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Re: Scoliosis Sibling

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This was in my spam file so I don't know if you have already gotten an answer

but the likely hood is rare. There are a couple families on here who do have

more than one child with scoli but I don't believe its common. At least you

will know what to look for this time so if it does happen proper early treatment

can begin. Don't stress. Your bundle of joy will be perfect!

juliechafin2005 <juliechafin2005@...> wrote:

>I am just wondering is anyone knows what the chances are of my next baby having

scoliosis also? I am due to give birth again in January and I am so scared to

even think that this baby may have scoliosis. Anyone know?

>

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I just had my second. We were told the chances of having two is near

impossible. So far our second doesn't show any symptoms. I will say that just

from being on the group that I have only seen 1 or 2 families with PIS though a

few seen to have another child who gets adolescent scoliosis. I am not freaked

out about it but I will keep an eye on both boys until they stop growing.

Jenn mommy to Cole and Max

>

> >I am just wondering is anyone knows what the chances are of my next baby

having scoliosis also? I am due to give birth again in January and I am so

scared to even think that this baby may have scoliosis. Anyone know?

> >

>

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Over the last decade I have only met a couple families with scoli sibs.

Read Cameron and Dylans Story on www.infantilescoliosis.org They boys are

both doing great! Cameron did not get treated early and Dylan did. Their

curve types were identical and they were both diagnosed as infantile

progressive. A very interesting story and great family. The boys are now

thriving due to ET and EDF.

HRH

> I just had my second. We were told the chances of having two is near

> impossible. So far our second doesn't show any symptoms. I will say that

> just from being on the group that I have only seen 1 or 2 families with

> PIS though a few seen to have another child who gets adolescent

> scoliosis. I am not freaked out about it but I will keep an eye on both

> boys until they stop growing.

>

> Jenn mommy to Cole and Max

>

>

>

>>

>> >I am just wondering is anyone knows what the chances are of my next

>> baby having scoliosis also? I am due to give birth again in January

>> and I am so scared to even think that this baby may have scoliosis.

>> Anyone know?

>> >

>>

>

>

>

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Hi,I just wanted to chime in that when our doc in SLC diagnoised our second with Infantile Scoliosis he said that we were only his 3rd case of a family that had 2 children with Infantile Scoliosis. And this is from one of THE most experienced doctors in Infantile Scoliosis in the country. He said in the 2 other families - one child progressed and one did not. And then of course our daughter did not as well : )~Noah 5 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 1 yr old - resolved Infantile Scoliosisinfantile scoliosis treatment From: heather@...Date: Wed, 20 Oct 2010 09:35:16 -0400Subject: Re: Re: Scoliosis Sibling

Over the last decade I have only met a couple families with scoli sibs.

Read Cameron and Dylans Story on www.infantilescoliosis.org They boys are

both doing great! Cameron did not get treated early and Dylan did. Their

curve types were identical and they were both diagnosed as infantile

progressive. A very interesting story and great family. The boys are now

thriving due to ET and EDF.

HRH

> I just had my second. We were told the chances of having two is near

> impossible. So far our second doesn't show any symptoms. I will say that

> just from being on the group that I have only seen 1 or 2 families with

> PIS though a few seen to have another child who gets adolescent

> scoliosis. I am not freaked out about it but I will keep an eye on both

> boys until they stop growing.

>

> Jenn mommy to Cole and Max

>

>

>

>>

>> >I am just wondering is anyone knows what the chances are of my next

>> baby having scoliosis also? I am due to give birth again in January

>> and I am so scared to even think that this baby may have scoliosis.

>> Anyone know?

>> >

>>

>

>

>

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Im also very interested in this. I know Dr. D's cases and a couple of the

others, but I know there are more out there. May be I'll put up a poll

later. So very interesting.

HRH

>

> Hi,I just wanted to chime in that when our doc in SLC diagnoised our

> second with Infantile Scoliosis he said that we were only his 3rd case of

> a family that had 2 children with Infantile Scoliosis. And this is from

> one of THE most experienced doctors in Infantile Scoliosis in the country.

> He said in the 2 other families - one child progressed and one did not.

> And then of course our daughter did not as well : )

> ~

> Noah 5 years old

> 9 months of casting in SLC; 2 1/2 years of bracing; Currently

> treatment-free at 8*

> And Mariella 1 yr old - resolved Infantile Scoliosis

>

>

>

>

>

> infantile scoliosis treatment

> From: heather@...

> Date: Wed, 20 Oct 2010 09:35:16 -0400

> Subject: Re: Re: Scoliosis Sibling

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> Over the last decade I have only met a couple families with scoli

> sibs.

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> Read Cameron and Dylans Story on www.infantilescoliosis.org They boys are

>

> both doing great! Cameron did not get treated early and Dylan did. Their

>

> curve types were identical and they were both diagnosed as infantile

>

> progressive. A very interesting story and great family. The boys are now

>

> thriving due to ET and EDF.

>

> HRH

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>> I just had my second. We were told the chances of having two is near

>

>> impossible. So far our second doesn't show any symptoms. I will say that

>

>> just from being on the group that I have only seen 1 or 2 families with

>

>> PIS though a few seen to have another child who gets adolescent

>

>> scoliosis. I am not freaked out about it but I will keep an eye on both

>

>> boys until they stop growing.

>

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>

>> Jenn mommy to Cole and Max

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>>> >I am just wondering is anyone knows what the chances are of my next

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>>> baby having scoliosis also? I am due to give birth again in January

>

>>> and I am so scared to even think that this baby may have scoliosis.

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>>> Anyone know?

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DISCLAIMER!! I'm only sharing what I was told by my doctor and families I know, so read this with that knowledge in mind :)

Our doctor told us he felt it was important that we know that risks for scoliosis can be greater once someone in the family is diagnosed (if you have it, there is a greater chance one of your children will, etc.). Now that comment was to generalized scoliosis. He clarified that he wasn't saying other children would likely have infantile scoliosis, but cautioned us not to miss any screening opportunities for juvenile or adolescent scoli for our other children (we have 5). Additionally, my husband has a sister who developed adolescent scoli and I have a niece who developed adol. scoli ... both only required monitoring and neither progressed to the level of needing bracing.

I also have a friend with twins who both developed juvenile scoli, both had rods placed within 6 months of each other. Her younger son has now also developed juvenile scoli, minor curve at this point, but he has not yet hit his adolescent growth spurt.

Our doctor felt it was important we know to look for early signs as all of our children continue to grow since he felt there was not enough research out there to indicate one way or the other that that shouldn't be done. So, while doctors may not be seeing many siblings with infantile scolio, that's not to say that there might not still be a greater risk for juvenile or adolescent scoli.

Becky

Re: Re: Scoliosis Sibling>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Over the last decade I have only met a couple families with scoli> sibs.>> Read Cameron and Dylans Story on www.infantilescoliosis.org They boys are>> both doing great! Cameron did not get treated early and Dylan did. Their>> curve types were identical and they were both diagnosed as infantile>> progressive. A very interesting story and great family. The boys are now>> thriving due to ET and EDF.>> HRH>>>>> I just had my second. We were told the chances of having two is near>>> impossible. So far our second doesn't show any symptoms. I will say that>>> just from being on the group that I have only seen 1 or 2 families with>>> PIS though a few seen to have another child who gets adolescent>>> scoliosis. I am not freaked out about it but I will keep an eye on both>>> boys until they stop growing.>>>>>> Jenn mommy to Cole and Max>>>>>>>>> >>>>>>>> >I am just wondering is anyone knows what the chances are of my next>>>> baby having scoliosis also? I am due to give birth again in January>>>> and I am so scared to even think that this baby may have scoliosis.>>>> Anyone know?>>>> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

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I know our first visit to Shriner's, there was a family there who had 3 children, all girls, and all three had juv. scoliosis. So I personally think there's something to the genetics of it.

Thanks for sharing!

Jane

From: "pkfamily7@..." <pkfamily7@...>infantile scoliosis <infantile scoliosis treatment >Sent: Tue, October 26, 2010 10:48:44 AMSubject: Re: Re: Scoliosis Sibling

DISCLAIMER!! I'm only sharing what I was told by my doctor and families I know, so read this with that knowledge in mind :)

Our doctor told us he felt it was important that we know that risks for scoliosis can be greater once someone in the family is diagnosed (if you have it, there is a greater chance one of your children will, etc.). Now that comment was to generalized scoliosis. He clarified that he wasn't saying other children would likely have infantile scoliosis, but cautioned us not to miss any screening opportunities for juvenile or adolescent scoli for our other children (we have 5). Additionally, my husband has a sister who developed adolescent scoli and I have a niece who developed adol. scoli ... both only required monitoring and neither progressed to the level of needing bracing.

I also have a friend with twins who both developed juvenile scoli, both had rods placed within 6 months of each other. Her younger son has now also developed juvenile scoli, minor curve at this point, but he has not yet hit his adolescent growth spurt.

Our doctor felt it was important we know to look for early signs as all of our children continue to grow since he felt there was not enough research out there to indicate one way or the other that that shouldn't be done. So, while doctors may not be seeing many siblings with infantile scolio, that's not to say that there might not still be a greater risk for juvenile or adolescent scoli.

Becky

Re: Re: Scoliosis Sibling>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Over the last decade I have only met a couple families with scoli> sibs.>> Read Cameron and Dylans Story on www.infantilescoliosis.org They boys are>> both doing great! Cameron did not get treated early and Dylan did. Their>>

curve types were identical and they were both diagnosed as infantile>> progressive. A very interesting story and great family. The boys are now>> thriving due to ET and EDF.>> HRH>>>>> I just had my second. We were told the chances of having two is near>>> impossible. So far our second doesn't show any symptoms. I will say that>>> just from being on the group that I have only seen 1 or 2 families with>>> PIS though a few seen to have another child who gets adolescent>>> scoliosis. I am not freaked out about it but I will keep an eye on both>>> boys until they stop growing.>>>>>> Jenn mommy to Cole and Max>>>>>>>>> >>>>>>>> >I am just wondering is anyone knows

what the chances are of my next>>>> baby having scoliosis also? I am due to give birth again in January>>>> and I am so scared to even think that this baby may have scoliosis.>>>> Anyone know?>>>> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

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