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DMSA Suppositories

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I have done DMSA oral for during the day and at night we do the suppository.

We did DMSA for about 6 weeks with urine everyother week. We are now ready

to do DMSA with ALA. We start on Friday

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,

We begin chelating with Dr. Amy first week of November. I did not ask her:

does she use suppositories? She just mentioned the new small DMSA from

Kirklands.

Thanks,

WendiD

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Thanks , One more question on this. Is it possible to use supp. onlt

night when there would probably not be a bowel movement and then use oral the

rest of the time? My kiddo is a great sleeper, I mean like a brick for 10

hours and I have visions of this coming to a screeching halt!!

Thanks,

WendiD

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Wow! There is a liquid? This is great news. I will probably do it the same

way as you. cannot swallow pills and sometimes gags on the crushed

powder.

Thanks so much,

Wendi

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>>>>>>

I am about to start chelation with my 3.9 yr old son. My Dr. is

suggesting 1 suppository 3x day.

<<<<<<

CAREFUL WITH SUPPOSITORIES!

First, remember that when you give a suppository, it stimulates the

muscles and often causes a bowel movement. Now, if the child has a

BM, how much of the medicine you just inserted is left? 1/2? 1/4?

The answer is, you just don't know. Because it is important to keep

levels constant, you are now in BIG TROUBLE. Do you put in another

one or not?

>>>>>>>

After the initial cycle he would

add Lipoic Acid. Is this Dr. Amy's protocol?

<<<<<<<

NO, NO, NO! You need to run urine toxic elements tests and check the

mercury levels. You want to bring the body burden of mercury way down

before you move to ALA. This takes anywhere from 2 - 6 months.

>>>>>>>

He said he is following her latest protocol. I have not seen much

info on DMSA

suppositories. Are they as effective as oral administration? Thanks

for all help.

<<<<<<<

Huh? We work directly with Dr. Holmes, and this is NOT what we are

doing.

Remember that the younger the child, the more likely that child is to

have a higher body burden of mercury. The older the child, the more

likely it has moved into the brain.

My child is 7, and we have been on phase I (DMSA only) for over 2

months. The mercury level has risen, so we will continue this until

it drops.

Maybe you should ask to review the protocol yourself. (She sends out

packets. Does your doctor have one?) Perhaps he has misunderstood...

Or, perhaps there is another agenda here.

(Cary, NC)

persistentC@...

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I think she HAS used suppositories in the past with kids at night.

I spent a good deal of time talking with our compounding pharmacist about this though, and he said unless I could guarantee that there would be no BM for 5 hours, I shouldn't do it.

Since we have previous experience with ibuprofen suppositories, I knew that was going to be a BIG issue.

(Cary, NC)persistentC@...

Re: [ ] DMSA Suppositories

,We begin chelating with Dr. Amy first week of November. I did not ask her: does she use suppositories? She just mentioned the new small DMSA from Kirklands.Thanks,WendiD

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Wendi,

We use the four hour suppositories at night, and the liquid during the day. It seems to work very well! Dean sleeps right through it, and doesn't have a BM until the next afternoon. When we first started chelation, we were only using suppositories, and I don't think he was getting the full amount of the medicine. He was having several BM's a day, and it was obvious that there was some left in there. But thank goodness for the liquid!! I think using them at night is very safe , though.

Maranie

Re: [ ] DMSA SuppositoriesThanks , One more question on this. Is it possible to use supp. onlt night when there would probably not be a bowel movement and then use oral the rest of the time? My kiddo is a great sleeper, I mean like a brick for 10 hours and I have visions of this coming to a screeching halt!!Thanks, WendiD

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Yes! Patsy at prescription compounds has developed one!! It tastes okay, but it stinks REALLY REALLY bad!! I have to put about an inch of Sunny Delite in a sippy cup, add the med, put the cup's lid on very tight, and then he'll drink it! But at least I don't have to worry about the medicine getting absorbed.

Maranie

Re: [ ] DMSA SuppositoriesWow! There is a liquid? This is great news. I will probably do it the same way as you. cannot swallow pills and sometimes gags on the crushed powder. Thanks so much,Wendi

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I am using the DMSA suppositories with my son also, 3 per day. They are 8

hour time-release and

have been compounded by a pharmacist of Dr. Amys in LA. My doctor believes

you get better absorption

through that route of entry. However, the day time insertions are becoming

more of a battle and I

may switch to oral for day and use the suppositories at night only.

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We have been using the DMSA 4 hour suppositories with our son and have just completed our 5th cycle. The compounding pharmicist said that the 4 hour suppositories are absorbed in the body within 10 minutes (I have also heard from another pharmicist that it take 30 minutes.) He said that the 4 hour is absorbed quicker than the 8 hour, that is why we use the 4 hour during the day and the 8 hour at night. Hope this is helpful.

Re: [ ] DMSA Suppositories

,We begin chelating with Dr. Amy first week of November. I did not ask her: does she use suppositories? She just mentioned the new small DMSA from Kirklands.Thanks,WendiD

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Are you sure the white stuff is not yeast? We have used the suppositories

for about 3 rounds of DMSA alone and 2 rounds with ALA and I have not seen

this at all.

I remember when my little boy was getting rid of yeast, his stool would be

almost all white.

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Yes, but some times the body does a natural yeast release from the body. I

saw this with my little boy. Just in a change of diet. No yeast meds or

supplements. He was full of it.

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We have used DMSA suppositories for 2 cycles.

Not to gross anyone out but when my son had his

bowel movement the next day (after more than 8 hours

of placement of suppository)every time he would have some

white stuff (part of suppository, I guess) at the

beginning of his stool.

Does it mean that the suppository can be used for

more than 8 hours since it did not dissolve completely?

Or that his absorbtion level is too slow and it should not

be used at all?

Vera

-

> I was told the eight hour one is time release. So we use the eight

hour one

> at night. And the pill in the day.

>

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We had the white stuff when we used the suppositories too. My compounding pharmacist told me that in a four hour suppository, the medicine would absorb in 30 minutes to an hour. It depends on the child's average body temperature. What is left , if there is anything, is usually just the base compound they use to mix it with.

Maranie Mom to :Dean 4, PDD-NOS; 9, NT; and Zack 12, NT

[ ] Re: DMSA SuppositoriesThe only time I see that white stuff is when I give himsuppository. It is not all stool - just the 'start' of it(or should I say the end ;)Plus we are not using any anti-yeast meds or even probiotisnow - just low sugar diet.Vera-> Are you sure the white stuff is not yeast? We have used the suppositories > for about 3 rounds of DMSA alone and 2 rounds with ALA and I have not seen > this at all.> I remember when my little boy was getting rid of yeast, his stool would be > almost all white. >

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The only time I see that white stuff is when I give him

suppository. It is not all stool - just the 'start' of it

(or should I say the end ;)

Plus we are not using any anti-yeast meds or even probiotis

now - just low sugar diet.

Vera

-

> Are you sure the white stuff is not yeast? We have used the

suppositories

> for about 3 rounds of DMSA alone and 2 rounds with ALA and I have

not seen

> this at all.

> I remember when my little boy was getting rid of yeast, his stool

would be

> almost all white.

>

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---Have heard of several kids with a little bit of white

" residue " ...it's ok.....also about white stool.....the lighter the

color the more chance that there is malabsortion. No suprise with

most

of the kids having intestional problems. Some, further along on

chelation, have stated that " on " days stool is very dark and dense

(good sign metals are in there) also " off " days, the stool is lighter

(good sign that we should be building up vits/min as they are being

depleted with chelation. Minerals are metals, they go too....right?

Just an observation......

Ann

In egroups, LACitrus1@a... wrote:

> Are you sure the white stuff is not yeast? We have used the

suppositories

> for about 3 rounds of DMSA alone and 2 rounds with ALA and I have

not seen

> this at all.

> I remember when my little boy was getting rid of yeast, his stool

would be

> almost all white.

>

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  • 3 weeks later...

Just look in your yellow pages. Any compounding pharmacy would be able

to do this for you. That is what they do, suspend an RX into a liquid

form, if that is what you need or suppositories. Maybe your child will

only take cherry flavored meds., you can request that.

Hope this helps, good luck,

grammy

dean/4

bryan/12

toxic...but getting better

> Listmates,

> Please share with me the names of the Compounding Pharmacies that

are use for

> making the Sustained Release DMSA suppositories. I live in

Massachusetts,

> but I am not concerned about where your pharmacy is located.

> Thank you

>

> Will and Ben's Mom

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