Re: Re: Back from Rochester-Great news!

[Guest guest]

Thank you! She had 3 curves, but her main one was b/t 45-50 degrees when we started....- Noelle's mommy, 3 1/2 years oldRochester NYCasted 8 times for 1 1/2 years9 months in braceRegressed and currently in cast 9reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: audreymdawson <audreymdawson@...>Subject: Re: Back from Rochester-Great news!infantile scoliosis treatment Date: Sunday, November 7, 2010, 5:46 PM

That is wonderful news! What was her curve when you first began casting?mom to Audrey, 4th cast, SLC>> Hi All!> We got back from Rochester last night with Noelle back in a brace!!! Yay!!!! We are so happy! Her standing x-ray is now a 13 and her supine an amazing 8! That is the first single digit we have ever gotten on an x-ray so it was very exciting! Because she had been so sick most of the month and was still using her nebulizer, the doc was able to cut her old cast off and send it to ortho for the brace mold. Soooo... NO ANESTHESIA!!!!! HUrray!!!! No unhappy Noelle at all! Such

a great trip and such great news.... I am so relieved and so grateful all at once. The doc actually said that upon physical examination that he could see no visible signs of her scoliosis! Can you imagine how my heart sang when I heard that! I still can't believe it! She had an x-ray in brace and she is at 8 degrees standing in her brace and that x-ray looks like Christmas to me! We'll go back in 3 months and we will be very conservative going forward> because she did regress the last time, but I am feeling on top of the world right now! > > - Noelle's mommy, 3 1/2 years old> Rochester NY> Casted 8 times for 1 1/2 years> 9 months in brace> Regressed and currently in cast 9> reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III>