Noah Update

[Guest guest]

Hello,Noah has been treatment free for 6 months now. His doc in SLC wanted him to have a 6 month follow-up x-ray taken locally to make sure he did not progress without his brace. We had his x-ray this morning at Minneapolis Shriners. It looks good to me. There is definately still a curve, but if I were a betting women...I'd say it appears to be about the same as the one taken six months ago. Unfortunately, the Shriners hospitals are not linked x-ray-wise so I wasn't able to compare the two. But from mine and my husband's memory it appears similar to last time when he measured 8* and 8*.So the next step is for me to mail it off to SLC for measurement. If the SLC doc thinks it looks good - I imagine we'll continue with his plan which was to go another 6 months treatment free (hooray!) And then travel to SLC in the late spring for a one year follow-up exam and x-ray.~Noah 5 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 1 yr old - resolved Infantile Scoliosis

[Guest guest]

I am praying it is the same!! Keep us posted.

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007.

EARLY Treatment does work if done properly.

You can read 's story at.... http://www.infantilescoliosis.org/stories.html

Or follow our family one day at a time......http://thefontenotslife.blogspot.com/

From: Borlik <christina_borlik@...>infantile scoliosis <infantile scoliosis treatment >Sent: Tue, November 16, 2010 1:12:01 PMSubject: Noah Update

Hello, Noah has been treatment free for 6 months now. His doc in SLC wanted him to have a 6 month follow-up x-ray taken locally to make sure he did not progress without his brace. We had his x-ray this morning at Minneapolis Shriners.

It looks good to me. There is definately still a curve, but if I were a betting women...I'd say it appears to be about the same as the one taken six months ago. Unfortunately, the Shriners hospitals are not linked x-ray-wise so I wasn't able to compare the two. But from mine and my husband's memory it appears similar to last time when he measured 8* and 8*.

So the next step is for me to mail it off to SLC for measurement. If the SLC doc thinks it looks good - I imagine we'll continue with his plan which was to go another 6 months treatment free (hooray!) And then travel to SLC in the late spring for a one year follow-up exam and x-ray.~Noah 5 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 1 yr old - resolved Infantile Scoliosis

[Guest guest]

So sorry. Its scary to have them cast/brace free isn't it? We go back in 6

weeks to see if Isaiah is holding. He was at 9 degrees out of cast and has not

been braced. No rotation is great though! I think that's worse than the actual

curve progression. I hope the next set of xrays shows he's holding and you

won't need a new brace.

Borlik <christina_borlik@...> wrote:

>

>Hello,Well, we finally heard back from SLC. And although it's not necessarily

bad news...I wouldn't consider it great news either. The doc measured him at

13* and 14* (6 months ago his curves were 8* and 8*.) The doc is not seeing any

rotation and considers Noah to still be " stable. " He said there is no need to

put him back in a brace at this point.

>He'd like us to have another x-ray taken locally again in 6 months and we'll

again ship it to SLC for review. He said there's no need to come out there if

that x-ray looks good. If there's progression though then we'll need to come

out for a new brace as Noah's old brace would be over a year old and would not

fit.

>I guess we'll just have to wait and see where were at again in 6 months. I'm

not panicking yet, but I was definitely disappointed to not hear the fantastic

news that I was expecting.

>

>~

>Noah 5 years old

>9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at

8*

>And Mariella 1 yr old - resolved Infantile Scoliosis

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>infantile scoliosis treatment

>From: christina_borlik@...

>Date: Tue, 16 Nov 2010 13:12:01 -0600

>Subject: Noah Update

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>Hello,

>Noah has been treatment free for 6 months now. His doc in SLC wanted him to

have a 6 month follow-up x-ray taken locally to make sure he did not progress

without his brace. We had his x-ray this morning at Minneapolis Shriners.

>It looks good to me. There is definately still a curve, but if I were a

betting women...I'd say it appears to be about the same as the one taken six

months ago. Unfortunately, the Shriners hospitals are not linked x-ray-wise so

I wasn't able to compare the two. But from mine and my husband's memory it

appears similar to last time when he measured 8* and 8*.

>So the next step is for me to mail it off to SLC for measurement. If the SLC

doc thinks it looks good - I imagine we'll continue with his plan which was to

go another 6 months treatment free (hooray!) And then travel to SLC in the late

spring for a one year follow-up exam and x-ray.

>

>~

>Noah 5 years old

>9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at

8*

>And Mariella 1 yr old - resolved Infantile Scoliosis

>

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[Guest guest]

,Although I dream of those numbers at this point, I'm sure I would be worried, you never want to go backward! I'm sure Noah will be fine but just trying to say I get it : ) It's such a long road but you have come so far!!! Enjoy your holiday and try not to worry.Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)--- On Wed, 12/22/10, Borlik <christina_borlik@...> wrote:From: Borlik <christina_borlik@...>Subject: Noah Update"infantile scoliosis" <infantile scoliosis treatment >Date: Wednesday,

December 22, 2010, 2:05 PM

Hello,Well, we finally heard back from SLC. And although it's not necessarily bad news...I wouldn't consider it great news either. The doc measured him at 13* and 14* (6 months ago his curves were 8* and 8*.) The doc is not seeing any rotation and considers Noah to still be "stable." He said there is no need to put him back in a brace at this point. He'd like us to have another x-ray taken locally again in 6 months and we'll again ship it to SLC for review. He said there's no need to come out there if that x-ray looks good. If there's progression though then we'll need to come out for a new brace as Noah's old brace would be over a year old and would not fit.I guess we'll just have to wait and see where were at again in 6 months. I'm not panicking yet, but I was definitely disappointed to not hear the fantastic news that I was

expecting.~Noah 5 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 1 yr old - resolved Infantile Scoliosisinfantile scoliosis treatment From: christina_borlik@...Date: Tue, 16 Nov 2010 13:12:01 -0600Subject: Noah Update

Hello,Noah has been treatment free for 6 months now. His doc in SLC wanted him to have a 6 month follow-up x-ray taken locally to make sure he did not progress without his brace. We had his x-ray this morning at Minneapolis Shriners. It looks good to me. There is definately still a curve, but if I were a betting women...I'd say it appears to be about the same as the one taken six months ago. Unfortunately, the Shriners hospitals are not linked x-ray-wise so I wasn't able to compare the two. But from mine and my husband's memory it appears similar to last time when he measured 8* and 8*.So the next step is for me to mail it off to SLC for measurement. If the SLC doc thinks it looks good - I imagine we'll continue with his plan which was to go another 6 months treatment free (hooray!) And then travel to SLC in the late spring for a one year

follow-up exam and x-ray.~Noah 5 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 1 yr old - resolved Infantile Scoliosis

[Guest guest]

Congrats on the new baby!!!!!!

Keep me posted on Noah when you get the numbers. I am praying it is all fine!

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, Texas. After being treated in a series of 6 casts for 14 months he is now in a brace and has been since September 2007.

EARLY Treatment does work if done properly.

You can read 's story at.... http://www.infantilescoliosis.org/stories.html

Or follow our family one day at a time......http://thefontenotslife.blogspot.com/

From: <christina_borlik@...>infantile scoliosis treatment Sent: Mon, May 9, 2011 8:31:28 PMSubject: Noah Update

Hello,I know I haven't been active much lately - it's been so tough with bedrest and now the new baby : ) Baby Elijah was born 3 weeks ago and I'm happy to say so far his back looks good!I wanted to send a quick update on Noah. Noah has been completely brace-free for 1 full year now. We stopped bracing May '10 at 8* and 8*. We had an x-ray taken locally here in Minneapolis at the 6 month point and he measured 13* and 14*. Well it's been another 6 months so we went to Minneapolis Shriners today for our latest round of x-rays. We did not meet with any docs there, so I do not know his measurements yet. I fed-exed the x-ray to Salt Lake and will call them to follow-up next week.The x-ray looked "ok" to me. I had them bring up the one taken 6 months ago and line it up next to the one taken today. They look approximately the same. If I had to guess though...I'd say he might be a few degrees worse. It's so difficult to tell and even

though I've seen too many x-rays in my lifetime already! (Lol) I'm still not a doc...so I guess maybe I should be more optomistic. I guess I'm just scared as it would be VERY difficult to leave the brace-free lifestyle. Fingers crossed that doesn't happen.~Noah 5 years old - 9 months of casting in SLC & 2 1/2 years of bracing. Completely treatment free currently and at 13*.And Mariella - Resolved Infantile Scoliosis.AND Elijah - so far so good!!!

[Guest guest]

Wishing that things will stay as they are for you!

P.S. I just love the names of ALL of your tots!

Sent from my iPhone

On May 9, 2011, at 8:31 PM, " " <christina_borlik@...> wrote:

Hello,

I know I haven't been active much lately - it's been so tough with bedrest and

now the new baby : ) Baby Elijah was born 3 weeks ago and I'm happy to say so

far his back looks good!

I wanted to send a quick update on Noah. Noah has been completely brace-free

for 1 full year now. We stopped bracing May '10 at 8* and 8*. We had an x-ray

taken locally here in Minneapolis at the 6 month point and he measured 13* and

14*. Well it's been another 6 months so we went to Minneapolis Shriners today

for our latest round of x-rays. We did not meet with any docs there, so I do

not know his measurements yet. I fed-exed the x-ray to Salt Lake and will call

them to follow-up next week.

The x-ray looked " ok " to me. I had them bring up the one taken 6 months ago and

line it up next to the one taken today. They look approximately the same. If I

had to guess though...I'd say he might be a few degrees worse. It's so

difficult to tell and even though I've seen too many x-rays in my lifetime

already! (Lol) I'm still not a doc...so I guess maybe I should be more

optomistic. I guess I'm just scared as it would be VERY difficult to leave the

brace-free lifestyle. Fingers crossed that doesn't happen.

~

Noah 5 years old - 9 months of casting in SLC & 2 1/2 years of bracing.

Completely treatment free currently and at 13*.

And Mariella - Resolved Infantile Scoliosis.

AND Elijah - so far so good!!!

------------------------------------

[Guest guest]

Thanks to everyone on the Well Wishes for Noah and baby Elijah!

>

> Congrats on baby Elijah!

>

>

>

> From: infantile scoliosis treatment

> [mailto:infantile scoliosis treatment ] On Behalf Of

> Sent: Monday, May 09, 2011 7:31 PM

> infantile scoliosis treatment

> Subject: Noah Update

>

>

>

>

>

> Hello,

> I know I haven't been active much lately - it's been so tough with bedrest

> and now the new baby : ) Baby Elijah was born 3 weeks ago and I'm happy to

> say so far his back looks good!

>

> I wanted to send a quick update on Noah. Noah has been completely brace-free

> for 1 full year now. We stopped bracing May '10 at 8* and 8*. We had an

> x-ray taken locally here in Minneapolis at the 6 month point and he measured

> 13* and 14*. Well it's been another 6 months so we went to Minneapolis

> Shriners today for our latest round of x-rays. We did not meet with any docs

> there, so I do not know his measurements yet. I fed-exed the x-ray to Salt

> Lake and will call them to follow-up next week.

>

> The x-ray looked " ok " to me. I had them bring up the one taken 6 months ago

> and line it up next to the one taken today. They look approximately the

> same. If I had to guess though...I'd say he might be a few degrees worse.

> It's so difficult to tell and even though I've seen too many x-rays in my

> lifetime already! (Lol) I'm still not a doc...so I guess maybe I should be

> more optomistic. I guess I'm just scared as it would be VERY difficult to

> leave the brace-free lifestyle. Fingers crossed that doesn't happen.

>

> ~

> Noah 5 years old - 9 months of casting in SLC & 2 1/2 years of bracing.

> Completely treatment free currently and at 13*.

> And Mariella - Resolved Infantile Scoliosis.

> AND Elijah - so far so good!!!

>