Thanks to everyone

[Guest guest]

I have read all your responses and now that we got a babysitter

tonight and hubby and I went out for ice cream, I am in a better

frame of mind for tomorrow.

Sara has been on Augmentin since August,a ct scan Nov 19 showed 2

sinuses cavities still infected and 2 clear,the hope was that three

more weeks of Augmentin would do the trick but after a few days off

the meds she is very sick and back on them. I guess my mistake was

telling her to take the meds so she can get better but she knows she

is not better. I think letting her draw how she feels is a great

idea,and she may be 4 but she will tell you exactly what she thinks

so I should let het loose on the Dr too!

As for her feeding issues,both my girls have CVID,asthma,and a rare

protein intollerance so they cannot tolerate food,they have allergic

reactions but they are not IgE,they are t-cell mediated which makes

things harder. They both get IVIG every 28 days and since the summer

we have been introducing babyfood but it isnt going like we had

hoped,they can each eat about 5 foods but it has to be just perfect

or they wont eat it. Pineapple juice has gone well but we dont give

it to her due to extra calories but I would try mixing the med in.

We try to let her make her own choices since we had a bout with

obsessive compulsion in the past,she is normally an angel and makes

great decisions on her own so tonight I asked her if she wanted to

try the pills instead of the liquid next time and she said yes but I

will ask her again before I get it refilled. You have all been really

helpful and I cant thank you enough.

mom to Sara and Casey both CVID

(and baby due 2/23)