Regarding Hi-New to the Group

[Guest guest]

Welcome!

I would defintely hold off on bone marrow if it were me. A spinal tap even

sounds tremendously severe at this point. I'm not saying they might not be

necessary tests as some point - but wow!

Read up and get informed. I'm finding a lot of the doctors hear about in

conferences, but I find even the good ones are not always up on the latest

treatment methods like Singulair.

There are some differences of opinion on approach to treatment, but if you are

informed you can go a long way in making those decisions for your family.

This is a fantastic resource. Do keep in mind, however, that there are folks

that post that have children with different disorders, not all .

Best of luck to you.

Ginger, Atlanta, GA

Daughter - le, 28 months ( since 7-12 months), T & A on 12/11/07

Son - Jay, 7 months.

~Ginger

Systems Solutions Principal, CAR Financial Services

Work: (770) 828-1397

TREO: (404) 915-5035

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