Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 Not sure. From what I have heard it is a deficiency in some mineral. She is on OmegaBrite and an antioxidant which her psychiatrist put her on for her PANDAS OCD. That may have helped. I also do NAET treatments on her about once a year to build her immune system. That may have helped also. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 Not sure. From what I have heard it is a deficiency in some mineral. She is on OmegaBrite and an antioxidant which her psychiatrist put her on for her PANDAS OCD. That may have helped. I also do NAET treatments on her about once a year to build her immune system. That may have helped also. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 Hi Sonya, What is omegabrite, the antioxidant your daughter uses and the NAET treatments? Is your psychiatrist a little unconventional, or are these your choices? p.s I also chewed on everything as a child, my parents can attest to the damage in the house, clothes, bedding, and the car too (vinyl seat backs). What remains is (unoticeable )jaw clenching, I stopped biting my severly chewed nails before my wedding never to resume. Among my kids I have two nail biters, one teeth grinder now. Maybe this is a tic? Grace > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 Hi Sonya, What is omegabrite, the antioxidant your daughter uses and the NAET treatments? Is your psychiatrist a little unconventional, or are these your choices? p.s I also chewed on everything as a child, my parents can attest to the damage in the house, clothes, bedding, and the car too (vinyl seat backs). What remains is (unoticeable )jaw clenching, I stopped biting my severly chewed nails before my wedding never to resume. Among my kids I have two nail biters, one teeth grinder now. Maybe this is a tic? Grace > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 Hi Grace: I don't believe my Psychiatrist is unconventional. She believes my daughter has PANDAS OCD which is related to the immune system. The Omega Brite has the highest concentration of EPA available and a 7:1 ratio of EPA to DHA (fatty acids). We had to order it over the internet. I don't have the brand of Antioxidant that we use (we get it a Wal-mart) We have also used Procrea at Publix before. NAET treatments are my idea. I used them when my daughter's eczema was so bad that it would bleed at night. I also used them on my son. In one year he had five ear infections, three bronchitis and two sinus infections. He was scheduled to have tubes put in and his adnoids taken out. I took him for treatments and he has not had an ear infection since (4 years). It has not taken away my daughters OCD, but we use it to help keep her immune system built up. You can read more about that at www.NAET.com. Hope it helps. Sonya (mother of 8 OCD, 5 all boy) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 Hi Grace: I don't believe my Psychiatrist is unconventional. She believes my daughter has PANDAS OCD which is related to the immune system. The Omega Brite has the highest concentration of EPA available and a 7:1 ratio of EPA to DHA (fatty acids). We had to order it over the internet. I don't have the brand of Antioxidant that we use (we get it a Wal-mart) We have also used Procrea at Publix before. NAET treatments are my idea. I used them when my daughter's eczema was so bad that it would bleed at night. I also used them on my son. In one year he had five ear infections, three bronchitis and two sinus infections. He was scheduled to have tubes put in and his adnoids taken out. I took him for treatments and he has not had an ear infection since (4 years). It has not taken away my daughters OCD, but we use it to help keep her immune system built up. You can read more about that at www.NAET.com. Hope it helps. Sonya (mother of 8 OCD, 5 all boy) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 Hi Grace: I don't believe my Psychiatrist is unconventional. She believes my daughter has PANDAS OCD which is related to the immune system. The Omega Brite has the highest concentration of EPA available and a 7:1 ratio of EPA to DHA (fatty acids). We had to order it over the internet. I don't have the brand of Antioxidant that we use (we get it a Wal-mart) We have also used Procrea at Publix before. NAET treatments are my idea. I used them when my daughter's eczema was so bad that it would bleed at night. I also used them on my son. In one year he had five ear infections, three bronchitis and two sinus infections. He was scheduled to have tubes put in and his adnoids taken out. I took him for treatments and he has not had an ear infection since (4 years). It has not taken away my daughters OCD, but we use it to help keep her immune system built up. You can read more about that at www.NAET.com. Hope it helps. Sonya (mother of 8 OCD, 5 all boy) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 Hi Sonya, I was thinking " unconventional " in a sort of admirable way, b/c the two psychiatrists I have seen are just so terse and formulaic in their approach, so that if I suspect my daughter's (13yrs) ocd might be immune/ pandas related, it does not go over well with no medical " proof " such as labs to indicate antibodies (along with my interest in possibly treating the condition with antibiotics). Their terseness may have been due to the fact that they would want to speak to my daughter, though, not me, and she does not comply. I recently read an article about repeated bouts of undiagnosed strep A inducing OCD, but that those antibodies are not always detectable (Dr. Pichichero, University of Rochester, an NIMH study beginning). I am also aware that my aunt and cousin were undiagnosed with lupus for years since there was little laboratory proof of the condition, my aunt died of it from organ failure at a young age.So I have a tendency to question one size fits all medical approaches. I am always on the lookout for approaches that strengthen the immune system since she seems to have these related medical probelms since about 5th grade or so (with some viral illnesses) whereas before that she was pretty active and healthy. thanks for the info. Grace > Hi Grace: > > I don't believe my Psychiatrist is unconventional. > She believes my daughter has PANDAS OCD which is > related to the immune system. The Omega Brite has the > highest concentration of EPA available and a 7:1 ratio > of EPA to DHA (fatty acids). We had to order it over > the internet. I don't have the brand of Antioxidant > that we use (we get it a Wal-mart) We have also used > Procrea at Publix before. NAET treatments are my > idea. I used them when my daughter's eczema was so > bad that it would bleed at night. I also used them on > my son. In one year he had five ear infections, three > bronchitis and two sinus infections. He was scheduled > to have tubes put in and his adnoids taken out. I > took him for treatments and he has not had an ear > infection since (4 years). It has not taken away my > daughters OCD, but we use it to help keep her immune > system built up. You can read more about that at > www.NAET.com. Hope it helps. > > Sonya (mother of 8 OCD, 5 all boy) > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 I believe 's Dr. feels that it is the initial strep infection that begins the PANDAS OCD. After that it can be any illness that causes a phytican (have no idea if it is spelt right) release in the brain that can cause a flare up. This is my understanding, although I may not have it exactly right. My daughter has one Dr. who does her CBT and one that does her meds. This is what the Dr. who does her meds has spoken to us about. has had tonsilitus without a flare up and sinusitus that has put her out of school for three weeks and above her baseline for about six more weeks. From what I have seen there is a lot of research being done. When my daughter was first diagnosed with PANDAS OCD I would get on the ask an expert section of the OCD foundation and ask about it. They would say stuff like it was very rare. That it hasn't been proven. Now when you get on and talk about some of the symptoms they say have you looked into PANDAS OCD? They are learning more and more about it. Talk to you soon. Sonya __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 Hi Sonya, I would have thought that illnesses were increasing the ocd symptoms just b/c of the added stress if there were not this info about pandas. With my daughter, I would wonder why she would be miserable and bedridden with a virus that was just a passing annoyance for my other kids (when all would tend to get it). She tends to be very reticent, so details about her inner thoughts do not come out much, so maybe during illness she was " room-bound " due to heightened ocd fears as much as illness and/or maybe she actually also feels sicker. It is like the ocd feeds into the virus and the virus feeds back into the OCD so that the medical and psychologic symptoms are both heightened. What said recently about discovering after therapy that one of her daughter's fears was the belief that her mom was going to kill her (sorry if I got that wrong ) made me rethink one of my daughter's possible " triggering " viruses two summers ago. (I only much later looked back and considered it to be a " triggering " virus). I took her to the doctor, though her fever was mild, and sore throat mild, because she took to bed and I thought she was hallucinating (a possible symptom of meningitis or encephalitis (or so the doctor and I thought). Her hallucination (I did not tell the doc) was that her Dad was entering the room (when he did come in) to kill her with a knife (she only told me). She was truly afraid, I thought she was delusional from fever. Tests did not show anything severe as meningitis etc. nor any strep or mono, later, when her fatigue symptoms persisted. At that time I knew nothing about OCD. She had had recurrent mild sore throats for awhile prior to that, with no panic symptoms. But after that, her subsequent " spells " looked like panic (and a few rage) attacks to me (so I still did not learn about OCD) but could've really been unspoken OCD fears. One of the worst panicky spells was when she got her first period, was somehwat ill, and she was subsequently out of school for a week, that was her longest absence last year. Again I did not think OCD (possible contamination issues-blood etc? she is finicky about bodily concerns, appearance, smell etc). I thought she was having panic attacks. She still does not do well about the time of her period, she can seem ill, and it could be that her immune system is also weaker at that time and/or her OCD acts up. I have recently been considering the effects of an antibiotic prescribed for acne ( an OCD/BDD type preoccupation imo, b/c it is so mild, only looks worse from picking) that possibly it improves her OCD somehow (lessens her susceptibility to illness?). Guess I need to find a psychiatrist who thinks pandas ocd is not too theoretical. Grace > I believe 's Dr. feels that it is the initial > strep infection that begins the PANDAS OCD. After > that it can be any illness that causes a phytican > (have no idea if it is spelt right) release in the > brain that can cause a flare up. This is my > understanding, although I may not have it exactly > right. My daughter has one Dr. who does her CBT and > one that does her meds. This is what the Dr. who does > her meds has spoken to us about. has had > tonsilitus without a flare up and sinusitus that has > put her out of school for three weeks and above her > baseline for about six more weeks. From what I have > seen there is a lot of research being done. When my > daughter was first diagnosed with PANDAS OCD I would > get on the ask an expert section of the OCD foundation > and ask about it. They would say stuff like it was > very rare. That it hasn't been proven. Now when you > get on and talk about some of the symptoms they say > have you looked into PANDAS OCD? They are learning > more and more about it. > > Talk to you soon. > > Sonya > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 What is NAET treatments? a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 i think pica is more when they actually eat it including craving and swallowing. My nathan is ten years and he is always putting things in his mouth mostly for sensory issues, he also grinds his teeth horribly. you should see his " guys " or grey guy or batman etc, they are missing feet or hands or even a head, and his cars have the wheels chewed off and sometimes have teeth marks on the hood or doors if they open. He has always had a thing for change so we have to keep it up as much as possible has swallowed some get shiny tips in the toilet or pull-up,lol even has swalloed a lego or two b4 also, but they manage to make their way out. IF its really bad i put ambesol on his teeth/gums he will chew through his cold teethers in a matter of minutes. hope this helps. shawna. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2002 Report Share Posted June 1, 2002 Lyn, My 7 year old put things in his mouth forever and we didn't give up the pacie until about 2 years ago. I didn't know what to do. This year we realized what he wanted was just something in his mouth for sensory input. He currently have what is supposed to be a rubber pen holder. He wears it around his neck and when he needs to put something in his mouth, that's what he puts in. Another thing you might consider for your daughter becuase she's so young, are vibrating things. There is a company that I have order through before that is for oral input and difficulty. It has lots of cups and utinsels for children with special needs and a lot of things like vibratingfacial massagers and things like that. The name of the company is New visions. at www.new-vis.com. Pica > Hello, everyone. > I have a question regarding Pica. Which my concern is > for my 22mo. daughter. She seems to gravitate to > putting very odd things in her mouth and licking and > sucking them. Such as metal objects, the other day > she was licking on this little metal rod that locks my > son's jog stroller. And she used to do this alot when > she was little. But I kept her pacie in her mouth to > deter her from it. Now we are presently weaning off > the pacie and she seems to be doing it a gain. How do > you test for Pica and exactly what is it and how do > you treat it? If in fact that is what is the problem. > Maybe she likes the sensory input. She isn't biting > objects so I don't think it's teething. And info on > Pica would be greatly appreciated. I have a dr. appt. > lined up for her this coming Tues. > Thanks. > > > > ===== > Lyn mom to JM-17, Josiah-5 DS/ASD, Tabitha-22mo. > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2002 Report Share Posted September 5, 2002 In a message dated 9/4/02 10:58:50 PM Eastern Daylight Time, smilinggail@... writes: > The only advice I have received, and can pass on, is to watch-watch-watch. > I > know, not much comfort in that! I really believe that the pica issues have > been the hardest to deal with, for us. Harder than ds or asd. It's just > draining to be on your toes and watch them every second. Ditto. And the poop eating is about to make you die!!!!!! Maddie has gotten better with this, but still goes on her soap hunts. And she's added a new one: chalk!!!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2002 Report Share Posted September 5, 2002 In a message dated 9/5/2002 2:48:20 PM Central Daylight Time, writes: << > The only advice I have received, and can pass on, is to watch-watch-watch. > I > know, not much comfort in that! I really believe that the pica issues have > been the hardest to deal with, for us. Harder than ds or asd. It's just > draining to be on your toes and watch them every second. Ditto. And the poop eating is about to make you die!!!!!! Maddie has gotten better with this, but still goes on her soap hunts. And she's added a new one: chalk!!!! Donna >> 's list of favorites include coins, small game pieces(talk about cheating), crayons, chalk, soap suds, soap and now the rubber fingers of his rubber hand fidget toys. I'm sure I missed a few. karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2002 Report Share Posted September 5, 2002 In a message dated 9/5/02 9:51:07 AM Pacific Daylight Time, duffey48@... writes: << Ditto. And the poop eating is about to make you die!!!!!! Maddie has gotten better with this, but still goes on her soap hunts. And she's added a new one: chalk!!!! Donna >> Yep, Seth likes chalk too Donna. Guess it has about the same taste as his favorite food....plaster. LOL Wish Seth's poop eating would decrease. YUK!!!! Well, Sir Seth did eats beans and franks today at school, so maybe the class is worth it just to get him to eat....REAL food I mean. LOL Gail :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 Hi all, have stopped Dans supplements for nearly 2 weeks to see what happens if anything and so far nothing terrible. He has started to chew his sleeves again on the school bus home. I think prob a mineral deficency? Have started the minerale going to give it a week and see what happens. Has anyone ever sussed out why simular behaviours occur with their child. thanks dave Autism Treatment From: sprtrdg@...Date: Wed, 2 Dec 2009 00:02:29 +0000Subject: Glutathione gel We have been prescribed a glutatione gel by our US Dan doctor but he has specified not Kirkman's but a compounded formula 250mg/ml. Does anyone know if you can get something similar hear ?Best WishesSue View your other email accounts from your Hotmail inbox. Add them now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 There was a pubmed article about regurgitation causing pain in the throat and this was solved by chewing gum. Maybe a version of this ie the acid in throat burning calmed by chewing, If so Gaviscon or a harmless form of gum Sally dava mcgrath wrote: > > > > Hi all, have stopped Dans supplements for nearly 2 weeks to see what > happens if anything and so far nothing terrible. He has started to > chew his sleeves again on the school bus home. I think prob a mineral > deficency? Have started the minerale going to give it a week and see > what happens. Has anyone ever sussed out why simular behaviours occur > with their child. > thanks dave > > ------------------------------------------------------------------------ > Autism Treatment > From: sprtrdg@... > Date: Wed, 2 Dec 2009 00:02:29 +0000 > Subject: Glutathione gel > > > We have been prescribed a glutatione gel by our US Dan doctor but he > has specified not Kirkman's but a compounded formula 250mg/ml. Does > anyone know if you can get something similar hear ? > > Best Wishes > > Sue > > > > ------------------------------------------------------------------------ > View your other email accounts from your Hotmail inbox. Add them now. > <http://clk.atdmt.com/UKM/go/186394592/direct/01/> > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 9.0.709 / Virus Database: 270.14.90/2540 - Release Date: 12/02/09 07:33:00 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2009 Report Share Posted December 3, 2009 Hi Dave I know many people attribute Pica to Zinc deficiency and I think I remember Shattock saying this was due to Phgosphorus deficiency too. I would also consider teeth problems but then if Dans behaviour has been OK then possibly not that. We have found when we have stopped supplements that things are OK for a while then deteriorate. Its always important for us to keep the bowel moving and as digestion and absorption are not great I reckon the lack of avaialable minerals affects most things. I think its OK to do this now and then but just recently when we did this asked me wheres s supplements? I asked if she feels better when she has them and she said yes which I thought was brill. Hope you are all well. Luv Caroline xx > > > > Hi all, have stopped Dans supplements for nearly 2 weeks to see what happens if anything and so far nothing terrible. He has started to chew his sleeves again on the school bus home. I think prob a mineral deficency? Have started the minerale going to give it a week and see what happens. Has anyone ever sussed out why simular behaviours occur with their child. > > thanks dave > > > > > Autism Treatment > From: sprtrdg@... > Date: Wed, 2 Dec 2009 00:02:29 +0000 > Subject: Glutathione gel > > > > > > We have been prescribed a glutatione gel by our US Dan doctor but he has specified not Kirkman's but a compounded formula 250mg/ml. Does anyone know if you can get something similar hear ? > > Best Wishes > > Sue > > > > > > _________________________________________________________________ > View your other email accounts from your Hotmail inbox. Add them now. > http://clk.atdmt.com/UKM/go/186394592/direct/01/ > Quote Link to comment Share on other sites More sharing options...
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