Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 Hola , Santi is now 8..I can´t believe it..Heading up to Barcelona in 2 weeks with the latest x-rays and in great need of a new Providence Brace. He has grown a great deal. UGH!!! A little afraid to see how the spine has adapted to the growth spurt..If only I could cast again, I would do anything to get him into another cast to bring down those numbers a little more.. Oh well, our window of opportunity was well taken advantage of, but has closed. I keep up with your posts on Liv, so glad you are in moments of tranquility, I hope it continues. Well, keep me up on FB also and still waiting to see your smiling face at my door here in Alicante..Estas muy bien venido cuando quieres. Give Liv a hug and I will fill you in on our appt. with Dr V in Barcelona.Kelli and SantiagoDe: "heather@..." <heather@...>Para: infantile scoliosis treatment Enviado: jue,11 noviembre, 2010 18:42Asunto: Re: Puzzled by Different Information?? Excellent post, Kelli. How old is Santi now? HRH > > > Hi , Unfortunatly I think your doc is just stating some of the > possible > roads that your child might take, but then again, scoliosis is like a > cough, > often we don´t know the causes, why it apears, if and when it will > disappear, > and the outlook is different for every case. Every child reacts > differently to > treatments, the childs flexability in their spine plays a major roll, > muscle > strength also important, and many more factors. The most important thing > you > must remember is that you are going down the road that "can" lead to > resolving > scoliosis. Casting is the only method that is shown to do this, and is by > far > the best treatment out there for any child with scoliosis. Bracing will > not > bring down the numbers in their curve, it will maintain them and often in > the > brace reduce them temporarly. Casting adjusts and manuvers the spine into > a > straight position, holding it there for 2-3 months while your child wears > the cast. The spine starts to remember this new position and grows with > it, > straighter and more aligned. You will find that your child is very > comfortable > in the cast because it molds to your childs body, thus he/she can move > around > easier then they would in a brace. Try not to worry too much , Docs > often > have to be pessamistic, (my brother is one) that is part of their > training, but > deep inside they know that the benefits are endless with casting and > things can > only improve while wearing it.  Don´t always think that what they > tell you is > written in gold, a parents dedicated relentless fight for her child has > positive > outcomes, and you are going to be one of those fighters. Good luck and > welcome > to a group of dedicated parents like yourself. > Kelli and Santiago.  > > > ________________________________ > De: juliechafin2005 <juliechafin2005@...> > Para: infantile scoliosis treatment > Enviado: jue,28 octubre, 2010 20:11 > Asunto: Puzzled by Different Information?? > >  > Hey Everybody. Just a quick question. My daughter has progressive > ideopathic > infantile Scoliosis. She had her MRI already and showed no signs of > Congenital > Scoliosis nor a tethered cord. Everything else that could have been wrong > with > her wasn't there. All she has is the ideopathic scoliosis. Her curve is at > 48 > degrees currently. She is due to get her first cast on Nov. 9th. Here is > what is > confusing me... > Her doctor (who seems to be very experienced and is highly recommended) > stated > to me and my husband that he hopes that the cast will correct SOME of her > curve. > But, that she will probably still be in a cast or brace by the time she > starts > school in 4 years and that she will probably still need to have her spine > fused > with surgery sometime in the future. Why is he telling us this when all of > the > information online states that a child who has the ideopathic kind of > scoliosis > responds well to the cast to the point of being cured? Plus, the internet > says > that a child under the age of 2 is mor elikely to be cured than an older > child. > My daughter will be 15 months old when she gets her first cast. Were any > of you > out there given the same news by your doctor and then later learned that > your > child had been healed by the cast? What do I believe???? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2010 Report Share Posted November 12, 2010 Hola hermana fiera!! Gosh, I cant wait to see you and Santi! Just thinking of Espana gives me the chills....its been too long. Santi is 8 yrs old, wow! I will def keep you posted on FB w/ our travel details. I'll send you an email of FB! Love, HRH > Hola , Santi is now 8..I can´t believe it..Heading up to Barcelona > in 2 > weeks with the latest x-rays and in great need of a new Providence Brace. > He has > grown a great deal. UGH!!! A little afraid to see how the spine has > adapted to > the growth spurt..If only I could cast again, I would do anything to get > him > into another cast to bring down those numbers a little more.. Oh well, our > window of opportunity was well taken advantage of, but has closed. I keep > up > with your posts on Liv, so glad you are in moments of tranquility, I hope > it > continues. Well, keep me up on FB also and still waiting to see your > smiling > face at my door here in Alicante..Estas muy bien venido cuando quieres. > Give Liv > a hug and I will fill you in on our appt. with Dr V in Barcelona. > Kelli and Santiago > > > > > > ________________________________ > De: " heather@... " <heather@...> > Para: infantile scoliosis treatment > Enviado: jue,11 noviembre, 2010 18:42 > Asunto: Re: Puzzled by Different Information?? > > > Excellent post, Kelli. How old is Santi now? > HRH > >> >> >> Hi , Unfortunatly I think your doc is just stating some of the >> possible >> roads that your child might take, but then again, scoliosis is like a >> cough, >> often we don´t know the causes, why it apears, if and when it will >> disappear, >> and the outlook is different for every case. Every child reacts >> differently to >> treatments, the childs flexability in their spine plays a major roll, >> muscle >> strength also important, and many more factors. The most important >> thing >> you >> must remember is that you are going down the road that " can " lead to >> resolving >> scoliosis. Casting is the only method that is shown to do this, and is >> by >> far >> the best treatment out there for any child with scoliosis. Bracing >> will >> not >> bring down the numbers in their curve, it will maintain them and often >> in >> the >> brace reduce them temporarly. Casting adjusts and manuvers the spine >> into >> a >> straight position, holding it there for 2-3 months while your child >> wears >> the cast. The spine starts to remember this new position and grows >> with >> it, >> straighter and more aligned. You will find that your child is very >> comfortable >> in the cast because it molds to your childs body, thus he/she can move >> around >> easier then they would in a brace. Try not to worry too much , >> Docs >> often >> have to be pessamistic, (my brother is one) that is part of their >> training, but >> deep inside they know that the benefits are endless with casting and >> things can >> only improve while wearing it.  Don´t always think that what >> they >> tell you is >> written in gold, a parents dedicated relentless fight for her child >> has >> positive >> outcomes, and you are going to be one of those fighters. Good luck and >> welcome >> to a group of dedicated parents like yourself. >> Kelli and Santiago.  >> >> >> ________________________________ >> De: juliechafin2005 <juliechafin2005@...> >> Para: infantile scoliosis treatment >> Enviado: jue,28 octubre, 2010 20:11 >> Asunto: Puzzled by Different Information?? >> >>  >> Hey Everybody. Just a quick question. My daughter has progressive >> ideopathic >> infantile Scoliosis. She had her MRI already and showed no signs of >> Congenital >> Scoliosis nor a tethered cord. Everything else that could have been >> wrong >> with >> her wasn't there. All she has is the ideopathic scoliosis. Her curve is >> at >> 48 >> degrees currently. She is due to get her first cast on Nov. 9th. Here is >> what is >> confusing me... >> Her doctor (who seems to be very experienced and is highly recommended) >> stated >> to me and my husband that he hopes that the cast will correct SOME of >> her >> curve. >> But, that she will probably still be in a cast or brace by the time she >> starts >> school in 4 years and that she will probably still need to have her >> spine >> fused >> with surgery sometime in the future. Why is he telling us this when all >> of >> the >> information online states that a child who has the ideopathic kind of >> scoliosis >> responds well to the cast to the point of being cured? Plus, the >> internet >> says >> that a child under the age of 2 is mor elikely to be cured than an older >> child. >> My daughter will be 15 months old when she gets her first cast. Were any >> of you >> out there given the same news by your doctor and then later learned that >> your >> child had been healed by the cast? What do I believe???? >> >> >> >> >> >> > > > > > > Quote Link to comment Share on other sites More sharing options...
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