Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 Hello - my name is and I am new to the group. My eldest child is Autistic. She is 10 years old and severely affected by the condition. She has no speech and language, severe behavioural problems and is incontinent. Saying all that she is an adorable little girl I wouldnt be without. I would love to hear from anyone in a similar position. I feel extra isolated because up to 90% of the children at her school are male. I also worry about secondary provision as places are limited at the school I hope to send her too. I would particularly like to hear from people with suggestions as to how I can take my daughter out into the community more and get her to enjoy the experience. At the moment she barely goes out other to school because she screams and shouts the entire time. Has anyone any suggestions? Best wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2002 Report Share Posted August 13, 2002 Hi Welcome to the list. My name is Tracey and my youngest daughter Skylar who will be 10 in October was diagnosed autistic at the age of 3. She used to yell and scream also when we took her out. She would see something she wanted, or something that upset her and she would be off. What worked for us was just persistently taking her out for short periods of time (that was all my nerves would allow :-) ) We would just basically finish whatever it was we were doing grocery shopping, etc and just try to deal with her the best we could. We just kept doing this and doing this until we could take her out longer and longer. I remember once we took her to a local convenience store which also has donuts and we would literally have to run between her and the donuts or she would grab one and take a bite out of it. Now I find it comical, but at the time it was very frustrating. Don't know if that helps , but that is what we did. Good luck. Tracey sarahtreweeks wrote: > Hello - my name is and I am new to the group. My eldest child > is Autistic. She is 10 years old and severely affected by the > condition. She has no speech and language, severe behavioural > problems and is incontinent. Saying all that she is an adorable > little girl I wouldnt be without. I would love to hear from anyone > in a similar position. I feel extra isolated because up to 90% of > the children at her school are male. I also worry about secondary > provision as places are limited at the school I hope to send her too. > I would particularly like to hear from people with suggestions as to > how I can take my daughter out into the community more and get her to > enjoy the experience. At the moment she barely goes out other to > school because she screams and shouts the entire time. Has anyone > any suggestions? > > Best wishes, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 In a message dated 8/14/02 8:34:47 AM Pacific Daylight Time, bridalsh@... writes: Hum. A Collie, what a great idea, My son is scared to death of dogs and they are leery of him, very, However Cheyanne attracts dogs from far distances. Maybe we should get a collie puppy so PJ want be so scared of him, and he can see PJ at all levels. > Subj:Re: Hello to the group from > Date:8/14/02 8:34:47 AM Pacific Daylight Time > From:<A HREF= " mailto:bridalsh@... " >bridalsh@...</A> > Reply-to:<A HREF= " mailto:Autism_in_Girls " >Autism_in_Girls </A\ > > To:<A HREF= " mailto:Autism_in_Girls " >Autism_in_Girls </A\ > > Sent from the Internet > > > > Hi , > I have an autistic daughter named Jen. She is 13 1/3 years old. I remember > those days of the fast dash into the store and out again with Jen. Jen just > loved to get a hold a nice fresh loaf of bread or hamburger rolls and > squish her fingers in like it was a giant piece of play dough. One time, we > were in the check line a she squashed the ladies bread in front of us. I > have to give her credit... she was fast! I was so embarrassed! I want to > crawl under the register and never come out. Jen now pushes the shopping > cart in the grocery store and she can be trusted around bread. She does at > times walk off with the cart and stand behind displays and laugh. The other > week she had the shopping cart stuck between and big display of Ketchup and > Watermelons. She was laughing at me until she realized she was unable to > move the cart. I rush to the rescue and not a bottle fell from the display! > > Practice does make perfect, but I really also believe that working with > good doctor and therapists has also made the difference. I have seen some > changes in the last weeks since Jen started chelating Mercury. There was a > time when I wanted to just hide in my house with Jen, but life has demands > that forced me out to grocery store, the library, the mall, and the parks. > > Jen is in Junior Girl Scouts with her sister Kim (Age 12 1/2 years old) and > I as the leader of the troop. Jen started 4 years ago in Girl Scouts. My > other daughter has S.S.S. and she is recovering from eye movement disorder. > The Assistant Leader to our troop has 3 kids... 2 have problems different > from Jen's but in many ways just as devastating. None of the other parents > would take over the troop... we were drafted. Our girls love Girl Scouts > and they do what they can do. We have a total of 13 girls in our troop at > this point. 2 girls are new and 11 returning from last year. The normal > girls love Jen and try to interact with her. Because of Jen medication > being refrigerated our troop is required to have refrigerator which means > we don't have to ruff it in a tent. We cabin camp and the girls in the > troop are total spoiled. We have camped in some pretty nice cabins and they > all thank Jen. While they other troops ruff it in a tent we have a cabin > with all warm water, shower, and heat. The first meeting Jen attended you > could have heard a pin drop at first in that room. 22 girls including Jen. > Jen was flapping, acting out and making the sounds. The other girls were in > shock! For 2 hours the leader and the assistant leader talked, but other > than me no one was listening. They were watching Jen to see what was going > to happen next. As time pasted the other girls would ask me questions > slowly at first. The most common question was... " Can that happen to me? " > or " What is she that way? " This year Jen was the most poplar girl at Day > Camp and many of the Brownie Girl Scouts had question, which I answered. > The Cadettes Girl Scouts took Jen under their wings and the other junior > competed to be Jen best friend. I think they though it would give them an > in with the Cadettes and Seniors Girl Scouts. Girl Scout not only gave Jen > the support of having friends but opportunity to have new experiences. It > gave me a life too! I have friends in Girl Scouts. My husband came down > with Cancer right before Christmas and if would have tried what at the time > seemed impossible... Girl Scout today I would be very lonely and helpless. > I have had so many other leaders whom just there when I needed to talk. I > reached out to share my family's life and love with others and they reached > back to share their support and love too! What at one time seemed > impossible... now was the best choice I could have ever made. > > Another thing I did was to buy a Collie Dog. The reason I picked a collie > is they are sheepherders and they don't bite. They nip which feels more > like a small pinch. We worked with him not to nip and it is rare when he > does nip anyone. The books were correct on our Collie Dog. he does not > bite. When Jen is outside he is a companion and he has warned me that she > is having a problem. If she tries to walks out of the yard you can count > him. I have seen him put himself between the edge of the yard and Jen. She > has to fall over him because he does not move easily. If that does not work > he sound the barking alarm. If Jen goes outside the house he goes outside. > When she comes in the house so he does too. He is a 24-hour helper for Jen. > He will let other kids he knows in the yard, but anyone beyond that he is > making enough noise for 10 dogs. I usually am outside with Jen, but I have > the freedom of walking in for a drink of water or to grab something small. > He is true working dog and has really improved life in our house. > > No one can tell you what will work for you and your child. Each autistic > child is different. I can only tell you what worked with Jen. > > Take Care and God Bless, > Beverly Weakley > Mom of Jen and Kim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Duane and Tracey wrote:Hi Welcome to the list. My name is Tracey and my youngest daughter Skylar who will be 10 in October was diagnosed autistic at the age of 3. She used to yell and scream also when we took her out. She would see something she wanted, or something that upset her and she would be off. What worked for us was just persistently taking her out for short periods of time (that was all my nerves would allow :-) ) We would just basically finish whatever it was we were doing grocery shopping, etc and just try to deal with her the best we could. We just kept doing this and doing this until we could take her out longer and longer. I remember once we took her to a local convenience store which also has donuts and we would literally have to run between her and the donuts or she would grab one and take a bite out of it. Now I find it comical, but at the time it was very frustrating. Don't know if that helps , but that is what we did. Good luck. Tracey sarahtreweeks wrote: > Hello - my name is and I am new to the group. My eldest child > is Autistic. She is 10 years old and severely affected by the > condition. She has no speech and language, severe behavioural > problems and is incontinent. Saying all that she is an adorable > little girl I wouldnt be without. I would love to hear from anyone > in a similar position. I feel extra isolated because up to 90% of > the children at her school are male. I also worry about secondary > provision as places are limited at the school I hope to send her too. > I would particularly like to hear from people with suggestions as to > how I can take my daughter out into the community more and get her to > enjoy the experience. At the moment she barely goes out other to > school because she screams and shouts the entire time. Has anyone > any suggestions? > > Best wishes, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Hi , I have an autistic daughter named Jen. She is 13 1/3 years old. I remember those days of the fast dash into the store and out again with Jen. Jen just loved to get a hold a nice fresh loaf of bread or hamburger rolls and squish her fingers in like it was a giant piece of play dough. One time, we were in the check line a she squashed the ladies bread in front of us. I have to give her credit... she was fast! I was so embarrassed! I want to crawl under the register and never come out. Jen now pushes the shopping cart in the grocery store and she can be trusted around bread. She does at times walk off with the cart and stand behind displays and laugh. The other week she had the shopping cart stuck between and big display of Ketchup and Watermelons. She was laughing at me until she realized she was unable to move the cart. I rush to the rescue and not a bottle fell from the display! Practice does make perfect, but I really also believe that working with good doctor and therapists has also made the difference. I have seen some changes in the last weeks since Jen started chelating Mercury. There was a time when I wanted to just hide in my house with Jen, but life has demands that forced me out to grocery store, the library, the mall, and the parks. Jen is in Junior Girl Scouts with her sister Kim (Age 12 1/2 years old) and I as the leader of the troop. Jen started 4 years ago in Girl Scouts. My other daughter has S.S.S. and she is recovering from eye movement disorder. The Assistant Leader to our troop has 3 kids... 2 have problems different from Jen's but in many ways just as devastating. None of the other parents would take over the troop... we were drafted. Our girls love Girl Scouts and they do what they can do. We have a total of 13 girls in our troop at this point. 2 girls are new and 11 returning from last year. The normal girls love Jen and try to interact with her. Because of Jen medication being refrigerated our troop is required to have refrigerator which means we don't have to ruff it in a tent. We cabin camp and the girls in the troop are total spoiled. We have camped in some pretty nice cabins and they all thank Jen. While they other troops ruff it in a tent we have a cabin with all warm water, shower, and heat. The first meeting Jen attended you could have heard a pin drop at first in that room. 22 girls including Jen. Jen was flapping, acting out and making the sounds. The other girls were in shock! For 2 hours the leader and the assistant leader talked, but other than me no one was listening. They were watching Jen to see what was going to happen next. As time pasted the other girls would ask me questions slowly at first. The most common question was... " Can that happen to me? " or " What is she that way? " This year Jen was the most poplar girl at Day Camp and many of the Brownie Girl Scouts had question, which I answered. The Cadettes Girl Scouts took Jen under their wings and the other junior competed to be Jen best friend. I think they though it would give them an in with the Cadettes and Seniors Girl Scouts. Girl Scout not only gave Jen the support of having friends but opportunity to have new experiences. It gave me a life too! I have friends in Girl Scouts. My husband came down with Cancer right before Christmas and if would have tried what at the time seemed impossible... Girl Scout today I would be very lonely and helpless. I have had so many other leaders whom just there when I needed to talk. I reached out to share my family's life and love with others and they reached back to share their support and love too! What at one time seemed impossible... now was the best choice I could have ever made. Another thing I did was to buy a Collie Dog. The reason I picked a collie is they are sheepherders and they don't bite. They nip which feels more like a small pinch. We worked with him not to nip and it is rare when he does nip anyone. The books were correct on our Collie Dog. he does not bite. When Jen is outside he is a companion and he has warned me that she is having a problem. If she tries to walks out of the yard you can count him. I have seen him put himself between the edge of the yard and Jen. She has to fall over him because he does not move easily. If that does not work he sound the barking alarm. If Jen goes outside the house he goes outside. When she comes in the house so he does too. He is a 24-hour helper for Jen. He will let other kids he knows in the yard, but anyone beyond that he is making enough noise for 10 dogs. I usually am outside with Jen, but I have the freedom of walking in for a drink of water or to grab something small. He is true working dog and has really improved life in our house. No one can tell you what will work for you and your child. Each autistic child is different. I can only tell you what worked with Jen. Take Care and God Bless, Beverly Weakley Mom of Jen and Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 hi sarah, welcome, my name is rosie and i too have a daughter who has autism,nonverbal and has huge anxieties when she goes outside, we have started to introduce shopping trips, visits to the park, woods etc. what helped my daughter was a travel scedule with symbols of the places we were going to,i also use a symbol which she knows well it`s a finish symbol so she knows when the trip is about to end.i also took her pecs book so she could communicate with me, and her favourite toy whan she got upset.this has worked for us and josie now enjoys her outings but we still try and avoid crowed places as she gets very distressed. i hope this was of help ,take care from rosie mum to josie. --------------------------------- Quote Link to comment Share on other sites More sharing options...
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