,my five month old........

August 13, 2003

Well as you all must know my two daughters Sara4 and Casey both have

CVID (and everything that comes with it)and a rare severe protein

intollerance and they both drink Neocate formula.

Well when was born we started her on Alimentum formula,as a

preventative measure since Sara and Casey are so sensitive. Well by

two weeks old she was on the Neocate too. It did make a small

difference.Then we had to mix it with Distilled water,all the other

waters were a problem. She then was put on Zantac which we feel she

is sensitive to and now she is on prevacid. She vomits (and has been

since very early on)all day long,we dont use a burp cloth we use a

bath towel just to burp her. My carpet is ruined,when in public we

take two receiving blankets (instead of a bath towel) to catch the

vomit. She had an endoscopy and they checked her colon last

week,yesterday we got news that she has allergic colitis,eosiniphils

in her colon,stomach looks fine.How is this happening???????? She is

on Neocate which is the last chance before IV feed and she is still

having allergies to it??? She is the most sensitive of my three kids!

She had to go to the optamologist for her eye (which is fine) the

Optamologist told me that has sensitive skin and

allergies....she knew this from looking in her eyes!!! sneezes

all the time and has had some eczema.

is acting just like Sara did when she was a baby except worse.

Is it possible that she will have CVID too??? Be honest,I am already

heading for the looney bin. Does anyone have three kids with PID? I

am really starting to think I am getting the short end of the stick.

The Immunologist wont check her yet because she is to young,when is a

good age and what shows up when? Casey was checked at 8 months and

was negative,but we knew she had it,and then at 2 she was tested

again and was positive for CVID.

Sorry if this is radical and misspelled but I am having a crazy

moment............

Thanks for listening

mom to Sara4 and Casey3 both CVID and ....what can I say?

CALGON TAKE ME AWAY!!!!!!!!

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