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SUDEP

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Seven years ago my daughter's respirations arrested during a seizure.

The seizure ended, but she never resumed breathing on her own. I had

to resuscitate her. Her nuero didn't put any stock in what I described

to him. Today I don't think he had a clue.

This is important because clearly a third of children diagnosed with

autism will develope a seizure disorder. And SUDEP (Sudden Unexplained

Death Due to Epilepsy) is an unfortunate and under-informed reality of

seizure. It's causes are numerous and unresearched, until now. There's

an organization in England, Epilepsy Bereaved, who has funded the

first study into this phenomenon. I, with another woman (whose child

died as a result of SUDEP) are talking about starting a similiar

organization here in the states.

Please, if your child has seizure learn CPR yesterday!

Teri

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