New with Questions

[Guest guest]

Hi, I am and my 8 month old son, Pierce, has idiopathic scoliosis. We've

been through quite a bit with him - some blue episodes with feedings,

micro-aspirating, severe GERD, milk protein allergy, suspected food

allergies/sensitivities and scoliosis.

The first time we were made semi-aware of it was at 9 weeks old. Long story

short - upon confirmation from chest x-rays he was hospitalized for right upper

lobe pneumonia. While the techs were doing the x-rays, I overheard one say " Does

he have scoliosis? " They said they needed to do a second set because they were

not satisfied with the first. Those x-rays were taken on Feb 26 and a follow-up

set was done on Feb 28.

At his 3 month visit with his pedi, I asked if the radiology reports said

anything about scoliosis (mind you I had been pointing out to our pedi group for

quite some time my concern with his hips/legs pointing to the right of the

infant carrier - it was dismissed as just positioning). He pulled the reports

and both indicated it!

In late March, I took him to ortho #1 (Dr. W). His COBB measurement was 19*. We

followed-up in early June and his COBB measurement was 20*. This past week we

saw ortho #2 (Dr. F). His COBB measurement was 24*. Dr. F said that if we saw a

jump inside of 2 months we will most likely see another jump 3 months from now.

I asked what the next step would be and he said to brace him. He said he is

hesitant to brace because Pierce is about to hit major developmental milestones

(ie crawling, walking).

Is it foolish of me to be worried seeing as how his curve is progressing. I feel

as though both orthos have kind of dismissed my worries. Neither recommend

treatment until a COBB of 30*.

I know that his bones are still pliable. I really don't love the idea of a brace

because it won't correct his curve, it will merely attempt to prevent it from

worsening.

Any advice?? I just don't know what to ask doctors, if I should seek a 3rd

opinion, etc. I am very frustrated.

Thanks!!