:Hi everyone,Looking for any advice ( esp from those with older children) to get us through please !We have to go in 2 days before the procedure !! Apart from taking in a suitcase full of activity books, dvds and cds and maybe a laptop,could you give any tips on what i should be prepared for, also food ? are they allowed much? kids on sp diets ?did you take your own soups,drinks etc etc etc.Do the children stay in the room,ie if we get one, all day ?I will probably ask to go home at nightime.... Jack , nearly 14 , won't have the needle either so will have to have the dreaded mask etc.( last time he was put under , 6 yrs ago, all he said was " let me go" whan he was being held ........ v sad), so any advice on supplements too would be v much appreciated.TIA Nina

February 1, 2010

Tom is 11 and went in the day before, in the morning. so had been there a full

24 hours before procedure. Mark was able to get him a room on his own. We

couldn't have gone home anyway as we live in NOttingham. He thought they were

very good but he took lots of snacks for himself and arranged to have my brother

go and take over from him for a couple of hours. Took DVD player but Tom quite

likes lying down watching DVDs. They're not allowed much, only clear stuff.

Your instructions might be different from ours but Tom was on clear soup and

water all the day before. Is there no way he can have the needle? Even with EMLA

cream and massive distractions? I'd hate the mask and it takes longer doesn't

it? Is this based on a bad experience? again Mark found them all very clued

up, friendly and dynamic - they are by now very used to dealing with kids with

autism. Wonder why on earth that could be ;-) email us off list if you like,

Mark could tell you more

steph x

>

> Hi everyone,

> Looking for any advice ( esp from those with older children) to get us through

please !

> We have to go in 2 days before the procedure !! Apart from taking in a

suitcase full of activity books, dvds and cds and maybe a laptop,could you give

any tips on what i should be prepared for, also food ? are they allowed much?

kids on sp diets ?did you take your own soups,drinks etc etc etc.Do the children

stay in the room,ie if we get one, all day ?I will probably ask to go home at

nightime....

> Jack , nearly 14 , won't have the needle either so will have to have the

dreaded mask etc.

> ( last time he was put under , 6 yrs ago, all he said was " let me go " whan he

was being held ........ v sad), so any advice on supplements too would be v much

appreciated.

> TIA Nina

>

February 1, 2010

Hi Kate,

-

>. Dr Fell and the registrar allowed us to go home at night

> so long as we watched dehydration which is their main concern with

> kids undergoing this procedure.

Great !my brother lives near by.

We only had to go in the day before

> and have the preparation meds and stayed for 4hrs. The head nurse and

> reg were the ones who helped us minimise the time in hospital. We

> took in all our own chicken stock and allowable foods under our diet

> and that fitted this procedure.

Are you scd?

> t. I just asked loads of questions and then got them to help

> me minimise the time, it has to be from the top or close to ..

Being daft here, these are questions about the procedure???

....

> nurses were of no use on letting us be released.

!!!

>

> Going under was still horrible and i have no answers with that. There

> are some books and dvds around but none of these helped us as our ds

> would not understand.

Same here

Thanks v much for your help,

Nina x

>

February 1, 2010

Sara,

Thanks v much for this,

N xx

>

> take loads of food for after the procedure;

> tell them in advance that he has autism as they told me they would have

> reduced Tom's waiting time and who knows what else they could do;

> (general tip for any visit anywhere, we made an A4 sheet for Tom in hosp

> once entitled 'all about me' with they key to his disability and what

> the staff could do to help (in Tom's case, not ask lots of questions and

> not make him wait too long)

> So glad you're getting some attention. Hope it goes fantastically and

>

February 1, 2010

Sara,

Thanks v much for this,

N xx

>

> take loads of food for after the procedure;

> tell them in advance that he has autism as they told me they would have

> reduced Tom's waiting time and who knows what else they could do;

> (general tip for any visit anywhere, we made an A4 sheet for Tom in hosp

> once entitled 'all about me' with they key to his disability and what

> the staff could do to help (in Tom's case, not ask lots of questions and

> not make him wait too long)

> So glad you're getting some attention. Hope it goes fantastically and

>

February 1, 2010

Hiya,

Thank you v much ,I will email you off list ,

and yes bad bad experience 6 years ago but even C & W nurse " respectfully

declined " to take bloods last year...

Nina

>

> Tom is 11 and went in the day before, in the morning. so had been there a full