Liv update

[Guest guest]

Great news! I got the results yesterday late afternoon on Livs blood

cultures and they are NEGATIVE!!!! Runnin late now, but will check in

later tonight. Just had to share the fab news real quick.

Thanks everyone for keeping my girl in your thoughts and prayers!!!!!!

Love ya,

Heath

[Guest guest]

Awesome news !

heather@... wrote:

>Great news! I got the results yesterday late afternoon on Livs blood

>cultures and they are NEGATIVE!!!! Runnin late now, but will check in

>later tonight. Just had to share the fab news real quick.

>Thanks everyone for keeping my girl in your thoughts and prayers!!!!!!

>Love ya,

>Heath

>

[Guest guest]

Thanks Eryn. She is home, safe & sleeping. Ill get details on her trip

when she wakes up.

HRH

> That is awesome! I hope she has a blast! I am sure you both will grow

> during your time apart. You are stronger than you realize, . :-)

>

> Eryn

> Mother to Brayden, 19 months

>

> ----- Reply message -----

> From: heather@...

> <infantile scoliosis treatment >

> Subject: Liv update

> Date: Wed, May 16, 2012 12:37 pm

> She left to Wash. DC this a.m. at 3:30 w/ her 8th grade class! I tried

>

> taking pics of her and her friends prior to boarding the bus, but she

>

> wasnt having it (too early)...This will be her 1st time traveling without

>

> her hovering mother and I could tell she was super excited.

>

> Way to grow Liv! Way to be over emotional and protective Heath!

>

> Anyway, she just arrived and Im so excited for her!

>

> Just wanted to share.

>

> HRH

>

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[Guest guest]

Yes, Liv had 3 severe curves by age 2. The thoracic was measured at 100

Cobb by age 2 w/ severe rotation. 12.5 yrs later, too many casts to

count, too many braces, 3 halos and too many surgeries to count....she is

at approx 65 cobb. Definitely not straight....But, as you can see only a

trained eye can see livs scoli.

I dont regret keeping Liv in casts for 6/7 years. It wasnt easy but it

payed off. And, the halos just plain saved her. She had multiple

complications with her type of veptrs (dual veptr's attached at iliac

crests) and still has metal in her hips...ugh..

My daughter is a great example of what can be accomplished with a great

doc that believes in the conservative approach and is willing to keep

casting even though it was too late to cure..

The photo is a recent pic of Liv:)

HRH

> , the foto you showed us of Liv a week or so ago shows a girl with

> a

> straight back. And yet I remember you saying her curve was a severe one.

> What's the Cobb now?

>

> Lida in London

>

>

> Liv update

>

>

>

>

> Guess who learned how to ride a 2 wheel bike!!!! Liv has been hospital

> free for over 2 yrs now and our lives seem to be getting normal. Having a

> severely twisted spine since 5 months old and having to wear casts/braces

> w/ neck support for so many years, didnt allow her to see her feet...Let

> alone master a bike. I was able to find a low rider bike with a banana

> seat, white wall tires and handle bars that are high, so its ergonomically

> correct for her spine. Naturally, she was scared...But, after 5 tries

> with help from my strong lil brother, she did it!!!! Im sooo happy right

> now! My girl FINALLY gets to ride a bike like her friends. She can

> finally have the wind in her hair and experience the independence/freedom

> bike riding gives you. Way to face your fears Liv!!! Way to grow up my

> darling:)

> She learned in SLC a couple of days ago and Im waiting to get video from

> my bro. If I ever get it, Ill share as this is a HUGE milestone for my

> girl.

> Just had to share as I know you all can relate.

> HRH

>

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>

>

>

[Guest guest]

WTG Liv!!! Can you send your lil' bro here? hasn't mastered it yet and she is scared to try. Gail********************************************************My current location: The corner of mayhem, foolishness, and total insanity From: "heather@..." <heather@...> infantile scoliosis treatment Sent: Wednesday, July 11, 2012 6:06 PM Subject: Liv update

Guess who learned how to ride a 2 wheel bike!!!! Liv has been hospital

free for over 2 yrs now and our lives seem to be getting normal. Having a

severely twisted spine since 5 months old and having to wear casts/braces

w/ neck support for so many years, didnt allow her to see her feet...Let

alone master a bike. I was able to find a low rider bike with a banana

seat, white wall tires and handle bars that are high, so its ergonomically

correct for her spine. Naturally, she was scared...But, after 5 tries

with help from my strong lil brother, she did it!!!! Im sooo happy right

now! My girl FINALLY gets to ride a bike like her friends. She can

finally have the wind in her hair and experience the independence/freedom

bike riding gives you. Way to face your fears Liv!!! Way to grow up my

darling:)

She learned in SLC a couple of days ago and Im waiting to get video from

my bro. If I ever get it, Ill share as this is a HUGE milestone for my

girl.

Just had to share as I know you all can relate.

HRH

[Guest guest]

That is just amazing! After all Liv has overcome she deserves to feel the freedom and independence. Way to go, Liv! From: "heather@..." <heather@...> infantile scoliosis treatment Sent: Wednesday, July 11, 2012 6:06 PM Subject: Liv update

Guess who learned how to ride a 2 wheel bike!!!! Liv has been hospital

free for over 2 yrs now and our lives seem to be getting normal. Having a

severely twisted spine since 5 months old and having to wear casts/braces

w/ neck support for so many years, didnt allow her to see her feet...Let

alone master a bike. I was able to find a low rider bike with a banana

seat, white wall tires and handle bars that are high, so its ergonomically

correct for her spine. Naturally, she was scared...But, after 5 tries

with help from my strong lil brother, she did it!!!! Im sooo happy right

now! My girl FINALLY gets to ride a bike like her friends. She can

finally have the wind in her hair and experience the independence/freedom

bike riding gives you. Way to face your fears Liv!!! Way to grow up my

darling:)

She learned in SLC a couple of days ago and Im waiting to get video from

my bro. If I ever get it, Ill share as this is a HUGE milestone for my

girl.

Just had to share as I know you all can relate.

HRH

[Guest guest]

That's AWESOME Liv! (And !)On 2012-07-12, at 9:33 AM, heather@... wrote:

I knew you'de relate Gail!! She'll do it....Ill ask Liv and my bro what

helped when they get back home. They're in SLC now:)

Thanks girl.

HRH

> WTG Liv!!!Â

>

> Can you send your lil' bro here? hasn't mastered it yet and she is

> scared to try.

> Â

> Gail

> ********************************************************

> My current location: The corner of mayhem, foolishness, and total insanity

>

>

> ________________________________

> From: "heather@..." <heather@...>

> infantile scoliosis treatment

> Sent: Wednesday, July 11, 2012 6:06 PM

> Subject: Liv update

>

>

> Â

> Guess who learned how to ride a 2 wheel bike!!!! Liv has been hospital

> free for over 2 yrs now and our lives seem to be getting normal. Having a

> severely twisted spine since 5 months old and having to wear casts/braces

> w/ neck support for so many years, didnt allow her to see her feet...Let

> alone master a bike. I was able to find a low rider bike with a banana

> seat, white wall tires and handle bars that are high, so its ergonomically

> correct for her spine. Naturally, she was scared...But, after 5 tries

> with help from my strong lil brother, she did it!!!! Im sooo happy right

> now! My girl FINALLY gets to ride a bike like her friends. She can

> finally have the wind in her hair and experience the independence/freedom

> bike riding gives you. Way to face your fears Liv!!! Way to grow up my

> darling:)

> She learned in SLC a couple of days ago and Im waiting to get video from

> my bro. If I ever get it, Ill share as this is a HUGE milestone for my

> girl.

> Just had to share as I know you all can relate.

> HRH

>

>

>

[Guest guest]

,That is so awesome for Liv to be able to ride a bike :):)With everything you guys have been through, oh I'm so happy for her!!! Keep up the awesome work, and have lots of miles of fun :)Live, laugh, and loveJoyOn Jul 11, 2012, at 6:06 PM, heather@... wrote:

Guess who learned how to ride a 2 wheel bike!!!! Liv has been hospital

free for over 2 yrs now and our lives seem to be getting normal. Having a

severely twisted spine since 5 months old and having to wear casts/braces

w/ neck support for so many years, didnt allow her to see her feet...Let

alone master a bike. I was able to find a low rider bike with a banana

seat, white wall tires and handle bars that are high, so its ergonomically

correct for her spine. Naturally, she was scared...But, after 5 tries

with help from my strong lil brother, she did it!!!! Im sooo happy right

now! My girl FINALLY gets to ride a bike like her friends. She can

finally have the wind in her hair and experience the independence/freedom

bike riding gives you. Way to face your fears Liv!!! Way to grow up my

darling:)

She learned in SLC a couple of days ago and Im waiting to get video from

my bro. If I ever get it, Ill share as this is a HUGE milestone for my

girl.

Just had to share as I know you all can relate.

HRH

=

[Guest guest]

Oh that's great ! It's those little milestones that can be taken for

granted. Just think next step....a car! ;-)

>

> > Guess who learned how to ride a 2 wheel bike!!!! Liv has been hospital

> > free for over 2 yrs now and our lives seem to be getting normal. Having a

> > severely twisted spine since 5 months old and having to wear casts/braces

> > w/ neck support for so many years, didnt allow her to see her feet...Let

> > alone master a bike. I was able to find a low rider bike with a banana

> > seat, white wall tires and handle bars that are high, so its ergonomically

> > correct for her spine. Naturally, she was scared...But, after 5 tries

> > with help from my strong lil brother, she did it!!!! Im sooo happy right

> > now! My girl FINALLY gets to ride a bike like her friends. She can

> > finally have the wind in her hair and experience the independence/freedom

> > bike riding gives you. Way to face your fears Liv!!! Way to grow up my

> > darling:)

> > She learned in SLC a couple of days ago and Im waiting to get video from

> > my bro. If I ever get it, Ill share as this is a HUGE milestone for my

> > girl.

> > Just had to share as I know you all can relate.

> > HRH

> >

> >

> >

> >

> >

> >

> >

>

[Guest guest]

HURRAY for Liv!!! What an exciting feeling!

So when are they going to make a movie about your family, Dr. Mehta, Dr. D and the breakthrough you've all made on this medical practice and its impact on families across the US?