Nora's 9th cast

[Guest guest]

Nora had her 9th cast put on October 13th and it was the best trip we've ever

had! She did well throughout the entire process, I guess she's become an old pro

at this by now. He got her down to 12 degrees this time but he said that she

still wasn't where he wanted her to be for casting to be curing her. He said

that he was 80% sure she would need a VEPTR when the cast stops holding her, he

just didn't know when this would occur. He did say that he wanted her to have a

VEPTR instead of rods, which would have been my choice as well eventhough we

would have to travel farther. I'm sorry that I don't get to reply or post as

often as I used to, I do read all of the posts I just don't always get to reply,

which I miss doing, but along with taking Nora to drs appointments I now have to

take my husband as well due to his Transient Ischemic Attack (mini stroke) that

occured on Sept.18. He's doing better, just not able to drive yet, it also

affected his eye sight a bit. I will try to post pics of Nora in her Halloween

costume, she's going as Dr.P. The staff at Greenville Shriners helped with her

costume, name badge and all. They also filmed her for a video they are putting

together to send out to pediatricians nationwide. They said they would post it

to Youtube, when they do I'll let everyone know. Sorry for such a long post, I

hope everyone is doing well!

Tonya Perkins

mother of ,11

and Nora,4, IS,reflux

Greenville Shriners,SC

9th cast

over 70 degrees down to 12 in cast!