Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Aly, Do you go to the Kaiser facility in Anaheim on Lakeview? I used to use them. Some well meaning doctors, some NOT just like everywhere. But if you take in your hair analysis and challenge test report in to them, HOW can they argue with you? I went ahead and paid for the hair analysis ($45) so I'd have something in hand when I began requesting the chelation therapy. Turned out I didn't need to do the challenge test because her mercury level was the highest of all the elements (off the chart) and lead's really high, too. I used the Osteopathic Doctor to get the Chemet prescription (although he gave me horrific instructions - 1/4 capsule ONCE A DAY for a week, then 1/4 capsule EVERY 12 HOURS for a week, etc. I'm giving her 1/4 capsule every 4 hours and she's doing wonderfully so far (just finished the first day). I then went to our insurance-covered doctor to request chelation so that I could get our insurance to cover the Rx and the tests. I'm having Dr. Amy's office send him her protocol and he said he won't prescribe Chemet until he reviews it. okay, la la la. Then when I told my daughter's psychiatrist about her hair analysis and my plans to chelate, he took an interest and requested a copy of her report and information about mercury toxicity and chelation so he's reviewing that and may come aboard, too. I hope you don't let yourself feel stupid when you dont' feel you're getting your message across to the doctors. Believe in yourself and don't give up or give in, either! ps - the gastroenterologist wouldn't come close to considering secretin infusion for my daugher, either. She did get one through an autism reasearch project at a local university but I didn't like it's effects. [ ] DMSA/LA:Another View > > > > > > > > > Taken from: http://www.mercola.com/2000/oct/1/mercury_autism.htm > > > > > > > > > > > > Autism and Mercury Detoxification > > > P. Kane, Ph.D. and J. Mercola, D.O. > > > > > > Recently, it has been proposed that autism may be the aftermath of > > > exposure > > > to mercury such as ethyl mercury used as a preservative, thimerosal, > > > in > > > pediatric vaccinations. The article in this newsletter issue reviews > > > this > > > evidence. > > > > > > Currently Recommend Pediatric Mercury Protocol > > > > > > The protocol is always being improved. Drs. Klinghardt, Kane and > > > Mercola > > > revised this in September 2000 and the most current recommendation > > > can > > > be > > > found by clicking here. Small changes are likely to be regularly > > > posted > > > but > > > we will likely revise the protocol in December when we all are > > > presenters at > > > the Healing Your Brain 2000 Seminar. > > > > > > We currently are planning hold a one day workshop at the American > > > Academy of > > > Environmental Medicine to invite some of the top clinicians in > > > mercury > > > detoxification to further improve the program. Additionally, Wayne > > > Obie, of > > > TalkInternational.com is planning on facilitating an international > > > collaboration on a revised mercury detoxification program. > > > > > > What is DMSA and Why Don't We Recommend It? > > > > > > DMSA is a FDA currently approved drug. It is a mixed disulfide in > > > which > > > each > > > of the sulfur atoms is in disulfide linkage with a cysteine molecule > > > forming > > > water soluble chelates which increases the urinary excretion of > > lead. > > > > > > There are a number of physicians who have started to use DMSA to > > > remove > > > the > > > mercury from children with autism. The dose used for mercury > > > detoxification > > > is much lower than that for lead and many children seem to have > > > received > > > benefit from this approach. > > > > > > A time released DMSA is being used for 7 days on, 7 days off or 3 > > > days > > > on, 4 > > > days off for an extended period of time (up to 6 months). > > > > > > However, some natural medicine clinicians have some serious concerns > > > about > > > the use of DMSA. There have been cases of: > > > > > > > > > seizures > > > > > > increased self-stimming > > > > > > and compromised central nervous system function in some children. > > > > > > > > > DMSA and Mercury Redistribution To The Brain > > > > > > It appears that DMSA and lipoic acid can create tissue > > redistribution > > > of > > > mercury as decreasing Hg levels in the kidney (the organ > > accumulating > > > Hg most > > > abundantly) increases Hg concentrations of Hg in blood, brain, lung, > > > heart, > > > muscle and liver (Gregus et al). > > > > > > Natural medical physicians throughout the US have reported MS > > > symptoms > > > in > > > adults and intractable seizures in pediatric patients with high dose > > > and > > > extended use of DMSA (2, 3-dimercaptosuccinic acid), Chemet or > > > Succimer. > > > > > > Other Problems With DMSA > > > > > > Extended use of DMSA can cause mild to moderate neutropenia with > > > increased > > > SGOT, SGPT, Platelet count, Cholesterol, Alkaline Phosphatase and > > > Blood > > > Urea > > > Nitrogen (BUN). Adverse reactions to DMSA include ataxia, > > > convulsions, > > > rash, > > > nausea, diarrhea, anorexia, headache, dizziness, sensorimotor > > > neuropathy, > > > decreased urination, arrhythmia, infection. Zinc excretion doubles > > > during the > > > administration of DMSA. Patients must be kept hydrated as renal > > > function can > > > be compromised. > > > > > > For the above described reasons in all good conscious we can not > > > recommend > > > the use of DMSA for the treatment of mercury toxic pediatric > > patients. > > > > > > Approaching the fragile brain architecture of young children with > > > autism, PDD > > > and seizure disorders brings about tremendous responsibility in > > > protecting > > > the children from invasive interventions that risk alteration in > > > brain > > > function. > > > > > > Hair Analysis For Diagnosis and Treatment > > > > > > First, a determination must be made if, in fact, there is a heavy > > > metal > > > burden and if so specifically which heavy metals are involved such > > as > > > aluminum, mercury, lead or others. > > > > > > This is the reason why hair analysis is a recommended initial > > screen. > > > At this > > > time we only advise two labs for this determination. Trace Elements > > > in > > > Austin, Texas and Analytical Research in Arizona. > > > > > > Both of these labs do not wash the hair samples prior to analysis. > > > This > > > is a > > > key factor to proper interpretation of the other nontoxic minerals. > > > > > > Other labs would likely give proper heavy metal results, but the > > > interpretation of the other minerals is key to an effective > > > supplementation > > > program. Chelation removes other minerals aside from mercury and > > > these > > > must > > > be replaced properly if one wished to avoid complications. > > > > > > Establishing Metabolic Stability Prior To Detoxification > > > > > > One must be relatively healthy to sustain the process of > > > detoxification. Once > > > metabolic stability is established physicians often find that gentle > > > biological interventions clear heavy metal burdens without the need > > > for > > > medication that holds the potential risk of negative side effects or > > > merely > > > redistribution of heavy metals. > > > > > > Clearing heavy metals may be approached by first reestablishing the > > > mineral > > > base, supporting biliary function/ digestion, insuring the patient > > is > > > properly hydrated (children with autism are frequently dehydrated), > > > and > > > most > > > importantly supporting hepatic function and metabolism > > > > > > Adults with heavy metal toxicity generally have significant > > > suppression > > > of > > > omega 6 arachidonic acid and a significant elevation of very long > > > chain > > > fatty > > > acids (Kane) as the cellular impact of heavy metals burdens block > > > receptor > > > sites such as G proteins and ultimately suppress the beta oxidation > > > of > > > lipids > > > and cellular respiration. > > > > > > Children with autism consistently present with an elevation of > > VLCFAs > > > However, red cell lipid levels of arachidonic are variable, elevated > > > in > > > some > > > patients while deeply suppressed in others. > > > > > > Dietary Fat Intervention Must Be Considered > > > > > > Administration of fish oils suppresses omega 6 and structural lipids > > > and this > > > will suppress the production of arachidonic acid. To balance fat > > > metabolism > > > it is crucial to stabilize omega 6 fatty acids and arachidonic acid > > > before > > > introducing omega 3 lipids. > > > > > > Patient outcomes may be compromised if one uses fish oils prior to > > > omega 6 > > > fatty acids. The omega 6 fatty acid of choice would be evening > > > primrose > > > oil. > > > Additionally, supporting the digestion of fats with bile salts and > > > lipase is > > > frequently required to maximize fat absorption and digestion. > > > > > > Japan and Mercury Exposure Example > > > > > > The impact of Hg upon human health was brought to light in the > > > mid-50s > > > with > > > the Minamata disaster in Japan. As noted in the documentary 'Message > > > to > > > Minamata to the World' the impact of Hg is devastating, most > > > prominently to > > > the CNS. Interestingly, autistic behavior can observed in the > > > documentary of > > > Minamata children in original footage after the disaster. > > > > > > In 1993 Kane found an interesting correlation in the literature > > > between > > > autism and Hg with the occurrence of autism presenting in adulthood > > > occurring > > > in Japan. The presentation of autism in these individuals was linked > > > to > > > ornithine transcarbamylase deficiency, the most common urea cycle > > > defect. > > > Damage to this enzyme can occur with exposure to mercury. > > > > > > Low levels of ornithine transcarbamylase (OTC) leads to states of > > > hyperammonemia, seizures and stroke. The enzyme OTC controls > > ammonia, > > > critical issues in states of epilepsy and autism. The often spacy, > > > confused > > > behavior 'brain fog' that is frequently observed in these disorders > > > may > > > be > > > attributed states of hyperammonemia as ammonia reaches the brain. > > > > > > Suggested treatment of mildly suppressed levels of OTC includes > > > sodium > > > benzoate and phenylacetate. However, Kane and other clinicians have > > > observed > > > positive clinical usefulness of Ca/Mg butyrate, digestive > > > intervention > > > targeted to biliary flow, appropriate buffers, and stabilization of > > > electrolytes and the trace mineral base. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Hi -HUGS. Why should any one person's opinion count more than others on this list-or any other list? You're doing people a favor by putting out an alternative voice, if an unpopular one. I know for a fact that Kane told all of the DAN doctors four years ago that mercury was the problem in autism. Credentials or not, sahe was right. I don't know if you realize this, but Pat isn't the best at diplomacy. Many people take offense at her bluntness. And I haven't heard ANY of those doctors admit that it was PAT who put them onto mercury. I am so sick of everyone following each other like lemmings. Pat told people that giving glutathione to kids was dangerous, and it was. She told people that kids with fatty acid problems would have problems handling secretin unless fatty acids were given, and they did. She practically got kicked out of a medical meeting for saying that over use of IVIG was dangerous for some kids. It was. That one got dropped quietly too. The enthusiasm over secretin is dying out because it's not a cure. Why can't people work together to figure this out? Why does one person's way ALWAYS have to be right? I think I need a break from this list for awhile. Re: [ ] Re: DMSA/LA:Another View >, I don't think this letter was in anyway an attempt to scare >anyone away from detoxing their child. Clearly it seems that some >children will stand to benefit, but how that is done is important, >and we should strive to have as many opinions as possible, so that >somewhere a safe protocol can be delivered. > It is funny how some people can crucify someone for using a > " pen name " when they themselves do this when they feel the need. > Kane Ph.D. was driven away from posting publicly, thanks >to others that felt like they had right to do this to another person. > If anyone wants to know about Dr.Kane's credentials, well they can >e-mail or call AAEM, I will give them the number and address if >they would like. There are others on this list, that have already >contacted them, and even though they know, still they persist like they >don't already know. > In the DMSA article it says: >Any detoxification regimen requires the bowels to be fully functioning. >If a patient is constipated, normal bowel function should be restored >prior to DMSA chelation. >http://www.thorne.com/altmedrev/.fulltext/5/3/264.html > Now my child did not have normal bowel function until we started the >Bodybio treatment, but when I tried to talk about this treatment on >the lists. I was shot down, and now I don't even want to talk about >it any longer. These others drove me away, and that is too bad... >too bad for us all. > I am fed up with the bashing and slandering, and I was shocked about >what was said about Amy, but how do you stop it? > Best, Forrest's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 I know, it use to bother me, but I have learned that there are those that love and worship Dr.Kane, and there are those that would burn her at the stake, if only they had the chance! <smile> I never thought we would get divided over something many of us find as our life line. I keep hoping that it will all blow over, but the near mention of Dr.Kane seems to bring out the worst in some of us. And the attacks on me! I am evil? I laughed so hard, it brought tears to my eyes! My husband said what did you do, enter the twilight zone? <smile> As far as I can tell, none of them have had done the treatment. And they are probably better off without it, it is a lot of work, you have to get in the kitchen and start cooking!!! <smile> Dr.Kane is a dietary consult, she doesn't work directly with parents, and I think that might have caused some hostile feelings among a few parents, that thought that she would personally walk them through the program. I talk with Dr.Kane often, but she has never given me any special attention because of Forrest. I have never asked her. I have spoken with the family that Dr.Kane wrote an article about several years back, and the conversation is about the same as it is with other families that have had the same success that we have... we end up sharing recipes! You can do the Bodybio treatment two ways, you can use the foods that she recommends or you can use the supplements. In some cases, I did use the supplements, but mostly my husband and I worked on the diet, really the key to our success. I hear others poking fun at the some of the foods on the list, but we have gotten Forrest to eat some of these foods, not in high quantities, but we consistently got them into his diet. And they helped! I suppose that I sort of snicker when they throw out slashing remarks about the food list, because that was majority of the reason that he did so well. I shudder now, when I read other parents list out their child's dietary restrictions, and I think that use to be us! Not anymore, thanks to the bicarbonates and electrolytes, his food list has multiplied, and it didn't necessarily have to contain gluten and casein. I am rather proud to say that the only dietary restriction that my son has is chocolate, there are substitutions, like butter for margarine, and a dozen other oils to replace canola and vegetable oils, but that is it. It took me many years before we decided on the Bodybio treatment, my only regret is that we didn't start this sooner. Best, Forrest's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Can you email me your list of foods? I know it varies, I want to compare what I have with yours? From what I can remember, ryan doesn't convert delta 6, which means less carbos for him? Kathy Re: [ ] Re: DMSA/LA:Another View > I know, it use to bother me, but I have learned that there >are those that love and worship Dr.Kane, and there are those that would >burn her at the stake, if only they had the chance! <smile> > I never thought we would get divided over something many of us >find as our life line. I keep hoping that it will all >blow over, but the near mention of Dr.Kane seems to bring >out the worst in some of us. > And the attacks on me! I am evil? I laughed so hard, it brought >tears to my eyes! My husband said what did you do, enter the >twilight zone? <smile> As far as I can tell, none of >them have had done the treatment. And they are probably better >off without it, it is a lot of work, you have to get in the kitchen >and start cooking!!! <smile> > Dr.Kane is a dietary consult, she doesn't work directly with >parents, and I think that might have caused some hostile feelings >among a few parents, that thought that she would personally walk >them through the program. > I talk with Dr.Kane often, but she has never given me any special >attention because of Forrest. I have never asked her. I have spoken >with the family that Dr.Kane wrote an article about several years >back, and the conversation is about the same as it is with other >families that have had the same success that we have... we end up >sharing recipes! > You can do the Bodybio treatment two ways, you can use the foods >that she recommends or you can use the supplements. In some cases, >I did use the supplements, but mostly my husband and I worked on the >diet, really the key to our success. > I hear others poking fun at the some of the foods on the list, but >we have gotten Forrest to eat some of these foods, not in high >quantities, but we consistently got them into his diet. And they helped! > I suppose that I sort of snicker when they throw out slashing remarks >about the food list, because that was majority of the reason that he >did so well. > I shudder now, when I read other parents list out their child's >dietary restrictions, and I think that use to be us! Not anymore, >thanks to the bicarbonates and electrolytes, his food list has >multiplied, and it didn't necessarily have to contain gluten and casein. > I am rather proud to say that the only dietary restriction that my >son has is chocolate, there are substitutions, like butter for >margarine, and a dozen other oils to replace canola and vegetable oils, >but that is it. > It took me many years before we decided on the Bodybio treatment, >my only regret is that we didn't start this sooner. > Best, Forrest's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Kathy, At the bottom is just the general list that we went by, before we got the blood tests back, most important was that he get one egg per day. There is pecans (we made cookies), sunflower seeds (we made breads), sesame seeds (gravies and sauces, plus you can make sunflower seed flour), almonds (we made cookies again, and some went in sauces), pineapple, pickled beets, oranges, meat fat, butter, coconut, ginger, buckwheat, berries, legumes, kiwi, papaya, poultry, fizzy fluids, cottage cheese, ricotta cheese (remember we opted to include gluten and casein), so there was cream, but not milk. The beans were Northern (navy, pinto, or great northern) or Southern beans (lentils, kidney, black eyed peas, black or butter beans) Meats were chicken, lamb, turkey, tuna, salmon, and sardines). Avocado, shrimp, nutmeg, thyme oil, black pepper, venison, hearts of palm, and parsley. I am really proud of what were were able to accomplish, we got far more than what we thought we were going to get into his diet. Best, Forrest's Mom Unrefined oils and fats Sesame oil safflower oil sunflower oil soy oil organic butter coconut butter clarified chicken fat various nut butters Raw Nuts and Seeds almonds sesame pecans sunflower flax pistachios Whole Grains (excluding gluten if not tolerated) High Quality Protein Foods free range meats poultry fish legumes/beans eggs Unrefined Carbohydrates potatoes buckwheat brown rice starchy veggies Fresh Vegetables raw and cooked veggies avocado, mushrooms dark green leafy orange/ yellow veggies Raw Fruit berries, kiwi, papaya citrus fruits, pineapple whole blended fruit avoid heated fruit juices Purified water- very important Organic Dairy Products- if tolerated soft cheeses butter, cream milk,yogurt feta cheese Pure Seasonings Organic herbs fresh ginger celtic sea salt garlic, kelp, spices vinegar, lemon juice fresh ground pepper Pure Sweetners - in moderation Jim Blanco wrote: > > > Can you email me your list of foods? I know it varies, I want to compare > what I have with yours? From what I can remember, ryan doesn't convert > delta 6, which means less carbos for him? > Kathy > Re: [ ] Re: DMSA/LA:Another View > > > I know, it use to bother me, but I have learned that there > >are those that love and worship Dr.Kane, and there are those that would > >burn her at the stake, if only they had the chance! <smile> > > I never thought we would get divided over something many of us > >find as our life line. I keep hoping that it will all > >blow over, but the near mention of Dr.Kane seems to bring > >out the worst in some of us. > > And the attacks on me! I am evil? I laughed so hard, it brought > >tears to my eyes! My husband said what did you do, enter the > >twilight zone? <smile> As far as I can tell, none of > >them have had done the treatment. And they are probably better > >off without it, it is a lot of work, you have to get in the kitchen > >and start cooking!!! <smile> > > Dr.Kane is a dietary consult, she doesn't work directly with > >parents, and I think that might have caused some hostile feelings > >among a few parents, that thought that she would personally walk > >them through the program. > > I talk with Dr.Kane often, but she has never given me any special > >attention because of Forrest. I have never asked her. I have spoken > >with the family that Dr.Kane wrote an article about several years > >back, and the conversation is about the same as it is with other > >families that have had the same success that we have... we end up > >sharing recipes! > > You can do the Bodybio treatment two ways, you can use the foods > >that she recommends or you can use the supplements. In some cases, > >I did use the supplements, but mostly my husband and I worked on the > >diet, really the key to our success. > > I hear others poking fun at the some of the foods on the list, but > >we have gotten Forrest to eat some of these foods, not in high > >quantities, but we consistently got them into his diet. And they helped! > > I suppose that I sort of snicker when they throw out slashing remarks > >about the food list, because that was majority of the reason that he > >did so well. > > I shudder now, when I read other parents list out their child's > >dietary restrictions, and I think that use to be us! Not anymore, > >thanks to the bicarbonates and electrolytes, his food list has > >multiplied, and it didn't necessarily have to contain gluten and casein. > > I am rather proud to say that the only dietary restriction that my > >son has is chocolate, there are substitutions, like butter for > >margarine, and a dozen other oils to replace canola and vegetable oils, > >but that is it. > > It took me many years before we decided on the Bodybio treatment, > >my only regret is that we didn't start this sooner. > > Best, Forrest's Mom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 It looks generally like my list as well. Where do you get your electrolytes from? Tuna would be off my list personally. I have to absolutely force feed most of these foods, he is rather picky, but it can be done, dog gone it. Thanks so much! Kathy Re: [ ] Re: DMSA/LA:Another View >> >> > I know, it use to bother me, but I have learned that there >> >are those that love and worship Dr.Kane, and there are those that would >> >burn her at the stake, if only they had the chance! <smile> >> > I never thought we would get divided over something many of us >> >find as our life line. I keep hoping that it will all >> >blow over, but the near mention of Dr.Kane seems to bring >> >out the worst in some of us. >> > And the attacks on me! I am evil? I laughed so hard, it brought >> >tears to my eyes! My husband said what did you do, enter the >> >twilight zone? <smile> As far as I can tell, none of >> >them have had done the treatment. And they are probably better >> >off without it, it is a lot of work, you have to get in the kitchen >> >and start cooking!!! <smile> >> > Dr.Kane is a dietary consult, she doesn't work directly with >> >parents, and I think that might have caused some hostile feelings >> >among a few parents, that thought that she would personally walk >> >them through the program. >> > I talk with Dr.Kane often, but she has never given me any special >> >attention because of Forrest. I have never asked her. I have spoken >> >with the family that Dr.Kane wrote an article about several years >> >back, and the conversation is about the same as it is with other >> >families that have had the same success that we have... we end up >> >sharing recipes! >> > You can do the Bodybio treatment two ways, you can use the foods >> >that she recommends or you can use the supplements. In some cases, >> >I did use the supplements, but mostly my husband and I worked on the >> >diet, really the key to our success. >> > I hear others poking fun at the some of the foods on the list, but >> >we have gotten Forrest to eat some of these foods, not in high >> >quantities, but we consistently got them into his diet. And they helped! >> > I suppose that I sort of snicker when they throw out slashing remarks >> >about the food list, because that was majority of the reason that he >> >did so well. >> > I shudder now, when I read other parents list out their child's >> >dietary restrictions, and I think that use to be us! Not anymore, >> >thanks to the bicarbonates and electrolytes, his food list has >> >multiplied, and it didn't necessarily have to contain gluten and casein. >> > I am rather proud to say that the only dietary restriction that my >> >son has is chocolate, there are substitutions, like butter for >> >margarine, and a dozen other oils to replace canola and vegetable oils, >> >but that is it. >> > It took me many years before we decided on the Bodybio treatment, >> >my only regret is that we didn't start this sooner. >> > Best, Forrest's Mom >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Kathy, I know that tomatoes were not on his list, but you would be surprised at what you can hide in tomato paste!! Yes, heart of palms! You can call Emerson Ecologics 1-800-654-4432, I mix that up by the gallon of spring water, and I use it to cook pasta, and boil rice, plus I put it in sauces, anything that requires water. I still use the fish, but you can take any meat and ground it up, add one egg, and mix in some crushed cracker, and lightly fry them, they make great finger or snack foods, plus it is another use for the egg. I have been getting DHA eggs, but I did write to the company to find out whether they have tested for mercury. This is their site address, these eggs are loaded with vitamins. http://www.goldcirclefarms.com/info.htm They are a great source of vitamin A, B12, DHA, vitamin E, and vitamin D. I hope they check out on the mercury. Best, Forrest's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 May I ask what gains you saw when implementing this diet? Kathy Re: [ ] Re: DMSA/LA:Another View >Kathy, I know that tomatoes were not on his list, but you would >be surprised at what you can hide in tomato paste!! Yes, heart of palms! > You can call Emerson Ecologics 1-800-654-4432, I mix that up by >the gallon of spring water, and I use it to cook pasta, and boil rice, >plus I put it in sauces, anything that requires water. > I still use the fish, but you can take any meat and ground it up, >add one egg, and mix in some crushed cracker, and lightly fry them, >they make great finger or snack foods, plus it is another use >for the egg. I have been getting DHA eggs, but I did write to >the company to find out whether they have tested for mercury. > This is their site address, these eggs are loaded with vitamins. >http://www.goldcirclefarms.com/info.htm > They are a great source of vitamin A, B12, DHA, vitamin E, and >vitamin D. I hope they check out on the mercury. > Best, Forrest's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Kathy, We started out with the bethanechol, my son was non-verbal, no words for several years, for whatever few he ever had. He said a couple of words on the second day that we used the bethanechol, but then it turned into a nightmare, he was extremely agitated, and we had to stop. I wasn't all that sure about the g-protein, but I knew from previous testing that he had deficiencies in fatty acids, so that is where I looked next, and so I went to the person that I felt knew the very most about Fatty acids. Dr.Kane...I got some tips from her that the cod-liver oil might be rancid or that maybe he needed to balance his fatty acid ratio, so I got a different brand of cod-liver oil, and put him on primrose oil, and started the diet, plus I went back and tried the bethanechol again, this time, he did begin to say words regularly, and they just increased over the summer months when we really went full stream with these foods. He was writing any word that I put in front of him on a flash card, plus he was writing from many books, as long as it was just a sentence or two. Then I could say some words, and he could write them down, so started pushing him to say them. All summer, I don't think we had any episodes, any violent behavior, until he went back to school, and we were letting him eat the school lunches, he must have had stomach pain, and they didn't know that sodium bicarbonate would have fixed that problem, but anyway, we are going to have to start sending his lunches, he did last a long time, as long as I made up for the nutrition with dinner and breakfast. The bicarbonates helped him ease into the newer foods, and the foods are what were healing him. Like his stomach and reflux, and general digestion. We kept him on the butyrate until his bowel movements normalized, it took a while, before we could wean him completely off of that supplement. The foods were a very critical part of the success. What we saw/heard were WORDS, and he calmed down, he wasn't destructive anymore, and wanted to write, he enjoyed it like it wasn't a chore anymore. Best, Forrest's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Tomatoes contain a natural salyciatate. Not good for PST kids (see www.feingold.org ) Kathy Re: [ ] Re: DMSA/LA:Another View >Kathy, I know that tomatoes were not on his list, but you would >be surprised at what you can hide in tomato paste!! Yes, heart of palms! > You can call Emerson Ecologics 1-800-654-4432, I mix that up by >the gallon of spring water, and I use it to cook pasta, and boil rice, >plus I put it in sauces, anything that requires water. > I still use the fish, but you can take any meat and ground it up, >add one egg, and mix in some crushed cracker, and lightly fry them, >they make great finger or snack foods, plus it is another use >for the egg. I have been getting DHA eggs, but I did write to >the company to find out whether they have tested for mercury. > This is their site address, these eggs are loaded with vitamins. >http://www.goldcirclefarms.com/info.htm > They are a great source of vitamin A, B12, DHA, vitamin E, and >vitamin D. I hope they check out on the mercury. > Best, Forrest's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Have you lived my life? Anyways, kuddos to all you said here. Really looking into the fatty acid issue has helped my son loads. More than anything else I tried, I believe. Unfortunately, CLO was disasterous for . This also increased seizures at it was from Kirkmans! So we looked back and it was plain in front of me, he needed to first work on EPO first, then go on CLO, that was the kicker. I have not done Bethenaacol becuase I read some pretty awful things about it on some medline searches. That along with clues that he has a myelin eating type of antibody, made me very worried it could eat more. And to make this issue even more interesting, my daughter semi recovered from autism actually did WONDERFULLY on CLO. So there you go, in the same family, different biochemical makeups, or levels of damage to the brain so to speak. I know williss would have loads to speak of on this subject, and I am going to forward this response to him, I know he can add more than I! (all who have the williss paper, get it out and read about EPO and CLO PLLLEEEEZ) Kathy Re: [ ] Re: DMSA/LA:Another View >Kathy, We started out with the bethanechol, my son was non-verbal, >no words for several years, for whatever few he ever had. He said a >couple of words on the second day that we used the bethanechol, but >then it turned into a nightmare, he was extremely agitated, and >we had to stop. I wasn't all that sure about the g-protein, but >I knew from previous testing that he had deficiencies in fatty >acids, so that is where I looked next, and so I went to the >person that I felt knew the very most about Fatty acids. > Dr.Kane...I got some tips from her that the cod-liver oil might >be rancid or that maybe he needed to balance his fatty acid >ratio, so I got a different brand of cod-liver oil, and put him >on primrose oil, and started the diet, plus I went back and >tried the bethanechol again, this time, he did begin to say words >regularly, and they just increased over the summer months when >we really went full stream with these foods. He was writing any >word that I put in front of him on a flash card, plus he was >writing from many books, as long as it was just a sentence or >two. Then I could say some words, and he could write them down, >so started pushing him to say them. All summer, I don't think >we had any episodes, any violent behavior, until he went back >to school, and we were letting him eat the school lunches, he >must have had stomach pain, and they didn't know that sodium >bicarbonate would have fixed that problem, but anyway, we are >going to have to start sending his lunches, he did last a long >time, as long as I made up for the nutrition with dinner and >breakfast. The bicarbonates helped him ease into the newer >foods, and the foods are what were healing him. Like his stomach >and reflux, and general digestion. We kept him on the butyrate >until his bowel movements normalized, it took a while, before >we could wean him completely off of that supplement. The foods >were a very critical part of the success. What we saw/heard were >WORDS, and he calmed down, he wasn't destructive anymore, and >wanted to write, he enjoyed it like it wasn't a chore anymore. > Best, Forrest's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2000 Report Share Posted October 4, 2000 In a message dated 10/2/2000 3:40:22 PM Eastern Daylight Time, carltonl@... writes: << We kept him on the butyrate until his bowel movements normalized, it took a while, before we could wean him completely off of that supplement. >> Hi could you tell me what this butyrate is and what kind of biocarbonates you used thanks kelly Quote Link to comment Share on other sites More sharing options...
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