] Re: Questions related with seizure

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Hi NevinWe are treading a very similar path to you having just been through our forth grand mal seizure (last one was on Monday at the hammersmith bus station), we now have our CWH ped neurologist appointment (seeing Dr Kinali) scheduled for this tuesday where they wish to prescribe antiseizure medications. I feel this is only a band aid solution and I am dedicating this weekend to research so that I can be armed with questions that they might look into further to help ds. I feel like we are in a maze with a blind fold on .... in fact i dont think many of the drs know how to navigate the medical system either! I am looking at the metabolic imbalances, breathing techniques, nutrition options.... just trying to be proactive rather than waiting for the drs. I am catching up with a couple of drs from CWH to get some names and ideas of paths to take both through nhs and outside. In addition to this I am have lined up an appointment to a good nutritionists and have set up an appointment to see linda scotsman. The last seizure gave me a good kick start!Margaret curious to know who is Mrs ?ASD is one thing, seizures are adding another layer that I find rattles my world a little too much and as a mother i feel totally helpless. I am trying to turn around this helplessness into being proactive, and powered by knowledge that can help unlock the reason why we have the seizures and ideally help the autism. Happy to give you any of the names i find in this process and would love to hear how you go and for that matter anyone else that has been down this route. KateOn 30 Jan 2010, at 09:33, tiredbee2006 wrote:Dear Margaret,Thank you for responding.My son has been on B6 (50mg) a day, plus the other vit.B complex..He takes zinc picolinate (3omg) daily and eats manganese rich food almonds daily and he still had the seizures.So understanding the cause (in my brain it links with his hyperventilation)of this incidents are important for me.But this time I will insist at the neurology appointment not to ignore possibility of metabolic imbalances.I will take some research papers with me.There will be little time to talk but at least they can hear once again my concerns and if it is ignored I will put them in formal letter this time.I'm glad that you solved seizure issues in your family in a great degree.Thanksnevin> >> > Hello again> > > > I am sorry to bring my son's condition frequently here but I feel not very clear in my mind.My son had the second seizure last Sunday and I received the appointment from the Neurology dept at Royal Free on the 12th of February,we've got more than 10 days ahead.> > The secretary is telling me if he has the third one obviously you can bring him here, emergency dept. she said...For me it is such a big frustration, waiting without knowing the reasons why he had the first and the second seizure..he has hyperventilation,perhaps other metabolic issues..One friend pointed glutamate and seizures link.last year his test from metametrix showed some problems with glutamate..> > At present I don't know should I wait for the appointment or find a neurologist privately and get the answer.Could it be combined both?I mean without leaving the NHS system, can I take him to a neurologist, do you know any good one ?> > At present my priority to prevent future seizures,I don't know what is the cause?> > I am timid to give anything but still keep the general vitamins suppl.> > I am not sending him to the school,because I don't know what measures the school should take.> > Shortly,has anyone know a good neurologist?> > Thanks> > Nevin> >>