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Re: Lynne/nose stuff

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Lynne, does she have a nasal spray that she uses? This helped ph quite

a bit..his sinuses would get swollen shut... he also takes a daily allergy

med. We went through a bazillion of them before we found one that worked. He

is

also getting allergy shots...I don't think they have helped us much..he still

has that constant confgestion and all that. The allergy meds and nasal spray

have been the two things we think make a difference for him.

what a bout a steamy bathroom? to help get the gunk out without

blowing--when I have sinus infections, it helps me ...also, what about hot

chocolate? It

warms stuff up and it flows a bit more easily.... just random thoughts from

me:-)

Pattie

> Her nose is all stopped up, I keep putting vaseline in there, she can't

> blow her nose, the doc said he didn't want her to start bleeding again. I

> wish

> I knew how to help her. Any ideas on how to get her nose to " open up "

> without

> making her bleed again?

> Thank you to everyone.

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I would think you might see a orthopedic doctor or a foot doctor Podietrist

(sp???)

One of the girls my daughter goes to school with also walks on her tip toes

and her legs are like rocks too.

good luck-my prayers are with you

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I flush out my 21 month's nose with nasal saline and then use a bulb syrine

to suction..I do this 2-3 times/day...then he has his nebulized breathing

treatment. One of the meds he uses is Atrovent, which works to break up

mucous. After the breathing treatment, then I use Nasonex. The Nasonex

won't work if the nose is blocked and the med can't get up into the nasal

cavity.

Good Luck!

Re: Lynne/nose stuff

Lynne, does she have a nasal spray that she uses? This helped ph quite

a bit..his sinuses would get swollen shut... he also takes a daily allergy

med. We went through a bazillion of them before we found one that worked.

He is

also getting allergy shots...I don't think they have helped us much..he

still

has that constant confgestion and all that. The allergy meds and nasal

spray

have been the two things we think make a difference for him.

what a bout a steamy bathroom? to help get the gunk out without

blowing--when I have sinus infections, it helps me ...also, what about hot

chocolate? It

warms stuff up and it flows a bit more easily.... just random thoughts from

me:-)

Pattie

> Her nose is all stopped up, I keep putting vaseline in there, she can't

> blow her nose, the doc said he didn't want her to start bleeding again. I

> wish

> I knew how to help her. Any ideas on how to get her nose to " open up "

> without

> making her bleed again?

> Thank you to everyone.

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does anyone know what kind of doctor do you see for tendon problems...I just

had stitched taken out of 's forehead because not only is he

hyperactive, but he runs on his tip toes..

I used to think it was cute-not now--he never walked normally, always high

on toes--sooo when he is running, he pitches forward and falls-- his face

looks like a road map..he is constantly falling into coffee tables, walls,

toys, etc..the muscles in his calves are hard as rocks from always walking

and running on tiptoes.

I am concerned that he may need his tendons lengthened because they maybe

they are no long enough for him to walk normally..anyone ever hear of this

before..what kind of doc should he see?

Also, by the way, he has hyperflexibility problems--in his legs primarily--

infectious disease doc thought he may have a collgen-related disorder-- what

kind of doc do you see for this???

Thanks, everyone!!!

, mom to , 21 months..

Re: Lynne/nose stuff

Lynne, does she have a nasal spray that she uses? This helped ph quite

a bit..his sinuses would get swollen shut... he also takes a daily allergy

med. We went through a bazillion of them before we found one that worked.

He is

also getting allergy shots...I don't think they have helped us much..he

still

has that constant confgestion and all that. The allergy meds and nasal

spray

have been the two things we think make a difference for him.

what a bout a steamy bathroom? to help get the gunk out without

blowing--when I have sinus infections, it helps me ...also, what about hot

chocolate? It

warms stuff up and it flows a bit more easily.... just random thoughts from

me:-)

Pattie

> Her nose is all stopped up, I keep putting vaseline in there, she can't

> blow her nose, the doc said he didn't want her to start bleeding again. I

> wish

> I knew how to help her. Any ideas on how to get her nose to " open up "

> without

> making her bleed again?

> Thank you to everyone.

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Thank you!!

Re: Lynne/nose stuff

I would think you might see a orthopedic doctor or a foot doctor Podietrist

(sp???)

One of the girls my daughter goes to school with also walks on her tip toes

and her legs are like rocks too.

good luck-my prayers are with you

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I walked on my tip toes for 5 years, I just had to relearn walking the other way

- there was not a medical problem for me!

Dayna

Re: Lynne/nose stuff

I would think you might see a orthopedic doctor or a foot doctor Podietrist

(sp???)

One of the girls my daughter goes to school with also walks on her tip toes

and her legs are like rocks too.

good luck-my prayers are with you

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Hi Everyone!!

I must be losing my mind..... whose child has tethered cord syndrome... My

ped just mentioned that as a possiblity for ...he wants me to exercise

his heels/calves due to his tiptoe problem, and wants to see what the

genetics doc says after assessment regarding disorders involving sluggish

immune system, collagen problems, murmur and failure to thrive, he wants to

discuss a neurologist for possible tethered cord syndrome..

Help!! What is that!!

, - 21 months.....

Re: Lynne/nose stuff

I would think you might see a orthopedic doctor or a foot doctor Podietrist

(sp???)

One of the girls my daughter goes to school with also walks on her tip toes

and her legs are like rocks too.

good luck-my prayers are with you

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In a message dated 9/8/03 2:11:06 PM Pacific Daylight Time,

LLadden@... writes:

> I must be losing my mind..... whose child has tethered cord syndrome

Hi ,

is in the process of being tested for it. All he needs is an MRI,

but I refused to do it until he was clear for more surgery. It seemed like too

much on our plate at the time. We'll be going back in about a five or six

weeks. I was wondering about this when you wrote it today.

Sandi--Mom to , age 10. Immune Deficiency, Tetrology of Fallot, Mitral

Valve stenosis, chronic sinusitis, chronic ear infections, asthma, severe

allergies, GERD, Pulmonary Valve Transplant--July 18.

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Pattie:

We use nasonex, she's on extendryl liquid. So far for the past couple of

days it's been no blood. I've been using a Q-tip to put the vaseline in, so I

can get it kinda back there. She's not a canadate for the shots they tell

me.

Thank you for replying.

Lynne

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By all means Lynne, YOU MUST MUST MUST go to the school board, this is insane.

Even if you get her homebound, or homeschool her, this is by far the most

unprofessional, unethical behavior by a teacher I have heard of in a LONG TIME,

and I AM A TEACHER (or at least was prior to kids).

I'm not kidding, no child or parent should have to put up with this INEXCUSABLE

behavior by a teacher. The only reason I can think of for her to not have a

full weeks lesson plan ready is that she is not doing the week all at once - and

is UNPREPARED for class.

Can she be switched to another class? I'd skip the principal, and go DIRECTLY

to the superintendent of the school. This could be a SERIOUS problem for the

district, ESPECIALLY if something happens.

PLEASE DO SOMETHING - DO NOT JUST PULL HER OUT - THIS TEACHER NEEDS TO BE

STOPPED.

Dayna

Re: Lynne/nose stuff

Pattie:

We use nasonex, she's on extendryl liquid. So far for the past couple of

days it's been no blood. I've been using a Q-tip to put the vaseline in, so I

can get it kinda back there. She's not a canadate for the shots they tell

me.

Thank you for replying.

Lynne

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Dayna:

Thank you for replying. Getting her repreminded is harder said than done.

" Well, she's been a teacher for 30 years, she's also the wife of the new

principal for the elementary. But I was a little more than mad about her making

Sis cry yesterday by hollering at her that her mom did not have any bussiness

having her math and reading books. Then the way she came around the corner

holding them, and the " I'm better than thou " attitude while telling me that I

had no business having the books. You know!! They have pulled her out to

" special " classes for reading and Math, but don't want me helping her. You

would

think that helping her at home would be welcomed from a teacher. I looked up

to see how much the student book would cost me, it's 50 bucks. I wish I had it.

Sorry to be laying so much on yall this past week. It''s not usually

like me. So thank you to everyone for replying.

Lynne

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In a message dated 9/9/2003 10:19:31 AM Eastern Daylight Time,

Bejenski@... writes:

Sorry to be laying so much on yall this past week. It''s not usually

like me. So thank you to everyone for replying.

Lynne

We all need to share like this from time to time. Life is so overwhelming and

heartbreaking for us as parents. You know, I think that I handle Kody's

medical needs better than I do the educational ones. His latest thing with the

cognitive regression is just breaking my heart more than anything else could.

You

have to fight for so much physically for Sis, that when even school becomes a

fight it is so hard to deal with. Hang in there. It sounds to me like that

teacher needs to retire ASAP!!!!

Diane, Mom to Kody, age 7, precious and precocious who has Di Syndrome,

Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age 9

(she

happens to also be Dyslexic), and wife/soulmate to for 10 years.

check out my website: www.geocities.com/schmidtzoo/SNAK

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