's surgery

January 2, 2002

: Will keep in my thoughts and

prayers! Thanks for keeping us updated.

Judi

p.s. Are you making snowmen yet???

--- Rusty and Medrano <rmedrano@...>

wrote:

> OK.. we fianlly got everything set up.

>

> Some of you know and I went to the ENT in

> Atlanta this past monday and he wanted to do

> explortory surgery on her. Her sleep study showed

> some bad apena.. so he wants to see what is blocking

> the airway. He said there is a possible chance there

> is some adnoid growed somewhere back there. Also

> something about injecting some type of rinocort into

> the adnoid.

> First we have to go for heart check which is next

> week(10th in Atlanta). Then neck x-ray.. which is

> next week. also get medical records faxed..which is

> done.

> Pre-op is on the 18th day of FEB. Sugery is planned

> on the 19th of Feb @ 7:30 AM @ Egelston Children

> Hospital.

> We are ecpected to stay for several days. There is a

> puter there at the hospital so I will update yall as

> soon as I can.

>

> Ok.. think this is all for now.

>

> Oh as for Dayton the chronic sinus infection..

> Hopefully will go away in time. Also told me I was

> doing a great job! Whooohoooo... hope so...just

> finished the 3round of antibotics.

>

> This is all for now..

> I think..

> Have a good Day..

> ,mom to 8yrs(DS) and Dayton 3yrs(DS)

>

__________________________________________________

January 2, 2002

lol....... no snowman here.... LOL...All the snow we got this morning is

gone.. the rain washed it away.. lol..

thanks for the prayer..

January 2, 2002

, I will keep in my prayers. One of my husband's

friends is going through the same thing. They just found out that he

has a severe case of apnea and he is in his 40's. They are going to

remove tonsils adenoids and do

a sinus scrape. Keep us posted on upcoming appointments.

BTW, how's the weather in Georgia. We have about an inch of snow on

the ground and it is still coming down! I just love it! Being in the

south,. this is a real treat!! mom to Landon (Ds) and Ashton

3 years

> OK.. we fianlly got everything set up.

>

> Some of you know and I went to the ENT in Atlanta this

past monday and he wanted to do explortory surgery on her. Her sleep

study showed some bad apena.. so he wants to see what is blocking the

airway. He said there is a possible chance there is some adnoid

growed somewhere back there. Also something about injecting some type

of rinocort into the adnoid.

> First we have to go for heart check which is next week(10th in

Atlanta). Then neck x-ray.. which is next week. also get medical

records faxed..which is done.

> Pre-op is on the 18th day of FEB. Sugery is planned on the 19th of

Feb @ 7:30 AM @ Egelston Children Hospital.

> We are ecpected to stay for several days. There is a puter there at

the hospital so I will update yall as soon as I can.

>

> Ok.. think this is all for now.

>

> Oh as for Dayton the chronic sinus infection.. Hopefully will go

away in time. Also told me I was doing a great job! Whooohoooo...

hope so...just finished the 3round of antibotics.

>

> This is all for now..

> I think..

> Have a good Day..

> ,mom to 8yrs(DS) and Dayton 3yrs(DS)

July 16, 2002

In a message dated 7/16/02 3:01:12 PM Eastern Daylight Time,

burnett@... writes:

> Ppease keep in your prayers tomorrow morning? She's

> having tubes inserted into her ears. Even though this is fairly routine,

> it's still general anaesthetic, so it's a bit scarey.

Absolutely !!! Prayers headed your way. Please let us know how

Steph is tomorrow, if you get a chance!!! {{{{{{{{{{{{hugs}}}}}}}}}}}

Donna

July 16, 2002

Hi Everyone,

I've been keeping up with all the posts & my thoughts are with you all.

Would you all Ppease keep in your prayers tomorrow morning? She's

having tubes inserted into her ears. Even though this is fairly routine,

it's still general anaesthetic, so it's a bit scarey. Steph will be 15 in a

couple of weeks & these are her first set of tubes. I'm hoping it will

improve her communication skills, but we'll see.

& Leah - I think of you both every day & am still praying for you.

- Hugs to you & . Like the others, I hope this info will help

find some answers for you.

Ginny - It's great to meet another leukemia survivor. Congrats to you &

. Welcome to the list. (Steph had ALL, dx'd when she was 6 - 3

yrs. of chemo) It feels good to say " Steph HAD ALL "

Dawn & - Have a great trip & be safe!

- Thanks for the info re the TV show. I'll try to watch it.

Congrats on your case study!

Bye for now,

(from Waterloo, Canada - near Toronto)

July 16, 2002

In a message dated 7/16/02 12:01:11 PM Pacific Daylight Time,

burnett@... writes:

<< Hi Everyone,

I've been keeping up with all the posts & my thoughts are with you all.

Would you all Ppease keep in your prayers tomorrow morning? She's

having tubes inserted into her ears. Even though this is fairly routine,

it's still general anaesthetic, so it's a bit scarey. Steph will be 15 in a

couple of weeks & these are her first set of tubes. I'm hoping it will

improve her communication skills, but we'll see.

>>

,

Luck and prayers for you and Steph. Let us know how it goes?

Gail :-)

July 16, 2002

, as I leave early tommorrow, I will think of and

pray the surgery will go well!! I am thinking and praying for you

both!! Dawn

> Hi Everyone,

> I've been keeping up with all the posts & my thoughts are with

you all.

> Would you all Ppease keep in your prayers tomorrow

morning? She's

> having tubes inserted into her ears. Even though this is fairly

routine,

> it's still general anaesthetic, so it's a bit scarey. Steph will

be 15 in a

> couple of weeks & these are her first set of tubes. I'm hoping it

will

> improve her communication skills, but we'll see.

>

> & Leah - I think of you both every day & am still praying for

you.

>

> - Hugs to you & . Like the others, I hope this info

will help

> find some answers for you.

>

> Ginny - It's great to meet another leukemia survivor. Congrats to

you &

> . Welcome to the list. (Steph had ALL, dx'd when she was

6 - 3

> yrs. of chemo) It feels good to say " Steph HAD ALL "

>

> Dawn & - Have a great trip & be safe!

>

> - Thanks for the info re the TV show. I'll try to watch it.

> Congrats on your case study!

>

> Bye for now,

> (from Waterloo, Canada - near Toronto)

July 17, 2002

I agree most deffinately, anytime under is a scary

time i get worried for anthan too. Prayers for

stephanie to have a quick and uneventful surgery and

recovery. shawna.

--- duffey48@... wrote:

> In a message dated 7/16/02 3:01:12 PM Eastern

> Daylight Time,

> burnett@... writes:

>

> > Ppease keep in your prayers tomorrow

> morning? She's

> > having tubes inserted into her ears. Even though

> this is fairly routine,

> > it's still general anaesthetic, so it's a bit

> scarey.

>

> Absolutely !!! Prayers headed your way.

> Please let us know how

> Steph is tomorrow, if you get a chance!!!

> {{{{{{{{{{{{hugs}}}}}}}}}}}

> Donna

>

> [Non-text portions of this message have been

> removed]

>

July 17, 2002

Hi ,

Prayers are with you and Steph!

Charlyne

Mom to Zeb 9 DS/OCD ?

July 18, 2002

yay someone mentions all the regulars in one e-mail!!

Anytime- y'll have said about shows that might be

intersting to watch, so I've done the same.

Hope y'all are having a great summer.

--- Gordon Burnett <burnett@...> wrote:

> Hi Everyone,

> I've been keeping up with all the posts & my

> thoughts are with you all.

> Would you all Ppease keep in your prayers

> tomorrow morning? She's

> having tubes inserted into her ears. Even though

> this is fairly routine,

> it's still general anaesthetic, so it's a bit

> scarey. Steph will be 15 in a

> couple of weeks & these are her first set of tubes.

> I'm hoping it will

> improve her communication skills, but we'll see.

>

> & Leah - I think of you both every day & am

> still praying for you.

>

> - Hugs to you & . Like the others, I

> hope this info will help

> find some answers for you.

>

> Ginny - It's great to meet another leukemia

> survivor. Congrats to you &

> . Welcome to the list. (Steph had ALL,

> dx'd when she was 6 - 3

> yrs. of chemo) It feels good to say " Steph HAD ALL "

>

> Dawn & - Have a great trip & be safe!

>

> - Thanks for the info re the TV show. I'll

> try to watch it.

> Congrats on your case study!

>

> Bye for now,

> (from Waterloo, Canada - near Toronto)

>

__________________________________________________

March 21, 2003

>

> From: Duffey48@...

> Date: 2003/03/21 Fri PM 02:14:49 EST

>

> Subject: 's surgery

>

>great news about . Hope everything will be ok.

Diane :0

March 21, 2003

In a message dated 3/21/2003 2:43:27 PM Eastern Standard Time,

Duffey48@... writes:

> Well, flew through surgery with flying colors on Wednesday.

Hi Donna,

I'm so glad that everything is ok so far. I bet poor didn't feel so

great. I can't believe she is back to work already. Oh, to be young again.

Keep us posted about the pathology report.

Charlyne

Mom to Zeb 10 DS/OCD ?

March 21, 2003

In a message dated 3/21/03 2:44:16 PM Eastern Standard Time, Duffey48@...

writes:

<< Hey all,

Well, flew through surgery with flying colors on Wednesday. A

little sore yesterday (doc said it was set in pretty deep and had to do some

digging), but is back to work today. Doc says that the pathology report

should be in next week, but she really thinks it's going to come back

benign.

So I'm breathing a little easier. Thanks for all your thoughts and

prayers, guys.

Donna >>

So glad to hear things went well Donna. More prayers that the results are

good!

Gail :-)

November 18, 2003

I don't know if this came through yesterday or not, but despite my

having a surgery date for this Friday, and despite the fact that my

insurance company told na yesterday that it was a " go " and all

approved, and gave an approval number, 3 hours later, they called back

and said that only the hernia repair is approved not the panni!

I'm on th ephone literally all day today, fighting with people.

Please pray for my sanity!

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

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November 18, 2003

Geeze talk about last min. stress! I hope you can get it all

ironed out real, real fast.

Hugs

Jo

November 18, 2003

So---here is the big question, guys.

I guess my choice, as it stands now, is:

A: Let Ed take my Friday appt, I take his Dec 18th appt-and I continue to

fight like all hell to get this approved before then. (I have already

switched with Ed, but, being the great guy he is, he told me that if I

wanted to switch back that would be fine, too!)

B: Have the hernia only part of the surgery this Friday, and then fight

like hell to get the panni part approved to be done at a later date. (the

Hernia really is bothering me-I must wear a new binder all the time.Even

in bed. When I take it off, even when I'm laying down in bed, within

about 3 mintues I'm aching and must get it back on again.

C: " private pay " the panni part-total of about 6300. Not exactly sitting

around in petty cash for me to take out and put towards this.

I guess I'm asking you all if those who have been through it would do it

in two stages or would put up with the pain and hopefully be able to do

it all at once.

Suggestions???

-the confused and very disgusted with insurance person!

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

November 18, 2003

...I would try like heck to do it in one surgery. That means

one post-op period and besides if you go back to do just the panni

it will cost you even more out of your pocket.

I'd take Ed's surgery date...fight like heck and if I didn't have an

answer or if the answer was no by that date...then I'd private pay

if I had to.

Jo

who did private pay and it was worth every penny

November 18, 2003

> I guess I'm asking you all if those who have been through it would

do it in two stages or would put up with the pain and hopefully be

able to do it all at once.

>

> Suggestions???

>

> -the confused and very disgusted with insurance person!

Hi

I am going to give you my 2 cents...lol

I was not approved (even for the hernia repair) by my insurance. So

I kept my surgery date and appealed. They promised to get back to me

in 15 days...they didnt. I went forward with my surgery, because if

they do approve you at a later date you will be reimbursed.

I have UnitedHealthcare. I had my surgery 6 mos ago and am still

appealing their denials of " its cosmetic, and we dont cover

cosmetic " . I do not regret having the surgery (it meant taking from

our retirement- until I get reimbursed...)

I dont know that I would have gone back for another surgery if I had

it in 2 parts. But that is just me. I wanted it done and over

with. Mine was more extensive than yours will be, as I had outer

thighs removed too. They were tripping me and causing lower back

pain, and messed up my gait. I do not regret my decision...I am

still fighting, and they havent seen the last of me.

I feel great, my back doesnt hurt anymore, no more rashes, and I have

a very flat tummy...It is great.

I wouldnt give up my surgery date, and I wouldnt go down without a

fight. I hope this helps.

Sharon in Onyx

who is still fighting, but would do it again in a New York

Minute...even tho I have never been to NY!

November 20, 2003

Oh ...sometimes I just HATE the way insurance companies like to play with

our lives! I'm sorry for your troubles and have no sage advice, except I

would always do one surgery instead of two, given the choice! I hope it all

works out. Hugs and blessings, Ann

October 2, 2006

Dear Sharon,

Vitamin C is a miracle for sinus problems. The best Vitamin C I know comes from the Vitamin Shoppe. It is their brand and their Ester-C 2000. It's a powder and tastes really good in fresh orange or grapefruit juice.

Also, the biggest mucus-makers are starches and dairy. When I became vegan, my life-long sinus problems were gone in 2 days, never to return. I don't even get colds anymore, and that's 32 years ago.

with Love,

Francine

In a message dated 10/2/2006 9:48:56 A.M. Eastern Daylight Time, scottdesigns@... writes:

Sharon, have your daughters growth hormone levels been tested? What about other pituitary hormones? What does her doctor have to say about her height?

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of SharonSent: Sunday, October 01, 2006 6:56 AMAutism and Aspergers Treatment Subject: 's surgery

Hi everybody, I dont get to post often but I do read yours and am so glad to know there are other parents out there that can relate to my day to day struggles. My eleven year old autistic daughter has been so sick for the last couple of weeks with constant sinus infections and will haveing surgery on October,11 to hopefully clear up the stuff that is clogged in there and stop all the infections, it seems that her sinus cavities are very small and do not drain properly. She will be twelve in January and is only four feet tall and still wears a little girls size two shoes and it is really weird to me cause my son Adam,(not autistic) will be nine in a couple of weeks is already five feet two and wears a mens shoe size nine and a half. People think he is the older brother. My Mom always told me when I was a child that I couldnt find a happy medium in anything I do, LOL I guess she was right. I am rambling off subject but I am not looking forward to the surgery and yall please pray for her because she wont be able to understand fully what is happening to her. And her doctor says it could take up to two weeks to recouperate. Sharon

October 2, 2006

p.s. My daughter (Aspergers) is 4' 7" and my son is 6' 4". Her half-sisters are around 5' 2" to maybe 5' 4" -- and her half-brother about 5' 8". I remember hearing years ago that kids with 'mental difficulties' could be small. That it wasn't unusual.

In a message dated 10/2/2006 9:48:56 A.M. Eastern Daylight Time, scottdesigns@... writes:

Sharon, have your daughters growth hormone levels been tested? What about other pituitary hormones? What does her doctor have to say about her height?

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of SharonSent: Sunday, October 01, 2006 6:56 AMAutism and Aspergers Treatment Subject: 's surgery

Hi everybody, I dont get to post often but I do read yours and am so glad to know there are other parents out there that can relate to my day to day struggles. My eleven year old autistic daughter has been so sick for the last couple of weeks with constant sinus infections and will haveing surgery on October,11 to hopefully clear up the stuff that is clogged in there and stop all the infections, it seems that her sinus cavities are very small and do not drain properly. She will be twelve in January and is only four feet tall and still wears a little girls size two shoes and it is really weird to me cause my son Adam,(not autistic) will be nine in a couple of weeks is already five feet two and wears a mens shoe size nine and a half. People think he is the older brother. My Mom always told me when I was a child that I couldnt find a happy medium in anything I do, LOL I guess she was right. I am rambling off subject but I am not looking forward to the surgery and yall please pray for her because she wont be able to understand fully what is happening to her. And her doctor says it could take up to two weeks to recouperate. Sharon

October 2, 2006

Sharon, have your daughters growth hormone

levels been tested? What about other pituitary hormones? What does her doctor

have to say about her height?

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Sharon

Sent: Sunday, October 01, 2006

6:56 AM

Autism and Aspergers Treatment

Subject:

's surgery

Hi everybody, I dont get to post often but I do read

yours and am so

glad to know there are other parents out there that can relate to my

day to day struggles. My eleven year old autistic daughter has

been so sick for the last couple of weeks with constant sinus

infections and will haveing surgery on October,11 to hopefully clear

up the stuff that is clogged in there and stop all the infections, it

seems that her sinus cavities are very small and do not drain

properly. She will be twelve in January and is only four feet tall and

still wears a little girls size two shoes and it is really weird to me

cause my son Adam,(not autistic) will be nine in a couple of weeks is

already five feet two and wears a mens shoe size nine and a half.

People think he is the older brother. My Mom always told me when I was

a child that I couldnt find a happy medium in anything I do, LOL I

guess she was right. I am rambling off subject but I am not looking

forward to the surgery and yall please pray for her because she wont

be able to understand fully what is happening to her. And her doctor

says it could take up to two weeks to recouperate.

Sharon

October 2, 2006

Charlotte, Nothing has ever been said about hormone testing because her doc thinks that her height is ok because she has a Grandmother that is only five feet tall. I never really thought about hormones having an affect on her growth and will ask her doc about it. Thanks, Sharon Charlotte <scottdesigns@...> wrote: Sharon, have your daughters growth hormone levels been tested? What about other pituitary hormones? What does her doctor have to say about her height? From: Autism and Aspergers Treatment

[mailto:Autism and Aspergers Treatment ] On Behalf Of SharonSent: Sunday, October 01, 2006 6:56 AMAutism and Aspergers Treatment Subject: 's surgery Hi everybody, I dont get to post often but I do read yours and am so glad to know there are other parents out there that can relate to my day to day struggles. My eleven year old autistic daughter has been so sick for the last couple of weeks with

constant sinus infections and will haveing surgery on October,11 to hopefully clear up the stuff that is clogged in there and stop all the infections, it seems that her sinus cavities are very small and do not drain properly. She will be twelve in January and is only four feet tall and still wears a little girls size two shoes and it is really weird to me cause my son Adam,(not autistic) will be nine in a couple of weeks is already five feet two and wears a mens shoe size nine and a half. People think he is the older brother. My Mom always told me when I was a child that I couldnt find a happy medium in anything I do, LOL I guess she was right. I am rambling off subject but I am not looking forward to the surgery and yall please pray for her because she wont be able to understand fully what is happening to her. And her doctor says it could take up to two weeks to recouperate. Sharon

All-new - Fire up a more powerful email and get things done faster.

October 3, 2006

I only asked Sharon because my son has a rare hormone

disorder and after an x ray we discovered his bone age was 2 years delayed. He

caught up pretty fast once they started hormone therapy. However if she has

been on the same growth curve all of her life than your probably right and it

is an inherited height. It is usually when they drop off their own growth

curve that it indicates a problem.

Charlotte

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of sharon boone

Sent: Monday, October 02, 2006

9:58 AM

Autism and Aspergers Treatment

Subject: RE:

's surgery

Charlotte,

Nothing has ever been said about hormone testing because her doc thinks that

her height is ok because she has a Grandmother that is only five feet

tall. I never really thought about hormones having an affect on her growth

and will ask her doc about it.

Thanks, Sharon

Charlotte <scottdesignsadelphia (DOT) net>

wrote:

Sharon, have your daughters

growth hormone levels been tested? What about other pituitary hormones?

What does her doctor have to say about her height?

From: Autism and Aspergers Treatment

[mailto:Autism and Aspergers Treatment ]

On Behalf Of Sharon

Sent: Sunday, October 01, 2006

6:56 AM

Autism and Aspergers Treatment

Subject:

's surgery

Hi everybody, I dont get to post often but I do read yours and am so