Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Hi Emma Jane, I've noticed over the years that docs that have spent time w/ the pioneer and understand/practice the principles of Early Treatment w/ EDF and her method, usually have different feedback than docs who have not. I think you're doing the right thing by consulting with Dr. G, as well. Please keep us posted and good luck! Have a nice weekend. HRH > Thanks guys, >  > I am willing to travel, but I have read on the Shriners website that they > are not taking any international patients at this point in time. > I am getting at 2nd and 3rd opinion from Dr Angus Gray and Dr Hsu, > although yesterdays doctor told us that he operates with Dr Gray, so I'm > not sure he will say anything different to what we have heard. > Thanks again for your time, and respones, >  > Emma-Jane > > > > > From: heather@... <heather@...> > Subject: Re: Re: Diagnosed Today - Hemi Vertebrae- > Sydney Aust. > infantile scoliosis treatment > Received: Friday, 7 January, 2011, 5:48 AM > > >  > > > > Hi , > Yes, I do still communicate with Bert. Her daughter Bridgette is being > seen in SLC and is doing great. I am not real sure what the Shriners new > policy is on out of country patients, but its worth a call if Emma Jane is > willing and can travel. I agree 100% on 2nd, 3rd, 18th opinions though. > I'll shoot Bert an email to see if she has any ideas. Thanks ! > HRH > >> Hi Emma, >> - do you still communicate with Bert? Bridget's story was in the >> stories section and she lives in Australia. She may be able to give you >> some advice about how best to procede in Australia. Are you able to get >> a >> second opinion? I always liked to set them up and then you can cancel if >> you need to. Maybe you could come to a Shriners? How often are they >> going to take x rays? >> >> >> >>> > >>> > Hi there, >>> >  >>> > My name is Emma and our family lives in the south west suburbs of >>> Sydney, Australia. This morning I asked my doctor for an x ray >>> referral as I was sure that something was not straight in my daughters >>> back (she is 16 months old). So an hour later we had the x ray and >>> it was in a laying down position, despite my request for standing. >>> Anyway, the radiologist called me in to see him with the results and >>> showed me that my daughter has a 'hemi vertebrae' and has 'moderate >>> scoliosis' as a result of this. >>> > We are obvioulsy very concerned about this and are wanting to know >>> what the prognosis will be. The pediatrician we saw said that he >>> doubts it will be a neurological factor because she does not present >>> with any other symptoms, except for occasional constipation. >>> > So I guess I am wanting to know what we should do next and what >>> questions we should be asking. And what is the most appropriate >>> course of action in terms of treatment. >>> > Thanking you in advance for your responses, >>> > Emma >>> > >>> >>> >>>  >>> >> >> >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Thanks , Dr Gray is originally who I wanted to see so I will proceed with that. Hopefully it doesn't take too long to get in to see him! Emma >>> From: heather@... <heather@...>> Subject: Re: Re: Diagnosed Today - Hemi Vertebrae-> Sydney Aust.> infantile scoliosis treatment > Received: Friday, 7 January, 2011, 5:48 AM>>>  >>>> Hi ,> Yes, I do still communicate with Bert. Her daughter Bridgette is being> seen in SLC and is doing great. I am not real sure what the Shriners new> policy is on out of country patients, but its worth a call if Emma Jane is> willing and can travel. I agree 100% on 2nd, 3rd, 18th opinions though.> I'll shoot Bert an email to see if she has any ideas. Thanks !> HRH>>> Hi Emma,>> - do you still communicate with Bert? Bridget's story was in the>> stories section and she lives in Australia. She may be able to give you>> some advice about how best to procede in Australia. Are you able to get>> a>> second opinion? I always liked to set them up and then you can cancel if>> you need to. Maybe you could come to a Shriners? How often are they>> going to take x rays?>> >>>> >>> >>>> > Hi there,>>> >  >>> > My name is Emma and our family lives in the south west suburbs of>>> Sydney, Australia. This morning I asked my doctor for an x ray>>> referral as I was sure that something was not straight in my daughters>>> back (she is 16 months old). So an hour later we had the x ray and>>> it was in a laying down position, despite my request for standing. >>> Anyway, the radiologist called me in to see him with the results and>>> showed me that my daughter has a 'hemi vertebrae' and has 'moderate>>> scoliosis' as a result of this. >>> > We are obvioulsy very concerned about this and are wanting to know>>> what the prognosis will be. The pediatrician we saw said that he>>> doubts it will be a neurological factor because she does not present>>> with any other symptoms, except for occasional constipation. >>> > So I guess I am wanting to know what we should do next and what>>> questions we should be asking. And what is the most appropriate>>> course of action in terms of treatment.>>> > Thanking you in advance for your responses,>>> > Emma>>> >>>>>>>>>>  >>>>>>>>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Emma-JaneThis may not be possible due to travel and what Shriners policies are, but I know SLC does many cast clinics and they cast children who are not admitted into the hospital system with Bex's doctor present/training others. Sometimes the child is later accepted into the program. You may need the MRI first, but if you could manage the travel I can ask our hosp. if that would be possible. I know it's a longshot, but maybe if you wanted to come for one first cast? Just a thought to throw out there, sorry if it's a crazy one, but worth mentioning, ya know? Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: "heather@..." <heather@...>infantile scoliosis treatment Sent: Fri, January 7, 2011 9:28:34 AMSubject: Re: Emma Jane Hi Emma Jane, I've noticed over the years that docs that have spent time w/ the pioneer and understand/practice the principles of Early Treatment w/ EDF and her method, usually have different feedback than docs who have not. I think you're doing the right thing by consulting with Dr. G, as well. Please keep us posted and good luck! Have a nice weekend. HRH > Thanks guys, >  > I am willing to travel, but I have read on the Shriners website that they > are not taking any international patients at this point in time. > I am getting at 2nd and 3rd opinion from Dr Angus Gray and Dr Hsu, > although yesterdays doctor told us that he operates with Dr Gray, so I'm > not sure he will say anything different to what we have heard. > Thanks again for your time, and respones, >  > Emma-Jane > > > > > From: heather@... <heather@...> > Subject: Re: Re: Diagnosed Today - Hemi Vertebrae- > Sydney Aust. > infantile scoliosis treatment > Received: Friday, 7 January, 2011, 5:48 AM > > >  > > > > Hi , > Yes, I do still communicate with Bert. Her daughter Bridgette is being > seen in SLC and is doing great. I am not real sure what the Shriners new > policy is on out of country patients, but its worth a call if Emma Jane is > willing and can travel. I agree 100% on 2nd, 3rd, 18th opinions though. > I'll shoot Bert an email to see if she has any ideas. Thanks ! > HRH > >> Hi Emma, >> - do you still communicate with Bert? Bridget's story was in the >> stories section and she lives in Australia. She may be able to give you >> some advice about how best to procede in Australia. Are you able to get >> a >> second opinion? I always liked to set them up and then you can cancel if >> you need to. Maybe you could come to a Shriners? How often are they >> going to take x rays? >> >> >> >>> > >>> > Hi there, >>> >  >>> > My name is Emma and our family lives in the south west suburbs of >>> Sydney, Australia. This morning I asked my doctor for an x ray >>> referral as I was sure that something was not straight in my daughters >>> back (she is 16 months old). So an hour later we had the x ray and >>> it was in a laying down position, despite my request for standing. >>> Anyway, the radiologist called me in to see him with the results and >>> showed me that my daughter has a 'hemi vertebrae' and has 'moderate >>> scoliosis' as a result of this. >>> > We are obvioulsy very concerned about this and are wanting to know >>> what the prognosis will be. The pediatrician we saw said that he >>> doubts it will be a neurological factor because she does not present >>> with any other symptoms, except for occasional constipation. >>> > So I guess I am wanting to know what we should do next and what >>> questions we should be asking. And what is the most appropriate >>> course of action in terms of treatment. >>> > Thanking you in advance for your responses, >>> > Emma >>> > >>> >>> >>>  >>> >> >> >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2011 Report Share Posted January 8, 2011 Thanks Heidi, I am totally willing to travel, but I think I'll see what the others docs have to say before making up my mind. When I get in to see Dr Gray, I'll get his opinion on casting. They have suggested that congenital scoliosis tends to be slower in progressing (fingers crossed). Our pediatrician said he'll 'see what he can do' about getting us in earlier for an MRI, I really hope he can because I can't wait 6-8 months! So glad to hear Bexon is doing well. What a relief for you and your husband! Emma-Jane>>> From: heather@... <heather@...>> Subject: Re: Re: Diagnosed Today - Hemi Vertebrae-> Sydney Aust.> infantile scoliosis treatment > Received: Friday, 7 January, 2011, 5:48 AM>>>  >>>> Hi ,> Yes, I do still communicate with Bert. Her daughter Bridgette is being> seen in SLC and is doing great. I am not real sure what the Shriners new> policy is on out of country patients, but its worth a call if Emma Jane is> willing and can travel. I agree 100% on 2nd, 3rd, 18th opinions though.> I'll shoot Bert an email to see if she has any ideas. Thanks !> HRH>>> Hi Emma,>> - do you still communicate with Bert? Bridget's story was in the>> stories section and she lives in Australia. She may be able to give you>> some advice about how best to procede in Australia. Are you able to get>> a>> second opinion? I always liked to set them up and then you can cancel if>> you need to. Maybe you could come to a Shriners? How often are they>> going to take x rays?>> >>>> >>> >>>> > Hi there,>>> >  >>> > My name is Emma and our family lives in the south west suburbs of>>> Sydney, Australia. This morning I asked my doctor for an x ray>>> referral as I was sure that something was not straight in my daughters>>> back (she is 16 months old). So an hour later we had the x ray and>>> it was in a laying down position, despite my request for standing. >>> Anyway, the radiologist called me in to see him with the results and>>> showed me that my daughter has a 'hemi vertebrae' and has 'moderate>>> scoliosis' as a result of this. >>> > We are obvioulsy very concerned about this and are wanting to know>>> what the prognosis will be. The pediatrician we saw said that he>>> doubts it will be a neurological factor because she does not present>>> with any other symptoms, except for occasional constipation. >>> > So I guess I am wanting to know what we should do next and what>>> questions we should be asking. And what is the most appropriate>>> course of action in terms of treatment.>>> > Thanking you in advance for your responses,>>> > Emma>>> >>>>>>>>>>  >>>>>>>>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
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