Re: Disgusting taste (Flagyl) - my daughter didnt

[Guest guest]

Is she hyposensitive?

I think this can be linked in some cases to olfactory [sp] problems.

sense of smell and taste is very low, he needs strong odours, strong flavours and is a very good eater.

He has never in his life refused a supplement taken off the spoon, more recently though he has pulled a face with certain supps after swallowing but never sees it coming, for instance taking LDM we can all smell it coming and gagging follows instinctively, he doesn't smell it coming.

In all my years on these boards parents mostly have the opposite problem in that their children are hypersensitive.

Did she have pica?

Just a thought from what I see here.

Vicky

[Guest guest]

Just out of interest do you agree with the LEA OT assessment?

It's unusual for a child with autism to have no sensory issues, if for instance you were correct about the taste buds then would that not be a sensory issue?

is non verbal also but as has got older I have seen that he doesn't put his tongue in the right place to form sounds, also he cannot hear soft sounds.

Like your daughter a good eater with some preference on sweet things in so much as he doesn't care for chocolate but will take very strong and bitter things.

had OT for a year but they completely shied away from things like smell and taste stating he doesn't have a problem and in his case he most certainly does, even with the SI qualification OT was concentrating on gross motor skills, laughable as this is an area of strong ability for him.

Vicky

[Guest guest]

Hello

No her sensory issues are more or less normal as per recent detailed assessment by LEA Occ Therapist

We dont have olfactory (smell) problems either

Dont have pica either lol

She has great love of foods, all except bitter ones which she doesnt notice. Taste buds for these are in back of tongue. So Im linking taste issues at back of tongue with possible route cause of her speech problem... thats my theory

Thanks

Autism Treatment From: MaddiganV@...Date: Wed, 23 Dec 2009 04:57:46 -0500Subject: Re: Disgusting taste (Flagyl) - my daughter didnt

Is she hyposensitive?

I think this can be linked in some cases to olfactory [sp] problems.

sense of smell and taste is very low, he needs strong odours, strong flavours and is a very good eater.

He has never in his life refused a supplement taken off the spoon, more recently though he has pulled a face with certain supps after swallowing but never sees it coming, for instance taking LDM we can all smell it coming and gagging follows instinctively, he doesn't smell it coming.

In all my years on these boards parents mostly have the opposite problem in that their children are hypersensitive.

Did she have pica?

Just a thought from what I see here.

Vicky

New! Receive and respond to mail from other email accounts from within Hotmail Find out how.

[Guest guest]

It's possible to be both hypo- and hyper-sensitive: I think OTs trained in

sensory integration expect this sort of mixed profile with autism. Henry sound

like in that he also needs strong flavours and is a good eater. I have

never ever notice Henry react to smell - even if you hold essential oils under

his nose or wave a poo-maarked pair of pants under his nose he doesn't react.

However, he is aware of unpleasant tastes so I can't give him nasty-tasting

supplements, alas.

Margaret

>

> Is she hyposensitive?

> I think this can be linked in some cases to olfactory [sp] problems.

> sense of smell and taste is very low, he needs strong odours, strong

> flavours and is a very good eater.

> He has never in his life refused a supplement taken off the spoon, more

> recently though he has pulled a face with certain supps after swallowing but

> never sees it coming, for instance taking LDM we can all smell it coming

> and gagging follows instinctively, he doesn't smell it coming.

> In all my years on these boards parents mostly have the opposite problem in

> that their children are hypersensitive.

> Did she have pica?

> Just a thought from what I see here.

> Vicky

>

[Guest guest]

Vicky,

<but will take very strong and bitter things.>

This is strong sign of low zinc.....just covering this in my thesis....

MaddiganV@... schrieb:

>

> Just out of interest do you agree with the LEA OT assessment?

> It's unusual for a child with autism to have no sensory issues, if for

> instance you were correct about the taste buds then would that not be

> a sensory issue?

> is non verbal also but as has got older I have seen that he

> doesn't put his tongue in the right place to form sounds, also he

> cannot hear soft sounds.

> Like your daughter a good eater with some preference on sweet things

> in so much as he doesn't care for chocolate but will take very strong

> and bitter things.

> had OT for a year but they completely shied away from things like

> smell and taste stating he doesn't have a problem and in his case he

> most certainly does, even with the SI qualification OT was

> concentrating on gross motor skills, laughable as this is an area of

> strong ability for him.

> Vicky

>

>

> ------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.430 / Virus Database: 270.14.117/2582 - Release Date: 12/22/09

18:22:00

>

>

[Guest guest]

Yes my ds has hypersensitivities to sound (and used to to taste and textures)

but is hypo to touch .

>

>

> It's possible to be both hypo- and hyper-sensitive: I think OTs trained in

sensory integration expect this sort of mixed profile with autism. Henry sound

like in that he also needs strong flavours and is a good eater. I have

never ever notice Henry react to smell - even if you hold essential oils under

his nose or wave a poo-maarked pair of pants under his nose he doesn't react.

However, he is aware of unpleasant tastes so I can't give him nasty-tasting

supplements, alas.

> Margaret

>

>

[Guest guest]

Yes we agree with the OT assessment > Autism Treatment > From: moppett1@...> Date: Wed, 23 Dec 2009 11:20:10 +0000> Subject: Re: Disgusting taste (Flagyl) - my daughter didnt> > Vicky,> <but will take very strong and bitter things.>> This is strong sign of low zinc.....just covering this in my thesis....> > > > MaddiganV@... schrieb:> >> > Just out of interest do you agree with the LEA OT assessment?> > It's unusual for a child with autism to have no sensory issues, if for > > instance you were correct about the taste buds then would that not be > > a sensory issue?> > is non verbal also but as has got older I have seen that he > > doesn't put his tongue in the right place to form sounds, also he > > cannot hear soft sounds.> > Like your daughter a good eater with some preference on sweet things > > in so much as he doesn't care for chocolate but will take very strong > > and bitter things.> > had OT for a year but they completely shied away from things like > > smell and taste stating he doesn't have a problem and in his case he > > most certainly does, even with the SI qualification OT was > > concentrating on gross motor skills, laughable as this is an area of > > strong ability for him.> > Vicky> >> > > > ------------------------------------------------------------------------> >> >> > No virus found in this incoming message.> > Checked by AVG - www.avg.com > > Version: 8.5.430 / Virus Database: 270.14.117/2582 - Release Date: 12/22/09 18:22:00> >> > > > > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

, If I were you before I would accept the OT's assessment that your child

has no sensory issues I would find out whether the NHS OT has done all the

relevant training with the Sensory Integration Network. I would ask are they

qualified to use the assessment tools? I would try to find out exactly what

assessment tools were used and whether the assessing therapist provides OT

TREATMENT rather than advice. That is, whether they do hands on work with

children, especially with autistic children and how much/how often. If they

don't do a lot of OT treatment of sensory issues and haven't sone the training

of the Sensory Integration Network then they won't see what's in front of their

eyes. Very very few NHS OTs provide treatment.

Margart

>

> Just out of interest do you agree with the LEA OT assessment?

> It's unusual for a child with autism to have no sensory issues, if for

> instance you were correct about the taste buds then would that not be a

sensory

> issue?

> is non verbal also but as has got older I have seen that he doesn't

> put his tongue in the right place to form sounds, also he cannot hear soft

> sounds.

> Like your daughter a good eater with some preference on sweet things in so

> much as he doesn't care for chocolate but will take very strong and bitter

> things.

> had OT for a year but they completely shied away from things like

> smell and taste stating he doesn't have a problem and in his case he most

> certainly does, even with the SI qualification OT was concentrating on gross

> motor skills, laughable as this is an area of strong ability for him.

> Vicky

>

[Guest guest]

,

Taste buds don't have anything to do with the functional/mechanical aspects of speech - my father has no sense of taste (a residual effect of radiotherapy on his head treating sinus cancer) but his speech is unaffected.  As I understand it, his lack of taste is considered nerve damage.  If you view autism as a neurological disorder as many do (that's not to disregard the viral or environmental etiologies, etc) then it isn't unreasonable that a child with ASD has skewed taste. 

 

As Vicky said, it is highly unusual to find a child with ASD with no sensory issues and taste can definitely be one of the many ways our kids are affected.

 

Darla

 

 

 

 

2009/12/23 Margaret <m.collins9@...>

 

, If I were you before I would accept the OT's assessment that your child has no sensory issues I would find out whether the NHS OT has done all the relevant training with the Sensory Integration Network. I would ask are they qualified to use the assessment tools? I would try to find out exactly what assessment tools were used and whether the assessing therapist provides OT TREATMENT rather than advice. That is, whether they do hands on work with children, especially with autistic children and how much/how often. If they don't do a lot of OT treatment of sensory issues and haven't sone the training of the Sensory Integration Network then they won't see what's in front of their eyes. Very very few NHS OTs provide treatment.

Margart >> Just out of interest do you agree with the LEA OT assessment?

> It's unusual for a child with autism to have no sensory issues, if for > instance you were correct about the taste buds then would that not be a sensory > issue?> is non verbal also but as has got older I have seen that he doesn't

> put his tongue in the right place to form sounds, also he cannot hear soft > sounds.> Like your daughter a good eater with some preference on sweet things in so > much as he doesn't care for chocolate but will take very strong and bitter

> things.> had OT for a year but they completely shied away from things like > smell and taste stating he doesn't have a problem and in his case he most > certainly does, even with the SI qualification OT was concentrating on gross

> motor skills, laughable as this is an area of strong ability for him.> Vicky>

[Guest guest]

This question is about nerve endings in the back of the tongue! And relevance of lack of speech and lack of taste, (and nothing to do with an OT report)

Autism Treatment From: m.collins9@...Date: Wed, 23 Dec 2009 17:48:13 +0000Subject: Re: Disgusting taste (Flagyl) - my daughter didnt

, If I were you before I would accept the OT's assessment that your child has no sensory issues I would find out whether the NHS OT has done all the relevant training with the Sensory Integration Network. I would ask are they qualified to use the assessment tools? I would try to find out exactly what assessment tools were used and whether the assessing therapist provides OT TREATMENT rather than advice. That is, whether they do hands on work with children, especially with autistic children and how much/how often. If they don't do a lot of OT treatment of sensory issues and haven't sone the training of the Sensory Integration Network then they won't see what's in front of their eyes. Very very few NHS OTs provide treatment.Margart>> Just out of interest do you agree with the LEA OT assessment?> It's unusual for a child with autism to have no sensory issues, if for > instance you were correct about the taste buds then would that not be a sensory > issue?> is non verbal also but as has got older I have seen that he doesn't > put his tongue in the right place to form sounds, also he cannot hear soft > sounds.> Like your daughter a good eater with some preference on sweet things in so > much as he doesn't care for chocolate but will take very strong and bitter > things.> had OT for a year but they completely shied away from things like > smell and taste stating he doesn't have a problem and in his case he most > certainly does, even with the SI qualification OT was concentrating on gross > motor skills, laughable as this is an area of strong ability for him.> Vicky>

New! Receive and respond to mail from other email accounts from within Hotmail Find out how.

[Guest guest]

Its not taste buds im talking about, it is the pathways between the nerve endings in the back of the tongue and the brocas region of the brain. No i dont view autism as a neurological disorder, i view it is a neurological problem (blockage by toxins and mercury)

Autism Treatment From: rexel4@...Date: Wed, 23 Dec 2009 19:19:53 +0000Subject: Re: Re: Disgusting taste (Flagyl) - my daughter didnt

,

Taste buds don't have anything to do with the functional/mechanical aspects of speech - my father has no sense of taste (a residual effect of radiotherapy on his head treating sinus cancer) but his speech is unaffected. As I understand it, his lack of taste is considered nerve damage. If you view autism as a neurological disorder as many do (that's not to disregard the viral or environmental etiologies, etc) then it isn't unreasonable that a child with ASD has skewed taste.

As Vicky said, it is highly unusual to find a child with ASD with no sensory issues and taste can definitely be one of the many ways our kids are affected.

Darla

2009/12/23 Margaret <m.collins9ntlworld>

, If I were you before I would accept the OT's assessment that your child has no sensory issues I would find out whether the NHS OT has done all the relevant training with the Sensory Integration Network. I would ask are they qualified to use the assessment tools? I would try to find out exactly what assessment tools were used and whether the assessing therapist provides OT TREATMENT rather than advice. That is, whether they do hands on work with children, especially with autistic children and how much/how often. If they don't do a lot of OT treatment of sensory issues and haven't sone the training of the Sensory Integration Network then they won't see what's in front of their eyes. Very very few NHS OTs provide treatment.Margart >> Just out of interest do you agree with the LEA OT assessment?> It's unusual for a child with autism to have no sensory issues, if for > instance you were correct about the taste buds then would that not be a sensory > issue?> is non verbal also but as has got older I have seen that he doesn't > put his tongue in the right place to form sounds, also he cannot hear soft > sounds.> Like your daughter a good eater with some preference on sweet things in so > much as he doesn't care for chocolate but will take very strong and bitter > things.> had OT for a year but they completely shied away from things like > smell and taste stating he doesn't have a problem and in his case he most > certainly does, even with the SI qualification OT was concentrating on gross > motor skills, laughable as this is an area of strong ability for him.> Vicky>

Have more than one Hotmail account? Link them together to easily access both.

[Guest guest]

Have you tried exercises with her ie stick your tongue out waggle it

about -- can you touch your ears? nose? etc. Can you blow bubbles (with

your lips) can you whistle? suck through a straw, lick ice cream? Try

googling dyspraxia or physiotherapy and tongue to get more ideas.

Elocution type attention to speech or sounds helped Edith ie just

concentrating on getting her to make sounds instead of letting her talk

without moving her lips and tongue.

Lack of taste people usually ascribe to lack of zinc and this is quite a

standard idea (ie mainstream and biomedical).

Lack of nerve endings you possibly can't do anything about but the brain

is quite remarkable and (I think) builds pictures of the body and where

it is in space and what it is doing. So if you wake up your child's

tongue by moving it the brain may respond by acknowledging it and

including it in its mental picture of her and this in turn will make it

easier (more habitual) for her to move it.

Sally

B wrote:

>

>

> This question is about nerve endings in the back of the tongue! And

> relevance of lack of speech and lack of taste, (and nothing to do with

> an OT report)

>

> Autism Treatment

> From: m.collins9@...

> Date: Wed, 23 Dec 2009 17:48:13 +0000

> Subject: Re: Disgusting taste (Flagyl) - my

> daughter didnt

>

>

> , If I were you before I would accept the OT's assessment that

> your child has no sensory issues I would find out whether the NHS OT

> has done all the relevant training with the Sensory Integration

> Network. I would ask are they qualified to use the assessment tools? I

> would try to find out exactly what assessment tools were used and

> whether the assessing therapist provides OT TREATMENT rather than

> advice. That is, whether they do hands on work with children,

> especially with autistic children and how much/how often. If they

> don't do a lot of OT treatment of sensory issues and haven't sone the

> training of the Sensory Integration Network then they won't see what's

> in front of their eyes. Very very few NHS OTs provide treatment.

> Margart

>

>

> >

> > Just out of interest do you agree with the LEA OT assessment?

> > It's unusual for a child with autism to have no sensory issues, if for

> > instance you were correct about the taste buds then would that not

> be a sensory

> > issue?

> > is non verbal also but as has got older I have seen that he

> doesn't

> > put his tongue in the right place to form sounds, also he cannot

> hear soft

> > sounds.

> > Like your daughter a good eater with some preference on sweet things

> in so

> > much as he doesn't care for chocolate but will take very strong and

> bitter

> > things.

> > had OT for a year but they completely shied away from things like

> > smell and taste stating he doesn't have a problem and in his case he

> most

> > certainly does, even with the SI qualification OT was concentrating

> on gross

> > motor skills, laughable as this is an area of strong ability for him.

> > Vicky

> >

>

>

>

> New! Receive and respond to mail from other email accounts from within

> Hotmail Find out how.

> <http://clk.atdmt.com/UKM/go/186394593/direct/01/%20>

>

>

> ------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.722 / Virus Database: 270.14.117/2583 - Release Date: 12/23/09

08:28:00

>

>

[Guest guest]

Only trying to be helpful, . I was concerned that you had perhaps too

readily agreed with the OT's view that your autistic child had no sensory

issues. Maybe he doesn't. But NHS OTs in general aren't able to tell as they

don't have the r elevant training and experience..

Margaret

> >

> > Just out of interest do you agree with the LEA OT assessment?

> > It's unusual for a child with autism to have no sensory issues, if for

> > instance you were correct about the taste buds then would that not be a

sensory

> > issue?

> > is non verbal also but as has got older I have seen that he doesn't

> > put his tongue in the right place to form sounds, also he cannot hear soft

> > sounds.

> > Like your daughter a good eater with some preference on sweet things in so

> > much as he doesn't care for chocolate but will take very strong and bitter

> > things.

> > had OT for a year but they completely shied away from things like

> > smell and taste stating he doesn't have a problem and in his case he most

> > certainly does, even with the SI qualification OT was concentrating on gross

> > motor skills, laughable as this is an area of strong ability for him.

> > Vicky

> >

>

>

>

>

>

> _________________________________________________________________

> Got more than one Hotmail account? Save time by linking them together

> http://clk.atdmt.com/UKM/go/186394591/direct/01/

>

[Guest guest]

The NERVES in my father's case were damaged by TOXINS and he can still talk, it did not affect his speech. 

 

The only difference between neurological disorder and neurological problem is semantics. 

2009/12/24 B <peter_2_@...>

 

Its not taste buds im talking about, it is the pathways between the nerve endings in the back of the tongue and the brocas region of the brain.  No i dont view autism as a neurological disorder, i view it is a neurological problem (blockage by toxins and mercury)

  

Autism Treatment From: rexel4@...Date: Wed, 23 Dec 2009 19:19:53 +0000

Subject: Re: Re: Disgusting taste (Flagyl) - my daughter didnt 

,

Taste buds don't have anything to do with the functional/mechanical aspects of speech - my father has no sense of taste (a residual effect of radiotherapy on his head treating sinus cancer) but his speech is unaffected.  As I understand it, his lack of taste is considered nerve damage.  If you view autism as a neurological disorder as many do (that's not to disregard the viral or environmental etiologies, etc) then it isn't unreasonable that a child with ASD has skewed taste. 

 

As Vicky said, it is highly unusual to find a child with ASD with no sensory issues and taste can definitely be one of the many ways our kids are affected.

 

Darla

 

 

 

 

2009/12/23 Margaret <m.collins9@...>

 

, If I were you before I would accept the OT's assessment that your child has no sensory issues I would find out whether the NHS OT has done all the relevant training with the Sensory Integration Network. I would ask are they qualified to use the assessment tools? I would try to find out exactly what assessment tools were used and whether the assessing therapist provides OT TREATMENT rather than advice. That is, whether they do hands on work with children, especially with autistic children and how much/how often. If they don't do a lot of OT treatment of sensory issues and haven't sone the training of the Sensory Integration Network then they won't see what's in front of their eyes. Very very few NHS OTs provide treatment.

Margart >> Just out of interest do you agree with the LEA OT assessment?

> It's unusual for a child with autism to have no sensory issues, if for > instance you were correct about the taste buds then would that not be a sensory > issue?> is non verbal also but as has got older I have seen that he doesn't

> put his tongue in the right place to form sounds, also he cannot hear soft > sounds.> Like your daughter a good eater with some preference on sweet things in so > much as he doesn't care for chocolate but will take very strong and bitter

> things.> had OT for a year but they completely shied away from things like > smell and taste stating he doesn't have a problem and in his case he most > certainly does, even with the SI qualification OT was concentrating on gross

> motor skills, laughable as this is an area of strong ability for him.> Vicky>

Have more than one Hotmail account? Link them together to easily access both.

[Guest guest]

Im asking about nerve endings and communication to the brain

Autism Treatment From: m.collins9@...Date: Thu, 24 Dec 2009 07:48:12 +0000Subject: Re: Disgusting taste (Flagyl) - my daughter didnt

Only trying to be helpful, . I was concerned that you had perhaps too readily agreed with the OT's view that your autistic child had no sensory issues. Maybe he doesn't. But NHS OTs in general aren't able to tell as they don't have the r elevant training and experience..Margaret> >> > Just out of interest do you agree with the LEA OT assessment?> > It's unusual for a child with autism to have no sensory issues, if for > > instance you were correct about the taste buds then would that not be a sensory > > issue?> > is non verbal also but as has got older I have seen that he doesn't > > put his tongue in the right place to form sounds, also he cannot hear soft > > sounds.> > Like your daughter a good eater with some preference on sweet things in so > > much as he doesn't care for chocolate but will take very strong and bitter > > things.> > had OT for a year but they completely shied away from things like > > smell and taste stating he doesn't have a problem and in his case he most > > certainly does, even with the SI qualification OT was concentrating on gross > > motor skills, laughable as this is an area of strong ability for him.> > Vicky> >> > > > > > __________________________________________________________> Got more than one Hotmail account? Save time by linking them together> http://clk.atdmt.com/UKM/go/186394591/direct/01/>

View your other email accounts from your Hotmail inbox. Add them now.

[Guest guest]

People who have speech and lose it can often still talk and suffer

auditory hallucinations whereas a person who is deaf from birth cannot.

So a person who needs to learn to talk may be differently affected to

someone who already knows the theory and has other muscle/brain patterns

ready to work and functioning fine. this might explain some of these

differences.

What sort of advice are you looking for ? Are you thinking of toxin

removal type advice or physio-type advice? You feel you know what the

problem is. What sort of advice are you looking for about it?

Sally

Darla wrote:

>

>

> The NERVES in my father's case were damaged by TOXINS and he can still

> talk, it did not affect his speech.

>

> The only difference between neurological disorder and neurological

> problem is semantics.

>

> 2009/12/24 B <peter_2_@... <mailto:peter_2_@...>>

>

>

>

> Its not taste buds im talking about, it is the pathways between

> the nerve endings in the back of the tongue and the brocas region

> of the brain. No i dont view autism as a neurological disorder, i

> view it is a neurological problem (blockage by toxins and mercury)

>

>

>

>

> ------------------------------------------------------------------------

> Autism Treatment

> <mailto:Autism Treatment >

> From: rexel4@... <mailto:rexel4@...>

> Date: Wed, 23 Dec 2009 19:19:53 +0000

> Subject: Re: Re: Disgusting taste

> (Flagyl) - my daughter didnt

>

>

> ,

> Taste buds don't have anything to do with the

> functional/mechanical aspects of speech - my father has no sense

> of taste (a residual effect of radiotherapy on his head treating

> sinus cancer) but his speech is unaffected. As I understand

> it, his lack of taste is considered nerve damage. If you view

> autism as a neurological disorder as many do (that's not to

> disregard the viral or environmental etiologies, etc) then it

> isn't unreasonable that a child with ASD has skewed taste.

>

> As Vicky said, it is highly unusual to find a child with ASD with

> no sensory issues and taste can definitely be one of the many ways

> our kids are affected.

>

> Darla

>

>

>

>

>

>

> 2009/12/23 Margaret <m.collins9@...

> <mailto:m.collins9@...>>

>

>

>

> , If I were you before I would accept the OT's assessment

> that your child has no sensory issues I would find out whether

> the NHS OT has done all the relevant training with the Sensory

> Integration Network. I would ask are they qualified to use the

> assessment tools? I would try to find out exactly what

> assessment tools were used and whether the assessing therapist

> provides OT TREATMENT rather than advice. That is, whether

> they do hands on work with children, especially with autistic

> children and how much/how often. If they don't do a lot of OT

> treatment of sensory issues and haven't sone the training of

> the Sensory Integration Network then they won't see what's in

> front of their eyes. Very very few NHS OTs provide treatment.

> Margart

>

>

>

>

> >

> > Just out of interest do you agree with the LEA OT assessment?

> > It's unusual for a child with autism to have no sensory

> issues, if for

> > instance you were correct about the taste buds then would

> that not be a sensory

> > issue?

> > is non verbal also but as has got older I have seen

> that he doesn't

> > put his tongue in the right place to form sounds, also he

> cannot hear soft

> > sounds.

> > Like your daughter a good eater with some preference on

> sweet things in so

> > much as he doesn't care for chocolate but will take very

> strong and bitter

> > things.

> > had OT for a year but they completely shied away from

> things like

> > smell and taste stating he doesn't have a problem and in his

> case he most

> > certainly does, even with the SI qualification OT was

> concentrating on gross

> > motor skills, laughable as this is an area of strong ability

> for him.

> > Vicky

> >

>

>

>

>

>

>

>

> ------------------------------------------------------------------------

> Have more than one Hotmail account? Link them together to easily

> access both. <http://clk.atdmt.com/UKM/go/186394591/direct/01/>

>

>

>

>

>

> ------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.722 / Virus Database: 270.14.117/2583 - Release Date: 12/23/09

08:28:00

>

>

[Guest guest]

Hi Darla

A disorder is where the brain is wired up incorrectly

I dont believe that is the case with autism, I believe they have blockages caused by toxins and mercury, completely different problems to a disorder

My point is you cannot know if it was the nerves, the pathways or the brain recpetors that were damaged. My interest lies in the pathways (ie eletrical connections)

There is no need to shout !

Autism Treatment From: rexel4@...Date: Thu, 24 Dec 2009 09:14:01 +0000Subject: Re: Re: Disgusting taste (Flagyl) - my daughter didnt

The NERVES in my father's case were damaged by TOXINS and he can still talk, it did not affect his speech.

The only difference between neurological disorder and neurological problem is semantics.

2009/12/24 B <peter_2_hotmail>

Its not taste buds im talking about, it is the pathways between the nerve endings in the back of the tongue and the brocas region of the brain. No i dont view autism as a neurological disorder, i view it is a neurological problem (blockage by toxins and mercury)

Autism Treatment From: rexel4googlemailDate: Wed, 23 Dec 2009 19:19:53 +0000Subject: Re: Re: Disgusting taste (Flagyl) - my daughter didnt

,

Taste buds don't have anything to do with the functional/mechanical aspects of speech - my father has no sense of taste (a residual effect of radiotherapy on his head treating sinus cancer) but his speech is unaffected. As I understand it, his lack of taste is considered nerve damage. If you view autism as a neurological disorder as many do (that's not to disregard the viral or environmental etiologies, etc) then it isn't unreasonable that a child with ASD has skewed taste.

As Vicky said, it is highly unusual to find a child with ASD with no sensory issues and taste can definitely be one of the many ways our kids are affected.

Darla

2009/12/23 Margaret <m.collins9ntlworld>

, If I were you before I would accept the OT's assessment that your child has no sensory issues I would find out whether the NHS OT has done all the relevant training with the Sensory Integration Network. I would ask are they qualified to use the assessment tools? I would try to find out exactly what assessment tools were used and whether the assessing therapist provides OT TREATMENT rather than advice. That is, whether they do hands on work with children, especially with autistic children and how much/how often. If they don't do a lot of OT treatment of sensory issues and haven't sone the training of the Sensory Integration Network then they won't see what's in front of their eyes. Very very few NHS OTs provide treatment.Margart >> Just out of interest do you agree with the LEA OT assessment?> It's unusual for a child with autism to have no sensory issues, if for > instance you were correct about the taste buds then would that not be a sensory > issue?> is non verbal also but as has got older I have seen that he doesn't > put his tongue in the right place to form sounds, also he cannot hear soft > sounds.> Like your daughter a good eater with some preference on sweet things in so > much as he doesn't care for chocolate but will take very strong and bitter > things.> had OT for a year but they completely shied away from things like > smell and taste stating he doesn't have a problem and in his case he most > certainly does, even with the SI qualification OT was concentrating on gross > motor skills, laughable as this is an area of strong ability for him.> Vicky>

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I think there is a link between the issues with the back of my daughters tongue, and wondered if anyone else had cmoe to this conclusion

Autism Treatment From: bobsallyeva@...Date: Thu, 24 Dec 2009 09:57:02 +0000Subject: Re: Re: Disgusting taste (Flagyl) - my daughter didnt

People who have speech and lose it can often still talk and suffer auditory hallucinations whereas a person who is deaf from birth cannot. So a person who needs to learn to talk may be differently affected to someone who already knows the theory and has other muscle/brain patterns ready to work and functioning fine. this might explain some of these differences.What sort of advice are you looking for ? Are you thinking of toxin removal type advice or physio-type advice? You feel you know what the problem is. What sort of advice are you looking for about it?SallyDarla wrote:>>> The NERVES in my father's case were damaged by TOXINS and he can still > talk, it did not affect his speech. > > The only difference between neurological disorder and neurological > problem is semantics. >> 2009/12/24 B <peter_2_hotmail <mailto:peter_2_hotmail>>>> >> Its not taste buds im talking about, it is the pathways between> the nerve endings in the back of the tongue and the brocas region> of the brain. No i dont view autism as a neurological disorder, i> view it is a neurological problem (blockage by toxins and mercury)>> > >> ----------------------------------------------------------> Autism Treatment > <mailto:Autism Treatment >> From: rexel4googlemail <mailto:rexel4googlemail>> Date: Wed, 23 Dec 2009 19:19:53 +0000> Subject: Re: Re: Disgusting taste> (Flagyl) - my daughter didnt>> > ,> Taste buds don't have anything to do with the> functional/mechanical aspects of speech - my father has no sense> of taste (a residual effect of radiotherapy on his head treating> sinus cancer) but his speech is unaffected. As I understand> it, his lack of taste is considered nerve damage. If you view> autism as a neurological disorder as many do (that's not to> disregard the viral or environmental etiologies, etc) then it> isn't unreasonable that a child with ASD has skewed taste. > > As Vicky said, it is highly unusual to find a child with ASD with> no sensory issues and taste can definitely be one of the many ways> our kids are affected.> > Darla> > > >>> > 2009/12/23 Margaret <m.collins9ntlworld> <mailto:m.collins9ntlworld>>>> >> , If I were you before I would accept the OT's assessment> that your child has no sensory issues I would find out whether> the NHS OT has done all the relevant training with the Sensory> Integration Network. I would ask are they qualified to use the> assessment tools? I would try to find out exactly what> assessment tools were used and whether the assessing therapist> provides OT TREATMENT rather than advice. That is, whether> they do hands on work with children, especially with autistic> children and how much/how often. If they don't do a lot of OT> treatment of sensory issues and haven't sone the training of> the Sensory Integration Network then they won't see what's in> front of their eyes. Very very few NHS OTs provide treatment.> Margart>>>> > >> > Just out of interest do you agree with the LEA OT assessment?> > It's unusual for a child with autism to have no sensory> issues, if for> > instance you were correct about the taste buds then would> that not be a sensory> > issue?> > is non verbal also but as has got older I have seen> that he doesn't> > put his tongue in the right place to form sounds, also he> cannot hear soft> > sounds.> > Like your daughter a good eater with some preference on> sweet things in so> > much as he doesn't care for chocolate but will take very> strong and bitter> > things.> > had OT for a year but they completely shied away from> things like> > smell and taste stating he doesn't have a problem and in his> case he most> > certainly does, even with the SI qualification OT was> concentrating on gross> > motor skills, laughable as this is an area of strong ability> for him.> > Vicky> >>>>>>>>> ----------------------------------------------------------> Have more than one Hotmail account? Link them together to easily> access both. <http://clk.atdmt.com/UKM/go/186394591/direct/01/>>>>>> > ---------------------------------------------------------->>> No virus found in this incoming message.> Checked by AVG - www.avg.com > Version: 9.0.722 / Virus Database: 270.14.117/2583 - Release Date: 12/23/09 08:28:00>>

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I think there is a link between the issues with the back of my daughters tongue, and wondered if anyone else had cmoe to this conclusion

Autism Treatment From: bobsallyeva@...Date: Thu, 24 Dec 2009 09:57:02 +0000Subject: Re: Re: Disgusting taste (Flagyl) - my daughter didnt

People who have speech and lose it can often still talk and suffer auditory hallucinations whereas a person who is deaf from birth cannot. So a person who needs to learn to talk may be differently affected to someone who already knows the theory and has other muscle/brain patterns ready to work and functioning fine. this might explain some of these differences.What sort of advice are you looking for ? Are you thinking of toxin removal type advice or physio-type advice? You feel you know what the problem is. What sort of advice are you looking for about it?SallyDarla wrote:>>> The NERVES in my father's case were damaged by TOXINS and he can still > talk, it did not affect his speech. > > The only difference between neurological disorder and neurological > problem is semantics. >> 2009/12/24 B <peter_2_hotmail <mailto:peter_2_hotmail>>>> >> Its not taste buds im talking about, it is the pathways between> the nerve endings in the back of the tongue and the brocas region> of the brain. No i dont view autism as a neurological disorder, i> view it is a neurological problem (blockage by toxins and mercury)>> > >> ----------------------------------------------------------> Autism Treatment > <mailto:Autism Treatment >> From: rexel4googlemail <mailto:rexel4googlemail>> Date: Wed, 23 Dec 2009 19:19:53 +0000> Subject: Re: Re: Disgusting taste> (Flagyl) - my daughter didnt>> > ,> Taste buds don't have anything to do with the> functional/mechanical aspects of speech - my father has no sense> of taste (a residual effect of radiotherapy on his head treating> sinus cancer) but his speech is unaffected. As I understand> it, his lack of taste is considered nerve damage. If you view> autism as a neurological disorder as many do (that's not to> disregard the viral or environmental etiologies, etc) then it> isn't unreasonable that a child with ASD has skewed taste. > > As Vicky said, it is highly unusual to find a child with ASD with> no sensory issues and taste can definitely be one of the many ways> our kids are affected.> > Darla> > > >>> > 2009/12/23 Margaret <m.collins9ntlworld> <mailto:m.collins9ntlworld>>>> >> , If I were you before I would accept the OT's assessment> that your child has no sensory issues I would find out whether> the NHS OT has done all the relevant training with the Sensory> Integration Network. I would ask are they qualified to use the> assessment tools? I would try to find out exactly what> assessment tools were used and whether the assessing therapist> provides OT TREATMENT rather than advice. That is, whether> they do hands on work with children, especially with autistic> children and how much/how often. If they don't do a lot of OT> treatment of sensory issues and haven't sone the training of> the Sensory Integration Network then they won't see what's in> front of their eyes. Very very few NHS OTs provide treatment.> Margart>>>> > >> > Just out of interest do you agree with the LEA OT assessment?> > It's unusual for a child with autism to have no sensory> issues, if for> > instance you were correct about the taste buds then would> that not be a sensory> > issue?> > is non verbal also but as has got older I have seen> that he doesn't> > put his tongue in the right place to form sounds, also he> cannot hear soft> > sounds.> > Like your daughter a good eater with some preference on> sweet things in so> > much as he doesn't care for chocolate but will take very> strong and bitter> > things.> > had OT for a year but they completely shied away from> things like> > smell and taste stating he doesn't have a problem and in his> case he most> > certainly does, even with the SI qualification OT was> concentrating on gross> > motor skills, laughable as this is an area of strong ability> for him.> > Vicky> >>>>>>>>> ----------------------------------------------------------> Have more than one Hotmail account? Link them together to easily> access both. <http://clk.atdmt.com/UKM/go/186394591/direct/01/>>>>>> > ---------------------------------------------------------->>> No virus found in this incoming message.> Checked by AVG - www.avg.com > Version: 9.0.722 / Virus Database: 270.14.117/2583 - Release Date: 12/23/09 08:28:00>>

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[Guest guest]

Hi Darla A disorder is where the brain is wired up incorrectly I dont believe that is the case with autism, I believe they have blockages caused by toxins and mercury, completely different problems to a disorder My point is you cannot know if it was the nerves, the pathways or the brain recpetors that were damaged. My interest lies in the pathways (ie eletrical connections) There is no need to shout !

Autism Treatment From: rexel4@...Date: Thu, 24 Dec 2009 09:14:01 +0000Subject: Re: Re: Disgusting taste (Flagyl) - my daughter didnt

The NERVES in my father's case were damaged by TOXINS and he can still talk, it did not affect his speech.

The only difference between neurological disorder and neurological problem is semantics.

2009/12/24 B <peter_2_hotmail>

Its not taste buds im talking about, it is the pathways between the nerve endings in the back of the tongue and the brocas region of the brain. No i dont view autism as a neurological disorder, i view it is a neurological problem (blockage by toxins and mercury)

Autism Treatment From: rexel4googlemailDate: Wed, 23 Dec 2009 19:19:53 +0000Subject: Re: Re: Disgusting taste (Flagyl) - my daughter didnt

,

Taste buds don't have anything to do with the functional/mechanical aspects of speech - my father has no sense of taste (a residual effect of radiotherapy on his head treating sinus cancer) but his speech is unaffected. As I understand it, his lack of taste is considered nerve damage. If you view autism as a neurological disorder as many do (that's not to disregard the viral or environmental etiologies, etc) then it isn't unreasonable that a child with ASD has skewed taste.

As Vicky said, it is highly unusual to find a child with ASD with no sensory issues and taste can definitely be one of the many ways our kids are affected.

Darla

2009/12/23 Margaret <m.collins9ntlworld>

, If I were you before I would accept the OT's assessment that your child has no sensory issues I would find out whether the NHS OT has done all the relevant training with the Sensory Integration Network. I would ask are they qualified to use the assessment tools? I would try to find out exactly what assessment tools were used and whether the assessing therapist provides OT TREATMENT rather than advice. That is, whether they do hands on work with children, especially with autistic children and how much/how often. If they don't do a lot of OT treatment of sensory issues and haven't sone the training of the Sensory Integration Network then they won't see what's in front of their eyes. Very very few NHS OTs provide treatment.Margart >> Just out of interest do you agree with the LEA OT assessment?> It's unusual for a child with autism to have no sensory issues, if for > instance you were correct about the taste buds then would that not be a sensory > issue?> is non verbal also but as has got older I have seen that he doesn't > put his tongue in the right place to form sounds, also he cannot hear soft > sounds.> Like your daughter a good eater with some preference on sweet things in so > much as he doesn't care for chocolate but will take very strong and bitter > things.> had OT for a year but they completely shied away from things like > smell and taste stating he doesn't have a problem and in his case he most > certainly does, even with the SI qualification OT was concentrating on gross > motor skills, laughable as this is an area of strong ability for him.> Vicky>

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[Guest guest]

, Have you looked into Handle?

Sara

Margaret wrote:

>

>

> Only trying to be helpful, . I was concerned that you had perhaps

> too readily agreed with the OT's view that your autistic child had no

> sensory issues. Maybe he doesn't. But NHS OTs in general aren't able

> to tell as they don't have the r elevant training and experience..

> Margaret

>

>

> > >

> > > Just out of interest do you agree with the LEA OT assessment?

> > > It's unusual for a child with autism to have no sensory issues, if

> for

> > > instance you were correct about the taste buds then would that not

> be a sensory

> > > issue?

> > > is non verbal also but as has got older I have seen that he

> doesn't

> > > put his tongue in the right place to form sounds, also he cannot

> hear soft

> > > sounds.

> > > Like your daughter a good eater with some preference on sweet

> things in so

> > > much as he doesn't care for chocolate but will take very strong

> and bitter

> > > things.

> > > had OT for a year but they completely shied away from things

> like

> > > smell and taste stating he doesn't have a problem and in his case

> he most

> > > certainly does, even with the SI qualification OT was

> concentrating on gross

> > > motor skills, laughable as this is an area of strong ability for him.

> > > Vicky

> > >

> >

> >

> >

> >

> >

> > __________________________________________________________

> > Got more than one Hotmail account? Save time by linking them together

> > http://clk.atdmt.com/UKM/go/186394591/direct/01/

> <http://clk.atdmt.com/UKM/go/186394591/direct/01/>

> >

>

>

[Guest guest]

And you're bloody rude, . This has happened on another list with you. I

guess you don't know when you are being rude.

Margaret

> > >

> > > Just out of interest do you agree with the LEA OT assessment?

> > > It's unusual for a child with autism to have no sensory issues, if for

> > > instance you were correct about the taste buds then would that not be a

sensory

> > > issue?

> > > is non verbal also but as has got older I have seen that he doesn't

> > > put his tongue in the right place to form sounds, also he cannot hear soft

> > > sounds.

> > > Like your daughter a good eater with some preference on sweet things in so

> > > much as he doesn't care for chocolate but will take very strong and bitter

> > > things.

> > > had OT for a year but they completely shied away from things like

> > > smell and taste stating he doesn't have a problem and in his case he most

> > > certainly does, even with the SI qualification OT was concentrating on

gross

> > > motor skills, laughable as this is an area of strong ability for him.

> > > Vicky

> > >

> >

> >

> >

> >

> >

> > __________________________________________________________

> > Got more than one Hotmail account? Save time by linking them together

> > http://clk.atdmt.com/UKM/go/186394591/direct/01/

> >

>

>

>

>

>

> _________________________________________________________________

> View your other email accounts from your Hotmail inbox. Add them now.

> http://clk.atdmt.com/UKM/go/186394592/direct/01/

>

[Guest guest]

- ALL nerves are connected to the brain, the brain is part of the central nervous system, any discussion of " nerves " refers to impulses being sent to the brain.  I think it's time that I bow out of this conversation as it is going nowhere.

2009/12/24 Margaret <m.collins9@...>

 

And you're bloody rude, . This has happened on another list with you. I guess you don't know when you are being rude.Margaret> > >> > > Just out of interest do you agree with the LEA OT assessment?

> > > It's unusual for a child with autism to have no sensory issues, if for > > > instance you were correct about the taste buds then would that not be a sensory > > > issue?> > > is non verbal also but as has got older I have seen that he doesn't

> > > put his tongue in the right place to form sounds, also he cannot hear soft > > > sounds.> > > Like your daughter a good eater with some preference on sweet things in so > > > much as he doesn't care for chocolate but will take very strong and bitter

> > > things.> > > had OT for a year but they completely shied away from things like > > > smell and taste stating he doesn't have a problem and in his case he most > > > certainly does, even with the SI qualification OT was concentrating on gross

> > > motor skills, laughable as this is an area of strong ability for him.> > > Vicky> > >> > > > > > > > > > > > __________________________________________________________

> > Got more than one Hotmail account? Save time by linking them together> > http://clk.atdmt.com/UKM/go/186394591/direct/01/

> >> > > > > > __________________________________________________________> View your other email accounts from your Hotmail inbox. Add them now.> http://clk.atdmt.com/UKM/go/186394592/direct/01/

>

[Guest guest]

I have forwarded your post to the moderator as it is a personal attack and contains abusive language, following diverting my question off topic

Have nothing else to say on this but thanks for some extremely useful replies which i will follow up and use during Christmas break

Thanks

Autism Treatment From: m.collins9@...Date: Thu, 24 Dec 2009 11:32:55 +0000Subject: Re: Disgusting taste (Flagyl) - my daughter didnt

And you're bloody rude, . This has happened on another list with you. I guess you don't know when you are being rude.Margaret> > >> > > Just out of interest do you agree with the LEA OT assessment?> > > It's unusual for a child with autism to have no sensory issues, if for > > > instance you were correct about the taste buds then would that not be a sensory > > > issue?> > > is non verbal also but as has got older I have seen that he doesn't > > > put his tongue in the right place to form sounds, also he cannot hear soft > > > sounds.> > > Like your daughter a good eater with some preference on sweet things in so > > > much as he doesn't care for chocolate but will take very strong and bitter > > > things.> > > had OT for a year but they completely shied away from things like > > > smell and taste stating he doesn't have a problem and in his case he most > > > certainly does, even with the SI qualification OT was concentrating on gross > > > motor skills, laughable as this is an area of strong ability for him.> > > Vicky> > >> > > > > > > > > > > > __________________________________________________________> > Got more than one Hotmail account? Save time by linking them together> > http://clk.atdmt.com/UKM/go/186394591/direct/01/> >> > > > > > __________________________________________________________> View your other email accounts from your Hotmail inbox. Add them now.> http://clk.atdmt.com/UKM/go/186394592/direct/01/>

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[Guest guest]

Hi ,

Sorry i have not followed the whole link, but I have thought there was a link

between reflux and lack of speech. I wondered if it had something to do with the

vagus nerve and the laryngeal and trigeminal branch. I've not seen anything

written about this so I'm likely wrong.

Sharon .

> > >

> > > Just out of interest do you agree with the LEA OT assessment?

> > > It's unusual for a child with autism to have no sensory

> > issues, if for

> > > instance you were correct about the taste buds then would

> > that not be a sensory

> > > issue?

> > > is non verbal also but as has got older I have seen

> > that he doesn't

> > > put his tongue in the right place to form sounds, also he

> > cannot hear soft

> > > sounds.

> > > Like your daughter a good eater with some preference on

> > sweet things in so

> > > much as he doesn't care for chocolate but will take very

> > strong and bitter

> > > things.

> > > had OT for a year but they completely shied away from

> > things like

> > > smell and taste stating he doesn't have a problem and in his

> > case he most

> > > certainly does, even with the SI qualification OT was

> > concentrating on gross

> > > motor skills, laughable as this is an area of strong ability

> > for him.

> > > Vicky

> > >

> >

> >

> >

> >

> >

> >

> >

> > ----------------------------------------------------------

> > Have more than one Hotmail account? Link them together to easily

> > access both. <http://clk.atdmt.com/UKM/go/186394591/direct/01/>

> >

> >

> >

> >

> >

> > ----------------------------------------------------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - www.avg.com

> > Version: 9.0.722 / Virus Database: 270.14.117/2583 - Release Date: 12/23/09

08:28:00

> >

> >

>

>

>

>

> _________________________________________________________________

> Use Hotmail to send and receive mail from your different email accounts

> http://clk.atdmt.com/UKM/go/186394592/direct/01/

>