Re: Re: does scoliosis hurt?

[Guest guest]

Thank you for the encouragement, ! :-) I forgot what doctor he is supposed to be seeing, his appointment is in the beginning of December. I might email you and ask you some questions. I'm glad to hear your daughter is getting the help she needs!From: juliechafin2005 <juliechafin2005@...>infantile scoliosis treatment Sent: Wed, November

10, 2010 6:31:57 AMSubject: Re: does scoliosis hurt?

Edythe,

Lexington, KY is where my Abby goes! She got her first cast applied yesterday! You will love the staff there. They treat you like family. You are not treated like a number. Instead, you are treated as if your child is the only child that they are treating. They sent my baby girl home yesterday with what they called a "care bag". It was full of toys, books, a homemade quilt, and a stuffed teddy bear. They really gave us the royal treatment. You will love it. Dr. Iwinski is her Dr. Is that who you are seeing? He really knows his stuff. Glad to finally have someone on the board who is also going to Lexington! Email me with any questions you may have! Good luck and God bless!

- , Mom of Abby - 48 degrees down to 17 degrees in first cast.

> > >

> > > > This may seem a silly question, but I wonder if our babies' backs hurt

> >them?

> > > >

> > > > The last few days, Audrey's been doing something odd - she looks like she's

> >trying to do a sit up. She does it if laying flat on her back, or if being held

> >partially reclined. It's like she always wants to be held in a supported sitting

> >position, but PT said we need to really limit that for now. She just looks

> >uncomfortable, and I wonder if her back is hurting her? Or maybe this is

> >something else entirely - did/do any of your babes do this?

> > > >

> > > > Other than that, she's doing pretty good. Physio isn't much fun - I try to

> >do the gentle stretches a couple of times per day, but they're clearly

> >uncomfortable for her and she fights them and gets upset if I persist On the

> >upside, we're still swimming twice a week and she loves the pool

> > > >

> > > > I notice in the pool you can REALLY see the stiffness to her left leg.

> >She's trying her best to kick both legs, but while the right moves freely in a

> >proper kicking motion, the left stays somewhat flexed and just sort of jerks

> >back and forth - not nearly as coordinated.

> > > >

> > > > A question for all you moms who've been doing this awhile - how do you keep

> >yourselves from obsessively focussing on the scoliosis and just enjoy your babes

> >as they are? I feel like my worry about Audrey's back has me so busy watching

> >for changes in her curve and range of motion that it takes away from just plain

> >watching her. kwim?

> > > >

> > > > Still waiting to hear from BCCH with an appointment date to see the

> >ortho...I hate not having any answers. I think it will be easier for me once we

> >have a definitive diagnosis, as then we'll be able to make a plan and move

> >forward. I'm a wee bit of a control freak and a "take charge" type of person.

> >Watching and waiting is very very hard for me

> > > >

> > > > Feeling a bit glum about Audrey's back the past few days. My hubby, bless

> >his heart, keeps saying he thinks she's a bit better, and that "maybe it's just

> >muscular and tight muscles are pulling her into a curve but it will straighten

> >out with stretching". But I feel like a negative nelly if I explain to him that

> >no, it's not just muscular, her rib bones are actually starting to grow wrong

> >because of the rotation, and stretching can't fix that, or if I point out the

> >clear signs that her back is getting worse. I know he's worried and upset too,

> >so don't want to rub it in, you know? But at the same time, I don't want him to

> >kid himself - I need him to really understand what we're dealing with so that he

> >can advocate as strongly as I can for Audrey to get the medical care she needs.

> >And then there's my in-laws - yeesh don't get me started! My father-in-law makes

> >me feel like a paranoid crazy person for even taking Audrey to the doctor for

> >her back in the first place. Keeps saying that things are overdiagnosed these

> >days, and implies that if I hadn't taken her to the ped, her back would've

> >straightened out on it's own eventually anyways, and we'd never even know

> >there'd ever been anything wrong.

> > > >

> > > > I guess what I'm trying to say is...how do you deal with people who seem to

> >think that scoliosis is no big deal? On the one hand I don't want to freak

> >people out or depress them with the gloom and doom possibilities of how serious

> >this can be (or come off sounding like a total nutjob), but on the other hand,

> >it drives me crazy when they tell me not to worry, she'll be fine, I'm being an

> >overly worried first-time-mom, etc.

> > > >

> > > > Sorry for the rambling post!

> > > >

> > > > And, so the whole post isn't a big worry fest:

> > > >

> > > > The last few days, Audrey's getting more and more playful - so cute to see!

> >She loves when I've changed her diaper and I "eat" (kiss noisily) her chubby

> >thighs, saying "mmmmm! baby legs are tasty!" - makes her giggle every time

> >She's also really discovering her voice. She makes this terrible sound lol, kind

> >of a growly screech, and it's really loud. She's quite pleased with herself.

> >However, if I copy her, she cries! lol!

> > > >

> > > >

> > >

> >

>