Your views on the process of assessment, referral & diagnosis

[Guest guest]

Hi all

's e mail on her experience of diagnosis and to what extent it

helped/hindered her family is really useful for me to share with the NICE

guidelines group and I would really welcome experiences and views from other

parents so that I can also share these.

I think where I can best help re NICE is by trying to 'keep it real' i.e.,

making the group aware of the impact of assessment, referral and diagnosis

decisions that are (and arent) taken on families.

So, if anyone is willing to share the following information with me, I will feed

it into NICE:

How did you get into a diagnostic assessment - what was your route (through

which professional or pathway)

What happened, and what decisions were made when for your child, when were they

made and by whom, how long did it all take?

What worked well

What didnt work well or was problematic

Given what you know now, what would you want changed?

Please reply here or direct to my off list e mail if you want zoet @

consultancynorthwest.com (no spaces)

Thaks

Zoe

www.brightfuturesautism.com