Guest guest Posted January 3, 2011 Report Share Posted January 3, 2011 The RVAD is 40. Which was the bad news. Hoping that the casting will help temporarily. I have a feeling that may need surgery eventually. Or maybe by some miracle the casting will do the trickSent from my BlackBerry® wireless handheldFrom: heather@...Sender: infantile scoliosis treatment Date: Mon, 03 Jan 2011 11:48:37 -0500<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Edmonton EXCELLENT news! What a relief to hear that it was 63 and NOT 79! Howhigh is the RVAD? Did they give you that number by chance? You are onthe road...Congrats!HRH> We had a successful appt in Edmonton. Very happy with the Dr. He is> going to cast at the end of january. Needs to wait until the MRI.> The curve was 63 (not 79 like we were told at the last appt) however the> RVAD is high -not good)>> Sent from my BlackBerry® wireless handheld>> ------------------------------------>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2011 Report Share Posted January 3, 2011 My son had a cobb angle at 50 degrees with an RVAD of 40 and he is now cast/brace free so don't get discouraged! Every child is different but there is hope!! kfaul@... wrote: >The RVAD is 40. Which was the bad news. Hoping that the casting will help temporarily. I have a feeling that may need surgery eventually. >Or maybe by some miracle the casting will do the trick > >Sent from my BlackBerry® wireless handheld > > Re: Edmonton > >EXCELLENT news! What a relief to hear that it was 63 and NOT 79! How >high is the RVAD? Did they give you that number by chance? You are on >the road...Congrats! >HRH > > >> We had a successful appt in Edmonton. Very happy with the Dr. He is >> going to cast at the end of january. Needs to wait until the MRI. >> The curve was 63 (not 79 like we were told at the last appt) however the >> RVAD is high -not good) >> >> Sent from my BlackBerry® wireless handheld >> >> ------------------------------------ >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2011 Report Share Posted January 3, 2011 Thanks for the hopeful news . Sent from my BlackBerry® wireless handheldFrom: <missikay10@...>Sender: infantile scoliosis treatment Date: Mon, 03 Jan 2011 12:07:03 -0600<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Edmonton My son had a cobb angle at 50 degrees with an RVAD of 40 and he is now cast/brace free so don't get discouraged! Every child is different but there is hope!!kfaul@... wrote:>The RVAD is 40. Which was the bad news. Hoping that the casting will help temporarily. I have a feeling that may need surgery eventually. >Or maybe by some miracle the casting will do the trick>>Sent from my BlackBerry® wireless handheld>> Re: Edmonton>>EXCELLENT news! What a relief to hear that it was 63 and NOT 79! How>high is the RVAD? Did they give you that number by chance? You are on>the road...Congrats!>HRH>>>> We had a successful appt in Edmonton. Very happy with the Dr. He is>> going to cast at the end of january. Needs to wait until the MRI.>> The curve was 63 (not 79 like we were told at the last appt) however the>> RVAD is high -not good)>>>> Sent from my BlackBerry® wireless handheld>>>> ------------------------------------>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Keeley,You can email Angie Livingston at Alivingston@... - she sets all of the cast appointments, she is the point person and Care Coordinator at SLC and she'll know the wait. She is a wonderful person.Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: "kfaul@..." <kfaul@...>infantile scoliosis treatment Sent: Fri, January 7, 2011 3:38:46 PMSubject: Edmonton Has anyone else here been casted in Edmonton or anywhere else in Canada? Just wanting to make the best choice for our son. Also does anyone know what the average wait time is in slc? I have contacted our local shriners to see if they would send us to slc instead of Montreal. Keeley Sent from my BlackBerry® wireless handheld------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2011 Report Share Posted January 8, 2011 Thanks Heidi. I will contact her on Monday. Sent from my BlackBerry® wireless handheldFrom: NIck Guthe <nickguthe@...>Sender: infantile scoliosis treatment Date: Fri, 07 Jan 2011 15:45:49 -0800 (PST)<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Edmonton Keeley,You can email Angie Livingston at Alivingston@... - she sets all of the cast appointments, she is the point person and Care Coordinator at SLC and she'll know the wait. She is a wonderful person.Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: "kfaul@..."<kfaul@...>infantile scoliosis treatment Sent: Fri, January 7, 2011 3:38:46 PMSubject: EdmontonHas anyone else here been casted in Edmonton or anywhere else in Canada? Just wanting to make the best choice for our son. Also does anyone know what the average wait time is in slc? I have contacted our local shriners to see if they would send us to slc instead of Montreal. Keeley Sent from my BlackBerry® wireless handheld------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Hi Heidi Do you know if I can use any shirt under the cast or is it a special shirt? If it is a special shirt do you know if they can be ordered? They don't use the shirt in edmonton yet. They said that it would take up to six months for an order to come in. Keeley Sent from my BlackBerry® wireless handheldFrom: NIck Guthe <nickguthe@...>Sender: infantile scoliosis treatment Date: Fri, 07 Jan 2011 15:45:49 -0800 (PST)<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Edmonton Keeley,You can email Angie Livingston at Alivingston@... - she sets all of the cast appointments, she is the point person and Care Coordinator at SLC and she'll know the wait. She is a wonderful person.Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: "kfaul@..."<kfaul@...>infantile scoliosis treatment Sent: Fri, January 7, 2011 3:38:46 PMSubject: EdmontonHas anyone else here been casted in Edmonton or anywhere else in Canada? Just wanting to make the best choice for our son. Also does anyone know what the average wait time is in slc? I have contacted our local shriners to see if they would send us to slc instead of Montreal. Keeley Sent from my BlackBerry® wireless handheld------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 Our hospital uses the knit-rite brand of medical t-shirt, impregnated with silver thread to keep out bacteria, etc...we get them for free from the hospital. Some docs don't use them...it depends on the hospital. Anyone know how to order one? Maybe Google it? Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: "kfaul@..." <kfaul@...>infantile scoliosis treatment Sent: Sun, January 9, 2011 10:08:15 PMSubject: Re: Edmonton Hi Heidi Do you know if I can use any shirt under the cast or is it a special shirt? If it is a special shirt do you know if they can be ordered? They don't use the shirt in edmonton yet. They said that it would take up to six months for an order to come in. Keeley Sent from my BlackBerry® wireless handheldFrom: NIck Guthe <nickguthe@...> Sender: infantile scoliosis treatment Date: Fri, 07 Jan 2011 15:45:49 -0800 (PST)<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Edmonton Keeley,You can email Angie Livingston at Alivingston@... - she sets all of the cast appointments, she is the point person and Care Coordinator at SLC and she'll know the wait. She is a wonderful person.Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: "kfaul@..." <kfaul@...>infantile scoliosis treatment Sent: Fri, January 7, 2011 3:38:46 PMSubject: Edmonton Has anyone else here been casted in Edmonton or anywhere else in Canada? Just wanting to make the best choice for our son. Also does anyone know what the average wait time is in slc? I have contacted our local shriners to see if they would send us to slc instead of Montreal. Keeley Sent from my BlackBerry® wireless handheld------------------------------------ Quote Link to comment Share on other sites More sharing options...
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