Jump to content
RemedySpot.com

Re: Re: Autism mortality stats

Rate this topic


Guest guest

Recommended Posts

Respectfully disagree. My Jenna is not " medically sick " . She has a, I

don't know, " condition " (?) that prevents her from doing things in an

expected fashion. But you will rarely find a healthier child. My

husband and I have discussed this on several occasions. Maybe it's the

vitiams; maybe it's that she does not feel pain the way others do, who

knows.

But in our house at least, the ASD individual is the healthy one.

Valeri

Re: Autism mortality stats

For what ever reason few are looking at autism beyond behavior.We

don't have children that are normal beyond brain issues.These are

medically sick kids ,everytime someone remarks on the fact their

autistic kid is never sick when every other member of the family is

sick I recognize it as a huge red flag.That was my kid who is now

rolling one autoimmune disease into another and one regression after

another.We have been taking a serious look at autism with my

daughters ped.neuro who is involved in clinical research locally.What

she is finding is a level of dysautonomia.What we thought of as

seizure behavior are periods of her blood pressure dropping suddenly

and dangerously.She is looking for similarities in other autistics

and finding them.Agnes

> Oh my God! Me too, in the dark, I mean. Never thought about this

issue. I

> would like to hear more on this topic as well. Like there isn't

enough to

> worry about already, but I would like to know more. Are there

things to watch

> for? Or things to avoid? Or things to do to decrease the risks? Why

would the

> mortality rate be an issue at all? Thanks for any and all info.

Link to comment
Share on other sites

high percentages of people with autism get seizures, I can explain why but

twould make a couple of emails to explain, to be more succint, go to

www.ccid.org

Kathy

Re: Autism mortality

> > > > stats

> > > >

> > > > I'm interested too. really this is the first I've

> > > > heard this

> > > > mentioned.

> > > > Have I been in the dark on this issue?

> > > >

> > > >

> > > >

> > > >

> > > >

Link to comment
Share on other sites

in total agreement, would like to see Jyonouchis study, this speaks volumes

of the stealth virus! (could you send them to me :0)

www.ccid.org

Kathy

Re: Autism mortality stats

> I respectfully disagree.Children with autism have something that is

> wrong with the body causing the brain effects.If autism was merely

> brain damage that child might actually be healthy.

> Not feeling pain in the way others do is a symptom of

> dysautonomia.This and ten other things are common in autistics and

> are considered symptoms of autism.Another of the most common findings

> of autistics is atypical immune findings.Everything from Tcells to

> Bcells and complement systems are reved up to high or too low.What

> Immunologist have found is both ends of a pendulem.Jyonouchi's study

> which is most recent includes well over 100 autistics and you can

> diferentiate autistics from normal healthy siblings.She is only

> looking at cytokines.Agnes

> > > Oh my God! Me too, in the dark, I mean. Never thought about this

> > issue. I

> > > would like to hear more on this topic as well. Like there isn't

> > enough to

> > > worry about already, but I would like to know more. Are there

> > things to watch

> > > for? Or things to avoid? Or things to do to decrease the risks?

> Why

> > would the

> > > mortality rate be an issue at all? Thanks for any and all info.

> >

> >

> >

> >

> >

> >

Link to comment
Share on other sites

My child is a healthy one too. she gets head colds like everyone else. she

is a fussy eater, and does not eat vegies, but i try to get her to eat fruit

and things on bread, and give her an iron supplement throughout the week. I

don't know, i don't wish to " stay in the dark " where autism is concerned,

but i don't want to sit here and worry about things that may or may not ever

happen with my child. I have enough to think about at present, just getting

her through each day at school, maybe i'm sticking my head in the sand. i'm

not going to take on too much here at present. I don't understand autism, i

don;t understand how my daughters brain works, {i wish the heck i did!!},

but i just have to deal with it the best way i know how. i'm sounding a bit

depressed aren't I. I guess, i've come to a conclusion that if we just

concentrated more on our kids than trying to find a reason for everything

all the time, our kids might be better off. No we should not put everything

down the the fact that they are autistic, as i think being autistic should

not mean your daughter is going to have heavier periods,[why should it]. I

guess i want to try and treat Hannah as " normal " as possible as she does

have an older sister and younger brother. i'll finish as i'm raving now. can

anyone see what i'm saying???? or doesn't any of it make any sense??? cheryl

Re: Autism mortality stats

For what ever reason few are looking at autism beyond behavior.We

don't have children that are normal beyond brain issues.These are

medically sick kids ,everytime someone remarks on the fact their

autistic kid is never sick when every other member of the family is

sick I recognize it as a huge red flag.That was my kid who is now

rolling one autoimmune disease into another and one regression after

another.We have been taking a serious look at autism with my

daughters ped.neuro who is involved in clinical research locally.What

she is finding is a level of dysautonomia.What we thought of as

seizure behavior are periods of her blood pressure dropping suddenly

and dangerously.She is looking for similarities in other autistics

and finding them.Agnes

> Oh my God! Me too, in the dark, I mean. Never thought about this

issue. I

> would like to hear more on this topic as well. Like there isn't

enough to

> worry about already, but I would like to know more. Are there

things to watch

> for? Or things to avoid? Or things to do to decrease the risks? Why

would the

> mortality rate be an issue at all? Thanks for any and all info.

Link to comment
Share on other sites

While loads of research and testing may support this and that for the eventually

early demise or not, of our children. What does all this prove? What can

we do about it? I mean, you can detox, reprogram, etc and so forth but

the child still has autism. Whether born or not, vaccine or not. It is

very good to be well aware of what is out there information wise and do

our best to make their lives more livable and enjoyable, but let's look

at something positive!!

I also look at it this way, any of us can have a debilitating accident or

disease and end up autistic like. We would have to go through the same

things. And with a damaged brain, common sense would tell me that something

would have to give elsewhere.

Visit iWon.com - the Internet's largest guaranteed cash giveaway! Click

here now for your " Thank You " gift:

http://www.iwon.com/giftcenter/0,2612,,00.html?t_id=20157

Link to comment
Share on other sites

Cheryl -

I understand you completely

Penny :-)-------------------------------------------------------- " Just remember this: Plenty of Horsepower, No Traction " - R. S. on

" If a man does not keep pace with his companions, perhaps it is because he hears a different drummer.Let him step to the music he hears, however measured or far away. " --Henry Thoreau

Link to comment
Share on other sites

thanks penny, glad someone does!!!!! cheryl

-----Original Message-----From: Penny [mailto:nospam@...]Sent: Thursday, 6 September 2001 1:16 PMAutism_in_Girls Subject: RE: Re: Autism mortality stats

Cheryl - I understand you completely Penny :-)--------------------------------------------------------"Just remember this: Plenty of Horsepower, No Traction" - R. S. on"If a man does not keep pace with his companions, perhaps it is because he hears a different drummer.Let him step to the music he hears, however measured or far away."--Henry Thoreau

Link to comment
Share on other sites

I believe I understand what you are saying, Cheryl,

and I agree.

Both of my daughters who are still at home are healthy

and I think part of it is due to the vitamins they

take. I had to take Jan (the one with autism) to the

doctor with complications due to allergies (I'd had a

similar problem the week before) and the doctor noted

that Jan hadn't had to come to the clinic because she

was sick since 1998!

I also get tired of people trying to relate

everything, every behavior, every DIFFERENCE about my

daughter to autism. " She's left handed " -- with all

the left-handed people on both sides of our families

I'd have been surprised if I hadn't had at least one

child who was. " She repeats dialogue from shows

verbatim " (Yeah, well when my " gifted " daughter was

younger she could recite the whole Charlie Brown Great

Pumpkin cartoon from memory! Our family is very

theatre-oriented and we are always " doing lines " )

Many of the traits Jan displays I see in myself so I

know where she got them.

When it comes right down to it, as far as our

daughters are concerned, what we know about autism is

less important than what we know about how to help

these girls, IMO. Maybe we are each choosing a

different route but hopefully we will all reach the

same destination -- happy daughters who are able to

function in, and adapt well to, this crazy world we

live in!

--- Mark Sommerfeld <cmsommerfeld@...>

wrote:

> My child is a healthy one too. she gets head colds

> like everyone else. she

> is a fussy eater, and does not eat vegies, but i try

> to get her to eat fruit

> and things on bread, and give her an iron supplement

> throughout the week. I

> don't know, i don't wish to " stay in the dark " where

> autism is concerned,

> but i don't want to sit here and worry about things

> that may or may not ever

> happen with my child. I have enough to think about

> at present, just getting

> her through each day at school, maybe i'm sticking

> my head in the sand. i'm

> not going to take on too much here at present. I

> don't understand autism, i

> don;t understand how my daughters brain works, {i

> wish the heck i did!!},

> but i just have to deal with it the best way i know

> how. i'm sounding a bit

> depressed aren't I. I guess, i've come to a

> conclusion that if we just

> concentrated more on our kids than trying to find a

> reason for everything

> all the time, our kids might be better off. No we

> should not put everything

> down the the fact that they are autistic, as i think

> being autistic should

> not mean your daughter is going to have heavier

> periods,[why should it]. I

> guess i want to try and treat Hannah as " normal " as

> possible as she does

> have an older sister and younger brother. i'll

> finish as i'm raving now. can

> anyone see what i'm saying???? or doesn't any of it

> make any sense??? cheryl

>

> Re: Autism mortality

> stats

>

> For what ever reason few are looking at autism

> beyond behavior.We

> don't have children that are normal beyond brain

> issues.These are

> medically sick kids ,everytime someone remarks on

> the fact their

> autistic kid is never sick when every other member

> of the family is

> sick I recognize it as a huge red flag.That was my

> kid who is now

> rolling one autoimmune disease into another and one

> regression after

> another.We have been taking a serious look at autism

> with my

> daughters ped.neuro who is involved in clinical

> research locally.What

> she is finding is a level of dysautonomia.What we

> thought of as

> seizure behavior are periods of her blood pressure

> dropping suddenly

> and dangerously.She is looking for similarities in

> other autistics

> and finding them.Agnes

> > Oh my God! Me too, in the dark, I mean. Never

> thought about this

> issue. I

> > would like to hear more on this topic as well.

> Like there isn't

> enough to

> > worry about already, but I would like to know

> more. Are there

> things to watch

> > for? Or things to avoid? Or things to do to

> decrease the risks? Why

> would the

> > mortality rate be an issue at all? Thanks for any

> and all info.

>

>

>

>

>

>

Link to comment
Share on other sites

Know what you mean, Hannah will do similar things. It could bug us if we let

it, but we try not to let it anymore. she is good at explaining why and what

she is doing, so that is ok. I guess it is when she wants to do it in public

that bugs me, as other people just donlt understand. No they are definitely

not " crazy " , they just have an overactive imagination, and it is a wonderful

thing in many resspects, but sometimes, it would be good if there was a

" stop " button, just for a little while!!!! Cheryl

Re: Autism mortality stats

I agree about not relating everything to the fact that they are

autistic. Running around in the yard and shrieking, while not

pleasant to listen to, is not because she's 'crazy'. If 4 tires are

stacked on top of each other next to my husbands shop and she scoops

up rocks and puts them down the hole, stating " I'm washing them, this

is my washing machine " , I say halleluieh and it's great!! He thinks

it's weird and she should stop because it bugs him...arghhh Deanna

in

Oregon

> > > Oh my God! Me too, in the dark, I mean. Never

> > thought about this

> > issue. I

> > > would like to hear more on this topic as well.

> > Like there isn't

> > enough to

> > > worry about already, but I would like to know

> > more. Are there

> > things to watch

> > > for? Or things to avoid? Or things to do to

> > decrease the risks? Why

> > would the

> > > mortality rate be an issue at all? Thanks for any

> > and all info.

> >

> >

> >

> >

> >

> >

Link to comment
Share on other sites

Yes, i guess that is what i was trying to say. People straight away always

associate everything with autism. i was doing it myself for awhile too i

guess. Not anymore. Just cause they have this problem doesen't mean their

whole body has the problem. you have to try and give them credit, and not be

so protective, [though i am, and always will be i guess]. cheryl

Re: Autism mortality

> stats

>

> For what ever reason few are looking at autism

> beyond behavior.We

> don't have children that are normal beyond brain

> issues.These are

> medically sick kids ,everytime someone remarks on

> the fact their

> autistic kid is never sick when every other member

> of the family is

> sick I recognize it as a huge red flag.That was my

> kid who is now

> rolling one autoimmune disease into another and one

> regression after

> another.We have been taking a serious look at autism

> with my

> daughters ped.neuro who is involved in clinical

> research locally.What

> she is finding is a level of dysautonomia.What we

> thought of as

> seizure behavior are periods of her blood pressure

> dropping suddenly

> and dangerously.She is looking for similarities in

> other autistics

> and finding them.Agnes

> > Oh my God! Me too, in the dark, I mean. Never

> thought about this

> issue. I

> > would like to hear more on this topic as well.

> Like there isn't

> enough to

> > worry about already, but I would like to know

> more. Are there

> things to watch

> > for? Or things to avoid? Or things to do to

> decrease the risks? Why

> would the

> > mortality rate be an issue at all? Thanks for any

> and all info.

>

>

>

>

>

>

Link to comment
Share on other sites

Cheryl,

Everything you said makes perfect sense to me. I too have enough to worry

about without having to panic over mortality rates.

I am choosing to block this piece of info out until someone somewhere can

show me how to prevent it.

It is all very well knowing something may happen, but what's the point if

you don't know how to stop it? I'd rather pretend for now that " snippet of

joy " doesn't affect me or !

Debbie

Link to comment
Share on other sites

I have a NT daughter (), who is 2 1/2, and a daughter who has a

diagnosis of ASD (Jenna), 3 1/2. Because they are so close in age (12

months and 4 days), it's easy to see (now, a year later) how the

" experts " could miss Jenna's Autism. Kids are just kind of weird. A

lot of the things I kept telling Jen's pediatrician about, insisting

they were " signs " of Autism are just things kids do. A couple of weeks

ago Jenna insisted on using a specific plate. She was hysterical and I

chalked it up to Autism. This week freaks if she doesn't have

" the Barney bowl " at every meal. I was just sure Jenna was starting

some new obsession, and she's already over the plate.

It can be hard to relax though, when you were right before and people

pooh-poohed you. There's a tendency to think you are the voice of

reason in all things and everyone else is in denial.

Valeri

Re: Autism mortality stats

I agree about not relating everything to the fact that they are

autistic. Running around in the yard and shrieking, while not

pleasant to listen to, is not because she's 'crazy'. If 4 tires are

stacked on top of each other next to my husbands shop and she scoops

up rocks and puts them down the hole, stating " I'm washing them, this

is my washing machine " , I say halleluieh and it's great!! He thinks

it's weird and she should stop because it bugs him...arghhh Deanna

in

Oregon

> > > Oh my God! Me too, in the dark, I mean. Never

> > thought about this

> > issue. I

> > > would like to hear more on this topic as well.

> > Like there isn't

> > enough to

> > > worry about already, but I would like to know

> > more. Are there

> > things to watch

> > > for? Or things to avoid? Or things to do to

> > decrease the risks? Why

> > would the

> > > mortality rate be an issue at all? Thanks for any

> > and all info.

> >

> >

> >

> >

> >

> >

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...