Guest guest Posted December 28, 2002 Report Share Posted December 28, 2002 from Dale, Mom to Katy, CVID, age 18 -- you ought to see an 18 year old with sinus behavior!!! Only kidding -- NO ONE should see that!!!! But seriously, sometimes I think we over protect our doctors from our kids. The doctor needs to hear this from Sara!!! The doctors started really listening when I let Katy do the talking and screaming and yelling at them. I told Katy she could tell the doctor exactly what she was thinking and feeling and I started letting them work out their relationship. You'll find that kids who are chronically ill need that sense of power. If you don't think Sara is ready for that -- have her draw pictures to share with her doctor that tell him/her how frustrated she is. The doctors need to hear it. I also found that my doctor felt more " useful " because she could at least listen to Katy's frustration even when she couldn't solve the problems. Katy negotiated deals with her pediatrician -- I'll try this -- I won't try this -- I'll do this but only when I decide I need it, etc. It REALLY made a difference for Katy to feel that she had that control. Now, we're talking age 11, not 4 -- but Sara's been dealing with this for a long time. See what you can do to help her communicate her frustration. She can dictate a letter for you to write, color a picture of where it hurts, draw a picture to show how angry she is, etc. Hope that helps. In His service, Dale Quote Link to comment Share on other sites More sharing options...
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