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my 5 year old has pretty constant loose bowels and leaks with flatulence. He is

often dirty and smells andhe does not seem to notice until he is told. I've

found that we must avoid fried food, Mcs etc. Has anyone any management

tips as it is driving all of us mad

Thanks

Bronagh

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  • 3 years later...

Have you tried probiotics?

Peace be with you,

Pattie

" If at any time the going gets harder in our interior struggle, that will be

a good moment to show that our love is in earnest. " ~St. maria Escriva

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Not to scare you but I WOULD defintely call the GI

doctor. White poop is indication that stomach bile is

not being mixed into the poop. It could be several

things that caused. I don't have an immune def. but I

had white poop when I had a gall stone blocking my

bile duct. I became jaundice and had several test

done to figure out what was going on. It was a

horrible two weeks b/c I had already had my gall

bladder removed so they believed that I no longer had

any gall stones to cause a blockage but I always have

weird stuff happen. I would call and have them do

liver functions test. I had white poop before my

urine turned dark and the yellowing started.

Good luck and hope he is feeling better.

Candise Ott

mom to (LCHAD,low IgG and more)20 months

(carrier) 20 months

Kadian(carrier) 3 years

Norfolk,VA

--- nogirlsallboys <mrlbrinks@...> wrote:

> Hi Everyone! Life has been busy here, but once

> again I return to you

> for some guidance.

>

> Flynn,my 2 year old, has been having trouble with

> his stools. (This

> is not for the squeamish.) About 7 days ago he had

> a horrible

> stomach bug and then we had only one " normal " day

> before he started

> in with white/cream colored, soft/loose & greasy

> stools. He seems to

> feel ill just before he goes and he also has not had

> a normal

> appetite.

>

> This is not the first time we have dealt with this.

> He has been

> troubled with this in the past, usually it follows

> some type of

> illness. Cole,my other PIDer, has experienced the

> same trouble in the

> past as well.

>

> This is the longest stretch of time we have had to

> deal with it.

> From reading some older postings, I am inclined to

> think it is

> something liver function related or a bacterial

> overgrowth of some

> sort.

>

> My question is, who do you think I should call? (Or

> should I even

> call anyone?) The ped, the immuno or his GI doc?

>

> We are currently NOT treating his IgG def. It looks

> like he is a

> candidate for IVIG, but the immuno wanted to see how

> he faired this

> winter without any treatment.

>

> -Rogena …Proud mom to 4 boys, including:

> Cole (4yo)-IgG Subclass def, GERD, EED, Asthma,

> Dairy Allergic

> Flynn (2yo) - IgG & IgM def, GERD, GI Motility

> Issues, Asthma

>

>

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Hi Rogena,

I can't offer you any information but would love to hear if you find

anything out. I would also agree that this is worth contacting GI (if Flynn

has one) or immunology. And take a sample while you can - sometimes in our

house this only lasts for 24 hours.

has white stools whenever he has some sort of viral infection - I

always mention it to Immunology - they always say " I've never heard of that

! " - then they do a stool culture that shows nothing abnormal, but his

bloodwork for Liver Function will show VERY high LFT and ALT. No jaundice

or hepatitis.... They get really panicky and we redo the bloodwork in 2

weeks and it is back to normal. We've been through GI and even had a MRI

and ultrasound of his liver and all there was normal. Mind you, we did

these tests when he was " well " .

He has white stools about twice a year - the last was over Christmas when he

had pneumonia. And never any discomfort or anything associated with it.

The only thing one person (I think GI) thought it could be was that his bile

duct " shuts down " for some reason.

Again, I'd love to hear what they tell you. Good luck.

Kim, Mom to (5), with the newest diagnosis of Hyper Ige - Igg

Subclass deficiency, frequent fractures, eczema, cryptosporidium, apthous

ulcers, multiple pneumonias, lung abcess, cellulitus...... and I think we

are about to start IVIG FINALLY !

>

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Yes, we use probiotics for both our PIDers and I even take one

myself. The probitics seem to have curbed some of the more frequent

GI problems, but we still are struggling with them.

The stools tend to be this funky color/consistency during or just

after a viral/bacterial infection of one kind or another.

You had recommended the probiotics for Cole earlier because he takes

ABX daily. I heeded your advice and it seems to have helped a

bit...if nothing else,it won't hurt!

Thanks again, Pattie!

-Rogena …Proud mom to 4 boys, including:

Cole (4yo)-IgG Subclass def, GERD, EED, Asthma, Dairy Allergic

Flynn (2yo) - IgG & IgM def, GERD, GI Motility Issues, Asthma

>

> Have you tried probiotics?

>

>

>

> Peace be with you,

>

> Pattie

>

> " If at any time the going gets harder in our interior struggle,

that will be

> a good moment to show that our love is in earnest. " ~St. maria

Escriva

>

>

>

>

>

>

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Thanks for your advice. I will call the GI in the morning.

I have a feeling it is something like a bacterial overgrowth

following his viral infection or maybe his liver bile ducts shut down

during a brief illness for some odd reason. He is following in my 4

year old son's footsteps (also a PIDer). Neither child shows any

alarming signs like dark urine output or jaundice. (Whew!)

-Rogena …Proud mom to 4 boys, including:

Cole (4yo)-IgG Subclass def, GERD, EED, Asthma, Dairy Allergic

Flynn (2yo) - IgG & IgM def, GERD, GI Motility Issues, Asthma

>

> > Hi Everyone! Life has been busy here, but once

> > again I return to you

> > for some guidance.

> >

> > Flynn,my 2 year old, has been having trouble with

> > his stools. (This

> > is not for the squeamish.) About 7 days ago he had

> > a horrible

> > stomach bug and then we had only one " normal " day

> > before he started

> > in with white/cream colored, soft/loose & greasy

> > stools. He seems to

> > feel ill just before he goes and he also has not had

> > a normal

> > appetite.

> >

> > This is not the first time we have dealt with this.

> > He has been

> > troubled with this in the past, usually it follows

> > some type of

> > illness. Cole,my other PIDer, has experienced the

> > same trouble in the

> > past as well.

> >

> > This is the longest stretch of time we have had to

> > deal with it.

> > From reading some older postings, I am inclined to

> > think it is

> > something liver function related or a bacterial

> > overgrowth of some

> > sort.

> >

> > My question is, who do you think I should call? (Or

> > should I even

> > call anyone?) The ped, the immuno or his GI doc?

> >

> > We are currently NOT treating his IgG def. It looks

> > like he is a

> > candidate for IVIG, but the immuno wanted to see how

> > he faired this

> > winter without any treatment.

> >

> > -Rogena …Proud mom to 4 boys, including:

> > Cole (4yo)-IgG Subclass def, GERD, EED, Asthma,

> > Dairy Allergic

> > Flynn (2yo) - IgG & IgM def, GERD, GI Motility

> > Issues, Asthma

> >

> >

>

>

>

>

>

______________________________________________________________________

______________

> Want to start your own business?

> Learn how on Small Business.

> http://smallbusiness./r-index

>

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I would take him to the GI doctor -- Has he been evaluated for Cystic Fibrosis?

I see he has asthma & GI issues, that could be a missed dx of CF. They may want

to run a sweat test to rule it out. Ped GI doctors take forever to get into

see, so maybe your ped can facilitate getting him in sooner.

-

nogirlsallboys <mrlbrinks@...> wrote:

Hi Everyone! Life has been busy here, but once again I return to you

for some guidance.

Flynn,my 2 year old, has been having trouble with his stools. (This

is not for the squeamish.) About 7 days ago he had a horrible

stomach bug and then we had only one " normal " day before he started

in with white/cream colored, soft/loose & greasy stools. He seems to

feel ill just before he goes and he also has not had a normal

appetite.

This is not the first time we have dealt with this. He has been

troubled with this in the past, usually it follows some type of

illness. Cole,my other PIDer, has experienced the same trouble in the

past as well.

This is the longest stretch of time we have had to deal with it.

From reading some older postings, I am inclined to think it is

something liver function related or a bacterial overgrowth of some

sort.

My question is, who do you think I should call? (Or should I even

call anyone?) The ped, the immuno or his GI doc?

We are currently NOT treating his IgG def. It looks like he is a

candidate for IVIG, but the immuno wanted to see how he faired this

winter without any treatment.

-Rogena …Proud mom to 4 boys, including:

Cole (4yo)-IgG Subclass def, GERD, EED, Asthma, Dairy Allergic

Flynn (2yo) - IgG & IgM def, GERD, GI Motility Issues, Asthma

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