Re: Quinn in Cast #2

[Guest guest]

Hi Aimee,Sorry your 2nd visit wasn't a very good one.I would hate to go by myself, hope that never happens.13* is still great! but I can't really answer why he couldn'tget it back to 10*. I wonder too?I'm already anxious about Kaitys 2nd visit and outcome.Hoping for the best possible!As fare as left curves go...I've googled alot about PISand have read on like 2 or 3 sites that left curves seem tobe more common on girls and that a right curve often has a worseprognosis. That's just what Ive read.I think my Kaitys is left too, but her MRI came back clearfor tethered cord or anything like that.No anomilies for her vertebrae or cord.Her MRI was read by the radiologist of course but alsoby the cheif childrens neurosurgen at Childrens Hos.

Detroit. He also said that was clear. Did Dr S tell you about the left curve worry?Best wishes for Quinn, I'm sure she's just fine. mommy to Kaitlyn (14months)50* down to under 10* in 1st cast Sent from my iPodOn Sep 8, 2010, at 11:27 AM, "Aimee" <paplera@...> wrote:

Wow, yesterday was a new experience for me. I took Quinn in to get casted by myself because my husband had to get my other two kids off to preschool. I always feel more calm when he is with me. Quinn was able to be casted. The medication was not an issue.

I think this experience has been a little bit more difficult for the second time around. I saw how much fun she had out of her cast, and how much we all enjoyed having her be "free". She just looked sad yesterday once she was back in her cast. I am sure that most of it was due to the anesthesia that was still in her body, etc., but I felt terrible.

The good news is that she measured 48 degrees, down from 58 degrees in just a nine week period of time. They were able to get her spine to 13 degrees in cast. With her first casting experience, they were able to get her spine down to 10 degrees in cast. I was hoping they would be able to get it back to at least 10 degrees, or less. Can anyone explain this??

Also, one of the doctors commented on her left curve again. He said typically with IIS, the spine curves to the right. He asked me if we have had an MRI done to check for any abnormalities. We have, and thus far she checks out to be okay. He commented that usually a left curve indicates a genetic abnormality, or defect. Does anyone know of a geneticist in the Chicagoland area to whom I can take Quinn to see?? Any references would be great!

Quinn seems to be adjusting to her cast. She is not napping as long in the day, and is crying more than usual, but she is actually better today than she was yesterday.

Aimee

Mom to Quinn, 48* out of cast, 13* in cast #2.

[Guest guest]

Hi! Sierra has a left curve also! She has had a brain & spine MRI & both came back normal! It still worries me! Seems like the left curve is more common in girls! Sierra is thin pheno type so her curve is going down but more slowly. Her body type makes her spine not as flexible ???? I though it would b the other way around! You are so brave to go alone! I would probably be a wreck without my husband there! Let me know if u find out anymore about the left curve being worse! I am gonna ask Dr. K on our 4 th casting Oct. 22nd in Birmingham AL. Take care!Kristi mommy to Sierra 16 mo. 3rd cast 34 degrees down to 17 degrees.Sent From Kristi's i-PhoneOn Sep 8, 2010, at 10:27 AM, "Aimee" <paplera@...> wrote:

Wow, yesterday was a new experience for me. I took Quinn in to get casted by myself because my husband had to get my other two kids off to preschool. I always feel more calm when he is with me. Quinn was able to be casted. The medication was not an issue.

I think this experience has been a little bit more difficult for the second time around. I saw how much fun she had out of her cast, and how much we all enjoyed having her be "free". She just looked sad yesterday once she was back in her cast. I am sure that most of it was due to the anesthesia that was still in her body, etc., but I felt terrible.

The good news is that she measured 48 degrees, down from 58 degrees in just a nine week period of time. They were able to get her spine to 13 degrees in cast. With her first casting experience, they were able to get her spine down to 10 degrees in cast. I was hoping they would be able to get it back to at least 10 degrees, or less. Can anyone explain this??

Also, one of the doctors commented on her left curve again. He said typically with IIS, the spine curves to the right. He asked me if we have had an MRI done to check for any abnormalities. We have, and thus far she checks out to be okay. He commented that usually a left curve indicates a genetic abnormality, or defect. Does anyone know of a geneticist in the Chicagoland area to whom I can take Quinn to see?? Any references would be great!

Quinn seems to be adjusting to her cast. She is not napping as long in the day, and is crying more than usual, but she is actually better today than she was yesterday.

Aimee

Mom to Quinn, 48* out of cast, 13* in cast #2.

[Guest guest]

Aimee, Dr. H sent us to Dr. Salafsky, his info is below. We really liked him ALOT. He ended up sending us directly to the hospital for the tests he wanted done and this was at like 6 at night. He called me by 9:00 am the next day to give me results. He used to work at Shriners, I guess a long time ago they had Genetis's on staff. Dr. Ira S. Salafsky, MD (Genetics)2530 Ridge Avenueton, IL 60201-2495(847) 869-0892

Hope that helps!!

Quinn in Cast #2

Wow, yesterday was a new experience for me. I took Quinn in to get casted by myself because my husband had to get my other two kids off to preschool. I always feel more calm when he is with me. Quinn was able to be casted. The medication was not an issue.I think this experience has been a little bit more difficult for the second time around. I saw how much fun she had out of her cast, and how much we all enjoyed having her be "free". She just looked sad yesterday once she was back in her cast. I am sure that most of it was due to the anesthesia that was still in her body, etc., but I felt terrible.The good news is that she measured 48 degrees, down from 58 degrees in just a nine week period of time. They were able to get her spine to 13 degrees in cast. With her first casting experience, they were able to get her spine down to 10 degrees in cast. I was hoping they would be able to get it back to at least 10 degrees, or less. Can anyone explain this??Also, one of the doctors commented on her left curve again. He said typically with IIS, the spine curves to the right. He asked me if we have had an MRI done to check for any abnormalities. We have, and thus far she checks out to be okay. He commented that usually a left curve indicates a genetic abnormality, or defect. Does anyone know of a geneticist in the Chicagoland area to whom I can take Quinn to see?? Any references would be great! Quinn seems to be adjusting to her cast. She is not napping as long in the day, and is crying more than usual, but she is actually better today than she was yesterday. AimeeMom to Quinn, 48* out of cast, 13* in cast #2.

[Guest guest]

It is very difficult going alone. I have been taking to all of his appts by myself. We haven't had to cast him yet, but its hard to talk to the Dr by oneself and get the diagnoses alone. I hope that when we go for the second opinion I don't have to go alone. Sent from my BlackBerry® wireless handheldFrom: Kristi <kristij@...>Sender: infantile scoliosis treatment Date: Wed, 08 Sep 2010 11:49:04 -0500infantile scoliosis treatment <infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Quinn in Cast #2 Hi! Sierra has a left curve also! She has had a brain & spine MRI & both came back normal! It still worries me! Seems like the left curve is more common in girls! Sierra is thin pheno type so her curve is going down but more slowly. Her body type makes her spine not as flexible ???? I though it would b the other way around! You are so brave to go alone! I would probably be a wreck without my husband there! Let me know if u find out anymore about the left curve being worse! I am gonna ask Dr. K on our 4 th casting Oct. 22nd in Birmingham AL. Take care!Kristi mommy to Sierra 16 mo. 3rd cast 34 degrees down to 17 degrees.Sent From Kristi's i-PhoneOn Sep 8, 2010, at 10:27 AM, "Aimee" <paplera@...> wrote: Wow, yesterday was a new experience for me. I took Quinn in to get casted by myself because my husband had to get my other two kids off to preschool. I always feel more calm when he is with me. Quinn was able to be casted. The medication was not an issue.I think this experience has been a little bit more difficult for the second time around. I saw how much fun she had out of her cast, and how much we all enjoyed having her be "free". She just looked sad yesterday once she was back in her cast. I am sure that most of it was due to the anesthesia that was still in her body, etc., but I felt terrible.The good news is that she measured 48 degrees, down from 58 degrees in just a nine week period of time. They were able to get her spine to 13 degrees in cast. With her first casting experience, they were able to get her spine down to 10 degrees in cast. I was hoping they would be able to get it back to at least 10 degrees, or less. Can anyone explain this??Also, one of the doctors commented on her left curve again. He said typically with IIS, the spine curves to the right. He asked me if we have had an MRI done to check for any abnormalities. We have, and thus far she checks out to be okay. He commented that usually a left curve indicates a genetic abnormality, or defect. Does anyone know of a geneticist in the Chicagoland area to whom I can take Quinn to see?? Any references would be great! Quinn seems to be adjusting to her cast. She is not napping as long in the day, and is crying more than usual, but she is actually better today than she was yesterday. AimeeMom to Quinn, 48* out of cast, 13* in cast #2.

[Guest guest]

I TAKE MY I-PHONE & RECORD THINGS SOMETIMES. EVEN WITH MY HUSBAND THERE I STILL FORGET HALF OF WHAT DR. K SAYS OR GET THINGS MIXED UP. IT RECORDS GOOD! THEN IF THERE IS SOME KINDA MIX UP I CAN PLAY IT BACK. HANG IN THERE!

KRISTI MOMMY TO SIERRA

From: kfaul@...

Sent: Wednesday, September 08, 2010 12:54 PM

infantile scoliosis treatment

Subject: Re: Quinn in Cast #2

It is very difficult going alone. I have been taking to all of his appts by myself. We haven't had to cast him yet, but its hard to talk to the Dr by oneself and get the diagnoses alone. I hope that when we go for the second opinion I don't have to go alone. Sent from my BlackBerry® wireless handheld

From: Kristi <kristij@...>

Sender: infantile scoliosis treatment

Date: Wed, 08 Sep 2010 11:49:04 -0500

infantile scoliosis treatment <infantile scoliosis treatment >

Replyinfantile scoliosis treatment

Subject: Re: Quinn in Cast #2

Hi! Sierra has a left curve also! She has had a brain & spine MRI & both came back normal! It still worries me! Seems like the left curve is more common in girls! Sierra is thin pheno type so her curve is going down but more slowly. Her body type makes her spine not as flexible ???? I though it would b the other way around! You are so brave to go alone! I would probably be a wreck without my husband there! Let me know if u find out anymore about the left curve being worse! I am gonna ask Dr. K on our 4 th casting Oct. 22nd in Birmingham AL. Take care!

Kristi mommy to Sierra 16 mo. 3rd cast 34 degrees down to 17 degrees.Sent From Kristi's i-Phone

On Sep 8, 2010, at 10:27 AM, "Aimee" <paplera@...> wrote:

Wow, yesterday was a new experience for me. I took Quinn in to get casted by myself because my husband had to get my other two kids off to preschool. I always feel more calm when he is with me. Quinn was able to be casted. The medication was not an issue.I think this experience has been a little bit more difficult for the second time around. I saw how much fun she had out of her cast, and how much we all enjoyed having her be "free". She just looked sad yesterday once she was back in her cast. I am sure that most of it was due to the anesthesia that was still in her body, etc., but I felt terrible.The good news is that she measured 48 degrees, down from 58 degrees in just a nine week period of time. They were able to get her spine to 13 degrees in cast. With her first casting experience, they were able to get her spine down to 10 degrees in cast. I was hoping they would be able to get it back to at least 10 degrees, or less. Can anyone explain this??Also, one of the doctors commented on her left curve again. He said typically with IIS, the spine curves to the right. He asked me if we have had an MRI done to check for any abnormalities. We have, and thus far she checks out to be okay. He commented that usually a left curve indicates a genetic abnormality, or defect. Does anyone know of a geneticist in the Chicagoland area to whom I can take Quinn to see?? Any references would be great! Quinn seems to be adjusting to her cast. She is not napping as long in the day, and is crying more than usual, but she is actually better today than she was yesterday. AimeeMom to Quinn, 48* out of cast, 13* in cast #2.

[Guest guest]

,

Thank you so much!! I will definitely give him a call.

Aimee

>

> Aimee, Dr. H sent us to Dr. Salafsky, his info is below. We really liked him

ALOT. He ended up sending us directly to the hospital for the tests he wanted

done and this was at like 6 at night. He called me by 9:00 am the next day to

give me results. He used to work at Shriners, I guess a long time ago they had

Genetis's on staff.

>

> Dr. Ira S. Salafsky, MD (Genetics)

> 2530 Ridge Avenue

> ton, IL 60201-2495

> (847) 869-0892

>

> Hope that helps!!

>

>

>

> Quinn in Cast #2

>

>

>

> Wow, yesterday was a new experience for me. I took Quinn in to get casted by

myself because my husband had to get my other two kids off to preschool. I

always feel more calm when he is with me. Quinn was able to be casted. The

medication was not an issue.

>

> I think this experience has been a little bit more difficult for the second

time around. I saw how much fun she had out of her cast, and how much we all

enjoyed having her be " free " . She just looked sad yesterday once she was back in

her cast. I am sure that most of it was due to the anesthesia that was still in

her body, etc., but I felt terrible.

>

> The good news is that she measured 48 degrees, down from 58 degrees in just

a nine week period of time. They were able to get her spine to 13 degrees in

cast. With her first casting experience, they were able to get her spine down to

10 degrees in cast. I was hoping they would be able to get it back to at least

10 degrees, or less. Can anyone explain this??

>

> Also, one of the doctors commented on her left curve again. He said

typically with IIS, the spine curves to the right. He asked me if we have had an

MRI done to check for any abnormalities. We have, and thus far she checks out to

be okay. He commented that usually a left curve indicates a genetic abnormality,

or defect. Does anyone know of a geneticist in the Chicagoland area to whom I

can take Quinn to see?? Any references would be great!

>

> Quinn seems to be adjusting to her cast. She is not napping as long in the

day, and is crying more than usual, but she is actually better today than she

was yesterday.

>

> Aimee

> Mom to Quinn, 48* out of cast, 13* in cast #2.

>

[Guest guest]

I hope Quinn is feeling better! It usually takes a good 24 hours for the anesthesia to get out of their system. I wouldn't get yourself too upset with the curve to the left until you get testing done because my daughter's curve is to the left and they found nothing wrong with her. Patty, mom of Isabella, 3 years old, in 7th scoli cast (Rochester) & mom to (9) & Evan(6)From: Aimee

<paplera@...>infantile scoliosis treatment Sent: Wed, September 8, 2010 11:27:41 AMSubject: Quinn in Cast #2

Wow, yesterday was a new experience for me. I took Quinn in to get casted by myself because my husband had to get my other two kids off to preschool. I always feel more calm when he is with me. Quinn was able to be casted. The medication was not an issue.

I think this experience has been a little bit more difficult for the second time around. I saw how much fun she had out of her cast, and how much we all enjoyed having her be "free". She just looked sad yesterday once she was back in her cast. I am sure that most of it was due to the anesthesia that was still in her body, etc., but I felt terrible.

The good news is that she measured 48 degrees, down from 58 degrees in just a nine week period of time. They were able to get her spine to 13 degrees in cast. With her first casting experience, they were able to get her spine down to 10 degrees in cast. I was hoping they would be able to get it back to at least 10 degrees, or less. Can anyone explain this??

Also, one of the doctors commented on her left curve again. He said typically with IIS, the spine curves to the right. He asked me if we have had an MRI done to check for any abnormalities. We have, and thus far she checks out to be okay. He commented that usually a left curve indicates a genetic abnormality, or defect. Does anyone know of a geneticist in the Chicagoland area to whom I can take Quinn to see?? Any references would be great!

Quinn seems to be adjusting to her cast. She is not napping as long in the day, and is crying more than usual, but she is actually better today than she was yesterday.

Aimee

Mom to Quinn, 48* out of cast, 13* in cast #2.

[Guest guest]

I was told by our first doc (not the one casting) that boys tend to have the left curves and girls the right curve. Patty, mom of Isabella, 3 years old, in 7th scoli cast (Rochester) & mom to (9) & Evan(6)From: Kristi <kristij@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Wed, September 8, 2010 12:49:04 PMSubject: Re: Quinn in Cast #2

Hi! Sierra has a left curve also! She has had a brain & spine MRI & both came back normal! It still worries me! Seems like the left curve is more common in girls! Sierra is thin pheno type so her curve is going down but more slowly. Her body type makes her spine not as flexible ???? I though it would b the other way around! You are so brave to go alone! I would probably be a wreck without my husband there! Let me know if u find out anymore about the left curve being worse! I am gonna ask Dr. K on our 4 th casting Oct. 22nd in Birmingham AL. Take care!Kristi mommy to Sierra 16 mo. 3rd cast 34 degrees down to 17 degrees.Sent From Kristi's i-PhoneOn Sep 8, 2010, at 10:27 AM, "Aimee" <paplera@...> wrote:

Wow, yesterday was a new experience for me. I took Quinn in to get casted by myself because my husband had to get my other two kids off to preschool. I always feel more calm when he is with me. Quinn was able to be casted. The medication was not an issue.

I think this experience has been a little bit more difficult for the second time around. I saw how much fun she had out of her cast, and how much we all enjoyed having her be "free". She just looked sad yesterday once she was back in her cast. I am sure that most of it was due to the anesthesia that was still in her body, etc., but I felt terrible.

The good news is that she measured 48 degrees, down from 58 degrees in just a nine week period of time. They were able to get her spine to 13 degrees in cast. With her first casting experience, they were able to get her spine down to 10 degrees in cast. I was hoping they would be able to get it back to at least 10 degrees, or less. Can anyone explain this??

Also, one of the doctors commented on her left curve again. He said typically with IIS, the spine curves to the right. He asked me if we have had an MRI done to check for any abnormalities. We have, and thus far she checks out to be okay. He commented that usually a left curve indicates a genetic abnormality, or defect. Does anyone know of a geneticist in the Chicagoland area to whom I can take Quinn to see?? Any references would be great!

Quinn seems to be adjusting to her cast. She is not napping as long in the day, and is crying more than usual, but she is actually better today than she was yesterday.

Aimee

Mom to Quinn, 48* out of cast, 13* in cast #2.