Son recently diagnosed with I.S , Shriners question ..

[Guest guest]

Hi everyone my name is Kristy, Im new here and had a cpl of questions. Basically

my husband and i were told last week that our 11 month old son Brennan has

Infantile Scoliosis. My husband and i noticed his spine starting to curve around

Aug / Sept while awaiting his appt w/ our Pediatrician i did some internet

research so when she mentioned Scoliosis i was already familiar w/ the term.

She mentioned setting Brennan up with a Orthopedic Specialist and Shriners ...

She briefly mentioned casting but first we would need an MRI / Xrays to get an

idea of the degree of the curve in his spine and to rule other possible

neurological problems etc ..

I found out today that they can not find a Orthopedic Specialist in our area (

we live just outside Greenville / Spartanburg SC )who will accept our insurance,

They mentioned possibly finding a PS around Columbia or ton SC ( 1 1/2 -

3 hrs away ) ..

We actually have a Shriners in Greenville which is just 15 - 20 miles away .. So

im trying to find out why she cant just refer him to Shriners especially since

our Shriners specializes in Orthopedics or is it he needs a referral from a

Orthopedic Specialist to get into Shriners. Can his Pediatrician refer him or

can my husband and i just fill out the apps for Shriners ?

We are very worried and even more so because his pediatrician just seemed

shocked after looking at his spine considering at his 6 month checkup there

wasnt any problems or noticable problems with his spine.

Since Aug Brennans spine seems to be curving to the left his stomach and ribs

are protruding and he is having some minor breathing problems. Were just very

worried , saying alot of prayers and wishing the best for our son.

Kristy

[Guest guest]

Becoming a patient at Shriner's doesn't take a referral, only a qualifying diagnosis. I would contact the Shriner's and get the application process started. It can take a few weeks to hear back and then longer sometimes to get an appointment.

Jane

From: notblonde08 <notblonde08@...>infantile scoliosis treatment Sent: Thu, October 28, 2010 2:48:39 PMSubject: Son recently diagnosed with I.S , Shriners question ..

Hi everyone my name is Kristy, Im new here and had a cpl of questions. Basically my husband and i were told last week that our 11 month old son Brennan has Infantile Scoliosis. My husband and i noticed his spine starting to curve around Aug / Sept while awaiting his appt w/ our Pediatrician i did some internet research so when she mentioned Scoliosis i was already familiar w/ the term. She mentioned setting Brennan up with a Orthopedic Specialist and Shriners ... She briefly mentioned casting but first we would need an MRI / Xrays to get an idea of the degree of the curve in his spine and to rule other possible neurological problems etc .. I found out today that they can not find a Orthopedic Specialist in our area ( we live just outside Greenville / Spartanburg SC )who will accept our insurance, They mentioned possibly finding a PS around Columbia or ton SC ( 1 1/2 - 3 hrs away ) .. We actually have a Shriners in Greenville which

is just 15 - 20 miles away .. So im trying to find out why she cant just refer him to Shriners especially since our Shriners specializes in Orthopedics or is it he needs a referral from a Orthopedic Specialist to get into Shriners. Can his Pediatrician refer him or can my husband and i just fill out the apps for Shriners ? We are very worried and even more so because his pediatrician just seemed shocked after looking at his spine considering at his 6 month checkup there wasnt any problems or noticable problems with his spine. Since Aug Brennans spine seems to be curving to the left his stomach and ribs are protruding and he is having some minor breathing problems. Were just very worried , saying alot of prayers and wishing the best for our son. Kristy

[Guest guest]

Hi and welcome to CAST! You can apply directly, you don't need a referral. Google Shriners and call, email or fax to get into the system. Don't wait for a reply to a fax, though, get the name of the Care Coordinator there who handles the casting appointments and be "politely pushy". Can anyone give that contact info? The thing they need the most to see are the films (X-rays/MRI) Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: notblonde08 <notblonde08@...>infantile scoliosis treatment Sent: Thu, October 28, 2010 2:48:39 PMSubject: Son recently diagnosed with I.S , Shriners question ..

Hi everyone my name is Kristy, Im new here and had a cpl of questions. Basically my husband and i were told last week that our 11 month old son Brennan has Infantile Scoliosis. My husband and i noticed his spine starting to curve around Aug / Sept while awaiting his appt w/ our Pediatrician i did some internet research so when she mentioned Scoliosis i was already familiar w/ the term.

She mentioned setting Brennan up with a Orthopedic Specialist and Shriners ... She briefly mentioned casting but first we would need an MRI / Xrays to get an idea of the degree of the curve in his spine and to rule other possible neurological problems etc ..

I found out today that they can not find a Orthopedic Specialist in our area ( we live just outside Greenville / Spartanburg SC )who will accept our insurance, They mentioned possibly finding a PS around Columbia or ton SC ( 1 1/2 - 3 hrs away ) ..

We actually have a Shriners in Greenville which is just 15 - 20 miles away .. So im trying to find out why she cant just refer him to Shriners especially since our Shriners specializes in Orthopedics or is it he needs a referral from a Orthopedic Specialist to get into Shriners. Can his Pediatrician refer him or can my husband and i just fill out the apps for Shriners ?

We are very worried and even more so because his pediatrician just seemed shocked after looking at his spine considering at his 6 month checkup there wasnt any problems or noticable problems with his spine.

Since Aug Brennans spine seems to be curving to the left his stomach and ribs are protruding and he is having some minor breathing problems. Were just very worried , saying alot of prayers and wishing the best for our son.

Kristy

[Guest guest]

Hey Kristy!

We live in NC and drive to the shrinners in greenville SC. WE LOVE IT! Dr P has been wonderful! My son Logan started casting at 9 months old with a 45 degree curve. He is now casted at 0 and we are getting our 5th cast on wed. With this daunting disease...the shriners hospital has embraced us and made this journey more easy for us. Man did we have a hard time in the beginning.....no one in NC wanted to help...nor did they offer casting. We got the wait and see....and we will brace him until he is 13 YEARS and at that time we will do surgery. Good luck with that. I was not having that...I figured its 2010...there has to be something else out there. thats when I stumbled across the group on the internet. THANK GOD! we then got a referal to shriners and everything else is history. I would not have changed a thing since our journey led us here. We have casted Logan a total of 6 months...and we have recd better progression each

time.

I highly recommend the SC shrinners =))

Logan's mama (16 months old, 45 down to zero, 5th cast next wed)

From: notblonde08 <notblonde08@...>infantile scoliosis treatment Sent: Thu, October 28, 2010 5:48:39 PMSubject: Son recently diagnosed with I.S , Shriners question ..

Hi everyone my name is Kristy, Im new here and had a cpl of questions. Basically my husband and i were told last week that our 11 month old son Brennan has Infantile Scoliosis. My husband and i noticed his spine starting to curve around Aug / Sept while awaiting his appt w/ our Pediatrician i did some internet research so when she mentioned Scoliosis i was already familiar w/ the term. She mentioned setting Brennan up with a Orthopedic Specialist and Shriners ... She briefly mentioned casting but first we would need an MRI / Xrays to get an idea of the degree of the curve in his spine and to rule other possible neurological problems etc .. I found out today that they can not find a Orthopedic Specialist in our area ( we live just outside Greenville / Spartanburg SC )who will accept our insurance, They mentioned possibly finding a PS around Columbia or ton SC ( 1 1/2 - 3 hrs away ) .. We actually have a Shriners in Greenville which

is just 15 - 20 miles away .. So im trying to find out why she cant just refer him to Shriners especially since our Shriners specializes in Orthopedics or is it he needs a referral from a Orthopedic Specialist to get into Shriners. Can his Pediatrician refer him or can my husband and i just fill out the apps for Shriners ? We are very worried and even more so because his pediatrician just seemed shocked after looking at his spine considering at his 6 month checkup there wasnt any problems or noticable problems with his spine. Since Aug Brennans spine seems to be curving to the left his stomach and ribs are protruding and he is having some minor breathing problems. Were just very worried , saying alot of prayers and wishing the best for our son. Kristy

[Guest guest]

hey Kristy--

Her name is Vickie---you can call and talk directly to her. She is the scheduler for Dr P---she is excellent! GOOD LUCK WITH EVERYTHING with you and your baby =)

Logan's mama

(45 down to 0 , 16 months old, waiting for cast 5)

From: NIck Guthe <nickguthe@...>infantile scoliosis treatment Sent: Thu, October 28, 2010 8:26:20 PMSubject: Re: Son recently diagnosed with I.S , Shriners question ..

Hi and welcome to CAST! You can apply directly, you don't need a referral. Google Shriners and call, email or fax to get into the system. Don't wait for a reply to a fax, though, get the name of the Care Coordinator there who handles the casting appointments and be "politely pushy". Can anyone give that contact info? The thing they need the most to see are the films (X-rays/MRI)

Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)

From: notblonde08 <notblonde08@...>infantile scoliosis treatment Sent: Thu, October 28, 2010 2:48:39 PMSubject: Son recently diagnosed with I.S , Shriners question ..

Hi everyone my name is Kristy, Im new here and had a cpl of questions. Basically my husband and i were told last week that our 11 month old son Brennan has Infantile Scoliosis. My husband and i noticed his spine starting to curve around Aug / Sept while awaiting his appt w/ our Pediatrician i did some internet research so when she mentioned Scoliosis i was already familiar w/ the term. She mentioned setting Brennan up with a Orthopedic Specialist and Shriners ... She briefly mentioned casting but first we would need an MRI / Xrays to get an idea of the degree of the curve in his spine and to rule other possible neurological problems etc .. I found out today that they can not find a Orthopedic Specialist in our area ( we live just outside Greenville / Spartanburg SC )who will accept our insurance, They mentioned possibly finding a PS around Columbia or ton SC ( 1 1/2 - 3 hrs away ) .. We actually have a Shriners in Greenville which

is just 15 - 20 miles away .. So im trying to find out why she cant just refer him to Shriners especially since our Shriners specializes in Orthopedics or is it he needs a referral from a Orthopedic Specialist to get into Shriners. Can his Pediatrician refer him or can my husband and i just fill out the apps for Shriners ? We are very worried and even more so because his pediatrician just seemed shocked after looking at his spine considering at his 6 month checkup there wasnt any problems or noticable problems with his spine. Since Aug Brennans spine seems to be curving to the left his stomach and ribs are protruding and he is having some minor breathing problems. Were just very worried , saying alot of prayers and wishing the best for our son. Kristy

[Guest guest]

Wow I really want to thank you all for the warm welcome and for all the

information. I definetly appreciate it, Its been a rough week especially waiting

on our Dr to call , I do feel like the ISOP / CAST has given me some amount of

relief especially knowing there is help for my son and individuals out there who

know exactly what we are going through. You guys are great

Thanks again , Kristy

>

> Hey Kristy!

> We live in NC and drive to the shrinners in greenville SC. WE LOVE IT! Dr P

has

> been wonderful! My son Logan started casting at 9 months old with a 45 degree

> curve. He is now casted at 0 and we are getting our 5th cast on wed.  With

this

> daunting disease...the shriners hospital has embraced us and made this journey

> more easy for us. Man did we have a hard time in the beginning.....no one in

NC

> wanted to help...nor did they offer casting. We got the wait and see....and we

> will brace him until he is 13 YEARS and at that time we will do surgery. Good

> luck with that.  I was not having that...I figured its 2010...there has to be

> something else out there. thats when I stumbled across the group on the

> internet. THANK GOD!  we then got a referal to shriners and everything else

is

> history. I would not have changed a thing since our journey led us here.  We

> have casted Logan a total of 6 months...and we have recd better progression

each

> time.

>

> I highly recommend the SC shrinners =))

>

>

> Logan's mama (16 months old, 45 down to zero, 5th cast next wed)

>

>

>

>

> ________________________________

> From: notblonde08 <notblonde08@...>

> infantile scoliosis treatment

> Sent: Thu, October 28, 2010 5:48:39 PM

> Subject: Son recently diagnosed with I.S , Shriners

> question ..

>

>  

> Hi everyone my name is Kristy, Im new here and had a cpl of questions.

Basically

> my husband and i were told last week that our 11 month old son Brennan has

> Infantile Scoliosis. My husband and i noticed his spine starting to curve

around

> Aug / Sept while awaiting his appt w/ our Pediatrician i did some internet

> research so when she mentioned Scoliosis i was already familiar w/ the term.

>

> She mentioned setting Brennan up with a Orthopedic Specialist and Shriners ...

> She briefly mentioned casting but first we would need an MRI / Xrays to get an

> idea of the degree of the curve in his spine and to rule other possible

> neurological problems etc ..

>

> I found out today that they can not find a Orthopedic Specialist in our area (

> we live just outside Greenville / Spartanburg SC )who will accept our

insurance,

> They mentioned possibly finding a PS around Columbia or ton SC ( 1 1/2

-

> 3 hrs away ) ..

>

> We actually have a Shriners in Greenville which is just 15 - 20 miles away ..

So

> im trying to find out why she cant just refer him to Shriners especially since

> our Shriners specializes in Orthopedics or is it he needs a referral from a

> Orthopedic Specialist to get into Shriners. Can his Pediatrician refer him or

> can my husband and i just fill out the apps for Shriners ?

>

> We are very worried and even more so because his pediatrician just seemed

> shocked after looking at his spine considering at his 6 month checkup there

> wasnt any problems or noticable problems with his spine.

>

> Since Aug Brennans spine seems to be curving to the left his stomach and ribs

> are protruding and he is having some minor breathing problems. Were just very

> worried , saying alot of prayers and wishing the best for our son.

>

> Kristy

>

[Guest guest]

Kristy,

There shouldn't be any reason why your son's pediatrician can't refer him to the

Shriners in your area. That is how my daughter got into Shriners. Her

pediatrician referred her. My daughter goes to the Shriners in Lexington, KY.

The doctors there also do the Mehta casting. i would ask the pediatrician and

explain your insurance situation to her. It truly is a blessing to be able to

not have to worry about medical bills and having everything covered by Shriners.

Best of luck with your son. God Bless.

>

> Hi everyone my name is Kristy, Im new here and had a cpl of questions.

Basically my husband and i were told last week that our 11 month old son Brennan

has Infantile Scoliosis. My husband and i noticed his spine starting to curve

around Aug / Sept while awaiting his appt w/ our Pediatrician i did some

internet research so when she mentioned Scoliosis i was already familiar w/ the

term.

> She mentioned setting Brennan up with a Orthopedic Specialist and Shriners ...

She briefly mentioned casting but first we would need an MRI / Xrays to get an

idea of the degree of the curve in his spine and to rule other possible

neurological problems etc ..

> I found out today that they can not find a Orthopedic Specialist in our area (

we live just outside Greenville / Spartanburg SC )who will accept our insurance,

They mentioned possibly finding a PS around Columbia or ton SC ( 1 1/2 -

3 hrs away ) ..

> We actually have a Shriners in Greenville which is just 15 - 20 miles away ..

So im trying to find out why she cant just refer him to Shriners especially

since our Shriners specializes in Orthopedics or is it he needs a referral from

a Orthopedic Specialist to get into Shriners. Can his Pediatrician refer him or

can my husband and i just fill out the apps for Shriners ?

> We are very worried and even more so because his pediatrician just seemed

shocked after looking at his spine considering at his 6 month checkup there

wasnt any problems or noticable problems with his spine.

> Since Aug Brennans spine seems to be curving to the left his stomach and ribs

are protruding and he is having some minor breathing problems. Were just very

worried , saying alot of prayers and wishing the best for our son.

> Kristy

>

[Guest guest]

Welcome to CAST, Kristy! Def. get into the Shriners in Greenville, SC.

Dr. P is awesome and ET Trained!

Please keep us posted.

HRH

> Hi everyone my name is Kristy, Im new here and had a cpl of questions.

> Basically my husband and i were told last week that our 11 month old son

> Brennan has Infantile Scoliosis. My husband and i noticed his spine

> starting to curve around Aug / Sept while awaiting his appt w/ our

> Pediatrician i did some internet research so when she mentioned Scoliosis

> i was already familiar w/ the term.

> She mentioned setting Brennan up with a Orthopedic Specialist and Shriners

> ... She briefly mentioned casting but first we would need an MRI / Xrays

> to get an idea of the degree of the curve in his spine and to rule other

> possible neurological problems etc ..

> I found out today that they can not find a Orthopedic Specialist in our

> area ( we live just outside Greenville / Spartanburg SC )who will accept

> our insurance, They mentioned possibly finding a PS around Columbia or

> ton SC ( 1 1/2 - 3 hrs away ) ..

> We actually have a Shriners in Greenville which is just 15 - 20 miles away

> .. So im trying to find out why she cant just refer him to Shriners

> especially since our Shriners specializes in Orthopedics or is it he needs

> a referral from a Orthopedic Specialist to get into Shriners. Can his

> Pediatrician refer him or can my husband and i just fill out the apps for

> Shriners ?

> We are very worried and even more so because his pediatrician just seemed

> shocked after looking at his spine considering at his 6 month checkup

> there wasnt any problems or noticable problems with his spine.

> Since Aug Brennans spine seems to be curving to the left his stomach and

> ribs are protruding and he is having some minor breathing problems. Were

> just very worried , saying alot of prayers and wishing the best for our

> son.

> Kristy

>

>

>

>