Guest guest Posted November 30, 2010 Report Share Posted November 30, 2010 Hi , my daughter was 3 1/2 when first casted. She started at 56* curvature and is now down to 42* out of cast(after 5 casts) and in cast is at 17*. Yes they are not in the rapid growth stage, but I truly believe the older kids can still benefit. You sound like you are doing the right research for your child and that is the first step. Where do you live and what hospital are you thinking of going to. Make sure they are Mehta trained and they have the proper casting frame. Hopefully others with older kids will chime in soon. Hope this helps.Amy J mom to Allie(4) going in 7th cast tomorrow Greenville Sc ShrinersSent from my Verizon Wireless BlackBerryFrom: "" <dubsgirl13@...>Sender: infantile scoliosis treatment Date: Tue, 30 Nov 2010 20:59:09 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Casting after age 3 Hi everyone, my daughter has had severe infantile scoliosis and last year we stared with the brace but it hasn't done anything to help her. A year ago the curve of her spine was 52 degrees and we just had another one done yesterday and she is now at 64 degrees. The doctors want her to have the growing rod surgery next spring and I am so scared. My daughter Jada is 3, she has heart defects and lung problems that make surgery risky and I just don't feel confident that she is going to get through the surgery without complications from her other problems...not to mention she just had open heart surgery less than 4 months ago! Ive been reading a lot about the casting and there is a hospital not too far from here that does it but all the info I've read refers to children younger than 2 years old. Does anyone have any information about older kids being braced and the success rate?Thanks so much! H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2010 Report Share Posted November 30, 2010 Hi , We casted Grace at 3 yrs 1 month. She has congenital scoliosis (her hemi-vert was removed the month prior and T8 and T9 were fused). Pre-op her curve was about 53*, post-op it was in the low 40's. She is fused at 5* and our doctor was able to get her down to less than 10* in cast after only 4 casts. Out of cast she is still in the low 20's. We have been out of cast in a brace (for various reasons) for 6 months and all the bracing did was hold her curves. She will be going back into a cast on 12/20 and she is now 4 yrs and almost 3 mo. I think as long as the kiddo is flexible anything is possible. Keep in mind that bracing won't help rotation either. So something else to consider. Grace was also in braces prior to her surgery and all they ever did was maintain her curves, there was never any correction and the rotation in her low spine continued to progress. Jane From: <dubsgirl13@...>infantile scoliosis treatment Sent: Tue, November 30, 2010 12:59:09 PMSubject: Casting after age 3 Hi everyone, my daughter has had severe infantile scoliosis and last year we stared with the brace but it hasn't done anything to help her. A year ago the curve of her spine was 52 degrees and we just had another one done yesterday and she is now at 64 degrees. The doctors want her to have the growing rod surgery next spring and I am so scared. My daughter Jada is 3, she has heart defects and lung problems that make surgery risky and I just don't feel confident that she is going to get through the surgery without complications from her other problems...not to mention she just had open heart surgery less than 4 months ago! Ive been reading a lot about the casting and there is a hospital not too far from here that does it but all the info I've read refers to children younger than 2 years old. Does anyone have any information about older kids being braced and the success rate?Thanks so much! H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2010 Report Share Posted November 30, 2010 Thank you so much for that information!! I am going to call Shriners in Portland Oregon and schedule an appointment. My father in-law is a member of Shriners so we are already approved and I checked online and they are Mehta trained. Have they told you how long your daughter will have to be in a cast and where they expect her curve to be at once done? At this point I would do the casting even if it took 5 years because it's better than surgery every 6 months! I hope to hear from more people but this alone gives me hope that we can do the casting and avoid surgery. > > Hi , my daughter was 3 1/2 when first casted. She started at 56* curvature and is now down to 42* out of cast(after 5 casts) and in cast is at 17*. Yes they are not in the rapid growth stage, but I truly believe the older kids can still benefit. You sound like you are doing the right research for your child and that is the first step. Where do you live and what hospital are you thinking of going to. Make sure they are Mehta trained and they have the proper casting frame. Hopefully others with older kids will chime in soon. Hope this helps. > > Amy J mom to Allie(4) going in 7th cast tomorrow Greenville Sc Shriners > Sent from my Verizon Wireless BlackBerry > > -----Original Message----- > From: " " <dubsgirl13@...> > Sender: infantile scoliosis treatment > Date: Tue, 30 Nov 2010 20:59:09 > <infantile scoliosis treatment > > Reply-to: infantile scoliosis treatment@...: Casting after age 3 > > Hi everyone, my daughter has had severe infantile scoliosis and last year we stared with the brace but it hasn't done anything to help her. A year ago the curve of her spine was 52 degrees and we just had another one done yesterday and she is now at 64 degrees. The doctors want her to have the growing rod surgery next spring and I am so scared. My daughter Jada is 3, she has heart defects and lung problems that make surgery risky and I just don't feel confident that she is going to get through the surgery without complications from her other problems...not to mention she just had open heart surgery less than 4 months ago! Ive been reading a lot about the casting and there is a hospital not too far from here that does it but all the info I've read refers to children younger than 2 years old. Does anyone have any information about older kids being braced and the success rate? > > Thanks so much! > > H. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2010 Report Share Posted November 30, 2010 We live in Washington State by the way, the Shriners in Portland Oregon is about 2 hours away from where I live. > > Hi , my daughter was 3 1/2 when first casted. She started at 56* curvature and is now down to 42* out of cast(after 5 casts) and in cast is at 17*. Yes they are not in the rapid growth stage, but I truly believe the older kids can still benefit. You sound like you are doing the right research for your child and that is the first step. Where do you live and what hospital are you thinking of going to. Make sure they are Mehta trained and they have the proper casting frame. Hopefully others with older kids will chime in soon. Hope this helps. > > Amy J mom to Allie(4) going in 7th cast tomorrow Greenville Sc Shriners > Sent from my Verizon Wireless BlackBerry > > -----Original Message----- > From: " " <dubsgirl13@...> > Sender: infantile scoliosis treatment > Date: Tue, 30 Nov 2010 20:59:09 > <infantile scoliosis treatment > > Reply-to: infantile scoliosis treatment@...: Casting after age 3 > > Hi everyone, my daughter has had severe infantile scoliosis and last year we stared with the brace but it hasn't done anything to help her. A year ago the curve of her spine was 52 degrees and we just had another one done yesterday and she is now at 64 degrees. The doctors want her to have the growing rod surgery next spring and I am so scared. My daughter Jada is 3, she has heart defects and lung problems that make surgery risky and I just don't feel confident that she is going to get through the surgery without complications from her other problems...not to mention she just had open heart surgery less than 4 months ago! Ive been reading a lot about the casting and there is a hospital not too far from here that does it but all the info I've read refers to children younger than 2 years old. Does anyone have any information about older kids being braced and the success rate? > > Thanks so much! > > H. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2010 Report Share Posted November 30, 2010 , My daughter has a heart defect and scoliosis. She started out in a brace at 18 months and her spine got worse, so we started casting at age 2. Her scoliosis has not improved; however, the cast is buying her time so that she doesn't have to have surgery right now. If the doctors at Shriners will cast your daughter, you may be able to put off surgery for a couple years. mom to Audrey, 4th cast SLC > > Hi everyone, my daughter has had severe infantile scoliosis and last year we stared with the brace but it hasn't done anything to help her. A year ago the curve of her spine was 52 degrees and we just had another one done yesterday and she is now at 64 degrees. The doctors want her to have the growing rod surgery next spring and I am so scared. My daughter Jada is 3, she has heart defects and lung problems that make surgery risky and I just don't feel confident that she is going to get through the surgery without complications from her other problems...not to mention she just had open heart surgery less than 4 months ago! Ive been reading a lot about the casting and there is a hospital not too far from here that does it but all the info I've read refers to children younger than 2 years old. Does anyone have any information about older kids being braced and the success rate? > > Thanks so much! > > H. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Hi ,I just want to say I so agree and welcome to CAST! Older kids can take longer (depending on the child, flexibility and growth spurts, etc...) but they absolutely can benefit big time from casting and also sometimes be "cured". At the very least, casting holds off on surgery much better than bracing with progressive cases. That growing time is very valuable in the long run.My advice is to act fast because the sooner you begin, generally the shorter the treatment needed. We wish we had begun sooner, but wouldn't change our decision for the world. Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)From: <dubsgirl13@...>infantile scoliosis treatment Sent: Tue, November 30, 2010 1:38:43 PMSubject: Re: Casting after age 3 Thank you so much for that information!! I am going to call Shriners in Portland Oregon and schedule an appointment. My father in-law is a member of Shriners so we are already approved and I checked online and they are Mehta trained. Have they told you how long your daughter will have to be in a cast and where they expect her curve to be at once done? At this point I would do the casting even if it took 5 years because it's better than surgery every 6 months! I hope to hear from more people but this alone gives me hope that we can do the casting and avoid surgery. > > Hi , my daughter was 3 1/2 when first casted. She started at 56* curvature and is now down to 42* out of cast(after 5 casts) and in cast is at 17*. Yes they are not in the rapid growth stage, but I truly believe the older kids can still benefit. You sound like you are doing the right research for your child and that is the first step. Where do you live and what hospital are you thinking of going to. Make sure they are Mehta trained and they have the proper casting frame. Hopefully others with older kids will chime in soon. Hope this helps. > > Amy J mom to Allie(4) going in 7th cast tomorrow Greenville Sc Shriners > Sent from my Verizon Wireless BlackBerry > > -----Original Message----- > From: "" <dubsgirl13@...> > Sender: infantile scoliosis treatment > Date: Tue, 30 Nov 2010 20:59:09 > <infantile scoliosis treatment > > Reply-to: infantile scoliosis treatment@...: Casting after age 3 > > Hi everyone, my daughter has had severe infantile scoliosis and last year we stared with the brace but it hasn't done anything to help her. A year ago the curve of her spine was 52 degrees and we just had another one done yesterday and she is now at 64 degrees. The doctors want her to have the growing rod surgery next spring and I am so scared. My daughter Jada is 3, she has heart defects and lung problems that make surgery risky and I just don't feel confident that she is going to get through the surgery without complications from her other problems...not to mention she just had open heart surgery less than 4 months ago! Ive been reading a lot about the casting and there is a hospital not too far from here that does it but all the info I've read refers to children younger than 2 years old. Does anyone have any information about older kids being braced and the success rate? > > Thanks so much! > > H. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 Welcome to CAST ! You have come to a great place for gathering solid info on Mehtas Early Treatment method w/ EDf casting. Please read Dr. Mehtas published article titled " Growth as a corrective force in the Early Treatment of progressive infantile scoliosis, " which can be found in the Files section of this group. I think you may be able to watch A New Direction DVD on line as well. Both items will really help you to understand the principles & benefits of this gentle, corrective treatment modality. It sounds like you are on the right track, so share your questions as they come up and let us know how we can help! HRH > Hi everyone, my daughter has had severe infantile scoliosis and last year > we stared with the brace but it hasn't done anything to help her. A year > ago the curve of her spine was 52 degrees and we just had another one done > yesterday and she is now at 64 degrees. The doctors want her to have the > growing rod surgery next spring and I am so scared. My daughter Jada is 3, > she has heart defects and lung problems that make surgery risky and I just > don't feel confident that she is going to get through the surgery without > complications from her other problems...not to mention she just had open > heart surgery less than 4 months ago! Ive been reading a lot about the > casting and there is a hospital not too far from here that does it but all > the info I've read refers to children younger than 2 years old. Does > anyone have any information about older kids being braced and the success > rate? > > Thanks so much! > > H. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2010 Report Share Posted December 1, 2010 So true...If ET w/ EDF doesnt completely cure, its a superior way to buy invaluable growth time in many cases. EXCELLENT point . Thanks for pointing that out! HRH > , > My daughter has a heart defect and scoliosis. She started out in a brace > at 18 months and her spine got worse, so we started casting at age 2. Her > scoliosis has not improved; however, the cast is buying her time so that > she doesn't have to have surgery right now. If the doctors at Shriners > will cast your daughter, you may be able to put off surgery for a couple > years. > > mom to Audrey, 4th cast SLC > > >> >> Hi everyone, my daughter has had severe infantile scoliosis and last >> year we stared with the brace but it hasn't done anything to help her. A >> year ago the curve of her spine was 52 degrees and we just had another >> one done yesterday and she is now at 64 degrees. The doctors want her to >> have the growing rod surgery next spring and I am so scared. My daughter >> Jada is 3, she has heart defects and lung problems that make surgery >> risky and I just don't feel confident that she is going to get through >> the surgery without complications from her other problems...not to >> mention she just had open heart surgery less than 4 months ago! Ive been >> reading a lot about the casting and there is a hospital not too far from >> here that does it but all the info I've read refers to children younger >> than 2 years old. Does anyone have any information about older kids >> being braced and the success rate? >> >> Thanks so much! >> >> H. >> > > > Quote Link to comment Share on other sites More sharing options...
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