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EEG, bit long

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Hi,

Dear son is scheduled for an EEG later this month and now I am not so sure we

should put him through it. Our DAN recommended it as his test results from

France revealed high homocysteine levels. We are doing more blood work but has

started on B12 and will start on DMG later this month. She suggested the EEG

which is available to us without a problem on short notice and she told us which

sedation is safe to use (apparently they use something that sounds like..

stecolide?). Anyway I'm starting to wonder if it's worth putting our son through

the procedure. If he was having seizures wouldn't I see them? I sleep with him

often when he's upset and he does twitch in his sleep but surely that is not a

seizure, everyone twitches don't they?

I know that high homocysteine levels are related to seizures and neurological

problems but I can't help wondering if this is really necessary. We have been on

B12 for two weeks now and changed to spectrum complete and we are seeing some

fantastic changes in our son. He's so much more aware and is playing with toys

as intended. He's learning and he's remembering things and I've rarely seen any

head banging which was such a big concern that I was in tears about it. So he's

improvements are so marked that I don't want to upset his progress with a

procedure that may upset him or put any drugs what so ever in him.

So as you can tell I'm a bit torn and obviously need to talk with our DAN again

when we see her at the end of this month but was wondering for those of you that

are familiar with seizures what you thought? Any advice?

Thanks for listening,

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