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Hello all,

I have a quick question for those who have or had the experience with Shriner's.

I received the letter for Shane to have an " evaluation appointment " with them.

I just got off the phone with the appointment person and the appointment date is

2/1/11 at 11am. Here's where I would love to know what you think.

Shane was already casted on 1/11/11 at Stanley Children's Hospital - New

York Presbyterian in New York. Do you think that Shriner's would turn Shane

away since he's started treatment elsewhere? I didn't tell them when I just

made the appointment that Shane has already been casted elsewhere. I fear that

they then WILL NOT allow him to be seen by them. Should I not bother with

Shriner's and cancel the appointment and hope that the doctor at Stanley

don't do to me again what they already did?

I really want Shriner's to see him and hopefully accept him to their facility.

I don't have anything against the other place other than the runaround and

wasted time they gave me all because of my insurance (Aetna). I want to make

sure that something so unimportant (compared to Shane's health) never happens

again (even if that means that I switch to a facility that puts the children

first and insurance on the back burner).

Do you think that Shriner's will turn him away because he's already been casted

or should I just take him on the 1st and explain to them why I already had him

casted elsewhere (which was to start some type of treatment as opposed to

sitting and waiting, doing nothing)?

Help. Any advice with Shriner's and what you think I should do would be most

appreciated.

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Hi Suzy,

Please do not worry - they will NOT turn you away, nor will they hold it against

you that your son was already casted someplace else - I PERSONALLY GUARANTEE

THIS. Parents take their children to Shriners all the time for a second

opinion, etc. and most often they stay with Shriners once they see the quality

of care and level of compassion that is offered.

PLEASE do not skip this appointment for fear they will turn you away or in any

way be turned off by the fact that Shane was seen elsewhere first - that will

not happen. (In fact, when we took to Shriners for the first time he was

in a brace and under the care of another doctor here in NY. So we, too, had

started treatment someplace else.)

You have nothing to lose and everything to gain by keeping your appointment.

Best of luck and again, please stop worrying. The doctors at Shriners do not

have big egos. In fact, Dr. B (the chief of staff) often consults with other

doctors on cases. He and Dr. V of Stanley are friends and have seen many

of the same patients. They think highly of each other.

I hope this puts your mind at ease.

>

> Hello all,

>

> I have a quick question for those who have or had the experience with

Shriner's. I received the letter for Shane to have an " evaluation appointment "

with them. I just got off the phone with the appointment person and the

appointment date is 2/1/11 at 11am. Here's where I would love to know what you

think.

>

> Shane was already casted on 1/11/11 at Stanley Children's Hospital -

New York Presbyterian in New York. Do you think that Shriner's would turn Shane

away since he's started treatment elsewhere? I didn't tell them when I just

made the appointment that Shane has already been casted elsewhere. I fear that

they then WILL NOT allow him to be seen by them. Should I not bother with

Shriner's and cancel the appointment and hope that the doctor at Stanley

don't do to me again what they already did?

>

> I really want Shriner's to see him and hopefully accept him to their facility.

I don't have anything against the other place other than the runaround and

wasted time they gave me all because of my insurance (Aetna). I want to make

sure that something so unimportant (compared to Shane's health) never happens

again (even if that means that I switch to a facility that puts the children

first and insurance on the back burner).

>

> Do you think that Shriner's will turn him away because he's already been

casted or should I just take him on the 1st and explain to them why I already

had him casted elsewhere (which was to start some type of treatment as opposed

to sitting and waiting, doing nothing)?

>

> Help. Any advice with Shriner's and what you think I should do would be most

appreciated.

>

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My experience with Shriner's in SLC - they specifically said - if our insurance changes, if things get difficult for us - whatever the reason - we were always welcome to come back to see them.  Even if had already started treatment somewhere else.

On Wed, Jan 19, 2011 at 12:14 PM, suzy12771 <suzy3333@...> wrote:

 

Hello all,

I have a quick question for those who have or had the experience with Shriner's. I received the letter for Shane to have an " evaluation appointment " with them. I just got off the phone with the appointment person and the appointment date is 2/1/11 at 11am. Here's where I would love to know what you think.

Shane was already casted on 1/11/11 at Stanley Children's Hospital - New York Presbyterian in New York. Do you think that Shriner's would turn Shane away since he's started treatment elsewhere? I didn't tell them when I just made the appointment that Shane has already been casted elsewhere. I fear that they then WILL NOT allow him to be seen by them. Should I not bother with Shriner's and cancel the appointment and hope that the doctor at Stanley don't do to me again what they already did?

I really want Shriner's to see him and hopefully accept him to their facility. I don't have anything against the other place other than the runaround and wasted time they gave me all because of my insurance (Aetna). I want to make sure that something so unimportant (compared to Shane's health) never happens again (even if that means that I switch to a facility that puts the children first and insurance on the back burner).

Do you think that Shriner's will turn him away because he's already been casted or should I just take him on the 1st and explain to them why I already had him casted elsewhere (which was to start some type of treatment as opposed to sitting and waiting, doing nothing)?

Help. Any advice with Shriner's and what you think I should do would be most appreciated.

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What happened at Columbia? Do you mind e-mailing me privately to discuss it? That's my fallback hospital..... I also have Aetna and go to Rochester, which we love if you want any info. I would be glad to share. Thanks! - Noelle's mommy, 4 years oldRochester NYCasted 8 times for 1 1/2 years9 months in braceRegressed and went into cast 9Back in brace at 8 degrees supine, 13 standing! reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: suzy12771 <suzy3333@...>Subject: What do you think...infantile scoliosis treatment Date: Wednesday, January 19, 2011, 8:14 PM

Hello all,I have a quick question for those who have or had the experience with Shriner's. I received the letter for Shane to have an "evaluation appointment" with them. I just got off the phone with the appointment person and the appointment date is 2/1/11 at 11am. Here's where I would love to know what you think.Shane was already casted on 1/11/11 at Stanley Children's Hospital - New York Presbyterian in New York. Do you think that Shriner's would turn Shane away since he's started treatment elsewhere? I didn't tell them when I just made the appointment that Shane has already been casted elsewhere. I fear that they then WILL NOT allow him to be seen by them. Should I not bother with Shriner's and cancel the appointment and hope that the doctor at Stanley don't do to me again what they already did?I really want Shriner's to see him and hopefully accept him to their facility. I don't have anything against the

other place other than the runaround and wasted time they gave me all because of my insurance (Aetna). I want to make sure that something so unimportant (compared to Shane's health) never happens again (even if that means that I switch to a facility that puts the children first and insurance on the back burner). Do you think that Shriner's will turn him away because he's already been casted or should I just take him on the 1st and explain to them why I already had him casted elsewhere (which was to start some type of treatment as opposed to sitting and waiting, doing nothing)?Help. Any advice with Shriner's and what you think I should do would be most appreciated.

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