Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 I would love a list on biomedical! H. Cale Vice President, Unlocking Autism 770-463-4475-home office 866-366-3361-toll free www.unlockingautism.org NanCale@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 , Are you doing DMPS transdermals with Dr. Bradstreet? Adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 So then I wouldn't be stepping on any toes if I created one ( group for biomed locally)? I ran one in the last place I lived and really miss the local support while going through the chelation ( currently TD-DMPS) and all of the other crazy stuff we do. I belong to all of the other great groups out there, but there is a lot to be said for having a small local biomedical support group, especially online. It sounds to me like there are at least a few of us in this boat here. Jane Mama to 7 (ASD) and 4 (NT) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 I think that would be great. I would join. H. On Dec 30, 2004, at 9:31 PM, Jane Romdalvik wrote: > > So then I wouldn't be stepping on any toes if I created one ( > group for biomed locally)? I ran one in the last place I lived and > really miss the local support while going through the chelation ( > currently TD-DMPS) and all of the other crazy stuff we do. I belong to > all of the other great groups out there, but there is a lot to be said > for having a small local biomedical support group, especially online. > It sounds to me like there are at least a few of us in this boat here. > > Jane > Mama to 7 (ASD) and 4 (NT) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 I would join Jane. My ped is wanting to start a local group for parents who are choosing the biomedical route and she wants me to help. I need all the help I can get. MISSYSAHM to some special kids!!! I am who I am because that's who I am--, 5, Aspergers All kids are gifted; some just open theirpackages earlier than others. -- Carr Re: Bio-medical info So then I wouldn't be stepping on any toes if I created one ( group for biomed locally)? I ran one in the last place I lived and really miss the local support while going through the chelation ( currently TD-DMPS) and all of the other crazy stuff we do. I belong to all of the other great groups out there, but there is a lot to be said for having a small local biomedical support group, especially online. It sounds to me like there are at least a few of us in this boat here. Jane Mama to 7 (ASD) and 4 (NT) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Count me in too Jane Joy Re: Bio-medical info So then I wouldn't be stepping on any toes if I created one ( group for biomed locally)? I ran one in the last place I lived and really miss the local support while going through the chelation ( currently TD-DMPS) and all of the other crazy stuff we do. I belong to all of the other great groups out there, but there is a lot to be said for having a small local biomedical support group, especially online. It sounds to me like there are at least a few of us in this boat here. Jane Mama to 7 (ASD) and 4 (NT) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Jane: That would be great! We are doing chelation with TTFD right now, and will move forward with DMPS and eventually hope to work with Dr. Buttar in North Carolina (we have an appointment in June). We would definitely join a local biomed group. " Jane Romdalvik " <rominick@...> 12/30/2004 09:31 PM Please respond to autism To <autism > cc Subject Re: Bio-medical info So then I wouldn't be stepping on any toes if I created one ( group for biomed locally)? I ran one in the last place I lived and really miss the local support while going through the chelation ( currently TD-DMPS) and all of the other crazy stuff we do. I belong to all of the other great groups out there, but there is a lot to be said for having a small local biomedical support group, especially online. It sounds to me like there are at least a few of us in this boat here. Jane Mama to 7 (ASD) and 4 (NT) Sponsor ADVERTISEMENT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 , Do you have the contact information for Dr. Buttar you can share. We are trying to get hooked up with him and would also be interested in any feedback you might care to share. Jim > Jane: > > That would be great! We are doing chelation with TTFD right now, and will > move forward with DMPS and eventually hope to work with Dr. Buttar in > North Carolina (we have an appointment in June). We would definitely join > a local biomed group. > > > > > > > " Jane Romdalvik " <rominick@a...> > 12/30/2004 09:31 PM > Please respond to > autism > > > To > <autism > > cc > > Subject > Re: Bio-medical info > > > > > > > > So then I wouldn't be stepping on any toes if I created one ( group > for biomed locally)? I ran one in the last place I lived and really miss > the local support while going through the chelation ( currently TD- DMPS) > and all of the other crazy stuff we do. I belong to all of the other great > groups out there, but there is a lot to be said for having a small local > biomedical support group, especially online. It sounds to me like there > are at least a few of us in this boat here. > > Jane > Mama to 7 (ASD) and 4 (NT) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 , Do you have the contact information for Dr. Buttar you can share. We are trying to get hooked up with him and would also be interested in any feedback you might care to share. Jim > Jane: > > That would be great! We are doing chelation with TTFD right now, and will > move forward with DMPS and eventually hope to work with Dr. Buttar in > North Carolina (we have an appointment in June). We would definitely join > a local biomed group. > > > > > > > " Jane Romdalvik " <rominick@a...> > 12/30/2004 09:31 PM > Please respond to > autism > > > To > <autism > > cc > > Subject > Re: Bio-medical info > > > > > > > > So then I wouldn't be stepping on any toes if I created one ( group > for biomed locally)? I ran one in the last place I lived and really miss > the local support while going through the chelation ( currently TD- DMPS) > and all of the other crazy stuff we do. I belong to all of the other great > groups out there, but there is a lot to be said for having a small local > biomedical support group, especially online. It sounds to me like there > are at least a few of us in this boat here. > > Jane > Mama to 7 (ASD) and 4 (NT) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 Jim: I'll have to find Dr. Buttar's information at home,and I'm at work right now, but I wanted to let you know that there are two doctors in the Atlanta area now using TD-DMPS and following Buttar's protocol: Dr. Lee and Dr. Guest. We just completed the preliminary testing required by Buttar, and when those results are in, will start with the DMPS. We just had a phone appointment with him, which wasn't very informative, but we knew what we were starting already, so we didn't have many questions. The initial lab testing and phone appointment cost us about $2,000. I'm not sure what the expense for the DMPS will be each month. If you want lots more info., sign onto the AutismBiomedGa group, look around in the files, and ask questions. Some of the parents on that group are already using DMPS. We have using glutathione, TTFD, and DMSA for about six months, and have seen lots of metals coming out, and some improvements with our son, but nothing " dramatic " . Enough to keep it up, though:) " Jim " <jgs3@...> Sent by: autism 07/20/2005 11:22 AM Please respond to autism To autism cc Subject Re: Bio-medical info , Do you have the contact information for Dr. Buttar you can share. We are trying to get hooked up with him and would also be interested in any feedback you might care to share. Jim > Jane: > > That would be great! We are doing chelation with TTFD right now, and will > move forward with DMPS and eventually hope to work with Dr. Buttar in > North Carolina (we have an appointment in June). We would definitely join > a local biomed group. > > > > > > > " Jane Romdalvik " <rominick@a...> > 12/30/2004 09:31 PM > Please respond to > autism > > > To > <autism > > cc > > Subject > Re: Bio-medical info > > > > > > > > So then I wouldn't be stepping on any toes if I created one ( group > for biomed locally)? I ran one in the last place I lived and really miss > the local support while going through the chelation ( currently TD- DMPS) > and all of the other crazy stuff we do. I belong to all of the other great > groups out there, but there is a lot to be said for having a small local > biomedical support group, especially online. It sounds to me like there > are at least a few of us in this boat here. > > Jane > Mama to 7 (ASD) and 4 (NT) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 For those who are interested. Glutathione ,TidF are the weakest of chelators and should nevere be relied on to detoxify these children. DMSA is also a weak systemic chelator of mercury and is a little better for leas. DMSA is a very important adjunctive chelator because there is some good evidence from Russian work that it does get into the brain and DMPS doesn't. The best combinations of therapies are oral DMPS and oral DMSA for those who would rather stay away from the injections. It is very important to always give supplemental minerals and measure RBC minerals every few months during therapy and that way you can specifically supplement items that are dropping faster than others. I certainly am not telling you to avoid glutathione, lipoic acid and NAC or TIDF just keep in mind that it just takes too long to have any significant impact with those items.I feel much more comfortable with oral DMPS than trans-dermal, and through 12 years and 100's of children it is a very safe way to go as long as you monitor the child with CBC'c, renal and liver function and mineral analyses. Sincerely, SB Edelson B. Edelson, M.D., F.A.A.E.M. P.O. Box 566863 Atlanta, Georgia 31156 > Jim: > > I'll have to find Dr. Buttar's information at home,and I'm at work right > now, but I wanted to let you know that there are two doctors in the > Atlanta area now using TD-DMPS and following Buttar's protocol: Dr. > Lee and Dr. Guest. We just completed the preliminary > testing required by Buttar, and when those results are in, will start > with the DMPS. We just had a phone appointment with him, which wasn't > very informative, but we knew what we were starting already, so we > didn't have many questions. The initial lab testing and phone > appointment cost us about $2,000. I'm not sure what the expense for > the DMPS will be each month. > > If you want lots more info., sign onto the AutismBiomedGa group, > look around in the files, and ask questions. Some of the parents on > that group are already using DMPS. > > We have using glutathione, TTFD, and DMSA for about six months, and have > seen lots of metals coming out, and some improvements with our son, but > nothing " dramatic " . Enough to keep it up, though:) > > > > > > > > > > " Jim " <jgs3@...> > Sent by: autism > 07/20/2005 11:22 AM > Please respond to > autism > > > To > autism > cc > > Subject > Re: Bio-medical info > > > > > > > , > > Do you have the contact information for Dr. Buttar you can share. We > are trying to get hooked up with him and would also be interested in > any feedback you might care to share. > > Jim > > >> Jane: >> >> That would be great! We are doing chelation with TTFD right now, > and will >> move forward with DMPS and eventually hope to work with Dr. Buttar > in >> North Carolina (we have an appointment in June). We would > definitely join >> a local biomed group. >> >> >> >> >> >> >> " Jane Romdalvik " <rominick@a...> >> 12/30/2004 09:31 PM >> Please respond to >> autism >> >> >> To >> <autism > >> cc >> >> Subject >> Re: Bio-medical info >> >> >> >> >> >> >> >> So then I wouldn't be stepping on any toes if I created one > ( group >> for biomed locally)? I ran one in the last place I lived and > really miss >> the local support while going through the chelation ( currently TD- > DMPS) >> and all of the other crazy stuff we do. I belong to all of the > other great >> groups out there, but there is a lot to be said for having a small > local >> biomedical support group, especially online. It sounds to me like > there >> are at least a few of us in this boat here. >> >> Jane >> Mama to 7 (ASD) and 4 (NT) >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 For those who are interested. Glutathione ,TidF are the weakest of chelators and should nevere be relied on to detoxify these children. DMSA is also a weak systemic chelator of mercury and is a little better for leas. DMSA is a very important adjunctive chelator because there is some good evidence from Russian work that it does get into the brain and DMPS doesn't. The best combinations of therapies are oral DMPS and oral DMSA for those who would rather stay away from the injections. It is very important to always give supplemental minerals and measure RBC minerals every few months during therapy and that way you can specifically supplement items that are dropping faster than others. I certainly am not telling you to avoid glutathione, lipoic acid and NAC or TIDF just keep in mind that it just takes too long to have any significant impact with those items.I feel much more comfortable with oral DMPS than trans-dermal, and through 12 years and 100's of children it is a very safe way to go as long as you monitor the child with CBC'c, renal and liver function and mineral analyses. Sincerely, SB Edelson B. Edelson, M.D., F.A.A.E.M. P.O. Box 566863 Atlanta, Georgia 31156 > Jim: > > I'll have to find Dr. Buttar's information at home,and I'm at work right > now, but I wanted to let you know that there are two doctors in the > Atlanta area now using TD-DMPS and following Buttar's protocol: Dr. > Lee and Dr. Guest. We just completed the preliminary > testing required by Buttar, and when those results are in, will start > with the DMPS. We just had a phone appointment with him, which wasn't > very informative, but we knew what we were starting already, so we > didn't have many questions. The initial lab testing and phone > appointment cost us about $2,000. I'm not sure what the expense for > the DMPS will be each month. > > If you want lots more info., sign onto the AutismBiomedGa group, > look around in the files, and ask questions. Some of the parents on > that group are already using DMPS. > > We have using glutathione, TTFD, and DMSA for about six months, and have > seen lots of metals coming out, and some improvements with our son, but > nothing " dramatic " . Enough to keep it up, though:) > > > > > > > > > > " Jim " <jgs3@...> > Sent by: autism > 07/20/2005 11:22 AM > Please respond to > autism > > > To > autism > cc > > Subject > Re: Bio-medical info > > > > > > > , > > Do you have the contact information for Dr. Buttar you can share. We > are trying to get hooked up with him and would also be interested in > any feedback you might care to share. > > Jim > > >> Jane: >> >> That would be great! We are doing chelation with TTFD right now, > and will >> move forward with DMPS and eventually hope to work with Dr. Buttar > in >> North Carolina (we have an appointment in June). We would > definitely join >> a local biomed group. >> >> >> >> >> >> >> " Jane Romdalvik " <rominick@a...> >> 12/30/2004 09:31 PM >> Please respond to >> autism >> >> >> To >> <autism > >> cc >> >> Subject >> Re: Bio-medical info >> >> >> >> >> >> >> >> So then I wouldn't be stepping on any toes if I created one > ( group >> for biomed locally)? I ran one in the last place I lived and > really miss >> the local support while going through the chelation ( currently TD- > DMPS) >> and all of the other crazy stuff we do. I belong to all of the > other great >> groups out there, but there is a lot to be said for having a small > local >> biomedical support group, especially online. It sounds to me like > there >> are at least a few of us in this boat here. >> >> Jane >> Mama to 7 (ASD) and 4 (NT) >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 Dr. Edelson; Can you tell me about low liver enzymes in relationship to Partial Complex 1 mitochondrial dysfunction, and secondary Carnitine deficiency? Thank you, - S. GA Re: Re: Bio-medical info For those who are interested. Glutathione ,TidF are the weakest ofchelators and should nevere be relied on to detoxify these children. DMSAis also a weak systemic chelator of mercury and is a little better forleas. DMSA is a very important adjunctive chelator because there is somegood evidence from Russian work that it does get into the brain and DMPSdoesn't. The best combinations of therapies are oral DMPS and oral DMSAfor those who would rather stay away from the injections. It is veryimportant to always give supplemental minerals and measure RBC mineralsevery few months during therapy and that way you can specificallysupplement items that are dropping faster than others. I certainly am nottelling you to avoid glutathione, lipoic acid and NAC or TIDF just keep inmind that it just takes too long to have any significant impact with thoseitems.I feel much more comfortable with oral DMPS than trans-dermal, andthrough 12 years and 100's of children it is a very safe way to go as longas you monitor the child with CBC'c, renal and liver function and mineralanalyses. Sincerely, SB Edelson B. Edelson, M.D., F.A.A.E.M.P.O. Box 566863Atlanta, Georgia 31156> Jim:>> I'll have to find Dr. Buttar's information at home,and I'm at work right> now, but I wanted to let you know that there are two doctors in the> Atlanta area now using TD-DMPS and following Buttar's protocol: Dr.> Lee and Dr. Guest. We just completed the preliminary> testing required by Buttar, and when those results are in, will start> with the DMPS. We just had a phone appointment with him, which wasn't> very informative, but we knew what we were starting already, so we> didn't have many questions. The initial lab testing and phone> appointment cost us about $2,000. I'm not sure what the expense for> the DMPS will be each month.>> If you want lots more info., sign onto the AutismBiomedGa group,> look around in the files, and ask questions. Some of the parents on> that group are already using DMPS.>> We have using glutathione, TTFD, and DMSA for about six months, and have> seen lots of metals coming out, and some improvements with our son, but> nothing "dramatic". Enough to keep it up, though:)>> >>>>>>>> "Jim" <jgs3@...>> Sent by: autism > 07/20/2005 11:22 AM> Please respond to> autism >>> To> autism > cc>> Subject> Re: Bio-medical info>>>>>>> ,>> Do you have the contact information for Dr. Buttar you can share. We> are trying to get hooked up with him and would also be interested in> any feedback you might care to share.>> Jim>> >> Jane:>>>> That would be great! We are doing chelation with TTFD right now,> and will>> move forward with DMPS and eventually hope to work with Dr. Buttar> in>> North Carolina (we have an appointment in June). We would> definitely join>> a local biomed group.>>>> >>>>>>>>>> "Jane Romdalvik" <rominick@a...>>> 12/30/2004 09:31 PM>> Please respond to>> autism >>>>>> To>> <autism >>> cc>>>> Subject>> Re: Bio-medical info>>>>>>>>>>>>>>>> So then I wouldn't be stepping on any toes if I created one> ( group>> for biomed locally)? I ran one in the last place I lived and> really miss>> the local support while going through the chelation ( currently TD-> DMPS)>> and all of the other crazy stuff we do. I belong to all of the> other great>> groups out there, but there is a lot to be said for having a small> local>> biomedical support group, especially online. It sounds to me like> there>> are at least a few of us in this boat here.>>>> Jane>> Mama to 7 (ASD) and 4 (NT)>>>>>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 There are several causes of low liver enzymes and carnitine deficiency. The most common in Autistic children would be related to amino acid deficiecies. A 24 hour urine done at Great Smokies would be beneficial.Sincerely, SBE B. Edelson, M.D., F.A.A.E.M. P.O. Box 566863 Atlanta, Georgia 31156 > Dr. Edelson; > Can you tell me about low liver enzymes in relationship to Partial > Complex 1 mitochondrial dysfunction, and secondary Carnitine > deficiency? > Thank you, - S. GA > Re: Re: Bio-medical info > > > For those who are interested. Glutathione ,TidF are the weakest of > chelators and should nevere be relied on to detoxify these children. > DMSA is also a weak systemic chelator of mercury and is a little > better for leas. DMSA is a very important adjunctive chelator because > there is some good evidence from Russian work that it does get into > the brain and DMPS doesn't. The best combinations of therapies are > oral DMPS and oral DMSA for those who would rather stay away from the > injections. It is very important to always give supplemental minerals > and measure RBC minerals every few months during therapy and that way > you can specifically supplement items that are dropping faster than > others. I certainly am not telling you to avoid glutathione, lipoic > acid and NAC or TIDF just keep in mind that it just takes too long to > have any significant impact with those items.I feel much more > comfortable with oral DMPS than trans-dermal, and through 12 years and > 100's of children it is a very safe way to go as long as you monitor > the child with CBC'c, renal and liver function and mineral analyses. > Sincerely, SB Edelson > > B. Edelson, M.D., F.A.A.E.M. > P.O. Box 566863 > Atlanta, Georgia 31156 > > > Jim: > > > > I'll have to find Dr. Buttar's information at home,and I'm at work > right > > now, but I wanted to let you know that there are two doctors in the > > Atlanta area now using TD-DMPS and following Buttar's protocol: Dr. > Lee and Dr. Guest. We just completed the preliminary > testing required by Buttar, and when those results are in, will > start with the DMPS. We just had a phone appointment with him, > which wasn't very informative, but we knew what we were starting > already, so we didn't have many questions. The initial lab testing > and phone appointment cost us about $2,000. I'm not sure what the > expense for the DMPS will be each month. > > > > If you want lots more info., sign onto the AutismBiomedGa > group, look around in the files, and ask questions. Some of the > parents on that group are already using DMPS. > > > > We have using glutathione, TTFD, and DMSA for about six months, and > have > > seen lots of metals coming out, and some improvements with our son, > but nothing " dramatic " . Enough to keep it up, though:) > > > > > > > > > > > > > > > > > > > > " Jim " <jgs3@...> > > Sent by: autism > > 07/20/2005 11:22 AM > > Please respond to > > autism > > > > > > To > > autism > > cc > > > > Subject > > Re: Bio-medical info > > > > > > > > > > > > > > , > > > > Do you have the contact information for Dr. Buttar you can share. > We are trying to get hooked up with him and would also be interested > in any feedback you might care to share. > > > > Jim > > > > > >> Jane: > >> > >> That would be great! We are doing chelation with TTFD right now, > > and will > >> move forward with DMPS and eventually hope to work with Dr. Buttar > > in > >> North Carolina (we have an appointment in June). We would > > definitely join > >> a local biomed group. > >> > >> > >> > >> > >> > >> > >> " Jane Romdalvik " <rominick@a...> > >> 12/30/2004 09:31 PM > >> Please respond to > >> autism > >> > >> > >> To > >> <autism > > >> cc > >> > >> Subject > >> Re: Bio-medical info > >> > >> > >> > >> > >> > >> > >> > >> So then I wouldn't be stepping on any toes if I created one > > ( group > >> for biomed locally)? I ran one in the last place I lived and > > really miss > >> the local support while going through the chelation ( currently TD- > > DMPS) > >> and all of the other crazy stuff we do. I belong to all of the > > other great > >> groups out there, but there is a lot to be said for having a small > > local > >> biomedical support group, especially online. It sounds to me like > > there > >> are at least a few of us in this boat here. > >> > >> Jane > >> Mama to 7 (ASD) and 4 (NT) > >> > >> > >> > >> > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 just my two cents here...if one already knows of mitochondrial disease and carnitine deficiency, why would a 24 hour urine from a specific lab (instead of one working specifically with mito probs i.e., kennedy krieger instititue) tell anything new? terry poling Re: Re: Bio-medical info >> >> >> For those who are interested. Glutathione ,TidF are the weakest of >> chelators and should nevere be relied on to detoxify these children. >> DMSA is also a weak systemic chelator of mercury and is a little >> better for leas. DMSA is a very important adjunctive chelator because >> there is some good evidence from Russian work that it does get into >> the brain and DMPS doesn't. The best combinations of therapies are >> oral DMPS and oral DMSA for those who would rather stay away from the >> injections. It is very important to always give supplemental minerals >> and measure RBC minerals every few months during therapy and that way >> you can specifically supplement items that are dropping faster than >> others. I certainly am not telling you to avoid glutathione, lipoic >> acid and NAC or TIDF just keep in mind that it just takes too long to >> have any significant impact with those items.I feel much more >> comfortable with oral DMPS than trans-dermal, and through 12 years and >> 100's of children it is a very safe way to go as long as you monitor >> the child with CBC'c, renal and liver function and mineral analyses. >> Sincerely, SB Edelson >> >> B. Edelson, M.D., F.A.A.E.M. >> P.O. Box 566863 >> Atlanta, Georgia 31156 >> >> > Jim: >> > >> > I'll have to find Dr. Buttar's information at home,and I'm at work >> right >> > now, but I wanted to let you know that there are two doctors in the >> > Atlanta area now using TD-DMPS and following Buttar's protocol: Dr. >> Lee and Dr. Guest. We just completed the preliminary >> testing required by Buttar, and when those results are in, will >> start with the DMPS. We just had a phone appointment with him, >> which wasn't very informative, but we knew what we were starting >> already, so we didn't have many questions. The initial lab testing >> and phone appointment cost us about $2,000. I'm not sure what the >> expense for the DMPS will be each month. >> > >> > If you want lots more info., sign onto the AutismBiomedGa >> group, look around in the files, and ask questions. Some of the >> parents on that group are already using DMPS. >> > >> > We have using glutathione, TTFD, and DMSA for about six months, and >> have >> > seen lots of metals coming out, and some improvements with our son, >> but nothing " dramatic " . Enough to keep it up, though:) >> > >> > >> > >> > >> > >> > >> > >> > >> > >> > " Jim " <jgs3@...> >> > Sent by: autism >> > 07/20/2005 11:22 AM >> > Please respond to >> > autism >> > >> > >> > To >> > autism >> > cc >> > >> > Subject >> > Re: Bio-medical info >> > >> > >> > >> > >> > >> > >> > , >> > >> > Do you have the contact information for Dr. Buttar you can share. >> We are trying to get hooked up with him and would also be interested >> in any feedback you might care to share. >> > >> > Jim >> > >> > >> >> Jane: >> >> >> >> That would be great! We are doing chelation with TTFD right now, >> > and will >> >> move forward with DMPS and eventually hope to work with Dr. Buttar >> > in >> >> North Carolina (we have an appointment in June). We would >> > definitely join >> >> a local biomed group. >> >> >> >> >> >> >> >> >> >> >> >> >> >> " Jane Romdalvik " <rominick@a...> >> >> 12/30/2004 09:31 PM >> >> Please respond to >> >> autism >> >> >> >> >> >> To >> >> <autism > >> >> cc >> >> >> >> Subject >> >> Re: Bio-medical info >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> So then I wouldn't be stepping on any toes if I created one >> > ( group >> >> for biomed locally)? I ran one in the last place I lived and >> > really miss >> >> the local support while going through the chelation ( currently TD- >> > DMPS) >> >> and all of the other crazy stuff we do. I belong to all of the >> > other great >> >> groups out there, but there is a lot to be said for having a small >> > local >> >> biomedical support group, especially online. It sounds to me like >> > there >> >> are at least a few of us in this boat here. >> >> >> >> Jane >> >> Mama to 7 (ASD) and 4 (NT) >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Hi Terry- You may not know this but you can view the entire DAN conference for free online that discusses the posted topics in depth at www.DANwebcast.com Both Dr Levinson and Dr Nuebrander would be of interest to you. Log on and they will Email you a password it is totally free. Dr. McCandeless also has a fabulous book called Children with Starving Brains that is a great BioMedical primer and as far as I know she has no history of lawsuits, substance abuse or fraud. Great plains in coming with Dr. Buttar and Shaw to Atlanta for an outreach clinic at Simpsonwood it would be worth attending to dive into BioMed. I was shocked at how much internally was wrong with my child when tested. Both Dr. Levinson and McCandless can steer you in the direction of proper testing. Now 1 year into doctor supervised chelation my son is rapidly improving. We are seeing vast improvement using mB12 shots every third day as well. I am not an angry person as accused by Mr. Edelson. On the contrary my kid is recovering and I'm thrilled. I merely want to see people get on the right track and help their children. Blessings Terry Poling <terrypoling@...> wrote: just my two cents here...if one already knows of mitochondrial disease and carnitine deficiency, why would a 24 hour urine from a specific lab (instead of one working specifically with mito probs i.e., kennedy krieger instititue) tell anything new? terry poling Re: Re: Bio-medical info>>>>>> For those who are interested. Glutathione ,TidF are the weakest of>> chelators and should nevere be relied on to detoxify these children.>> DMSA is also a weak systemic chelator of mercury and is a little>> better for leas. DMSA is a very important adjunctive chelator because>> there is some good evidence from Russian work that it does get into>> the brain and DMPS doesn't. The best combinations of therapies are>> oral DMPS and oral DMSA for those who would rather stay away from the>> injections. It is very important to always give supplemental minerals>> and measure RBC minerals every few months during therapy and that way>> you can specifically supplement items that are dropping faster than>> others. I certainly am not telling you to avoid glutathione, lipoic>> acid and NAC or TIDF just keep in mind that it just takes too long to>> have any significant impact with those items.I feel much more>> comfortable with oral DMPS than trans-dermal, and through 12 years and>> 100's of children it is a very safe way to go as long as you monitor>> the child with CBC'c, renal and liver function and mineral analyses.>> Sincerely, SB Edelson>>>> B. Edelson, M.D., F.A.A.E.M.>> P.O. Box 566863>> Atlanta, Georgia 31156>>>> > Jim:>> >>> > I'll have to find Dr. Buttar's information at home,and I'm at work>> right>> > now, but I wanted to let you know that there are two doctors in the>> > Atlanta area now using TD-DMPS and following Buttar's protocol: Dr.>> Lee and Dr. Guest. We just completed the preliminary>> testing required by Buttar, and when those results are in, will>> start with the DMPS. We just had a phone appointment with him,>> which wasn't very informative, but we knew what we were starting>> already, so we didn't have many questions. The initial lab testing>> and phone appointment cost us about $2,000. I'm not sure what the>> expense for the DMPS will be each month.>> >>> > If you want lots more info., sign onto the AutismBiomedGa >> group, look around in the files, and ask questions. Some of the>> parents on that group are already using DMPS.>> >>> > We have using glutathione, TTFD, and DMSA for about six months, and>> have>> > seen lots of metals coming out, and some improvements with our son,>> but nothing "dramatic". Enough to keep it up, though:)>> >>> > >> >>> >>> >>> >>> >>> >>> >>> > "Jim" <jgs3@...>>> > Sent by: autism >> > 07/20/2005 11:22 AM>> > Please respond to>> > autism >> >>> >>> > To>> > autism >> > cc>> >>> > Subject>> > Re: Bio-medical info>> >>> >>> >>> >>> >>> >>> > ,>> >>> > Do you have the contact information for Dr. Buttar you can share.>> We are trying to get hooked up with him and would also be interested>> in any feedback you might care to share.>> >>> > Jim>> >>> > >> >> Jane:>> >>>> >> That would be great! We are doing chelation with TTFD right now,>> > and will>> >> move forward with DMPS and eventually hope to work with Dr. Buttar>> > in>> >> North Carolina (we have an appointment in June). We would>> > definitely join>> >> a local biomed group.>> >>>> >> >> >>>> >>>> >>>> >>>> >> "Jane Romdalvik" <rominick@a...>>> >> 12/30/2004 09:31 PM>> >> Please respond to>> >> autism >> >>>> >>>> >> To>> >> <autism >>> >> cc>> >>>> >> Subject>> >> Re: Bio-medical info>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >> So then I wouldn't be stepping on any toes if I created one>> > ( group>> >> for biomed locally)? I ran one in the last place I lived and>> > really miss>> >> the local support while going through the chelation ( currently TD->> > DMPS)>> >> and all of the other crazy stuff we do. I belong to all of the>> > other great>> >> groups out there, but there is a lot to be said for having a small>> > local>> >> biomedical support group, especially online. It sounds to me like>> > there>> >> are at least a few of us in this boat here.>> >>>> >> Jane>> >> Mama to 7 (ASD) and 4 (NT)>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Thank you for the reply. My son has Partial Complex 1 & secondary carnitine deficiency. I just happened to run across his last labs. His amino acids are within limits - we do supplement in that area also. He cannot handle time release & "build-up" type meds. He & his brother both have low alanine & high pyruvate also. -S. GA Re: Re: Bio-medical info>>> For those who are interested. Glutathione ,TidF are the weakest of> chelators and should nevere be relied on to detoxify these children.> DMSA is also a weak systemic chelator of mercury and is a little> better for leas. DMSA is a very important adjunctive chelator because> there is some good evidence from Russian work that it does get into> the brain and DMPS doesn't. The best combinations of therapies are> oral DMPS and oral DMSA for those who would rather stay away from the> injections. It is very important to always give supplemental minerals> and measure RBC minerals every few months during therapy and that way> you can specifically supplement items that are dropping faster than> others. I certainly am not telling you to avoid glutathione, lipoic> acid and NAC or TIDF just keep in mind that it just takes too long to> have any significant impact with those items.I feel much more> comfortable with oral DMPS than trans-dermal, and through 12 years and> 100's of children it is a very safe way to go as long as you monitor> the child with CBC'c, renal and liver function and mineral analyses.> Sincerely, SB Edelson>> B. Edelson, M.D., F.A.A.E.M.> P.O. Box 566863> Atlanta, Georgia 31156>> > Jim:> >> > I'll have to find Dr. Buttar's information at home,and I'm at work> right> > now, but I wanted to let you know that there are two doctors in the> > Atlanta area now using TD-DMPS and following Buttar's protocol: Dr.> Lee and Dr. Guest. We just completed the preliminary> testing required by Buttar, and when those results are in, will> start with the DMPS. We just had a phone appointment with him,> which wasn't very informative, but we knew what we were starting> already, so we didn't have many questions. The initial lab testing> and phone appointment cost us about $2,000. I'm not sure what the> expense for the DMPS will be each month.> >> > If you want lots more info., sign onto the AutismBiomedGa > group, look around in the files, and ask questions. Some of the> parents on that group are already using DMPS.> >> > We have using glutathione, TTFD, and DMSA for about six months, and> have> > seen lots of metals coming out, and some improvements with our son,> but nothing "dramatic". Enough to keep it up, though:)> >> > > >> >> >> >> >> >> >> > "Jim" <jgs3@...>> > Sent by: autism > > 07/20/2005 11:22 AM> > Please respond to> > autism > >> >> > To> > autism > > cc> >> > Subject> > Re: Bio-medical info> >> >> >> >> >> >> > ,> >> > Do you have the contact information for Dr. Buttar you can share.> We are trying to get hooked up with him and would also be interested> in any feedback you might care to share.> >> > Jim> >> > > >> Jane:> >>> >> That would be great! We are doing chelation with TTFD right now,> > and will> >> move forward with DMPS and eventually hope to work with Dr. Buttar> > in> >> North Carolina (we have an appointment in June). We would> > definitely join> >> a local biomed group.> >>> >> > >>> >>> >>> >>> >> "Jane Romdalvik" <rominick@a...>> >> 12/30/2004 09:31 PM> >> Please respond to> >> autism > >>> >>> >> To> >> <autism >> >> cc> >>> >> Subject> >> Re: Bio-medical info> >>> >>> >>> >>> >>> >>> >>> >> So then I wouldn't be stepping on any toes if I created one> > ( group> >> for biomed locally)? I ran one in the last place I lived and> > really miss> >> the local support while going through the chelation ( currently TD-> > DMPS)> >> and all of the other crazy stuff we do. I belong to all of the> > other great> >> groups out there, but there is a lot to be said for having a small> > local> >> biomedical support group, especially online. It sounds to me like> > there> >> are at least a few of us in this boat here.> >>> >> Jane> >> Mama to 7 (ASD) and 4 (NT)> >>> >>> >>> >>> >>> >>> >>> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 Were these amino acids done from a 24 hour one at Great Smokies. If not I am not sure I would trust the results and interpretation.SBE B. Edelson, M.D., F.A.A.E.M. P.O. Box 566863 Atlanta, Georgia 31156 > Thank you for the reply. My son has Partial Complex 1 & secondary > carnitine deficiency. I just happened to run across his last labs. His > amino acids are within limits - we do supplement in that area also. He > cannot handle time release & " build-up " type meds. He & his brother both > have low alanine & high pyruvate also. -S. GA > > > Re: Re: Bio-medical info > > > > > > For those who are interested. Glutathione ,TidF are the weakest of > > chelators and should nevere be relied on to detoxify these children. > DMSA is also a weak systemic chelator of mercury and is a little > better for leas. DMSA is a very important adjunctive chelator > because there is some good evidence from Russian work that it does > get into the brain and DMPS doesn't. The best combinations of > therapies are oral DMPS and oral DMSA for those who would rather > stay away from the injections. It is very important to always give > supplemental minerals and measure RBC minerals every few months > during therapy and that way you can specifically supplement items > that are dropping faster than others. I certainly am not telling you > to avoid glutathione, lipoic acid and NAC or TIDF just keep in mind > that it just takes too long to have any significant impact with > those items.I feel much more > > comfortable with oral DMPS than trans-dermal, and through 12 years > and 100's of children it is a very safe way to go as long as you > monitor the child with CBC'c, renal and liver function and mineral > analyses. Sincerely, SB Edelson > > > > B. Edelson, M.D., F.A.A.E.M. > > P.O. Box 566863 > > Atlanta, Georgia 31156 > > > > > Jim: > > > > > > I'll have to find Dr. Buttar's information at home,and I'm at > work > > right > > > now, but I wanted to let you know that there are two doctors in > the > > > Atlanta area now using TD-DMPS and following Buttar's protocol: > Dr. > > Lee and Dr. Guest. We just completed the preliminary > testing required by Buttar, and when those results are in, will > start with the DMPS. We just had a phone appointment with him, > which wasn't very informative, but we knew what we were starting > already, so we didn't have many questions. The initial lab testing > and phone appointment cost us about $2,000. I'm not sure what the > expense for the DMPS will be each month. > > > > > > If you want lots more info., sign onto the AutismBiomedGa > > group, look around in the files, and ask questions. Some of the > parents on that group are already using DMPS. > > > > > > We have using glutathione, TTFD, and DMSA for about six months, > and > > have > > > seen lots of metals coming out, and some improvements with our > son, > > but nothing " dramatic " . Enough to keep it up, though:) > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > " Jim " <jgs3@...> > > > Sent by: autism > > > 07/20/2005 11:22 AM > > > Please respond to > > > autism > > > > > > > > > To > > > autism > > > cc > > > > > > Subject > > > Re: Bio-medical info > > > > > > > > > > > > > > > > > > > > > , > > > > > > Do you have the contact information for Dr. Buttar you can > share. > > We are trying to get hooked up with him and would also be interested > > in any feedback you might care to share. > > > > > > Jim > > > > > > > > >> Jane: > > >> > > >> That would be great! We are doing chelation with TTFD right > now, > > > and will > > >> move forward with DMPS and eventually hope to work with Dr. > Buttar > > > in > > >> North Carolina (we have an appointment in June). We would > > > definitely join > > >> a local biomed group. > > >> > > >> > > >> > > >> > > >> > > >> > > >> " Jane Romdalvik " <rominick@a...> > > >> 12/30/2004 09:31 PM > > >> Please respond to > > >> autism > > >> > > >> > > >> To > > >> <autism > > > >> cc > > >> > > >> Subject > > >> Re: Bio-medical info > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> So then I wouldn't be stepping on any toes if I created one > > > ( group > > >> for biomed locally)? I ran one in the last place I lived and > > > really miss > > >> the local support while going through the chelation ( currently > TD- > > > DMPS) > > >> and all of the other crazy stuff we do. I belong to all of the > > > other great > > >> groups out there, but there is a lot to be said for having a > small > > > local > > >> biomedical support group, especially online. It sounds to me > like > > > there > > >> are at least a few of us in this boat here. > > >> > > >> Jane > > >> Mama to 7 (ASD) and 4 (NT) > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 You continue to refer to me without having any factual information. Since when is an accusation equal to guilt. By the way your Dr. McCandless took all the information in her book from other people's writing including mine. She has never treated or healed any autistic children. Her only knowlege is what she has read from other researchers. Be careful who you ask for help with your children. Make sure they have a large knowledge based in applied immunology, toxicology, clinical nutritional biochemisytr, environmental and free radical medicine. Sincerely,SBE B. Edelson, M.D., F.A.A.E.M. P.O. Box 566863 Atlanta, Georgia 31156 > Hi Terry- > You may not know this but you can view the entire DAN conference for > free online that discusses the posted topics in depth at > www.DANwebcast.com Both Dr Levinson and Dr Nuebrander would be of > interest to you. > Log on and they will Email you a password it is totally free. Dr. > McCandeless also has a fabulous book called Children with Starving > Brains that is a great BioMedical primer and as far as I know she has no > history of lawsuits, substance abuse or fraud. Great plains in coming > with Dr. Buttar and Shaw to Atlanta for an outreach clinic at > Simpsonwood it would be worth attending to dive into BioMed. I was > shocked at how much internally was wrong with my child when tested. Both > Dr. Levinson and McCandless can steer you in the direction of proper > testing. Now 1 year into doctor supervised chelation my son is rapidly > improving. We are seeing vast improvement using mB12 shots every third > day as well. I am not an angry person as accused by Mr. Edelson. On the > contrary my kid is recovering and I'm thrilled. I merely want to see > people get on the right track and help their children. Blessings > > > > Terry Poling <terrypoling@...> wrote: > just my two cents here...if one already knows of mitochondrial disease > and carnitine deficiency, why would a 24 hour urine from a specific lab > (instead of one working specifically with mito probs i.e., kennedy > krieger instititue) tell anything new? terry poling > Re: Re: Bio-medical info >>> >>> >>> For those who are interested. Glutathione ,TidF are the weakest of >>> chelators and should nevere be relied on to detoxify these children. >>> DMSA is also a weak systemic chelator of mercury and is a little >>> better for leas. DMSA is a very important adjunctive chelator because >>> there is some good evidence from Russian work that it does get into >>> the brain and DMPS doesn't. The best combinations of therapies are >>> oral DMPS and oral DMSA for those who would rather stay away from the >>> injections. It is very important to always give supplemental minerals >>> and measure RBC minerals every few months during therapy and that way >>> you can specifically supplement items that are dropping faster than >>> others. I certainly am not telling you to avoid glutathione, lipoic >>> acid and NAC or TIDF just keep in mind that it just takes too long to >>> have any significant impact with those items.I feel much more >>> comfortable with oral DMPS than trans-dermal, and through 12 years >>> and 100's of children it is a very safe way to go as long as you >>> monitor the child with CBC'c, renal and liver function and mineral >>> analyses. Sincerely, SB Edelson >>> >>> B. Edelson, M.D., F.A.A.E.M. >>> P.O. Box 566863 >>> Atlanta, Georgia 31156 >>> >>> > Jim: >>> > >>> > I'll have to find Dr. Buttar's information at home,and I'm at >>> work >>> right >>> > now, but I wanted to let you know that there are two doctors in >>> the >>> > Atlanta area now using TD-DMPS and following Buttar's protocol: >>> Dr. >>> Lee and Dr. Guest. We just completed the preliminary >>> testing required by Buttar, and when those results are in, will >>> start with the DMPS. We just had a phone appointment with him, >>> which wasn't very informative, but we knew what we were starting >>> already, so we didn't have many questions. The initial lab testing >>> and phone appointment cost us about $2,000. I'm not sure what the >>> expense for the DMPS will be each month. >>> > >>> > If you want lots more info., sign onto the AutismBiomedGa >>> group, look around in the files, and ask questions. Some of the >>> parents on that group are already using DMPS. >>> > >>> > We have using glutathione, TTFD, and DMSA for about six months, >>> and >>> have >>> > seen lots of metals coming out, and some improvements with our >>> son, >>> but nothing " dramatic " . Enough to keep it up, though:) >>> > >>> > >>> > >>> > >>> > >>> > >>> > >>> > >>> > >>> > " Jim " <jgs3@...> >>> > Sent by: autism >>> > 07/20/2005 11:22 AM >>> > Please respond to >>> > autism >>> > >>> > >>> > To >>> > autism >>> > cc >>> > >>> > Subject >>> > Re: Bio-medical info >>> > >>> > >>> > >>> > >>> > >>> > >>> > , >>> > >>> > Do you have the contact information for Dr. Buttar you can share. >>> We are trying to get hooked up with him and would also be interested >>> in any feedback you might care to share. >>> > >>> > Jim >>> > >>> > >>> >> Jane: >>> >> >>> >> That would be great! We are doing chelation with TTFD right >>> now, >>> > and will >>> >> move forward with DMPS and eventually hope to work with Dr. >>> Buttar >>> > in >>> >> North Carolina (we have an appointment in June). We would >>> > definitely join >>> >> a local biomed group. >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> " Jane Romdalvik " <rominick@a...> >>> >> 12/30/2004 09:31 PM >>> >> Please respond to >>> >> autism >>> >> >>> >> >>> >> To >>> >> <autism > >>> >> cc >>> >> >>> >> Subject >>> >> Re: Bio-medical info >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> So then I wouldn't be stepping on any toes if I created one >>> > ( group >>> >> for biomed locally)? I ran one in the last place I lived and >>> > really miss >>> >> the local support while going through the chelation ( currently >>> TD- >>> > DMPS) >>> >> and all of the other crazy stuff we do. I belong to all of the >>> > other great >>> >> groups out there, but there is a lot to be said for having a >>> small >>> > local >>> >> biomedical support group, especially online. It sounds to me >>> like >>> > there >>> >> are at least a few of us in this boat here. >>> >> >>> >> Jane >>> >> Mama to 7 (ASD) and 4 (NT) >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 Sincerely,SBEThe work done at Great Smokies was organized and interpreted by Dr. Pangborn who I think Has one of the best backgrounds in FUMCTIONAL AMINO ACID BIOCHEMISTRY which is totally different than what you get at any other traditional lab. For example I can tell from that test about intestinal permeability, maldigestion, toxicities, intestinal overgrowth and many other abnormalities that you just can't get without his interpretation B. Edelson, M.D., F.A.A.E.M. P.O. Box 566863 Atlanta, Georgia 31156 > just my two cents here...if one already knows of mitochondrial disease > and carnitine deficiency, why would a 24 hour urine from a specific lab > (instead of one working specifically with mito probs i.e., kennedy > krieger instititue) tell anything new? terry poling > Re: Re: Bio-medical info >>> >>> >>> For those who are interested. Glutathione ,TidF are the weakest of >>> chelators and should nevere be relied on to detoxify these children. >>> DMSA is also a weak systemic chelator of mercury and is a little >>> better for leas. DMSA is a very important adjunctive chelator because >>> there is some good evidence from Russian work that it does get into >>> the brain and DMPS doesn't. The best combinations of therapies are >>> oral DMPS and oral DMSA for those who would rather stay away from the >>> injections. It is very important to always give supplemental minerals >>> and measure RBC minerals every few months during therapy and that way >>> you can specifically supplement items that are dropping faster than >>> others. I certainly am not telling you to avoid glutathione, lipoic >>> acid and NAC or TIDF just keep in mind that it just takes too long to >>> have any significant impact with those items.I feel much more >>> comfortable with oral DMPS than trans-dermal, and through 12 years >>> and 100's of children it is a very safe way to go as long as you >>> monitor the child with CBC'c, renal and liver function and mineral >>> analyses. Sincerely, SB Edelson >>> >>> B. Edelson, M.D., F.A.A.E.M. >>> P.O. Box 566863 >>> Atlanta, Georgia 31156 >>> >>> > Jim: >>> > >>> > I'll have to find Dr. Buttar's information at home,and I'm at >>> work >>> right >>> > now, but I wanted to let you know that there are two doctors in >>> the >>> > Atlanta area now using TD-DMPS and following Buttar's protocol: >>> Dr. >>> Lee and Dr. Guest. We just completed the preliminary >>> testing required by Buttar, and when those results are in, will >>> start with the DMPS. We just had a phone appointment with him, >>> which wasn't very informative, but we knew what we were starting >>> already, so we didn't have many questions. The initial lab testing >>> and phone appointment cost us about $2,000. I'm not sure what the >>> expense for the DMPS will be each month. >>> > >>> > If you want lots more info., sign onto the AutismBiomedGa >>> group, look around in the files, and ask questions. Some of the >>> parents on that group are already using DMPS. >>> > >>> > We have using glutathione, TTFD, and DMSA for about six months, >>> and >>> have >>> > seen lots of metals coming out, and some improvements with our >>> son, >>> but nothing " dramatic " . Enough to keep it up, though:) >>> > >>> > >>> > >>> > >>> > >>> > >>> > >>> > >>> > >>> > " Jim " <jgs3@...> >>> > Sent by: autism >>> > 07/20/2005 11:22 AM >>> > Please respond to >>> > autism >>> > >>> > >>> > To >>> > autism >>> > cc >>> > >>> > Subject >>> > Re: Bio-medical info >>> > >>> > >>> > >>> > >>> > >>> > >>> > , >>> > >>> > Do you have the contact information for Dr. Buttar you can share. >>> We are trying to get hooked up with him and would also be interested >>> in any feedback you might care to share. >>> > >>> > Jim >>> > >>> > >>> >> Jane: >>> >> >>> >> That would be great! We are doing chelation with TTFD right >>> now, >>> > and will >>> >> move forward with DMPS and eventually hope to work with Dr. >>> Buttar >>> > in >>> >> North Carolina (we have an appointment in June). We would >>> > definitely join >>> >> a local biomed group. >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> " Jane Romdalvik " <rominick@a...> >>> >> 12/30/2004 09:31 PM >>> >> Please respond to >>> >> autism >>> >> >>> >> >>> >> To >>> >> <autism > >>> >> cc >>> >> >>> >> Subject >>> >> Re: Bio-medical info >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> So then I wouldn't be stepping on any toes if I created one >>> > ( group >>> >> for biomed locally)? I ran one in the last place I lived and >>> > really miss >>> >> the local support while going through the chelation ( currently >>> TD- >>> > DMPS) >>> >> and all of the other crazy stuff we do. I belong to all of the >>> > other great >>> >> groups out there, but there is a lot to be said for having a >>> small >>> > local >>> >> biomedical support group, especially online. It sounds to me >>> like >>> > there >>> >> are at least a few of us in this boat here. >>> >> >>> >> Jane >>> >> Mama to 7 (ASD) and 4 (NT) >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 Is Great Smokies the same as Great Plains? Missy--SAHM/Student Again I am who I am because that's who I am. --- 6, Asperger's All kids are gifted, some just open their packages earlier than others. -- Carr Re: Re: Bio-medical info >> > >> > >> > For those who are interested. Glutathione ,TidF are the weakest of >> > chelators and should nevere be relied on to detoxify these children. >> DMSA is also a weak systemic chelator of mercury and is a little >> better for leas. DMSA is a very important adjunctive chelator >> because there is some good evidence from Russian work that it does >> get into the brain and DMPS doesn't. The best combinations of >> therapies are oral DMPS and oral DMSA for those who would rather >> stay away from the injections. It is very important to always give >> supplemental minerals and measure RBC minerals every few months >> during therapy and that way you can specifically supplement items >> that are dropping faster than others. I certainly am not telling you >> to avoid glutathione, lipoic acid and NAC or TIDF just keep in mind >> that it just takes too long to have any significant impact with >> those items.I feel much more >> > comfortable with oral DMPS than trans-dermal, and through 12 years >> and 100's of children it is a very safe way to go as long as you >> monitor the child with CBC'c, renal and liver function and mineral >> analyses. Sincerely, SB Edelson >> > >> > B. Edelson, M.D., F.A.A.E.M. >> > P.O. Box 566863 >> > Atlanta, Georgia 31156 >> > >> > > Jim: >> > > >> > > I'll have to find Dr. Buttar's information at home,and I'm at >> work >> > right >> > > now, but I wanted to let you know that there are two doctors in >> the >> > > Atlanta area now using TD-DMPS and following Buttar's protocol: >> Dr. >> > Lee and Dr. Guest. We just completed the preliminary >> testing required by Buttar, and when those results are in, will >> start with the DMPS. We just had a phone appointment with him, >> which wasn't very informative, but we knew what we were starting >> already, so we didn't have many questions. The initial lab testing >> and phone appointment cost us about $2,000. I'm not sure what the >> expense for the DMPS will be each month. >> > > >> > > If you want lots more info., sign onto the AutismBiomedGa >> > group, look around in the files, and ask questions. Some of the >> parents on that group are already using DMPS. >> > > >> > > We have using glutathione, TTFD, and DMSA for about six months, >> and >> > have >> > > seen lots of metals coming out, and some improvements with our >> son, >> > but nothing " dramatic " . Enough to keep it up, though:) >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > " Jim " <jgs3@...> >> > > Sent by: autism >> > > 07/20/2005 11:22 AM >> > > Please respond to >> > > autism >> > > >> > > >> > > To >> > > autism >> > > cc >> > > >> > > Subject >> > > Re: Bio-medical info >> > > >> > > >> > > >> > > >> > > >> > > >> > > , >> > > >> > > Do you have the contact information for Dr. Buttar you can >> share. >> > We are trying to get hooked up with him and would also be interested >> > in any feedback you might care to share. >> > > >> > > Jim >> > > >> > > >> > >> Jane: >> > >> >> > >> That would be great! We are doing chelation with TTFD right >> now, >> > > and will >> > >> move forward with DMPS and eventually hope to work with Dr. >> Buttar >> > > in >> > >> North Carolina (we have an appointment in June). We would >> > > definitely join >> > >> a local biomed group. >> > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> > >> " Jane Romdalvik " <rominick@a...> >> > >> 12/30/2004 09:31 PM >> > >> Please respond to >> > >> autism >> > >> >> > >> >> > >> To >> > >> <autism > >> > >> cc >> > >> >> > >> Subject >> > >> Re: Bio-medical info >> > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> > >> So then I wouldn't be stepping on any toes if I created one >> > > ( group >> > >> for biomed locally)? I ran one in the last place I lived and >> > > really miss >> > >> the local support while going through the chelation ( currently >> TD- >> > > DMPS) >> > >> and all of the other crazy stuff we do. I belong to all of the >> > > other great >> > >> groups out there, but there is a lot to be said for having a >> small >> > > local >> > >> biomedical support group, especially online. It sounds to me >> like >> > > there >> > >> are at least a few of us in this boat here. >> > >> >> > >> Jane >> > >> Mama to 7 (ASD) and 4 (NT) >> > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 Nope 2 different labs.Missy Feldhaus <itchy10@...> wrote: Is Great Smokies the same as Great Plains?Missy--SAHM/Student AgainI am who I am because that's who I am.--- 6, Asperger'sAll kids are gifted, some just open theirpackages earlier than others.-- Carr Re: Re: Bio-medical info>> >>> >>> > For those who are interested. Glutathione ,TidF are the weakest of>> > chelators and should nevere be relied on to detoxify these children.>> DMSA is also a weak systemic chelator of mercury and is a little>> better for leas. DMSA is a very important adjunctive chelator>> because there is some good evidence from Russian work that it does>> get into the brain and DMPS doesn't. The best combinations of>> therapies are oral DMPS and oral DMSA for those who would rather>> stay away from the injections. It is very important to always give>> supplemental minerals and measure RBC minerals every few months>> during therapy and that way you can specifically supplement items>> that are dropping faster than others. I certainly am not telling you>> to avoid glutathione, lipoic acid and NAC or TIDF just keep in mind>> that it just takes too long to have any significant impact with>> those items.I feel much more>> > comfortable with oral DMPS than trans-dermal, and through 12 years>> and 100's of children it is a very safe way to go as long as you>> monitor the child with CBC'c, renal and liver function and mineral>> analyses. Sincerely, SB Edelson>> >>> > B. Edelson, M.D., F.A.A.E.M.>> > P.O. Box 566863>> > Atlanta, Georgia 31156>> >>> > > Jim:>> > >>> > > I'll have to find Dr. Buttar's information at home,and I'm at>> work>> > right>> > > now, but I wanted to let you know that there are two doctors in>> the>> > > Atlanta area now using TD-DMPS and following Buttar's protocol:>> Dr.>> > Lee and Dr. Guest. We just completed the preliminary>> testing required by Buttar, and when those results are in, will>> start with the DMPS. We just had a phone appointment with him,>> which wasn't very informative, but we knew what we were starting>> already, so we didn't have many questions. The initial lab testing>> and phone appointment cost us about $2,000. I'm not sure what the>> expense for the DMPS will be each month.>> > >>> > > If you want lots more info., sign onto the AutismBiomedGa >> > group, look around in the files, and ask questions. Some of the>> parents on that group are already using DMPS.>> > >>> > > We have using glutathione, TTFD, and DMSA for about six months,>> and>> > have>> > > seen lots of metals coming out, and some improvements with our>> son,>> > but nothing "dramatic". Enough to keep it up, though:)>> > >>> > > >> > >>> > >>> > >>> > >>> > >>> > >>> > >>> > > "Jim" <jgs3@...>>> > > Sent by: autism >> > > 07/20/2005 11:22 AM>> > > Please respond to>> > > autism >> > >>> > >>> > > To>> > > autism >> > > cc>> > >>> > > Subject>> > > Re: Bio-medical info>> > >>> > >>> > >>> > >>> > >>> > >>> > > ,>> > >>> > > Do you have the contact information for Dr. Buttar you can>> share.>> > We are trying to get hooked up with him and would also be interested>> > in any feedback you might care to share.>> > >>> > > Jim>> > >>> > > >> > >> Jane:>> > >>>> > >> That would be great! We are doing chelation with TTFD right>> now,>> > > and will>> > >> move forward with DMPS and eventually hope to work with Dr.>> Buttar>> > > in>> > >> North Carolina (we have an appointment in June). We would>> > > definitely join>> > >> a local biomed group.>> > >>>> > >> >> > >>>> > >>>> > >>>> > >>>> > >> "Jane Romdalvik" <rominick@a...>>> > >> 12/30/2004 09:31 PM>> > >> Please respond to>> > >> autism >> > >>>> > >>>> > >> To>> > >> <autism >>> > >> cc>> > >>>> > >> Subject>> > >> Re: Bio-medical info>> > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> > >> So then I wouldn't be stepping on any toes if I created one>> > > ( group>> > >> for biomed locally)? I ran one in the last place I lived and>> > > really miss>> > >> the local support while going through the chelation ( currently>> TD->> > > DMPS)>> > >> and all of the other crazy stuff we do. I belong to all of the>> > > other great>> > >> groups out there, but there is a lot to be said for having a>> small>> > > local>> > >> biomedical support group, especially online. It sounds to me>> like>> > > there>> > >> are at least a few of us in this boat here.>> > >>>> > >> Jane>> > >> Mama to 7 (ASD) and 4 (NT)>> > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 No, they are two different labs and I only recommend Great Smokies. SBE B. Edelson, M.D., F.A.A.E.M. P.O. Box 566863 Atlanta, Georgia 31156 > Is Great Smokies the same as Great Plains? > > Missy--SAHM/Student Again > > I am who I am because that's who I am. > > --- 6, Asperger's > > All kids are gifted, some just open their > packages earlier than others. > > -- Carr > Re: Re: Bio-medical info >>> > >>> > >>> > For those who are interested. Glutathione ,TidF are the weakest >>> of >>> > chelators and should nevere be relied on to detoxify these >>> children. >>> DMSA is also a weak systemic chelator of mercury and is a little >>> better for leas. DMSA is a very important adjunctive chelator >>> because there is some good evidence from Russian work that it does >>> get into the brain and DMPS doesn't. The best combinations of >>> therapies are oral DMPS and oral DMSA for those who would rather stay >>> away from the injections. It is very important to always give >>> supplemental minerals and measure RBC minerals every few months >>> during therapy and that way you can specifically supplement items >>> that are dropping faster than others. I certainly am not telling you >>> to avoid glutathione, lipoic acid and NAC or TIDF just keep in mind >>> that it just takes too long to have any significant impact with those >>> items.I feel much more >>> > comfortable with oral DMPS than trans-dermal, and through 12 >>> years >>> and 100's of children it is a very safe way to go as long as you >>> monitor the child with CBC'c, renal and liver function and mineral >>> analyses. Sincerely, SB Edelson >>> > >>> > B. Edelson, M.D., F.A.A.E.M. >>> > P.O. Box 566863 >>> > Atlanta, Georgia 31156 >>> > >>> > > Jim: >>> > > >>> > > I'll have to find Dr. Buttar's information at home,and I'm at >>> work >>> > right >>> > > now, but I wanted to let you know that there are two doctors >>> in >>> the >>> > > Atlanta area now using TD-DMPS and following Buttar's >>> protocol: >>> Dr. >>> > Lee and Dr. Guest. We just completed the >>> preliminary >>> testing required by Buttar, and when those results are in, will >>> start with the DMPS. We just had a phone appointment with him, >>> which wasn't very informative, but we knew what we were starting >>> already, so we didn't have many questions. The initial lab testing >>> and phone appointment cost us about $2,000. I'm not sure what the >>> expense for the DMPS will be each month. >>> > > >>> > > If you want lots more info., sign onto the AutismBiomedGa >>> >>> > group, look around in the files, and ask questions. Some of the >>> parents on that group are already using DMPS. >>> > > >>> > > We have using glutathione, TTFD, and DMSA for about six >>> months, >>> and >>> > have >>> > > seen lots of metals coming out, and some improvements with >>> our >>> son, >>> > but nothing " dramatic " . Enough to keep it up, though:) >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > " Jim " <jgs3@...> >>> > > Sent by: autism >>> > > 07/20/2005 11:22 AM >>> > > Please respond to >>> > > autism >>> > > >>> > > >>> > > To >>> > > autism >>> > > cc >>> > > >>> > > Subject >>> > > Re: Bio-medical info >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > , >>> > > >>> > > Do you have the contact information for Dr. Buttar you can >>> share. >>> > We are trying to get hooked up with him and would also be >>> interested >>> > in any feedback you might care to share. >>> > > >>> > > Jim >>> > > >>> > > >>> > >> Jane: >>> > >> >>> > >> That would be great! We are doing chelation with TTFD right >>> now, >>> > > and will >>> > >> move forward with DMPS and eventually hope to work with Dr. >>> Buttar >>> > > in >>> > >> North Carolina (we have an appointment in June). We would >>> > > definitely join >>> > >> a local biomed group. >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> " Jane Romdalvik " <rominick@a...> >>> > >> 12/30/2004 09:31 PM >>> > >> Please respond to >>> > >> autism >>> > >> >>> > >> >>> > >> To >>> > >> <autism > >>> > >> cc >>> > >> >>> > >> Subject >>> > >> Re: Bio-medical info >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> So then I wouldn't be stepping on any toes if I created one >>> > > ( group >>> > >> for biomed locally)? I ran one in the last place I lived and >>> > > really miss >>> > >> the local support while going through the chelation ( >>> currently >>> TD- >>> > > DMPS) >>> > >> and all of the other crazy stuff we do. I belong to all of >>> the >>> > > other great >>> > >> groups out there, but there is a lot to be said for having a >>> small >>> > > local >>> > >> biomedical support group, especially online. It sounds to me >>> like >>> > > there >>> > >> are at least a few of us in this boat here. >>> > >> >>> > >> Jane >>> > >> Mama to 7 (ASD) and 4 (NT) >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> >>> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 I have heard our DAN! doc mention Great Smokies but I know she uses Great Plains as well. I'll have to investigate the prices for Great Smokies. Thanks Missy--SAHM/Student Again I am who I am because that's who I am. --- 6, Asperger's All kids are gifted, some just open their packages earlier than others. -- Carr Re: Re: Bio-medical info >>>> > >>>> > >>>> > For those who are interested. Glutathione ,TidF are the weakest >>>> of >>>> > chelators and should nevere be relied on to detoxify these >>>> children. >>>> DMSA is also a weak systemic chelator of mercury and is a little >>>> better for leas. DMSA is a very important adjunctive chelator >>>> because there is some good evidence from Russian work that it does >>>> get into the brain and DMPS doesn't. The best combinations of >>>> therapies are oral DMPS and oral DMSA for those who would rather stay >>>> away from the injections. It is very important to always give >>>> supplemental minerals and measure RBC minerals every few months >>>> during therapy and that way you can specifically supplement items >>>> that are dropping faster than others. I certainly am not telling you >>>> to avoid glutathione, lipoic acid and NAC or TIDF just keep in mind >>>> that it just takes too long to have any significant impact with those >>>> items.I feel much more >>>> > comfortable with oral DMPS than trans-dermal, and through 12 >>>> years >>>> and 100's of children it is a very safe way to go as long as you >>>> monitor the child with CBC'c, renal and liver function and mineral >>>> analyses. Sincerely, SB Edelson >>>> > >>>> > B. Edelson, M.D., F.A.A.E.M. >>>> > P.O. Box 566863 >>>> > Atlanta, Georgia 31156 >>>> > >>>> > > Jim: >>>> > > >>>> > > I'll have to find Dr. Buttar's information at home,and I'm at >>>> work >>>> > right >>>> > > now, but I wanted to let you know that there are two doctors >>>> in >>>> the >>>> > > Atlanta area now using TD-DMPS and following Buttar's >>>> protocol: >>>> Dr. >>>> > Lee and Dr. Guest. We just completed the >>>> preliminary >>>> testing required by Buttar, and when those results are in, will >>>> start with the DMPS. We just had a phone appointment with him, >>>> which wasn't very informative, but we knew what we were starting >>>> already, so we didn't have many questions. The initial lab testing >>>> and phone appointment cost us about $2,000. I'm not sure what the >>>> expense for the DMPS will be each month. >>>> > > >>>> > > If you want lots more info., sign onto the AutismBiomedGa >>>> >>>> > group, look around in the files, and ask questions. Some of the >>>> parents on that group are already using DMPS. >>>> > > >>>> > > We have using glutathione, TTFD, and DMSA for about six >>>> months, >>>> and >>>> > have >>>> > > seen lots of metals coming out, and some improvements with >>>> our >>>> son, >>>> > but nothing " dramatic " . Enough to keep it up, though:) >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > " Jim " <jgs3@...> >>>> > > Sent by: autism >>>> > > 07/20/2005 11:22 AM >>>> > > Please respond to >>>> > > autism >>>> > > >>>> > > >>>> > > To >>>> > > autism >>>> > > cc >>>> > > >>>> > > Subject >>>> > > Re: Bio-medical info >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > , >>>> > > >>>> > > Do you have the contact information for Dr. Buttar you can >>>> share. >>>> > We are trying to get hooked up with him and would also be >>>> interested >>>> > in any feedback you might care to share. >>>> > > >>>> > > Jim >>>> > > >>>> > > >>>> > >> Jane: >>>> > >> >>>> > >> That would be great! We are doing chelation with TTFD right >>>> now, >>>> > > and will >>>> > >> move forward with DMPS and eventually hope to work with Dr. >>>> Buttar >>>> > > in >>>> > >> North Carolina (we have an appointment in June). We would >>>> > > definitely join >>>> > >> a local biomed group. >>>> > >> >>>> > >> >>>> > >> >>>> > >> >>>> > >> >>>> > >> >>>> > >> " Jane Romdalvik " <rominick@a...> >>>> > >> 12/30/2004 09:31 PM >>>> > >> Please respond to >>>> > >> autism >>>> > >> >>>> > >> >>>> > >> To >>>> > >> <autism > >>>> > >> cc >>>> > >> >>>> > >> Subject >>>> > >> Re: Bio-medical info >>>> > >> >>>> > >> >>>> > >> >>>> > >> >>>> > >> >>>> > >> >>>> > >> >>>> > >> So then I wouldn't be stepping on any toes if I created one >>>> > > ( group >>>> > >> for biomed locally)? I ran one in the last place I lived and >>>> > > really miss >>>> > >> the local support while going through the chelation ( >>>> currently >>>> TD- >>>> > > DMPS) >>>> > >> and all of the other crazy stuff we do. I belong to all of >>>> the >>>> > > other great >>>> > >> groups out there, but there is a lot to be said for having a >>>> small >>>> > > local >>>> > >> biomedical support group, especially online. It sounds to me >>>> like >>>> > > there >>>> > >> are at least a few of us in this boat here. >>>> > >> >>>> > >> Jane >>>> > >> Mama to 7 (ASD) and 4 (NT) >>>> > >> >>>> > >> >>>> > >> >>>> > >> >>>> > >> >>>> > >> >>>> > >> >>>> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Even if there is a price difference the Great Smojies Lab is a far superior lab for quality and consistency. I used them for 12 years and found the scientific accuracy and consistency to be superb. I found no lab to compare.I am a retired physician who has a practice that consults physicians for their patients needs and so I have nothing to gain by telling you this. The price of a lab test is not like buying a car where any car gets you where you want to be. The labs differ enough to where you might not trust one vs. another because of accuracy etc. SBE B. Edelson, M.D., F.A.A.E.M. P.O. Box 566863 Atlanta, Georgia 31156 > I have heard our DAN! doc mention Great Smokies but I know she uses > Great > Plains as well. I'll have to investigate the prices for Great Smokies. > > Thanks > > Missy--SAHM/Student Again > > I am who I am because that's who I am. > > --- 6, Asperger's > > All kids are gifted, some just open their > packages earlier than others. > > -- Carr > Re: Re: Bio-medical info >>>>> > >>>>> > >>>>> > For those who are interested. Glutathione ,TidF are the >>>>> weakest >>>>> of >>>>> > chelators and should nevere be relied on to detoxify these >>>>> children. >>>>> DMSA is also a weak systemic chelator of mercury and is a little >>>>> better for leas. DMSA is a very important adjunctive chelator >>>>> because there is some good evidence from Russian work that it does >>>>> get into the brain and DMPS doesn't. The best combinations of >>>>> therapies are oral DMPS and oral DMSA for those who would rather >>>>> stay away from the injections. It is very important to always give >>>>> supplemental minerals and measure RBC minerals every few months >>>>> during therapy and that way you can specifically supplement items >>>>> that are dropping faster than others. I certainly am not telling >>>>> you to avoid glutathione, lipoic acid and NAC or TIDF just keep in >>>>> mind that it just takes too long to have any significant impact >>>>> with those items.I feel much more >>>>> > comfortable with oral DMPS than trans-dermal, and through 12 >>>>> years >>>>> and 100's of children it is a very safe way to go as long as you >>>>> monitor the child with CBC'c, renal and liver function and mineral >>>>> analyses. Sincerely, SB Edelson >>>>> > >>>>> > B. Edelson, M.D., F.A.A.E.M. >>>>> > P.O. Box 566863 >>>>> > Atlanta, Georgia 31156 >>>>> > >>>>> > > Jim: >>>>> > > >>>>> > > I'll have to find Dr. Buttar's information at home,and I'm >>>>> at >>>>> work >>>>> > right >>>>> > > now, but I wanted to let you know that there are two >>>>> doctors >>>>> in >>>>> the >>>>> > > Atlanta area now using TD-DMPS and following Buttar's >>>>> protocol: >>>>> Dr. >>>>> > Lee and Dr. Guest. We just completed the >>>>> preliminary >>>>> testing required by Buttar, and when those results are in, will >>>>> start with the DMPS. We just had a phone appointment with him, >>>>> which wasn't very informative, but we knew what we were starting >>>>> already, so we didn't have many questions. The initial lab >>>>> testing and phone appointment cost us about $2,000. I'm not sure >>>>> what the expense for the DMPS will be each month. >>>>> > > >>>>> > > If you want lots more info., sign onto the AutismBiomedGa >>>>> >>>>> > group, look around in the files, and ask questions. Some of >>>>> the >>>>> parents on that group are already using DMPS. >>>>> > > >>>>> > > We have using glutathione, TTFD, and DMSA for about six >>>>> months, >>>>> and >>>>> > have >>>>> > > seen lots of metals coming out, and some improvements with >>>>> our >>>>> son, >>>>> > but nothing " dramatic " . Enough to keep it up, though:) >>>>> > > >>>>> > > >>>>> > > >>>>> > > >>>>> > > >>>>> > > >>>>> > > >>>>> > > >>>>> > > >>>>> > > " Jim " <jgs3@...> >>>>> > > Sent by: autism >>>>> > > 07/20/2005 11:22 AM >>>>> > > Please respond to >>>>> > > autism >>>>> > > >>>>> > > >>>>> > > To >>>>> > > autism >>>>> > > cc >>>>> > > >>>>> > > Subject >>>>> > > Re: Bio-medical info >>>>> > > >>>>> > > >>>>> > > >>>>> > > >>>>> > > >>>>> > > >>>>> > > , >>>>> > > >>>>> > > Do you have the contact information for Dr. Buttar you can >>>>> share. >>>>> > We are trying to get hooked up with him and would also be >>>>> interested >>>>> > in any feedback you might care to share. >>>>> > > >>>>> > > Jim >>>>> > > >>>>> > > >>>>> > >> Jane: >>>>> > >> >>>>> > >> That would be great! We are doing chelation with TTFD >>>>> right >>>>> now, >>>>> > > and will >>>>> > >> move forward with DMPS and eventually hope to work with >>>>> Dr. >>>>> Buttar >>>>> > > in >>>>> > >> North Carolina (we have an appointment in June). We would >>>>> > > definitely join >>>>> > >> a local biomed group. >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> " Jane Romdalvik " <rominick@a...> >>>>> > >> 12/30/2004 09:31 PM >>>>> > >> Please respond to >>>>> > >> autism >>>>> > >> >>>>> > >> >>>>> > >> To >>>>> > >> <autism > >>>>> > >> cc >>>>> > >> >>>>> > >> Subject >>>>> > >> Re: Bio-medical info >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> So then I wouldn't be stepping on any toes if I created >>>>> one >>>>> > > ( group >>>>> > >> for biomed locally)? I ran one in the last place I lived >>>>> and >>>>> > > really miss >>>>> > >> the local support while going through the chelation ( >>>>> currently >>>>> TD- >>>>> > > DMPS) >>>>> > >> and all of the other crazy stuff we do. I belong to all of >>>>> the >>>>> > > other great >>>>> > >> groups out there, but there is a lot to be said for having >>>>> a >>>>> small >>>>> > > local >>>>> > >> biomedical support group, especially online. It sounds to >>>>> me >>>>> like >>>>> > > there >>>>> > >> are at least a few of us in this boat here. >>>>> > >> >>>>> > >> Jane >>>>> > >> Mama to 7 (ASD) and 4 (NT) >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> >>>>> > >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.