Dr. appointment and school woes

[Guest guest]

Tristan was evaluated by Dr. on Tuesday, and began the

protocol that evening. The school is having problems getting the

meds in him in the morning as he detects tastes and smells very well

He told us much the same as I have read from other list members, and

we are hopeful about the treatment. Today was a day that my buttons

were pushed by the school personnel and I feel like we are regressing

in that area. The bone of contention is the Gluten/Casein Free diet

that they have never approved of and have harrassed us about

constantly. I thought that it was a mute issue until today when we

discovered that the teacher called the doctor intending to tell him

that Tristan is on the diet. She didn't ask us about this until she

was told they couldn't share any information with her without written

consent from the parent. My daughter called the teacher to determine

what she wanted to talk to the doctor about. She told her that she

wanted to ask him about his research, that she had gone to his

website and her question wasn't addressed. My daughter told her she

would approve the teacher talking to them about medication, dosage

and side effects but nothing more. I called the teacher to find out

more about this. I offered to send her the handout we received about

the research and protocol and then she asked me if we told the doctor

that Tristan is on the Gluten Casein Free Diet. I told her of course

we did, but afterward realized that she still believes the diet is a

bad thing for Tristan and that irritated me greatly. I called the

Principal to tell her that the teacher intended to do this, and that

it was inappropriate and outside the periameters of her job

description. It is not legal for her to pry into Tristan's medical

information, etc. She defended the teacher saw nothing wrong with

it, etc. I got more irritated and she said if I was going to talk to

her " that way " she would not talk to me, and I (regretably) told her

I was going to call the superintendant and hung up on her. The

Superintendant listened to me rant about the treatment we have

received from the staff for years about the diet, although two

different letters are in his files from specialists stating he is on

the diet at home and at school. This has meant nothing to them. Has

anyone else had problems like this with the school. They infer

strongly that the diet is harmful. It was a very stressful afternoon

and I think any ground we gained in teamwork and a positive

relationship has gone backwards. This is a sensitive subject for me

as they well know because I prepare two full meals a day to match the

school menu, as well as send 4 snacks. It is hard work as you all

know and quite expensive. But still they harrass me about it.

Anyone else have these problems?

[Guest guest]

I am always amazed when people say the GFCF diet is harmful!! Please ask the

school how they think the diet is harmful and then ask them if they have ever

heard of Celiac's disease. I'll bet you that half of the people at that

school are themselves on the Atkins diet which can be very harmful for certain

people.

I have learned to just simply tell school and everyone else that my child is

highly allergic to wheat and dairy. " Allergic " they seem to understand and

respect. That doesn't help you now. Perhaps you can have his food allergies

tested and maybe you'll get lucky and it will show up as a food allergy. Then

you could show those results to the school. Just a thought.

[Guest guest]

Hi,

What is written into the IEP regarding the diet? If you are doing the diet

under your doctor's supervision, you should have great support for including

any diet restrictions- as they relate to school- into your child's IEP.

Once it is in the IEP, then you have the leverage you need with the school

district staff. Approach any problems you are experiencing by proactively

addressing them through the IEP (during your ARD), instead of battling ISD

personnel during the year.

Good luck,

J. P. Reirdon

Webmaster

<http://www.featnt.org/>

" Building a Bridge of Hope "

Webmaster

<http://www.AutismTreatment.info/>

You CAN treat Autism!!

Get treatment tips for children with Autism, PDD and Aperger's Syndrome from

parents who have successfully helped their children.

Webmaster

<http://www.StarThrowers.org/>

Fundraising for In-Home treatment programs

Message: 18

Date: Fri, 16 Jan 2004 06:01:47 -0000

From: " " <ckcarlson@...>

Subject: Dr. appointment and school woes

Tristan was evaluated by Dr. on Tuesday, and began the

protocol that evening. The school is having problems getting the

meds in him in the morning as he detects tastes and smells very well

He told us much the same as I have read from other list members, and

we are hopeful about the treatment. Today was a day that my buttons

were pushed by the school personnel and I feel like we are regressing

in that area. The bone of contention is the Gluten/Casein Free diet

that they have never approved of and have harrassed us about

constantly. I thought that it was a mute issue until today when we

discovered that the teacher called the doctor intending to tell him

that Tristan is on the diet. She didn't ask us about this until she

was told they couldn't share any information with her without written

consent from the parent. My daughter called the teacher to determine

what she wanted to talk to the doctor about. She told her that she

wanted to ask him about his research, that she had gone to his

website and her question wasn't addressed. My daughter told her she

would approve the teacher talking to them about medication, dosage

and side effects but nothing more. I called the teacher to find out

more about this. I offered to send her the handout we received about

the research and protocol and then she asked me if we told the doctor

that Tristan is on the Gluten Casein Free Diet. I told her of course

we did, but afterward realized that she still believes the diet is a

bad thing for Tristan and that irritated me greatly. I called the

Principal to tell her that the teacher intended to do this, and that

it was inappropriate and outside the periameters of her job

description. It is not legal for her to pry into Tristan's medical

information, etc. She defended the teacher saw nothing wrong with

it, etc. I got more irritated and she said if I was going to talk to

her " that way " she would not talk to me, and I (regretably) told her

I was going to call the superintendant and hung up on her. The

Superintendant listened to me rant about the treatment we have

received from the staff for years about the diet, although two

different letters are in his files from specialists stating he is on

the diet at home and at school. This has meant nothing to them. Has

anyone else had problems like this with the school. They infer

strongly that the diet is harmful. It was a very stressful afternoon

and I think any ground we gained in teamwork and a positive

relationship has gone backwards. This is a sensitive subject for me

as they well know because I prepare two full meals a day to match the

school menu, as well as send 4 snacks. It is hard work as you all

know and quite expensive. But still they harrass me about it.

Anyone else have these problems?

[Guest guest]

Hi,

What is written into the IEP regarding the diet? If you are doing the diet

under your doctor's supervision, you should have great support for including

any diet restrictions- as they relate to school- into your child's IEP.

Once it is in the IEP, then you have the leverage you need with the school

district staff. Approach any problems you are experiencing by proactively

addressing them through the IEP (during your ARD), instead of battling ISD

personnel during the year.

Good luck,

J. P. Reirdon

Webmaster

<http://www.featnt.org/>

" Building a Bridge of Hope "

Webmaster

<http://www.AutismTreatment.info/>

You CAN treat Autism!!

Get treatment tips for children with Autism, PDD and Aperger's Syndrome from

parents who have successfully helped their children.

Webmaster

<http://www.StarThrowers.org/>

Fundraising for In-Home treatment programs

Message: 18

Date: Fri, 16 Jan 2004 06:01:47 -0000

From: " " <ckcarlson@...>

Subject: Dr. appointment and school woes

Tristan was evaluated by Dr. on Tuesday, and began the

protocol that evening. The school is having problems getting the

meds in him in the morning as he detects tastes and smells very well

He told us much the same as I have read from other list members, and

we are hopeful about the treatment. Today was a day that my buttons

were pushed by the school personnel and I feel like we are regressing

in that area. The bone of contention is the Gluten/Casein Free diet

that they have never approved of and have harrassed us about

constantly. I thought that it was a mute issue until today when we

discovered that the teacher called the doctor intending to tell him

that Tristan is on the diet. She didn't ask us about this until she

was told they couldn't share any information with her without written

consent from the parent. My daughter called the teacher to determine

what she wanted to talk to the doctor about. She told her that she

wanted to ask him about his research, that she had gone to his

website and her question wasn't addressed. My daughter told her she

would approve the teacher talking to them about medication, dosage

and side effects but nothing more. I called the teacher to find out

more about this. I offered to send her the handout we received about

the research and protocol and then she asked me if we told the doctor

that Tristan is on the Gluten Casein Free Diet. I told her of course

we did, but afterward realized that she still believes the diet is a

bad thing for Tristan and that irritated me greatly. I called the

Principal to tell her that the teacher intended to do this, and that

it was inappropriate and outside the periameters of her job

description. It is not legal for her to pry into Tristan's medical

information, etc. She defended the teacher saw nothing wrong with

it, etc. I got more irritated and she said if I was going to talk to

her " that way " she would not talk to me, and I (regretably) told her

I was going to call the superintendant and hung up on her. The

Superintendant listened to me rant about the treatment we have

received from the staff for years about the diet, although two

different letters are in his files from specialists stating he is on

the diet at home and at school. This has meant nothing to them. Has

anyone else had problems like this with the school. They infer

strongly that the diet is harmful. It was a very stressful afternoon

and I think any ground we gained in teamwork and a positive

relationship has gone backwards. This is a sensitive subject for me

as they well know because I prepare two full meals a day to match the

school menu, as well as send 4 snacks. It is hard work as you all

know and quite expensive. But still they harrass me about it.

Anyone else have these problems?

[Guest guest]

Hi,

What is written into the IEP regarding the diet? If you are doing the diet

under your doctor's supervision, you should have great support for including

any diet restrictions- as they relate to school- into your child's IEP.

Once it is in the IEP, then you have the leverage you need with the school

district staff. Approach any problems you are experiencing by proactively

addressing them through the IEP (during your ARD), instead of battling ISD

personnel during the year.

Good luck,

J. P. Reirdon

Webmaster

<http://www.featnt.org/>

" Building a Bridge of Hope "

Webmaster

<http://www.AutismTreatment.info/>

You CAN treat Autism!!

Get treatment tips for children with Autism, PDD and Aperger's Syndrome from

parents who have successfully helped their children.

Webmaster

<http://www.StarThrowers.org/>

Fundraising for In-Home treatment programs

Message: 18

Date: Fri, 16 Jan 2004 06:01:47 -0000

From: " " <ckcarlson@...>

Subject: Dr. appointment and school woes

Tristan was evaluated by Dr. on Tuesday, and began the

protocol that evening. The school is having problems getting the

meds in him in the morning as he detects tastes and smells very well

He told us much the same as I have read from other list members, and

we are hopeful about the treatment. Today was a day that my buttons

were pushed by the school personnel and I feel like we are regressing

in that area. The bone of contention is the Gluten/Casein Free diet

that they have never approved of and have harrassed us about

constantly. I thought that it was a mute issue until today when we

discovered that the teacher called the doctor intending to tell him

that Tristan is on the diet. She didn't ask us about this until she

was told they couldn't share any information with her without written

consent from the parent. My daughter called the teacher to determine

what she wanted to talk to the doctor about. She told her that she

wanted to ask him about his research, that she had gone to his

website and her question wasn't addressed. My daughter told her she

would approve the teacher talking to them about medication, dosage

and side effects but nothing more. I called the teacher to find out

more about this. I offered to send her the handout we received about

the research and protocol and then she asked me if we told the doctor

that Tristan is on the Gluten Casein Free Diet. I told her of course

we did, but afterward realized that she still believes the diet is a

bad thing for Tristan and that irritated me greatly. I called the

Principal to tell her that the teacher intended to do this, and that

it was inappropriate and outside the periameters of her job

description. It is not legal for her to pry into Tristan's medical

information, etc. She defended the teacher saw nothing wrong with

it, etc. I got more irritated and she said if I was going to talk to

her " that way " she would not talk to me, and I (regretably) told her

I was going to call the superintendant and hung up on her. The

Superintendant listened to me rant about the treatment we have

received from the staff for years about the diet, although two

different letters are in his files from specialists stating he is on

the diet at home and at school. This has meant nothing to them. Has

anyone else had problems like this with the school. They infer

strongly that the diet is harmful. It was a very stressful afternoon

and I think any ground we gained in teamwork and a positive

relationship has gone backwards. This is a sensitive subject for me

as they well know because I prepare two full meals a day to match the

school menu, as well as send 4 snacks. It is hard work as you all

know and quite expensive. But still they harrass me about it.

Anyone else have these problems?