Guest guest Posted December 12, 2004 Report Share Posted December 12, 2004 I'm back in action..... took awhile to heal... but the broken neck is now unbroken. Darnit.. I really liked using that as an excuse ! Mike... So Often Parents will email me with the same problem although it may be a different 'situation'. They KNOW what their child needs. Parents that call me KNOW EXACTLY what their child needs or have a good idea - it's too bad school district administrators didn't spend more time listening to parents and less time trying to figure out how to pay the attorneys they end up paying when they DON'T LISTEN !! My newest approach (after almost a decade lobbying and advocating Nationally) is to try to find the Administrators that will 'cough' up a program ....then... we SPREAD the word so that others in the community with similar needs may get a similar program for their child. I have a child with a very intense program...of course it took me taking his district to due process 4 times (settled all 4 like usual with almost all cases - very few are actually heard). Anyway, I have found it alot more effective to work with parental groups vs. individual parents as there is a 'parent base' that generally have children in the same schools. This allows us to examine the treatment of one child in comparison to the next within that area and see if the district is 'pulling the wool' over the eyes of a parent that doesn't quite know all the ropes yet in this very " Tarzan Like " game of fighting for Free and Appropriate Educations for our children. As more and more parents get involved and help each other - we slowly wean out the need for expensive attorneys we can't afford. I could afford it in 96 when I started the Office of Advocacy for Autistic/Disabled Children - but it was the point of it. Why should I pay out 5 grand to some guy that knows nothing of Autism and nothing about the people I'm going against. I tried a local advocate and basically just stole the show and spoke over the advocate...excusing him before it was over as he had nothing really to say and wasn't backing me up. It took yet another due process to get my son the program he needed - I made a huge stink about it and it got in the papers. I went from Lobbying in my county to across my state and then the Nation.... Eventually ending up Registered as a U.S. Civil Rights Lobbyist in D.C., CA., and with the Dept. of Def. . I have kept my lobbying interest defined solely to ASD's and the help WE as parents need. I've worked hard to keep parents from spending a ton of money they can't afford on attorneys that generally don't have the knowledge (I'm definately not speaking about Pete ,Esquire or others like Jeff Sell, etc. !!!!) or the TIME to actually help parents the way they need it. Not JUST Advocacy and Lobbying combined (my speciality)...but Moral support. Something that all of us...including myself (hard to believe for some) NEED. We are ONE UNIT.... and need to consolidate into ONE centralized unit although maintaining local support groups. By using one umbrella we can make a HUGE STANCE. WE can SPEAK by the HUNDREDS OF THOUSANDS and growing. We can SPEAK as those effected or affected by an ACTUAL EPIDEMIC that not even the U.S. Dept. of Education can deny. Nobody can. I know this simply... I started in 96... the rate of prevalance was about 4 per 10,000 children....... WHATS UP with 1 in 125 ???? I think our Nation needs to stop nitpicking at peanut issues and start looking toward the future......our children... and especially towards the COST of THAT future to this country and to the parents and caregivers that hang in there because they love the individual .... the Individual is their blood or someone they've cared for... The Individual generally NEVER goes through his/her education with a PROPER INDIVIDUAL EDUCATION PLAN. If you think you're having problems with yours or if you think your child deserves more.... Contact us at this email address of Peaceforkids2005@... and tell us your story. We take out names unless its authorized.... and we send those exact stories to YOUR state legislators and U.S. Senators/U.S. Congressmen for YOUR district where you live.... along with our 'opinion' of what is going on. If you want to take the bull by the horns... we don't take ANYTHING out of your 'story' and tell the Senator/Congressmen to contact us regarding this situation. Almost ALL do !!! So many people complain but NOT to the right people. NO U.S. Senator wants his 'district' in shambles or in a state of 'negative media' regarding such services as education. Education is a huge issue accros the country and U.S. Senators will bear down HARD on the state senators where they are from if there are complaints. This way.... there is NO concern of any 'retaliation' (Although after the 600,000.00 judgement in the favor of the parents in the FL. case for retaliation after 30 mins. of missed speach therapy has brightened many dim bulbs in the field of Administration of Education). I generally handle a case by trying to Civily work it out while I prepare and actually DO attack from the very top down if the case is bad enough....for example... the child is out of school...the school won't provide an appropriate education...or there has been an injury or removal of the child.... In cases such as this I work aggressively to STOP local action and as well work from the 'Top Down' bringing on HEAVY HEAT to the non compliars through the use of pressure on the legislators that may or may not get re-elected in your district based on things like EDUCATION ! The schools get down and dirty with some of the things they do.... So, They have to deal with an aggressive 'will not take no for an answer' person or they think they can run you over. DO NOT get ran over....it's your child's future. Free Online Advocacy .....just Email us. We also do Teleconference Advocacy and soon back to in person advocacy Nationwide. E. , Sr. U.S. Civil Rights Lobbyist, DC, CA, DoD Director, The Office of Advocacy for Autistic/Disabled Children Lil Mikey's Daddy " We speak for those who can not......and we do so with POWER " Quote Link to comment Share on other sites More sharing options...
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