Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 Bathing every 90 minues? Washing his mouth out constantly? What happens if he resists? Will she be using positive reinforcement? Will she restrain him? I love my son, but if I had to stay in the same room with him for a year fighting him over bathes, I would go nuts. How will she keep his skin from breaking down? It's nto abuse now, but I think it will be a month into the game. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 Bathing every 90 minues? Washing his mouth out constantly? What happens if he resists? Will she be using positive reinforcement? Will she restrain him? I love my son, but if I had to stay in the same room with him for a year fighting him over bathes, I would go nuts. How will she keep his skin from breaking down? It's nto abuse now, but I think it will be a month into the game. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 sorry, after further research i have found that this article came from Boseman, MT.... i am completely ticked off!!! the boseman chronicle is promoting child abuse by printing this article...my mother-in-law and i are looking into the childs' rights...does anyone agree out there that this is child abuse?? if you disagree; please let me know..i don't want to take the parents to the stake but, come on!! what is wrong with us when we want to lock our child up in an inclosed room for a year!!! my son couldn't take that for a couple of hours..he has to open the door every now and then just to feel comfortable...UGH!!!!!!!!!! if i could say what i really want to say; i would probably be struck by lightening! > okay, i joined a group that's located in florida just to get some > info regarding fl...for when we move.. > > anyway, this was one of their latest posts...what is going on in > florida??? that kid will go crazy in that room for a year!!! the mom > (i would) will go crazy!! i understand that we all have tried > alternative methods but, i this just rubbed me the wrong way...ugh!!!! > it's not like we don't have $$$ issues anyway with trying to treat > our kids but, then we have people out there charging huge amounts for > out-of-this world therapies...double UGH!!! > > sorry, if i offend anyone...just my personal gut reaction to this and > wanted to share it with you all > --------------------------------------- > Experimental Autism Therapy Provides Hope For Family > > [by Kayley Mendenhall, Chronicle. This is presented for our > readers' > information only and should not be construed as a treatment > endorsement by > this newsletter.] > http://www.bozemandailychronicle.com/articles/2003/06/26/news/02autism > bzbigs > ..txt > > Chip Minalga is a blonde-haired, brown-eyed, skinny 10-year- old > child > who loves to be chased by his older brother. > He wants candy he's not supposed to have and, according to his > dad, > dislikes going to school as much as most children his age. > But unlike his peers, Chip suffers from autism. > He can't speak, has trouble making eye contact and spends much > of his > time shaking his hands and wiggling his fingers near his face -- a > self-stimulatory behavior common among autistic people. > Chip has bad headaches and his mom, Pam Tate, said she knows he > is > frustrated by his inability to communicate. > " I don't know what to do, " Tate said. " You watch your kid in > pain all > the time. You just don't know what to do. " > Finally -- through an extreme and experimental treatment -- > Tate feels > she's found hope. > In the next month, she and Chip will move into a specially- > designed > " clean room " in their home and live there for a year as part of a > program > devised by Slimak, an environmental toxicologist from Virginia. > The idea, Slimak said, is that autistic symptoms are caused by > the > body's exposure and reaction to volatile organic compounds -- > chemicals used > in paints, chlorinated water and petroleum products, among other > things. > To test her theory, she began taking sick people and removing > their > exposures to the compounds one at a time. > " One of the things that is absolutely true is that you can not > be > affected by things that you are not around, " she said. " If you have no > exposure, you can not be sick by those things. " > Slimak has seen nearly miraculous results in 49 autistic > children who > have gone through the program. > Tate has researched the program, interviewed parents involved > and is > ready to invest $50,000 and a year of her life to helping her son. > " He can't go on like this and I can't put him in a home, " she > said. " I > think this woman has figured it out. " > Chip's treatment begins in the clean room, where he'll > basically go > through detox. He will live in the room for one year, and Tate will > spend > all waking hours with him. > They will wear 100 percent organic cotton clothing without > elastic or > zippers. And because Chip's body will be releasing toxins, Tate will > wash > his mouth with hydrogen peroxide every half hour and bathe him in it > every > 90 minutes. > " This all makes sense to me, " she said. " I have tried > everything else. > All the traditional treatments. " > Tate won't be able to work and Chip won't go to school. They'll > spend > every day in a bare room with an air-lock door and a high-tech > filtration > system. Chip's diet will include only exotic fruits and vegetables > like > dandelion greens and okra and meats that haven't touched plastic. > Jeff Minalga, Chip's dad, said he is worried the clean room > will be > too much of a lab setting for his son. But he equated the process to > an > alcoholic going through detox and said sometimes going " cold turkey " > is the > best. > " Initially, it sounds like a lot of involvement, " said Mike > , > Chip's family support specialist at Family Outreach. " They haven't > had that > many kids go through it. There is always that concern about whether > it is > truly effective or not. " > But if all goes as planned, Chip's speech will eventually be > restored, > he'll be able to live outside of the clean room and by the time he > goes to > high school, he could be at the same level as his classmates. > " It will take four or five years before he can walk free in the > world > and (not) worry about diet or restrictions, " Slimak said. By > then, " they'll > be ready to move on with their life and never look back. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 sorry, after further research i have found that this article came from Boseman, MT.... i am completely ticked off!!! the boseman chronicle is promoting child abuse by printing this article...my mother-in-law and i are looking into the childs' rights...does anyone agree out there that this is child abuse?? if you disagree; please let me know..i don't want to take the parents to the stake but, come on!! what is wrong with us when we want to lock our child up in an inclosed room for a year!!! my son couldn't take that for a couple of hours..he has to open the door every now and then just to feel comfortable...UGH!!!!!!!!!! if i could say what i really want to say; i would probably be struck by lightening! > okay, i joined a group that's located in florida just to get some > info regarding fl...for when we move.. > > anyway, this was one of their latest posts...what is going on in > florida??? that kid will go crazy in that room for a year!!! the mom > (i would) will go crazy!! i understand that we all have tried > alternative methods but, i this just rubbed me the wrong way...ugh!!!! > it's not like we don't have $$$ issues anyway with trying to treat > our kids but, then we have people out there charging huge amounts for > out-of-this world therapies...double UGH!!! > > sorry, if i offend anyone...just my personal gut reaction to this and > wanted to share it with you all > --------------------------------------- > Experimental Autism Therapy Provides Hope For Family > > [by Kayley Mendenhall, Chronicle. This is presented for our > readers' > information only and should not be construed as a treatment > endorsement by > this newsletter.] > http://www.bozemandailychronicle.com/articles/2003/06/26/news/02autism > bzbigs > ..txt > > Chip Minalga is a blonde-haired, brown-eyed, skinny 10-year- old > child > who loves to be chased by his older brother. > He wants candy he's not supposed to have and, according to his > dad, > dislikes going to school as much as most children his age. > But unlike his peers, Chip suffers from autism. > He can't speak, has trouble making eye contact and spends much > of his > time shaking his hands and wiggling his fingers near his face -- a > self-stimulatory behavior common among autistic people. > Chip has bad headaches and his mom, Pam Tate, said she knows he > is > frustrated by his inability to communicate. > " I don't know what to do, " Tate said. " You watch your kid in > pain all > the time. You just don't know what to do. " > Finally -- through an extreme and experimental treatment -- > Tate feels > she's found hope. > In the next month, she and Chip will move into a specially- > designed > " clean room " in their home and live there for a year as part of a > program > devised by Slimak, an environmental toxicologist from Virginia. > The idea, Slimak said, is that autistic symptoms are caused by > the > body's exposure and reaction to volatile organic compounds -- > chemicals used > in paints, chlorinated water and petroleum products, among other > things. > To test her theory, she began taking sick people and removing > their > exposures to the compounds one at a time. > " One of the things that is absolutely true is that you can not > be > affected by things that you are not around, " she said. " If you have no > exposure, you can not be sick by those things. " > Slimak has seen nearly miraculous results in 49 autistic > children who > have gone through the program. > Tate has researched the program, interviewed parents involved > and is > ready to invest $50,000 and a year of her life to helping her son. > " He can't go on like this and I can't put him in a home, " she > said. " I > think this woman has figured it out. " > Chip's treatment begins in the clean room, where he'll > basically go > through detox. He will live in the room for one year, and Tate will > spend > all waking hours with him. > They will wear 100 percent organic cotton clothing without > elastic or > zippers. And because Chip's body will be releasing toxins, Tate will > wash > his mouth with hydrogen peroxide every half hour and bathe him in it > every > 90 minutes. > " This all makes sense to me, " she said. " I have tried > everything else. > All the traditional treatments. " > Tate won't be able to work and Chip won't go to school. They'll > spend > every day in a bare room with an air-lock door and a high-tech > filtration > system. Chip's diet will include only exotic fruits and vegetables > like > dandelion greens and okra and meats that haven't touched plastic. > Jeff Minalga, Chip's dad, said he is worried the clean room > will be > too much of a lab setting for his son. But he equated the process to > an > alcoholic going through detox and said sometimes going " cold turkey " > is the > best. > " Initially, it sounds like a lot of involvement, " said Mike > , > Chip's family support specialist at Family Outreach. " They haven't > had that > many kids go through it. There is always that concern about whether > it is > truly effective or not. " > But if all goes as planned, Chip's speech will eventually be > restored, > he'll be able to live outside of the clean room and by the time he > goes to > high school, he could be at the same level as his classmates. > " It will take four or five years before he can walk free in the > world > and (not) worry about diet or restrictions, " Slimak said. By > then, " they'll > be ready to move on with their life and never look back. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 Well, I hope no one gets " stuck down " with lightening!!! Here are my comments: * extreme allergies and chemical sensitivities often have toxic metals behind them. That is, people who are mercury toxic are usually or often the people who get " multiple chemical sensitivities " and things like this. I think that looking at THAT would very likely be more effective than the clean room idea. The clean room MAY help, but I don't see how it would help permanently. To me it seems like it would not change any sensitivity, so when he leaves the room, it would be same as before. But I am guessing. * I personally have used hydrogen peroxide in many ways, including the stuff they talked about. I don't think it is nuts. Although how much it will help I certainly would NOT make any claims for. best, Moria > > okay, i joined a group that's located in florida just to get some > > info regarding fl...for when we move.. > > > > anyway, this was one of their latest posts...what is going on in > > florida??? that kid will go crazy in that room for a year!!! the > mom > > (i would) will go crazy!! i understand that we all have tried > > alternative methods but, i this just rubbed me the wrong > way...ugh!!!! > > it's not like we don't have $$$ issues anyway with trying to treat > > our kids but, then we have people out there charging huge amounts > for > > out-of-this world therapies...double UGH!!! > > > > sorry, if i offend anyone...just my personal gut reaction to this > and > > wanted to share it with you all > > --------------------------------------- > > Experimental Autism Therapy Provides Hope For Family > > > > [by Kayley Mendenhall, Chronicle. This is presented for our > > readers' > > information only and should not be construed as a treatment > > endorsement by > > this newsletter.] > > > http://www.bozemandailychronicle.com/articles/2003/06/26/news/02autism > > bzbigs > > ..txt > > > > Chip Minalga is a blonde-haired, brown-eyed, skinny 10-year- > old > > child > > who loves to be chased by his older brother. > > He wants candy he's not supposed to have and, according to > his > > dad, > > dislikes going to school as much as most children his age. > > But unlike his peers, Chip suffers from autism. > > He can't speak, has trouble making eye contact and spends > much > > of his > > time shaking his hands and wiggling his fingers near his face -- a > > self-stimulatory behavior common among autistic people. > > Chip has bad headaches and his mom, Pam Tate, said she knows > he > > is > > frustrated by his inability to communicate. > > " I don't know what to do, " Tate said. " You watch your kid in > > pain all > > the time. You just don't know what to do. " > > Finally -- through an extreme and experimental treatment -- > > Tate feels > > she's found hope. > > In the next month, she and Chip will move into a specially- > > designed > > " clean room " in their home and live there for a year as part of a > > program > > devised by Slimak, an environmental toxicologist from > Virginia. > > The idea, Slimak said, is that autistic symptoms are caused > by > > the > > body's exposure and reaction to volatile organic compounds -- > > chemicals used > > in paints, chlorinated water and petroleum products, among other > > things. > > To test her theory, she began taking sick people and removing > > their > > exposures to the compounds one at a time. > > " One of the things that is absolutely true is that you can > not > > be > > affected by things that you are not around, " she said. " If you have > no > > exposure, you can not be sick by those things. " > > Slimak has seen nearly miraculous results in 49 autistic > > children who > > have gone through the program. > > Tate has researched the program, interviewed parents involved > > and is > > ready to invest $50,000 and a year of her life to helping her son. > > " He can't go on like this and I can't put him in a home, " she > > said. " I > > think this woman has figured it out. " > > Chip's treatment begins in the clean room, where he'll > > basically go > > through detox. He will live in the room for one year, and Tate will > > spend > > all waking hours with him. > > They will wear 100 percent organic cotton clothing without > > elastic or > > zippers. And because Chip's body will be releasing toxins, Tate > will > > wash > > his mouth with hydrogen peroxide every half hour and bathe him in > it > > every > > 90 minutes. > > " This all makes sense to me, " she said. " I have tried > > everything else. > > All the traditional treatments. " > > Tate won't be able to work and Chip won't go to school. > They'll > > spend > > every day in a bare room with an air-lock door and a high-tech > > filtration > > system. Chip's diet will include only exotic fruits and vegetables > > like > > dandelion greens and okra and meats that haven't touched plastic. > > Jeff Minalga, Chip's dad, said he is worried the clean room > > will be > > too much of a lab setting for his son. But he equated the process > to > > an > > alcoholic going through detox and said sometimes going " cold > turkey " > > is the > > best. > > " Initially, it sounds like a lot of involvement, " said Mike > > , > > Chip's family support specialist at Family Outreach. " They haven't > > had that > > many kids go through it. There is always that concern about whether > > it is > > truly effective or not. " > > But if all goes as planned, Chip's speech will eventually be > > restored, > > he'll be able to live outside of the clean room and by the time he > > goes to > > high school, he could be at the same level as his classmates. > > " It will take four or five years before he can walk free in > the > > world > > and (not) worry about diet or restrictions, " Slimak said. By > > then, " they'll > > be ready to move on with their life and never look back. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 Well, I hope no one gets " stuck down " with lightening!!! Here are my comments: * extreme allergies and chemical sensitivities often have toxic metals behind them. That is, people who are mercury toxic are usually or often the people who get " multiple chemical sensitivities " and things like this. I think that looking at THAT would very likely be more effective than the clean room idea. The clean room MAY help, but I don't see how it would help permanently. To me it seems like it would not change any sensitivity, so when he leaves the room, it would be same as before. But I am guessing. * I personally have used hydrogen peroxide in many ways, including the stuff they talked about. I don't think it is nuts. Although how much it will help I certainly would NOT make any claims for. best, Moria > > okay, i joined a group that's located in florida just to get some > > info regarding fl...for when we move.. > > > > anyway, this was one of their latest posts...what is going on in > > florida??? that kid will go crazy in that room for a year!!! the > mom > > (i would) will go crazy!! i understand that we all have tried > > alternative methods but, i this just rubbed me the wrong > way...ugh!!!! > > it's not like we don't have $$$ issues anyway with trying to treat > > our kids but, then we have people out there charging huge amounts > for > > out-of-this world therapies...double UGH!!! > > > > sorry, if i offend anyone...just my personal gut reaction to this > and > > wanted to share it with you all > > --------------------------------------- > > Experimental Autism Therapy Provides Hope For Family > > > > [by Kayley Mendenhall, Chronicle. This is presented for our > > readers' > > information only and should not be construed as a treatment > > endorsement by > > this newsletter.] > > > http://www.bozemandailychronicle.com/articles/2003/06/26/news/02autism > > bzbigs > > ..txt > > > > Chip Minalga is a blonde-haired, brown-eyed, skinny 10-year- > old > > child > > who loves to be chased by his older brother. > > He wants candy he's not supposed to have and, according to > his > > dad, > > dislikes going to school as much as most children his age. > > But unlike his peers, Chip suffers from autism. > > He can't speak, has trouble making eye contact and spends > much > > of his > > time shaking his hands and wiggling his fingers near his face -- a > > self-stimulatory behavior common among autistic people. > > Chip has bad headaches and his mom, Pam Tate, said she knows > he > > is > > frustrated by his inability to communicate. > > " I don't know what to do, " Tate said. " You watch your kid in > > pain all > > the time. You just don't know what to do. " > > Finally -- through an extreme and experimental treatment -- > > Tate feels > > she's found hope. > > In the next month, she and Chip will move into a specially- > > designed > > " clean room " in their home and live there for a year as part of a > > program > > devised by Slimak, an environmental toxicologist from > Virginia. > > The idea, Slimak said, is that autistic symptoms are caused > by > > the > > body's exposure and reaction to volatile organic compounds -- > > chemicals used > > in paints, chlorinated water and petroleum products, among other > > things. > > To test her theory, she began taking sick people and removing > > their > > exposures to the compounds one at a time. > > " One of the things that is absolutely true is that you can > not > > be > > affected by things that you are not around, " she said. " If you have > no > > exposure, you can not be sick by those things. " > > Slimak has seen nearly miraculous results in 49 autistic > > children who > > have gone through the program. > > Tate has researched the program, interviewed parents involved > > and is > > ready to invest $50,000 and a year of her life to helping her son. > > " He can't go on like this and I can't put him in a home, " she > > said. " I > > think this woman has figured it out. " > > Chip's treatment begins in the clean room, where he'll > > basically go > > through detox. He will live in the room for one year, and Tate will > > spend > > all waking hours with him. > > They will wear 100 percent organic cotton clothing without > > elastic or > > zippers. And because Chip's body will be releasing toxins, Tate > will > > wash > > his mouth with hydrogen peroxide every half hour and bathe him in > it > > every > > 90 minutes. > > " This all makes sense to me, " she said. " I have tried > > everything else. > > All the traditional treatments. " > > Tate won't be able to work and Chip won't go to school. > They'll > > spend > > every day in a bare room with an air-lock door and a high-tech > > filtration > > system. Chip's diet will include only exotic fruits and vegetables > > like > > dandelion greens and okra and meats that haven't touched plastic. > > Jeff Minalga, Chip's dad, said he is worried the clean room > > will be > > too much of a lab setting for his son. But he equated the process > to > > an > > alcoholic going through detox and said sometimes going " cold > turkey " > > is the > > best. > > " Initially, it sounds like a lot of involvement, " said Mike > > , > > Chip's family support specialist at Family Outreach. " They haven't > > had that > > many kids go through it. There is always that concern about whether > > it is > > truly effective or not. " > > But if all goes as planned, Chip's speech will eventually be > > restored, > > he'll be able to live outside of the clean room and by the time he > > goes to > > high school, he could be at the same level as his classmates. > > " It will take four or five years before he can walk free in > the > > world > > and (not) worry about diet or restrictions, " Slimak said. By > > then, " they'll > > be ready to move on with their life and never look back. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 Well, I hope no one gets " stuck down " with lightening!!! Here are my comments: * extreme allergies and chemical sensitivities often have toxic metals behind them. That is, people who are mercury toxic are usually or often the people who get " multiple chemical sensitivities " and things like this. I think that looking at THAT would very likely be more effective than the clean room idea. The clean room MAY help, but I don't see how it would help permanently. To me it seems like it would not change any sensitivity, so when he leaves the room, it would be same as before. But I am guessing. * I personally have used hydrogen peroxide in many ways, including the stuff they talked about. I don't think it is nuts. Although how much it will help I certainly would NOT make any claims for. best, Moria > > okay, i joined a group that's located in florida just to get some > > info regarding fl...for when we move.. > > > > anyway, this was one of their latest posts...what is going on in > > florida??? that kid will go crazy in that room for a year!!! the > mom > > (i would) will go crazy!! i understand that we all have tried > > alternative methods but, i this just rubbed me the wrong > way...ugh!!!! > > it's not like we don't have $$$ issues anyway with trying to treat > > our kids but, then we have people out there charging huge amounts > for > > out-of-this world therapies...double UGH!!! > > > > sorry, if i offend anyone...just my personal gut reaction to this > and > > wanted to share it with you all > > --------------------------------------- > > Experimental Autism Therapy Provides Hope For Family > > > > [by Kayley Mendenhall, Chronicle. This is presented for our > > readers' > > information only and should not be construed as a treatment > > endorsement by > > this newsletter.] > > > http://www.bozemandailychronicle.com/articles/2003/06/26/news/02autism > > bzbigs > > ..txt > > > > Chip Minalga is a blonde-haired, brown-eyed, skinny 10-year- > old > > child > > who loves to be chased by his older brother. > > He wants candy he's not supposed to have and, according to > his > > dad, > > dislikes going to school as much as most children his age. > > But unlike his peers, Chip suffers from autism. > > He can't speak, has trouble making eye contact and spends > much > > of his > > time shaking his hands and wiggling his fingers near his face -- a > > self-stimulatory behavior common among autistic people. > > Chip has bad headaches and his mom, Pam Tate, said she knows > he > > is > > frustrated by his inability to communicate. > > " I don't know what to do, " Tate said. " You watch your kid in > > pain all > > the time. You just don't know what to do. " > > Finally -- through an extreme and experimental treatment -- > > Tate feels > > she's found hope. > > In the next month, she and Chip will move into a specially- > > designed > > " clean room " in their home and live there for a year as part of a > > program > > devised by Slimak, an environmental toxicologist from > Virginia. > > The idea, Slimak said, is that autistic symptoms are caused > by > > the > > body's exposure and reaction to volatile organic compounds -- > > chemicals used > > in paints, chlorinated water and petroleum products, among other > > things. > > To test her theory, she began taking sick people and removing > > their > > exposures to the compounds one at a time. > > " One of the things that is absolutely true is that you can > not > > be > > affected by things that you are not around, " she said. " If you have > no > > exposure, you can not be sick by those things. " > > Slimak has seen nearly miraculous results in 49 autistic > > children who > > have gone through the program. > > Tate has researched the program, interviewed parents involved > > and is > > ready to invest $50,000 and a year of her life to helping her son. > > " He can't go on like this and I can't put him in a home, " she > > said. " I > > think this woman has figured it out. " > > Chip's treatment begins in the clean room, where he'll > > basically go > > through detox. He will live in the room for one year, and Tate will > > spend > > all waking hours with him. > > They will wear 100 percent organic cotton clothing without > > elastic or > > zippers. And because Chip's body will be releasing toxins, Tate > will > > wash > > his mouth with hydrogen peroxide every half hour and bathe him in > it > > every > > 90 minutes. > > " This all makes sense to me, " she said. " I have tried > > everything else. > > All the traditional treatments. " > > Tate won't be able to work and Chip won't go to school. > They'll > > spend > > every day in a bare room with an air-lock door and a high-tech > > filtration > > system. Chip's diet will include only exotic fruits and vegetables > > like > > dandelion greens and okra and meats that haven't touched plastic. > > Jeff Minalga, Chip's dad, said he is worried the clean room > > will be > > too much of a lab setting for his son. But he equated the process > to > > an > > alcoholic going through detox and said sometimes going " cold > turkey " > > is the > > best. > > " Initially, it sounds like a lot of involvement, " said Mike > > , > > Chip's family support specialist at Family Outreach. " They haven't > > had that > > many kids go through it. There is always that concern about whether > > it is > > truly effective or not. " > > But if all goes as planned, Chip's speech will eventually be > > restored, > > he'll be able to live outside of the clean room and by the time he > > goes to > > high school, he could be at the same level as his classmates. > > " It will take four or five years before he can walk free in > the > > world > > and (not) worry about diet or restrictions, " Slimak said. By > > then, " they'll > > be ready to move on with their life and never look back. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 I agree this sounds extremely drastic and I have big doubts that it would really create a lasting difference, but I do not believe it is child abuse. We got some comments like that early on when we chose to do a Son-Rise program for many hours a day in one room designed to limit distractions and sensory overload. A child can do fine and progress quite wonderfully in a small room as long as good stimulation is provided. In fact, many sensorily-overloaded kids do quite well when removed from the real world for awhile until they can better communicate and handle the enormous onslought of sensations the world bombards them with. Since the mother will be with the child much of the time, I assume she'll be working 1:1 with him. But then it would be hard to distinguish whether the progress is coming from intensive attention or the clean room. I would find it very interesting to see what happens with the children if this is used with many. Having a child who used to be and often still is quite sensative to chemicals and allergens in the world, it makes sense to me that a general detox and clean room environment may play a huge role in healing but I wonder if the effect would be lasting if the child's body still cannot respond properly to chemicals. I hope any parents choosing this route would have a good doctor working with them to help the children's immune systems regulate themselves better so when they are re-exposed, they don't crash. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 I agree this sounds extremely drastic and I have big doubts that it would really create a lasting difference, but I do not believe it is child abuse. We got some comments like that early on when we chose to do a Son-Rise program for many hours a day in one room designed to limit distractions and sensory overload. A child can do fine and progress quite wonderfully in a small room as long as good stimulation is provided. In fact, many sensorily-overloaded kids do quite well when removed from the real world for awhile until they can better communicate and handle the enormous onslought of sensations the world bombards them with. Since the mother will be with the child much of the time, I assume she'll be working 1:1 with him. But then it would be hard to distinguish whether the progress is coming from intensive attention or the clean room. I would find it very interesting to see what happens with the children if this is used with many. Having a child who used to be and often still is quite sensative to chemicals and allergens in the world, it makes sense to me that a general detox and clean room environment may play a huge role in healing but I wonder if the effect would be lasting if the child's body still cannot respond properly to chemicals. I hope any parents choosing this route would have a good doctor working with them to help the children's immune systems regulate themselves better so when they are re-exposed, they don't crash. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 The child abuse has already been done for many of our children by us and our doctors when the vaccines were administered at birth. This parent is attempting to detox her child. This child most likely already lives in hell by his inability to communicate. If he emerges in a year with speech, he will be happier. The specialist will be monitoring the child as he goes through the year long study (I would think). If every 1/2 hour becomes too much they will probably decrease it as they will also decrease the baths (again, I would think). The baths will probably get the toxins off the skin before they are reabsorbed. Some parents can take on challenging therapies and be successful (ex: Lorenzo's Oil). > sorry, after further research i have found that this article came > from Boseman, MT.... > > i am completely ticked off!!! the boseman chronicle is promoting > child abuse by printing this article...my mother-in-law and i are > looking into the childs' rights...does anyone agree out there that > this is child abuse?? if you disagree; please let me know..i don't > want to take the parents to the stake but, come on!! what is wrong > with us when we want to lock our child up in an inclosed room for a > year!!! my son couldn't take that for a couple of hours..he has to > open the door every now and then just to feel > comfortable...UGH!!!!!!!!!! if i could say what i really want to say; > i would probably be struck by lightening! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 The child abuse has already been done for many of our children by us and our doctors when the vaccines were administered at birth. This parent is attempting to detox her child. This child most likely already lives in hell by his inability to communicate. If he emerges in a year with speech, he will be happier. The specialist will be monitoring the child as he goes through the year long study (I would think). If every 1/2 hour becomes too much they will probably decrease it as they will also decrease the baths (again, I would think). The baths will probably get the toxins off the skin before they are reabsorbed. Some parents can take on challenging therapies and be successful (ex: Lorenzo's Oil). > sorry, after further research i have found that this article came > from Boseman, MT.... > > i am completely ticked off!!! the boseman chronicle is promoting > child abuse by printing this article...my mother-in-law and i are > looking into the childs' rights...does anyone agree out there that > this is child abuse?? if you disagree; please let me know..i don't > want to take the parents to the stake but, come on!! what is wrong > with us when we want to lock our child up in an inclosed room for a > year!!! my son couldn't take that for a couple of hours..he has to > open the door every now and then just to feel > comfortable...UGH!!!!!!!!!! if i could say what i really want to say; > i would probably be struck by lightening! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 I agree. In a message dated 6/26/03 11:41:49 PM Eastern Daylight Time, Googahly@... writes: > I agree this sounds extremely drastic and I have big doubts that it would > really create a lasting difference, but I do not believe it is child abuse. > We > got some comments like that early on when we chose to do a Son-Rise program > for > many hours a day in one room designed to limit distractions and sensory > overload. A child can do fine and progress quite wonderfully in a small > room as > long as good stimulation is provided. In fact, many sensorily-overloaded > kids > do quite well when removed from the real world for awhile until they can > better > communicate and handle the enormous onslought of sensations the world > bombards them with. Since the mother will be with the child much of the > time, I > assume she'll be working 1:1 with him. But then it would be hard to > distinguish > whether the progress is coming from intensive attention or the clean room. > > I would find it very interesting to see what happens with the children if > this is used with many. Having a child who used to be and often still is > quite > sensative to chemicals and allergens in the world, it makes sense to me that > a > general detox and clean room environment may play a huge role in healing but > I > wonder if the effect would be lasting if the child's body still cannot > respond properly to chemicals. I hope any parents choosing this route would > have a > good doctor working with them to help the children's immune systems regulate > > themselves better so when they are re-exposed, they don't crash. > Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 I agree. In a message dated 6/26/03 11:41:49 PM Eastern Daylight Time, Googahly@... writes: > I agree this sounds extremely drastic and I have big doubts that it would > really create a lasting difference, but I do not believe it is child abuse. > We > got some comments like that early on when we chose to do a Son-Rise program > for > many hours a day in one room designed to limit distractions and sensory > overload. A child can do fine and progress quite wonderfully in a small > room as > long as good stimulation is provided. In fact, many sensorily-overloaded > kids > do quite well when removed from the real world for awhile until they can > better > communicate and handle the enormous onslought of sensations the world > bombards them with. Since the mother will be with the child much of the > time, I > assume she'll be working 1:1 with him. But then it would be hard to > distinguish > whether the progress is coming from intensive attention or the clean room. > > I would find it very interesting to see what happens with the children if > this is used with many. Having a child who used to be and often still is > quite > sensative to chemicals and allergens in the world, it makes sense to me that > a > general detox and clean room environment may play a huge role in healing but > I > wonder if the effect would be lasting if the child's body still cannot > respond properly to chemicals. I hope any parents choosing this route would > have a > good doctor working with them to help the children's immune systems regulate > > themselves better so when they are re-exposed, they don't crash. > Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 In a message dated 6/27/03 1:31:23 PM Central Daylight Time, jzsell@... writes: > But then what will they do to keep the toxins from returning after the > child leaves the " clean room " ? Our kids are exposed to the same toxins as every > NT child but our children are not able to detoxify the way NT kids can. So > I'm wondering, are they doing all this for nothing since I would assume the > child will still have the inability to detox(MT protein dysfunction) when this > is all over? That's pretty much my thoughts except there are many cases where allergies have reversed themselves permantly after a child is kept away from a substance for a year or so. Perhaps limiting potential immune system activators would allow the child's body's immune system to re-regulate itself. Someone mentioned that 49 kids have done this therapy so far. Does anyone know what the results were -- have they emerged out of the room healed and what were the long-term results? Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 In a message dated 6/27/03 1:31:23 PM Central Daylight Time, jzsell@... writes: > But then what will they do to keep the toxins from returning after the > child leaves the " clean room " ? Our kids are exposed to the same toxins as every > NT child but our children are not able to detoxify the way NT kids can. So > I'm wondering, are they doing all this for nothing since I would assume the > child will still have the inability to detox(MT protein dysfunction) when this > is all over? That's pretty much my thoughts except there are many cases where allergies have reversed themselves permantly after a child is kept away from a substance for a year or so. Perhaps limiting potential immune system activators would allow the child's body's immune system to re-regulate itself. Someone mentioned that 49 kids have done this therapy so far. Does anyone know what the results were -- have they emerged out of the room healed and what were the long-term results? Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 While I am not condoning this type of treatment, below is a study that was conducted on a test group of kids. (I copied this from the list, where it was previously posted and received mostly positive comments.) Do keep in mind, as this treatment is being condemned as child abuse, that many consider using medications in an off-label manner, such as SSRI's on our kids, that this can be considered abuse as well. This parent probably believes in her heart, as each of us do in the treatment methods that we choose for our kids, that this is the best option at this moment in time for her children. Just my 2 cents... - Subject: Reduction of Autistic traits following Dietary Intervention and Elimination of Exposure to Environmental Substances / Abstract Slimak, K. 2003 Reduction of autistic traits following dietary intervention and elimination of exposure to environmental substances. In Proceedings of 2003 International Symposium on Indoor Air Quality and Health Hazards, National Institute of Environmental Health Science, USA,and Architectural Institute of Japan, January 8-11, 2003, Tokyo, Japan, vol 2, pp 206-216. Reduction of autistic traits following dietary intervention and elimination of exposure to environmental substances M. Slimak, M.S., Principal Investigator President, Applied Science and Technology International, Inc. (ASTi) ______________________________________________________________________ __ Keywords: Autism, environment, symptoms, food, exposure, obsession, behavior, clean-room, sniffing, breath, body fluids, molds, volatile organic compounds Abstract: Effects of environmental exposure were isolated and studied in 49 autistic children. Elimination of food-related reactions entirely allowed effects of environmental chemicals to be thoroughly studied indefinitely in the absence of food-related symptoms. Initially unaffected by social contexts, the autistic subjects acted out the ways they were affected by their environment without the altering effects of societal influences; and severity of the adverse effects made observation and study easier. There was a strong correlation between environmental exposure levels and autistic symptoms and behaviors. There appeared to be nothing inherently wrong with autistic children studied. The children in the program (universal diet and clean room) returned to normal physically, in temperament, in awareness of surroundings and others, in emotions and empathy, and in ability to learn. Based on the results of the present study, a broad spectrum of severe and chronic autistic symptoms appear to be environmentally based, apparently caused by chronic exposure to volatile organic compounds, and appear to be fully reversible in the proper environment. Contact: M. Slimak ASTi, Springfield, VA Telephone: 703-644-0991 Fx: 703-644-1006; ______________________________________________________________________ __ Reduction of autistic traits following dietary intervention and elimination of exposure to environmental substances M. Slimak, M.S. President, Applied Science and Technology International, Inc. (ASTi) ______________________________________________________________________ _ Introduction: The present research program traces its origin back more than 20 years to an in-house study at ASTi involving dietary intervention food trials. In the study, although unexpected, strong symptoms were observed and repeatedly associated with non-food environmental exposures. This early study was broadened to include a study of the non-food symptoms resulting from environmental exposures. A second in house research effort was also begun whose goal was to develop a dietary approach that would fully eliminate food related symptoms so that symptoms associated with other environmental exposures could be isolated and observed for long periods of time. An effective rotation diet of unusual tropical root crops and other unusual foods was developed. This diet was found to quickly eliminate food- related symptoms of subjects while providing optimal nourishment. The diet has been used successfully to study the symptom changes associated with sequential removal of environmental exposures over long periods of time (3-12 months per person) in approximately 1000 individuals. The results reported herein were possible to obtain because symptoms caused by diet were consistently and completely eliminated from the symptom array in all subjects studied (Slimak 2001, 2002). Method: 49 children, ages 2-17 with diagnoses ranging from severe autism to PDD were each studied for periods ranging from 3 to 12 months. Initial autistic and physical symptoms and complaints were rated (0-10) and again at weekly intervals after the subjects entered the program. Each subject was placed on the diet described above. Three environmental avoidance approaches were employed to study the role of environmental chemicals in autistic children. In Group I (14 subjects) there was no initial environmental avoidance; in Group II (27 subjects) there was moderate initial environmental avoidance, and in Group III (8 subjects) there was complete environmental avoidance using a clean room. After parents of subjects in Groups I and II, began to observe and report symptoms associated with environmental exposures, the parents were directed to begin sequential removal of items associated with exposure during weeks 3-52 of the program. This provided the opportunity to observe the symptom fluctuations that occurred as environmental exposures were eliminated sequentially. Trained volunteers (primarily parents and other family members) observed the children closely between 20-60 hours weekly in the home. This made it possible to extend periods of time for data collection, and many additional data points were obtained in a naturalistic setting. In weekly meetings between each parent and staff, details of observations were discussed, and symptom assessments, environmental implementation evaluations and problem solving assessments were conducted. Separately, environmental exposure was rated, as a single blind study. A group of 18 non-autistic children diagnosed with food allergies and chemical sensitivities were also studied in the program; these children also followed the above protocol: Group I - 4 subjects, Group II - 10 subjects, Group III - 4 subjects. Results: In Groups I and II it was possible to separate symptoms associated with foods from symptoms associated with non-food, environmental exposures, Table 1. In Groups I and II, during sequential removal of items associated with environmental exposures, unanticipated actions were observed in the autistic children studied. These included: 1) autistic children Table 1. Food-related symptoms vs. symptoms associated with environmental exposures. Food-related Environmental exposure-related Digestive symptoms 67% 23% Other physical symptoms 50% 50% Neurological symptoms 15% 85% were consistently observed hoarding or attempting to hide scented items 2) Many cycles of reduced symptoms (following object removal) and increased symptoms (following selection of a new item) were observed. Fig.1 Presents results obtained for sensory sensitivity between weeks 14 and 40. The seven points at which symptoms associated with sensory sensitivity dropped to 'zero' followed the removal of an object of obsession or elimination of an obvious source of exposure. Between weeks 14 and 40, the seven peaks showing increased symptoms occurred immediately after the child selected and began obsessing with a new object. This pattern of symptom fluctuation was consistently observed in Groups I and II for all symptom categories except for muscle weakness and low muscle tone. To study symptom fluctuations and obsessive behaviors further, parents of children in Groups I and II were instructed to 1) allow their children to continue obsessive interactions with objects without interference, and 2) change the object to prevent exposure to volatile organic compounds without the child's knowledge. For example, carbon filters were surreptitiously installed on tap water lines for obsessive toilet flushers; and sand was carefully cleaned for obsessive sifters. It was found that the children would begin to interact with the object as usual and then would stop within moments with a very confused, perplexed facial expression. They would examine the object, smell it, look at the item again, smell it again, and put the object down. This process was repeated with decreasing frequency as the children lost interest in the object; the behavior was spontaneously extinguished in time periods ranging from 1 day to 10 weeks. Table 2 presents a partial list of obsessive/compulsive behaviors studied. In the absence of environmental exposures, no obsessive behavior continued in the subjects studied. Table 2. Obsessive, compulsive behaviors eliminated following surreptitious removal of scent components. Sifting hand washing hand wringing TV/video obsessions lining hair smelling face slapping door closing and shutting pica toilet flushing stick picking up toy smelling. As a result of these observations, it became apparent that effects associated with chemical exposure were much greater than initially anticipated. The study was expanded to include a a study of a group of children in clean rooms (Group III). Figure 2. Presents the overall symptom reduction achieved by subjects on the program. In Groups I and II strong determined seeking behaviors described above complicated the process and increased the time necessary to achieve a suitably clean environment in which no symptoms were present. Group III, with the reliance on a clean room, while much faster, still did not provide the rapid plummet of symptoms to '0' that was expected. As is illustrated in Fig. 3, it was found that the seeking behaviors continued in the clean room and , finally, included resorting to use of breath and body fluids, when nothing else was available. This enabled the subjects to continue exposures and reactions for several weeks longer than expected. After a few days in the clean room, the children's sense of smell appeared to become particularly acute. They were observed sniffing the air and following micro scent plumes to a source, such as a tiny point in the wall of the clean room, where the seal was not intact. The children were observed behaving as if strongly attracted to the highly diluted tails of micro-plumes estimated to be 100-1000 times below the ppt (part per trillion) level in the clean rooms, and following these micro-plumes to their more highly concentrated source. The children were observed returning to the point source where the hair- thin plumes were most highly concentrated, and sniffing briefly several times each day. The symptom levels increased as is shown in Fig. 3 until the areas were sealed, after which time the symptom levels again dropped rapidly. After micro-plumes from pinpoint sources were eliminated, a new problem was observed. Children began sucking on clothing, making 'tents' of bedding, and the like, and emerging with glassy stares, disconnected behaviors, and again with elevated symptom levels. This was addressed by requiring subjects, and caregivers to switch to clothing and materials whose pristine nature matched the ppt and ppq levels needed. Many of these items have had to be developed in our program. The change to pristine materials was the final change necessary to eliminate the surge of symptoms associated with seeking behaviors that had been occurring between weeks 4-10, Fig. 3. After the clean rooms were sealed and materials inside the rooms were sufficiently pristine, autistic children in the clean rooms became frantic. The children abruptly became disinterested in objects (now pristine) and became very interested in their bodies and body fluids. Although obsessing with body parts and body fluids occurs in some autistic children, this behavior was not found in the subjects prior to the study. For a period of several weeks the autistic children in the clean rooms of the present study were observed consistently and purposefully manipulating their breath and body fluids. Although the children in the study did not try to find a way out of the room, the children were consistently observed trying desperately to recreate a polluted environment in the room. In the pristine clean room autistic children have been routinely observed: 1) with hands to face in a corner, 'huffing' their own breath, 2) holding hands over mouth and nose to trap and rebreathe breath, 3) standing on their heads to allow their shirts to fall over their faces and trap their breath, 4) spreading saliva over arms, legs, hair, body, 5) spreading saliva in thin layers over walls, floors, and windows, 6) urinating behind furniture where mold will easily grow, 7)urinating on floor and running through the urine repeatedly to spread it thinly throughout the room, 7) spreading saliva, urine, or stool onto wood and any porous material available, 8) placing hands inside pants and then wiping hands on walls, floor or self, and 9) spreading body fluids in as many cracks and crevices as possible to promote mold growth. New procedures have had to be developed to eliminate or prevent the above-described problems. For each child, as soon as this final type of exposure was eliminated, the symptoms were fully eliminated. Figure 4. Compares non-food symptom levels and environmental exposure levels, revealing a strong predictable correlation that cannot be explained by chance alone. For subjects with most severe symptoms (A), adj R sq = 0.581, for moderate (, adj R sq = 0.385. For mild ©, adj R sq = 0.454. The analysis of variance of the regression model shows that the exposure levels were a significant predictor of symptoms of the subjects studied. Thus, there is little doubt that the relationship of exposure levels to symptoms is not due to chance alone. These data reveal a convincing and predictable pattern. Because the regression curves cross the x-axis (B, C) or intersect at the origin (A), the data show non-food symptoms were fully eliminated by eliminating the remaining environmental exposures. Because the slopes of A, B, and C linear regressions are essentially the same, comprehensive initial symptom rankings may have predictive value, particularly in indicating early the extent of environmental cleanup that is likely to be necessary. Especially for children in Group III, the older, severely autistic group, after achieving the zero symptom level, a difference was observed between a) physical and behavioral recovery and emotional maturity and educational age. The subjects tended to quickly achieve age appropriate physical skills, abilities and temperament coinciding with normal health, however in terms of learned behaviors, the children have tended to behave as if the years they 'lost' to autism never happened. The subjects have been able to learn quickly, eagerly, and with apparent ease, beginning again from the place in time that they became autistic. Conclusions: The present study has described a method for long-term study of autism and other chronic conditions. Elimination of food-related reactions entirely and indefinitely allowed effects of environmental chemicals to be thoroughly studied without other complicating symptoms present. Clean rooms established in homes were an important tool for conducting long term studies that maintained full symptom relief for 12 months and longer through complete, sustained elimination of dietary symptoms and sustained elimination of environmental exposures to levels as low as ppq. Added advantages included social contacts in comfort of home and family, and reduced cost. It was important to study autistic children as a group, rather than limiting the study to an allergic subset. Autistic children proved to be a particularly appropriate group for research study and observation. Initially unaffected by social contexts, the autistic subjects acted out the ways they were affected by their environment without the altering effects of societal influences; and severity of the adverse effects made observation and study easier. There appeared to be nothing inherently wrong with autistic children studied. The children in the program (universal diet and clean room) returned to normal physically, in temperament, in awareness of surroundings and others, in emotions and empathy, and in ability to learn. The children were, however, initially deficit in learned behaviors and skills that must be taught; apparently in these areas they had remained at the level present at the time of initial diagnosis of autism. In the present program, the autistic children demonstrated ability to rapidly and enthusiastically learn and begin catching up. Children began progressing through the normal stages of learning and social development in their clean rooms. Based on the results of the present study, a broad spectrum of severe and chronic autistic symptoms appear to be environmentally based, apparently caused by chronic exposure to volatile organic compounds, and appear to be fully reversible in the proper environment. There was a strong, predictable correlation between symptom levels and environmental exposures. The results suggest strongly that the autistic condition of the children studied, was the result of chronic exposure to volatile organic compounds. It is difficult to stress adequately the importance of expanding autism research to include research on environmental factors such as constant exposure to an ever-changing milieu of volatile organic compounds. Acknowledgements: The author gratefully acknowledges the role of parents in this investigation. Parents dutifully carried out detailed instructions, and with training became the crucially important volunteer observers, providing tens of thousands of hours of careful observation that made the present study possible. The author gratefully acknowledges the assistance of Mr. Greg Zwata, who performed exposure assessments. Funding for this study was provided by Applied Science and Technology International, Inc., an environmental consulting and research organization. References: Slimak, K. M. (2001) Effect of Removal of Low Levels of Volatile Organic Compounds on Severe Autistic Behaviors in Children. Conference on Science For the Public Good, Association for Science in the Public Interest, Virginia Commonwealth University, Richmond, Virginia. Slimak, K. M. (2002) In 45 autistic children sharp decreases in autistic symptoms follow elimination of problem foods, volatile organic compounds, plastics, resins, and molds, Second International Conference On Advances In Treatment Of Autistic Spectrum Disorders, Opening Doors - New Biological Treatment Alternatives, Sociedad Venezolana para Niños y Adultos Autistas (SOVENIA), Colegio de Médicos del Distrito Metropolitano de Caracas, Caracas, Venezuela. > I agree this sounds extremely drastic and I have big doubts that it would > really create a lasting difference, but I do not believe it is child abuse. We > got some comments like that early on when we chose to do a Son-Rise program for > many hours a day in one room designed to limit distractions and sensory > overload. A child can do fine and progress quite wonderfully in a small room as > long as good stimulation is provided. In fact, many sensorily- overloaded kids > do quite well when removed from the real world for awhile until they can better > communicate and handle the enormous onslought of sensations the world > bombards them with. Since the mother will be with the child much of the time, I > assume she'll be working 1:1 with him. But then it would be hard to distinguish > whether the progress is coming from intensive attention or the clean room. > > I would find it very interesting to see what happens with the children if > this is used with many. Having a child who used to be and often still is quite > sensative to chemicals and allergens in the world, it makes sense to me that a > general detox and clean room environment may play a huge role in healing but I > wonder if the effect would be lasting if the child's body still cannot > respond properly to chemicals. I hope any parents choosing this route would have a > good doctor working with them to help the children's immune systems regulate > themselves better so when they are re-exposed, they don't crash. > Gaylen > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 While I am not condoning this type of treatment, below is a study that was conducted on a test group of kids. (I copied this from the list, where it was previously posted and received mostly positive comments.) Do keep in mind, as this treatment is being condemned as child abuse, that many consider using medications in an off-label manner, such as SSRI's on our kids, that this can be considered abuse as well. This parent probably believes in her heart, as each of us do in the treatment methods that we choose for our kids, that this is the best option at this moment in time for her children. Just my 2 cents... - Subject: Reduction of Autistic traits following Dietary Intervention and Elimination of Exposure to Environmental Substances / Abstract Slimak, K. 2003 Reduction of autistic traits following dietary intervention and elimination of exposure to environmental substances. In Proceedings of 2003 International Symposium on Indoor Air Quality and Health Hazards, National Institute of Environmental Health Science, USA,and Architectural Institute of Japan, January 8-11, 2003, Tokyo, Japan, vol 2, pp 206-216. Reduction of autistic traits following dietary intervention and elimination of exposure to environmental substances M. Slimak, M.S., Principal Investigator President, Applied Science and Technology International, Inc. (ASTi) ______________________________________________________________________ __ Keywords: Autism, environment, symptoms, food, exposure, obsession, behavior, clean-room, sniffing, breath, body fluids, molds, volatile organic compounds Abstract: Effects of environmental exposure were isolated and studied in 49 autistic children. Elimination of food-related reactions entirely allowed effects of environmental chemicals to be thoroughly studied indefinitely in the absence of food-related symptoms. Initially unaffected by social contexts, the autistic subjects acted out the ways they were affected by their environment without the altering effects of societal influences; and severity of the adverse effects made observation and study easier. There was a strong correlation between environmental exposure levels and autistic symptoms and behaviors. There appeared to be nothing inherently wrong with autistic children studied. The children in the program (universal diet and clean room) returned to normal physically, in temperament, in awareness of surroundings and others, in emotions and empathy, and in ability to learn. Based on the results of the present study, a broad spectrum of severe and chronic autistic symptoms appear to be environmentally based, apparently caused by chronic exposure to volatile organic compounds, and appear to be fully reversible in the proper environment. Contact: M. Slimak ASTi, Springfield, VA Telephone: 703-644-0991 Fx: 703-644-1006; ______________________________________________________________________ __ Reduction of autistic traits following dietary intervention and elimination of exposure to environmental substances M. Slimak, M.S. President, Applied Science and Technology International, Inc. (ASTi) ______________________________________________________________________ _ Introduction: The present research program traces its origin back more than 20 years to an in-house study at ASTi involving dietary intervention food trials. In the study, although unexpected, strong symptoms were observed and repeatedly associated with non-food environmental exposures. This early study was broadened to include a study of the non-food symptoms resulting from environmental exposures. A second in house research effort was also begun whose goal was to develop a dietary approach that would fully eliminate food related symptoms so that symptoms associated with other environmental exposures could be isolated and observed for long periods of time. An effective rotation diet of unusual tropical root crops and other unusual foods was developed. This diet was found to quickly eliminate food- related symptoms of subjects while providing optimal nourishment. The diet has been used successfully to study the symptom changes associated with sequential removal of environmental exposures over long periods of time (3-12 months per person) in approximately 1000 individuals. The results reported herein were possible to obtain because symptoms caused by diet were consistently and completely eliminated from the symptom array in all subjects studied (Slimak 2001, 2002). Method: 49 children, ages 2-17 with diagnoses ranging from severe autism to PDD were each studied for periods ranging from 3 to 12 months. Initial autistic and physical symptoms and complaints were rated (0-10) and again at weekly intervals after the subjects entered the program. Each subject was placed on the diet described above. Three environmental avoidance approaches were employed to study the role of environmental chemicals in autistic children. In Group I (14 subjects) there was no initial environmental avoidance; in Group II (27 subjects) there was moderate initial environmental avoidance, and in Group III (8 subjects) there was complete environmental avoidance using a clean room. After parents of subjects in Groups I and II, began to observe and report symptoms associated with environmental exposures, the parents were directed to begin sequential removal of items associated with exposure during weeks 3-52 of the program. This provided the opportunity to observe the symptom fluctuations that occurred as environmental exposures were eliminated sequentially. Trained volunteers (primarily parents and other family members) observed the children closely between 20-60 hours weekly in the home. This made it possible to extend periods of time for data collection, and many additional data points were obtained in a naturalistic setting. In weekly meetings between each parent and staff, details of observations were discussed, and symptom assessments, environmental implementation evaluations and problem solving assessments were conducted. Separately, environmental exposure was rated, as a single blind study. A group of 18 non-autistic children diagnosed with food allergies and chemical sensitivities were also studied in the program; these children also followed the above protocol: Group I - 4 subjects, Group II - 10 subjects, Group III - 4 subjects. Results: In Groups I and II it was possible to separate symptoms associated with foods from symptoms associated with non-food, environmental exposures, Table 1. In Groups I and II, during sequential removal of items associated with environmental exposures, unanticipated actions were observed in the autistic children studied. These included: 1) autistic children Table 1. Food-related symptoms vs. symptoms associated with environmental exposures. Food-related Environmental exposure-related Digestive symptoms 67% 23% Other physical symptoms 50% 50% Neurological symptoms 15% 85% were consistently observed hoarding or attempting to hide scented items 2) Many cycles of reduced symptoms (following object removal) and increased symptoms (following selection of a new item) were observed. Fig.1 Presents results obtained for sensory sensitivity between weeks 14 and 40. The seven points at which symptoms associated with sensory sensitivity dropped to 'zero' followed the removal of an object of obsession or elimination of an obvious source of exposure. Between weeks 14 and 40, the seven peaks showing increased symptoms occurred immediately after the child selected and began obsessing with a new object. This pattern of symptom fluctuation was consistently observed in Groups I and II for all symptom categories except for muscle weakness and low muscle tone. To study symptom fluctuations and obsessive behaviors further, parents of children in Groups I and II were instructed to 1) allow their children to continue obsessive interactions with objects without interference, and 2) change the object to prevent exposure to volatile organic compounds without the child's knowledge. For example, carbon filters were surreptitiously installed on tap water lines for obsessive toilet flushers; and sand was carefully cleaned for obsessive sifters. It was found that the children would begin to interact with the object as usual and then would stop within moments with a very confused, perplexed facial expression. They would examine the object, smell it, look at the item again, smell it again, and put the object down. This process was repeated with decreasing frequency as the children lost interest in the object; the behavior was spontaneously extinguished in time periods ranging from 1 day to 10 weeks. Table 2 presents a partial list of obsessive/compulsive behaviors studied. In the absence of environmental exposures, no obsessive behavior continued in the subjects studied. Table 2. Obsessive, compulsive behaviors eliminated following surreptitious removal of scent components. Sifting hand washing hand wringing TV/video obsessions lining hair smelling face slapping door closing and shutting pica toilet flushing stick picking up toy smelling. As a result of these observations, it became apparent that effects associated with chemical exposure were much greater than initially anticipated. The study was expanded to include a a study of a group of children in clean rooms (Group III). Figure 2. Presents the overall symptom reduction achieved by subjects on the program. In Groups I and II strong determined seeking behaviors described above complicated the process and increased the time necessary to achieve a suitably clean environment in which no symptoms were present. Group III, with the reliance on a clean room, while much faster, still did not provide the rapid plummet of symptoms to '0' that was expected. As is illustrated in Fig. 3, it was found that the seeking behaviors continued in the clean room and , finally, included resorting to use of breath and body fluids, when nothing else was available. This enabled the subjects to continue exposures and reactions for several weeks longer than expected. After a few days in the clean room, the children's sense of smell appeared to become particularly acute. They were observed sniffing the air and following micro scent plumes to a source, such as a tiny point in the wall of the clean room, where the seal was not intact. The children were observed behaving as if strongly attracted to the highly diluted tails of micro-plumes estimated to be 100-1000 times below the ppt (part per trillion) level in the clean rooms, and following these micro-plumes to their more highly concentrated source. The children were observed returning to the point source where the hair- thin plumes were most highly concentrated, and sniffing briefly several times each day. The symptom levels increased as is shown in Fig. 3 until the areas were sealed, after which time the symptom levels again dropped rapidly. After micro-plumes from pinpoint sources were eliminated, a new problem was observed. Children began sucking on clothing, making 'tents' of bedding, and the like, and emerging with glassy stares, disconnected behaviors, and again with elevated symptom levels. This was addressed by requiring subjects, and caregivers to switch to clothing and materials whose pristine nature matched the ppt and ppq levels needed. Many of these items have had to be developed in our program. The change to pristine materials was the final change necessary to eliminate the surge of symptoms associated with seeking behaviors that had been occurring between weeks 4-10, Fig. 3. After the clean rooms were sealed and materials inside the rooms were sufficiently pristine, autistic children in the clean rooms became frantic. The children abruptly became disinterested in objects (now pristine) and became very interested in their bodies and body fluids. Although obsessing with body parts and body fluids occurs in some autistic children, this behavior was not found in the subjects prior to the study. For a period of several weeks the autistic children in the clean rooms of the present study were observed consistently and purposefully manipulating their breath and body fluids. Although the children in the study did not try to find a way out of the room, the children were consistently observed trying desperately to recreate a polluted environment in the room. In the pristine clean room autistic children have been routinely observed: 1) with hands to face in a corner, 'huffing' their own breath, 2) holding hands over mouth and nose to trap and rebreathe breath, 3) standing on their heads to allow their shirts to fall over their faces and trap their breath, 4) spreading saliva over arms, legs, hair, body, 5) spreading saliva in thin layers over walls, floors, and windows, 6) urinating behind furniture where mold will easily grow, 7)urinating on floor and running through the urine repeatedly to spread it thinly throughout the room, 7) spreading saliva, urine, or stool onto wood and any porous material available, 8) placing hands inside pants and then wiping hands on walls, floor or self, and 9) spreading body fluids in as many cracks and crevices as possible to promote mold growth. New procedures have had to be developed to eliminate or prevent the above-described problems. For each child, as soon as this final type of exposure was eliminated, the symptoms were fully eliminated. Figure 4. Compares non-food symptom levels and environmental exposure levels, revealing a strong predictable correlation that cannot be explained by chance alone. For subjects with most severe symptoms (A), adj R sq = 0.581, for moderate (, adj R sq = 0.385. For mild ©, adj R sq = 0.454. The analysis of variance of the regression model shows that the exposure levels were a significant predictor of symptoms of the subjects studied. Thus, there is little doubt that the relationship of exposure levels to symptoms is not due to chance alone. These data reveal a convincing and predictable pattern. Because the regression curves cross the x-axis (B, C) or intersect at the origin (A), the data show non-food symptoms were fully eliminated by eliminating the remaining environmental exposures. Because the slopes of A, B, and C linear regressions are essentially the same, comprehensive initial symptom rankings may have predictive value, particularly in indicating early the extent of environmental cleanup that is likely to be necessary. Especially for children in Group III, the older, severely autistic group, after achieving the zero symptom level, a difference was observed between a) physical and behavioral recovery and emotional maturity and educational age. The subjects tended to quickly achieve age appropriate physical skills, abilities and temperament coinciding with normal health, however in terms of learned behaviors, the children have tended to behave as if the years they 'lost' to autism never happened. The subjects have been able to learn quickly, eagerly, and with apparent ease, beginning again from the place in time that they became autistic. Conclusions: The present study has described a method for long-term study of autism and other chronic conditions. Elimination of food-related reactions entirely and indefinitely allowed effects of environmental chemicals to be thoroughly studied without other complicating symptoms present. Clean rooms established in homes were an important tool for conducting long term studies that maintained full symptom relief for 12 months and longer through complete, sustained elimination of dietary symptoms and sustained elimination of environmental exposures to levels as low as ppq. Added advantages included social contacts in comfort of home and family, and reduced cost. It was important to study autistic children as a group, rather than limiting the study to an allergic subset. Autistic children proved to be a particularly appropriate group for research study and observation. Initially unaffected by social contexts, the autistic subjects acted out the ways they were affected by their environment without the altering effects of societal influences; and severity of the adverse effects made observation and study easier. There appeared to be nothing inherently wrong with autistic children studied. The children in the program (universal diet and clean room) returned to normal physically, in temperament, in awareness of surroundings and others, in emotions and empathy, and in ability to learn. The children were, however, initially deficit in learned behaviors and skills that must be taught; apparently in these areas they had remained at the level present at the time of initial diagnosis of autism. In the present program, the autistic children demonstrated ability to rapidly and enthusiastically learn and begin catching up. Children began progressing through the normal stages of learning and social development in their clean rooms. Based on the results of the present study, a broad spectrum of severe and chronic autistic symptoms appear to be environmentally based, apparently caused by chronic exposure to volatile organic compounds, and appear to be fully reversible in the proper environment. There was a strong, predictable correlation between symptom levels and environmental exposures. The results suggest strongly that the autistic condition of the children studied, was the result of chronic exposure to volatile organic compounds. It is difficult to stress adequately the importance of expanding autism research to include research on environmental factors such as constant exposure to an ever-changing milieu of volatile organic compounds. Acknowledgements: The author gratefully acknowledges the role of parents in this investigation. Parents dutifully carried out detailed instructions, and with training became the crucially important volunteer observers, providing tens of thousands of hours of careful observation that made the present study possible. The author gratefully acknowledges the assistance of Mr. Greg Zwata, who performed exposure assessments. Funding for this study was provided by Applied Science and Technology International, Inc., an environmental consulting and research organization. References: Slimak, K. M. (2001) Effect of Removal of Low Levels of Volatile Organic Compounds on Severe Autistic Behaviors in Children. Conference on Science For the Public Good, Association for Science in the Public Interest, Virginia Commonwealth University, Richmond, Virginia. Slimak, K. M. (2002) In 45 autistic children sharp decreases in autistic symptoms follow elimination of problem foods, volatile organic compounds, plastics, resins, and molds, Second International Conference On Advances In Treatment Of Autistic Spectrum Disorders, Opening Doors - New Biological Treatment Alternatives, Sociedad Venezolana para Niños y Adultos Autistas (SOVENIA), Colegio de Médicos del Distrito Metropolitano de Caracas, Caracas, Venezuela. > I agree this sounds extremely drastic and I have big doubts that it would > really create a lasting difference, but I do not believe it is child abuse. We > got some comments like that early on when we chose to do a Son-Rise program for > many hours a day in one room designed to limit distractions and sensory > overload. A child can do fine and progress quite wonderfully in a small room as > long as good stimulation is provided. In fact, many sensorily- overloaded kids > do quite well when removed from the real world for awhile until they can better > communicate and handle the enormous onslought of sensations the world > bombards them with. Since the mother will be with the child much of the time, I > assume she'll be working 1:1 with him. But then it would be hard to distinguish > whether the progress is coming from intensive attention or the clean room. > > I would find it very interesting to see what happens with the children if > this is used with many. Having a child who used to be and often still is quite > sensative to chemicals and allergens in the world, it makes sense to me that a > general detox and clean room environment may play a huge role in healing but I > wonder if the effect would be lasting if the child's body still cannot > respond properly to chemicals. I hope any parents choosing this route would have a > good doctor working with them to help the children's immune systems regulate > themselves better so when they are re-exposed, they don't crash. > Gaylen > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 But then what will they do to keep the toxins from returning after the child leaves the " clean room " ? Our kids are exposed to the same toxins as every NT child but our children are not able to detoxify the way NT kids can. So I'm wondering, are they doing all this for nothing since I would assume the child will still have the inability to detox(MT protein dysfunction) when this is all over? a Re: Re: " clean room " therapy...what in the world??? The child abuse has already been done for many of our children by us and our doctors when the vaccines were administered at birth. This parent is attempting to detox her child. This child most likely already lives in hell by his inability to communicate. If he emerges in a year with speech, he will be happier. The specialist will be monitoring the child as he goes through the year long study (I would think). If every 1/2 hour becomes too much they will probably decrease it as they will also decrease the baths (again, I would think). The baths will probably get the toxins off the skin before they are reabsorbed. Some parents can take on challenging therapies and be successful (ex: Lorenzo's Oil). > sorry, after further research i have found that this article came > from Boseman, MT.... > > i am completely ticked off!!! the boseman chronicle is promoting > child abuse by printing this article...my mother-in-law and i are > looking into the childs' rights...does anyone agree out there that > this is child abuse?? if you disagree; please let me know..i don't > want to take the parents to the stake but, come on!! what is wrong > with us when we want to lock our child up in an inclosed room for a > year!!! my son couldn't take that for a couple of hours..he has to > open the door every now and then just to feel > comfortable...UGH!!!!!!!!!! if i could say what i really want to say; > i would probably be struck by lightening! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 But then what will they do to keep the toxins from returning after the child leaves the " clean room " ? Our kids are exposed to the same toxins as every NT child but our children are not able to detoxify the way NT kids can. So I'm wondering, are they doing all this for nothing since I would assume the child will still have the inability to detox(MT protein dysfunction) when this is all over? a Re: Re: " clean room " therapy...what in the world??? The child abuse has already been done for many of our children by us and our doctors when the vaccines were administered at birth. This parent is attempting to detox her child. This child most likely already lives in hell by his inability to communicate. If he emerges in a year with speech, he will be happier. The specialist will be monitoring the child as he goes through the year long study (I would think). If every 1/2 hour becomes too much they will probably decrease it as they will also decrease the baths (again, I would think). The baths will probably get the toxins off the skin before they are reabsorbed. Some parents can take on challenging therapies and be successful (ex: Lorenzo's Oil). > sorry, after further research i have found that this article came > from Boseman, MT.... > > i am completely ticked off!!! the boseman chronicle is promoting > child abuse by printing this article...my mother-in-law and i are > looking into the childs' rights...does anyone agree out there that > this is child abuse?? if you disagree; please let me know..i don't > want to take the parents to the stake but, come on!! what is wrong > with us when we want to lock our child up in an inclosed room for a > year!!! my son couldn't take that for a couple of hours..he has to > open the door every now and then just to feel > comfortable...UGH!!!!!!!!!! if i could say what i really want to say; > i would probably be struck by lightening! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 well i will reply to this, i am a mother that loves her child and i would do what it takes for my child to have a normal life. no matter what others think, oppinions are like the anus entry , everyone has one. Furthermore, i have a child that does nothing but stay in his room and wont come out , wont include me in his world and it dont bother him one bit to stay in that room , but it buggs the heck out of me. i have tried most things known to man to get him out of his room and he is jusat not interested. so i guess i am on the opposite end of the autism spectrum end autism varies in so many degrees. i feel so much for the parents who have the kids that never stop i have been there with joe, i dont know what changed it alll i guess it was alll my praying but now i cant get him to come out or even talk to me half the time. so can agree with both sides of the fence, but as a mom, i would do what it takes to help my child..... point blank terri mom of joe & chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 well i will reply to this, i am a mother that loves her child and i would do what it takes for my child to have a normal life. no matter what others think, oppinions are like the anus entry , everyone has one. Furthermore, i have a child that does nothing but stay in his room and wont come out , wont include me in his world and it dont bother him one bit to stay in that room , but it buggs the heck out of me. i have tried most things known to man to get him out of his room and he is jusat not interested. so i guess i am on the opposite end of the autism spectrum end autism varies in so many degrees. i feel so much for the parents who have the kids that never stop i have been there with joe, i dont know what changed it alll i guess it was alll my praying but now i cant get him to come out or even talk to me half the time. so can agree with both sides of the fence, but as a mom, i would do what it takes to help my child..... point blank terri mom of joe & chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 u all wouldnt go crazy, u would love you & your child even more. i live in a very small apartment for a reason it keeps us close and in eye view, and i wont move because it could become more problems, with more space. so a small setting is good most of the time, now the food eating would drive him mad but anyone that gets hungry will eat. fruits & vegetables were always the best known food to man years and e-ons ago terri mom of joe & chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 u all wouldnt go crazy, u would love you & your child even more. i live in a very small apartment for a reason it keeps us close and in eye view, and i wont move because it could become more problems, with more space. so a small setting is good most of the time, now the food eating would drive him mad but anyone that gets hungry will eat. fruits & vegetables were always the best known food to man years and e-ons ago terri mom of joe & chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 a, Unless the parents have given a more detailed interview, I don't know what they think will happen after their one year stay. I would think they are lightening up the toxin load with the goal of activating the systems own detox which will be able to handle the daily toxins once the room is left. The person heading this project must have an idea what will happen once they rejoin us in this polluted world (but then again, if we are still being vaccinated with toxins while the CDC, FDA and all those other agencies just stand by, maybe not). I also would like to know how the other 49 are doing. During my son's Lovaas Therapy, there were days that he was in therapy for 6 to 8 hours. He functioned better if he was actively engaged because if he wasn't he'd stim (sp) the 8 hours plus more. The Ph.D. didn't seem to think this was abuse and perhaps that was because during the 8 hours he was engaged by two separate therapist. Can someone tell me if the room can be abandoned if it becomes difficult? If yes, then I just don't think it is child abuse. I also agree with Terri because there was a time when my son was content to stay in his room 24/7. > In a message dated 6/27/03 1:31:23 PM Central Daylight Time, > jzsell@... writes: > > >But then what will they do to keep the toxins from returning after the > >child leaves the " clean room " ? Our kids are exposed to the same toxins as > every > >NT child but our children are not able to detoxify the way NT kids can. So > > >I'm wondering, are they doing all this for nothing since I would assume the > > >child will still have the inability to detox(MT protein dysfunction) when > this > >is all over? > > That's pretty much my thoughts except there are many cases where allergies > have reversed themselves permantly after a child is kept away from a > substance > for a year or so. Perhaps limiting potential immune system activators would > > allow the child's body's immune system to re-regulate itself. > > Someone mentioned that 49 kids have done this therapy so far. Does anyone > know what the results were -- have they emerged out of the room healed and > what > were the long-term results? > Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 a, Unless the parents have given a more detailed interview, I don't know what they think will happen after their one year stay. I would think they are lightening up the toxin load with the goal of activating the systems own detox which will be able to handle the daily toxins once the room is left. The person heading this project must have an idea what will happen once they rejoin us in this polluted world (but then again, if we are still being vaccinated with toxins while the CDC, FDA and all those other agencies just stand by, maybe not). I also would like to know how the other 49 are doing. During my son's Lovaas Therapy, there were days that he was in therapy for 6 to 8 hours. He functioned better if he was actively engaged because if he wasn't he'd stim (sp) the 8 hours plus more. The Ph.D. didn't seem to think this was abuse and perhaps that was because during the 8 hours he was engaged by two separate therapist. Can someone tell me if the room can be abandoned if it becomes difficult? If yes, then I just don't think it is child abuse. I also agree with Terri because there was a time when my son was content to stay in his room 24/7. > In a message dated 6/27/03 1:31:23 PM Central Daylight Time, > jzsell@... writes: > > >But then what will they do to keep the toxins from returning after the > >child leaves the " clean room " ? Our kids are exposed to the same toxins as > every > >NT child but our children are not able to detoxify the way NT kids can. So > > >I'm wondering, are they doing all this for nothing since I would assume the > > >child will still have the inability to detox(MT protein dysfunction) when > this > >is all over? > > That's pretty much my thoughts except there are many cases where allergies > have reversed themselves permantly after a child is kept away from a > substance > for a year or so. Perhaps limiting potential immune system activators would > > allow the child's body's immune system to re-regulate itself. > > Someone mentioned that 49 kids have done this therapy so far. Does anyone > know what the results were -- have they emerged out of the room healed and > what > were the long-term results? > Gaylen Quote Link to comment Share on other sites More sharing options...
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